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flair ..fcr
hi all i have had cll from 2012 i have been on w&w my question is i have signed up for the flair trail Manchester Christie i got phone call this week saying i was randomized for FCR my age is 57yrs i have no tp53 or any other abnormal readings and i dont know what my mutations are etc mutated or unmutated
hi all i have had cll from 2012 i have been on w&w my question is i have signed up for the flair trail Manchester Christie i got phone call this week saying i was randomized for FCR my age is 57yrs i have no tp53 or any other abnormal readings and i dont know what my mutations are etc mutated or unmutated
kel555
in
CLL Support
4 years ago
Change away from FCR
https://www.onclive.com/view/dr-ghia-on-the-shift-from-chemotherapy-to-novel-agents-in-cll&ct. I guess this is the general and hopefully costs will come down so more of the world can benefit
https://www.onclive.com/view/dr-ghia-on-the-shift-from-chemotherapy-to-novel-agents-in-cll&ct. I guess this is the general and hopefully costs will come down so more of the world can benefit
Research123
in
CLL Support
4 years ago
CLL treatment prognosis
Hi all, I was told at my consult this week that because of the way my CLL was - the word immature was used - that I would not be one of the lucky people who have the FCR course of treatment and then nothing again for years. I’m about to start on the Flair programme next month. Does this mean my overall
Hi all, I was told at my consult this week that because of the way my CLL was - the word immature was used - that I would not be one of the lucky people who have the FCR course of treatment and then nothing again for years. I’m about to start on the Flair programme next month. Does this mean my overall
HarryMet
in
CLL Support
4 years ago
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Lumps under armpits
I have large swellings under both armpits. My GP says they are swollen lymph nodes each the size of half a tennis ball. Painless to the touch but beginning to give me a stinging pain as I move. I was diagnosed 2006 and had fcr 3 years ago. Lymphocytes are just under 200 but generally blood counts are
I have large swellings under both armpits. My GP says they are swollen lymph nodes each the size of half a tennis ball. Painless to the touch but beginning to give me a stinging pain as I move. I was diagnosed 2006 and had fcr 3 years ago. Lymphocytes are just under 200 but generally blood counts are
aloneifly
in
CLL Support
4 years ago
Report from CLL Webinar: Prof Hillmen, 10th June 2020
I attended a webinar hosted by the CLL Support Association and Leukaemia Care. Thanks to everyone responsible for organising the event, I found it most informative. The guest keynote speaker was Prof. Peter Hillmen, Consultant in Clinical Haematology at Leeds Teaching Hospitals NHS Trust and Honorary
I attended a webinar hosted by the CLL Support Association and Leukaemia Care. Thanks to everyone responsible for organising the event, I found it most informative. The guest keynote speaker was Prof. Peter Hillmen, Consultant in Clinical Haematology at Leeds Teaching Hospitals NHS Trust and Honorary
Davdow
in
CLL Support
4 years ago
Ibrutinib V Venetoclax + Rituximab
I had FCR treatment for CLL about 6 years ago but a number of lymph nodes now getting lumpy. I am being offered either Ibrutinib or Venetoclax +Rituximab. My consultant favours the the latter (V+R) and I will probably go with his recommendation. Do any of you out there have any views or advice to give
I had FCR treatment for CLL about 6 years ago but a number of lymph nodes now getting lumpy. I am being offered either Ibrutinib or Venetoclax +Rituximab. My consultant favours the the latter (V+R) and I will probably go with his recommendation. Do any of you out there have any views or advice to give
pool8
in
CLL Support
4 years ago
CLL/SLL Roundtable: Updates on Patient Management (including low dose radiation treatment for early stage SLL)
However, if I am being a purist, I would say that one could select the combination of ibrutinib plus rituximab for patients who are similar to those in the ECOG 1912 trial: younger, fit patients with no previous therapy who are candidates for
fludarabine
/cyclophosphamide/rituxi[/i] [i]The second-generation
However, if I am being a purist, I would say that one could select the combination of ibrutinib plus rituximab for patients who are similar to those in the ECOG 1912 trial: younger, fit patients with no previous therapy who are candidates for
fludarabine
/cyclophosphamide/rituxi[/i] [i]The second-generation
AussieNeil
Partner
in
CLL Support
4 years ago
Analysing and Resequencing Gene Panels from the UK CLL4 trial (1999-2004) is helping patients today.
