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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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The Big C....
I was diagnosed with CLL at 39, had
FCR
sailed through it, was in remission for 18 months and then it came back with a vengeance !!! R-chop for 2 cycles then stopped working as lymph nodes came back on neck, lost my hair !!! ...
I was diagnosed with CLL at 39, had
FCR
sailed through it, was in remission for 18 months and then it came back with a vengeance !!! R-chop for 2 cycles then stopped working as lymph nodes came back on neck, lost my hair !!! ...
JanetG
in
CLL Support
10 years ago
FLAIR: Front Line Assessment of Ibrutinib + Rituximab ("CLL10" Trial of IR vs FCR)
Just been to meet the treatment nurse, and collect the paperwork to apply for the FLAIR (CLL10) trial, which I’m told is now open. Hard to get my head around that 4 years of Watch and Wait may be coming to a close. My ALC was about 227 at the start of this month and yet I feel as fit as any time in
Just been to meet the treatment nurse, and collect the paperwork to apply for the FLAIR (CLL10) trial, which I’m told is now open. Hard to get my head around that 4 years of Watch and Wait may be coming to a close. My ALC was about 227 at the start of this month and yet I feel as fit as any time in
Ernest2
in
CLL Support
10 years ago
Lab Results Explained
u=95e772c8204bc929af9accd72&id=ffffcca4b4&e=61e37279eb Best Wishes, Andrew Schorr, Barcelona dx’ed 4/96
FCR
still in remission!
u=95e772c8204bc929af9accd72&id=ffffcca4b4&e=61e37279eb Best Wishes, Andrew Schorr, Barcelona dx’ed 4/96
FCR
still in remission!
andrewschorr
in
CLL Support
10 years ago
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Purpura rash with normal platelets
Had ITP 6 months before starting
FCR
Chemo for CLL. Platelets were up 'n' down during chemo to as low as 38. That was two years ago and still platelets are up 'n' down. In August they were 152 but still in range and no concerns.
Had ITP 6 months before starting
FCR
Chemo for CLL. Platelets were up 'n' down during chemo to as low as 38. That was two years ago and still platelets are up 'n' down. In August they were 152 but still in range and no concerns.
Nicebaps
in
ITP Support Association
10 years ago
How long have I got DR>>>?
I am still on W & W feeling mostly well apart from recurring indigestion...my white blood count however is increasing and am told that if it has doubled in a year treatment (
FCR
) would normally be recommended. So remain in state of uncertainty like so many.
I am still on W & W feeling mostly well apart from recurring indigestion...my white blood count however is increasing and am told that if it has doubled in a year treatment (
FCR
) would normally be recommended. So remain in state of uncertainty like so many.
romarin
in
CLL Support
10 years ago
First day on IBRUTINIB
The 2 courses of
FCR
have reduced my lymph nodes and WBC considerably so I may be starting Ibrutinib from a good base. My wife and I are very positive and hopeful. David.
The 2 courses of
FCR
have reduced my lymph nodes and WBC considerably so I may be starting Ibrutinib from a good base. My wife and I are very positive and hopeful. David.
Haileybury
in
CLL Support
10 years ago
What kind of research can we trust?
(Meanwhile we live in hope that for those of us that needed
FCR
treatment, that chemotherapy regime may indeed extend our lives and for a few with the right genetics, even cure us of CLL. Plus there are all the new non chemo treatments that we have a high expectation will be game changers.)
(Meanwhile we live in hope that for those of us that needed
FCR
treatment, that chemotherapy regime may indeed extend our lives and for a few with the right genetics, even cure us of CLL. Plus there are all the new non chemo treatments that we have a high expectation will be game changers.)
AussieNeil
Partner
in
CLL Support
10 years ago
Video, Dr George Follows discusses CLL treatment choices and side effects
Q1) many patients have heard about potential treatments such as “
FCR
” and “BR”, how do you choose which therapy they should receive? Q2) the side effects of CLL treatments can be significant, are CLL patient’s monitored carefully? http://www.youtube.com/watch?v=oiQrBTbckNM
Q1) many patients have heard about potential treatments such as “
FCR
” and “BR”, how do you choose which therapy they should receive? Q2) the side effects of CLL treatments can be significant, are CLL patient’s monitored carefully? http://www.youtube.com/watch?v=oiQrBTbckNM
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
Generic Drugs
I have been taking the same drugs for a few years. I take Stalevo, Ropinerole, Trihexyphenidyl and half Sinemet CR. These have worked well for me. However, my GP has advised that they intend to change my Ropinirole tablet with a tablet called Repinex XL This appears to be the generic trade name and
I have been taking the same drugs for a few years. I take Stalevo, Ropinerole, Trihexyphenidyl and half Sinemet CR. These have worked well for me. However, my GP has advised that they intend to change my Ropinirole tablet with a tablet called Repinex XL This appears to be the generic trade name and
Court
in
Cure Parkinson's
10 years ago
UK 'OK to ask' patient empowerment campaign encourages patients to take part in research & FLAIR 1st line CLL trial commences + others.
FLAIR: Front-Line therapy in CLL: Assessment of Ibrutinib + Rituximab to asses whether IR is superior to
FCR
in terms of progression-free survival Participants will be randomised on a 1:1 basis to receive either
FCR
or Ibrutinib+R.
FLAIR: Front-Line therapy in CLL: Assessment of Ibrutinib + Rituximab to asses whether IR is superior to
FCR
in terms of progression-free survival Participants will be randomised on a 1:1 basis to receive either
FCR
or Ibrutinib+R.