The CLL4 study compared conventional chlorambucil therapy versus
fludarabine
- alone or in combination with cyclophosphamide - note there was no Rituximab in those days. End points were: survival, response to therapy, duration of response, toxicity and quality of life.
The CLL4 study compared conventional chlorambucil therapy versus
fludarabine
- alone or in combination with cyclophosphamide - note there was no Rituximab in those days. End points were: survival, response to therapy, duration of response, toxicity and quality of life.
Jm954
Administrator
in
CLL Support
4 years ago
Australians have your say in getting CLL medicines approved
Venetoclax in combination with obinutuzumab for the first-line treatment of patients with chronic lymphocytic leukaemia (CLL) and small lymphocytic lymphoma (SLL) who have coexisting conditions and are unsuitable for
fludarabine
based chemotherapy 2.
Venetoclax in combination with obinutuzumab for the first-line treatment of patients with chronic lymphocytic leukaemia (CLL) and small lymphocytic lymphoma (SLL) who have coexisting conditions and are unsuitable for
fludarabine
based chemotherapy 2.
lymphomaoz
in
CLL Support
4 years ago
FDA approval
I just read an article that stated that the FDA approves Ibrutinib plus rituximab for CLL on 4/21/2020 for INITIAL treatment. Approval was based on the E1912 trial. Patients with 17p deletions were excluded. The main efficacy outcome measure was progression-free survival. The patients were compared with
I just read an article that stated that the FDA approves Ibrutinib plus rituximab for CLL on 4/21/2020 for INITIAL treatment. Approval was based on the E1912 trial. Patients with 17p deletions were excluded. The main efficacy outcome measure was progression-free survival. The patients were compared with
kathymac52
in
CLL Support
4 years ago
Wishes
For a very odd Easter I wish you all lots of health and successes ! Seven month after FCR I feel very well and healthy and wish you all the same ! Anna
For a very odd Easter I wish you all lots of health and successes ! Seven month after FCR I feel very well and healthy and wish you all the same ! Anna
Ankakoza
in
CLL Support
4 years ago
Shield or not to shield - confusing advice
I was diagnosed with CLL in Spring of 2011 and undertook a variation of the FCR chemo treatment on the ARCTIC clinical trial in the Autumn. Several years ago I was advised that I was in full remission and see my consultant every 4-6 months. I have not received a letter or text from the NHS advising
I was diagnosed with CLL in Spring of 2011 and undertook a variation of the FCR chemo treatment on the ARCTIC clinical trial in the Autumn. Several years ago I was advised that I was in full remission and see my consultant every 4-6 months. I have not received a letter or text from the NHS advising
Hidden
in
Positive Wellbeing During Self-Isolation
4 years ago
My two year on ibrutinib check up
But fcr came off the table with my hemolytic anemia which contraindicates any
fludarabine
based treatment. So two years ago I took my first three capsules of ibrutinib. Now it’s one 420mg tablet. Anyone that says swallowing that first pill was not scary is probably lying.
But fcr came off the table with my hemolytic anemia which contraindicates any
fludarabine
based treatment. So two years ago I took my first three capsules of ibrutinib. Now it’s one 420mg tablet. Anyone that says swallowing that first pill was not scary is probably lying.
cajunjeff
in
CLL Support
4 years ago
ACCEPTED INTO LOXO-305 CLINICAL TRIAL
LOXO-305 TRIAL UPDATE TWO MONTHS IN Hey everyone, I started this trial on 2/02/2020 at Memorial Sloan Kettering in NJ. After being diagnosed in 2009 with CLL, I have been through 3 prior treatments, FCR, Ibrutinib and Venclaxta. I had a 5 1/2 year remission with FCR, 3 with Ibrutinib,and about 18
LOXO-305 TRIAL UPDATE TWO MONTHS IN Hey everyone, I started this trial on 2/02/2020 at Memorial Sloan Kettering in NJ. After being diagnosed in 2009 with CLL, I have been through 3 prior treatments, FCR, Ibrutinib and Venclaxta. I had a 5 1/2 year remission with FCR, 3 with Ibrutinib,and about 18
steve5441
in
CLL Support
4 years ago
Lymphocyte count after FCR
9 months after end of FCR and lymphocytes 0.50 Meaning immune system still weak So as from tomorrow self isolate Also now see anyone with the coronavirus . One thing is they always have a low lymphocyte count So if I got it my count could go more say 0.15 and alone how dangerous would that be ?
9 months after end of FCR and lymphocytes 0.50 Meaning immune system still weak So as from tomorrow self isolate Also now see anyone with the coronavirus . One thing is they always have a low lymphocyte count So if I got it my count could go more say 0.15 and alone how dangerous would that be ?
Jsk1950
in
CLL Support
4 years ago
Are we part of the vulnerable group.
Hi folks Given today’s announcement may be obvious but I’m 7 years post FCR and bloods good. Question, are we in the vulnerable group and should socially isolate for 12 weeks. Stated at press conference vulnerable with chronic conditions and mentioned leukaemia. Thanks
Hi folks Given today’s announcement may be obvious but I’m 7 years post FCR and bloods good. Question, are we in the vulnerable group and should socially isolate for 12 weeks. Stated at press conference vulnerable with chronic conditions and mentioned leukaemia. Thanks
Billys60
in
CLL Support
4 years ago
After FCR are we more vulnerable to CoVid 19?
Given that after FCR treatment we are more at risk of lung cancer, are we more susceptible to becoming very ill or dying if we catch Covid19? I worry because my lungs are so much more sensitive now. I finished FCR eighteen months ago and I start to cough if I am near an open fire. My lungs begin to ache
Given that after FCR treatment we are more at risk of lung cancer, are we more susceptible to becoming very ill or dying if we catch Covid19? I worry because my lungs are so much more sensitive now. I finished FCR eighteen months ago and I start to cough if I am near an open fire. My lungs begin to ache
Mandy56
in
CLL Support
4 years ago
Mutated and unmutated cll for dummies
When told I had chronic lymphocytic leukemia (cll) four years ago, all I heard was "leukemia". Google soon became my best friend and worst enemy. I just wanted to find out how long I had to live. My travels on the learning curve of cll were slow with many wrong turns. I figured out chronic leukemia
When told I had chronic lymphocytic leukemia (cll) four years ago, all I heard was "leukemia". Google soon became my best friend and worst enemy. I just wanted to find out how long I had to live. My travels on the learning curve of cll were slow with many wrong turns. I figured out chronic leukemia
cajunjeff
in
CLL Support
4 years ago
Travel advice.
Hi folks. My good lady has booked a holiday to Mexico for my 60th birthday. We are in Scotland. Read that it was not required to get injections however I’m wondering if in my condition it would be advisable. I’m coming up for 7 years post FCR. and so far doing really well. last checkup was 5 weeks
Hi folks. My good lady has booked a holiday to Mexico for my 60th birthday. We are in Scotland. Read that it was not required to get injections however I’m wondering if in my condition it would be advisable. I’m coming up for 7 years post FCR. and so far doing really well. last checkup was 5 weeks
Billys60
in
CLL Support
4 years ago
I would like to hear from people needing regular blood transfusions
Following from my recent post - "
Fludarabine
: rare side effect of destroying ability for red blood cell production in myself".. I am now going to need transfusions of packed red cells probably monthly. This started 5 months ago.
Following from my recent post - "
Fludarabine
: rare side effect of destroying ability for red blood cell production in myself".. I am now going to need transfusions of packed red cells probably monthly. This started 5 months ago.
Jotame
in
CLL Support
5 years ago
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