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
Sore mouth and tongue
Diagnosed CLL 2009 then needed the full chemo
FCR
2010. Hospitalised twice afterwards with a chest fungal infection but since then,3 years + down the line, my bloods have been satisfactory.My Haematologist even put me on 6 month visits this April !
Diagnosed CLL 2009 then needed the full chemo
FCR
2010. Hospitalised twice afterwards with a chest fungal infection but since then,3 years + down the line, my bloods have been satisfactory.My Haematologist even put me on 6 month visits this April !
defconSkipton
in
CLL Support
10 years ago
CLL specialists ?
My
FCR
treatment has been stopped after 2 courses due to a new problem - fluid on my lungs. I am awaiting another bone marrow biopsy and CT scan. Depending on what my haematologist has to say in due course, I may request another opinion with a CLL specialist. I am in Hereford.
My
FCR
treatment has been stopped after 2 courses due to a new problem - fluid on my lungs. I am awaiting another bone marrow biopsy and CT scan. Depending on what my haematologist has to say in due course, I may request another opinion with a CLL specialist. I am in Hereford.
Haileybury
in
CLL Support
10 years ago
CLL Medical Alert Tags
I think those on
FCR
wear bracelets with warnings of no-live vaccines etc. In my case I'm still (just) on "Watch and Wait" / "Active Management and Care" (however best that is put), so I'm not sure what if anything I'd put on the card, except perhaps "CLL".
I think those on
FCR
wear bracelets with warnings of no-live vaccines etc. In my case I'm still (just) on "Watch and Wait" / "Active Management and Care" (however best that is put), so I'm not sure what if anything I'd put on the card, except perhaps "CLL".
Ernest2
in
CLL Support
10 years ago
Ibrutinib as a monotherapy
I have CLL/SLL and after 6 cycles of
FCR
(which gave me just over a year's remission) I'm now two weeks into starting on Ibrutinib as a mono therapy. So far no side effects.
I have CLL/SLL and after 6 cycles of
FCR
(which gave me just over a year's remission) I'm now two weeks into starting on Ibrutinib as a mono therapy. So far no side effects.
SycamoreN
in
CLL Support
10 years ago
Fluid in my lungs and heart slightly enlarged
Could this have been caused by the
FCR
drugs or is it something completely separate. I am assuming my chemo will be paused until the heart problem is controlled. I am now on Furosemide diuretic pills. Has anyone had experience of this with
FCR
? David
Could this have been caused by the
FCR
drugs or is it something completely separate. I am assuming my chemo will be paused until the heart problem is controlled. I am now on Furosemide diuretic pills. Has anyone had experience of this with
FCR
? David
Haileybury
in
CLL Support
10 years ago
Low neutrophils
I have been prescribed another 8, G-CSF twice weekly and was told that if these didn't work then my next step would be
FCR
. I have remained stable for two years and feel that
FCR
is an extreme step to take when other options may be available to correct my neutrophils.
I have been prescribed another 8, G-CSF twice weekly and was told that if these didn't work then my next step would be
FCR
. I have remained stable for two years and feel that
FCR
is an extreme step to take when other options may be available to correct my neutrophils.
Hidden
in
CLL Support
10 years ago
Help, FCR OR BR?
My oncologist has telephoned me today giving me an option of either
FCR
or BR. As I am 11q del I thought I had only one option! She told me that the FLAIR trial will be starting in 6-8 weeks time but as my WBC is at 387 and my Hg is 95 she would like me to start treatment now.
My oncologist has telephoned me today giving me an option of either
FCR
or BR. As I am 11q del I thought I had only one option! She told me that the FLAIR trial will be starting in 6-8 weeks time but as my WBC is at 387 and my Hg is 95 she would like me to start treatment now.
flutterbye
in
CLL Support
10 years ago
That's it then FCR here we come
11) HCT 0.34 MCV 101.3 MCH 32.9 MCHC 325 RDW 15.4 PLT 15.4 Neut percent 0.9 Lymph percent 79.6 Absolute Nuets 1.02 Absolute Lmphs 94.39 Been waiting for the call to the cocktail bar and got it today after concern about Nuets fortunately no problems with genome results so should have no problem with
FCR
11) HCT 0.34 MCV 101.3 MCH 32.9 MCHC 325 RDW 15.4 PLT 15.4 Neut percent 0.9 Lymph percent 79.6 Absolute Nuets 1.02 Absolute Lmphs 94.39 Been waiting for the call to the cocktail bar and got it today after concern about Nuets fortunately no problems with genome results so should have no problem with
FCR
Cammie
in
CLL Support
10 years ago
Got a question about test results for Susan Le Clair?
So take a shot, and send your questions for Susan to: questions@patientpower.info Best Wishes, Andrew Schorr dx'ed 4/96
FCR
in 2000 still in remission.[/i] Neil
So take a shot, and send your questions for Susan to: questions@patientpower.info Best Wishes, Andrew Schorr dx'ed 4/96
FCR
in 2000 still in remission.[/i] Neil
AussieNeil
Partner
in
CLL Support
10 years ago
Curcumin and CoQ10
My husband has PSP and is taking the drugs sinemet CR, Apo-levocarb, gabapentin, tyrazodone and magnesium glycinate. Is it safe to take curcumin and CoQ10 along with these drugs?
My husband has PSP and is taking the drugs sinemet CR, Apo-levocarb, gabapentin, tyrazodone and magnesium glycinate. Is it safe to take curcumin and CoQ10 along with these drugs?
Hidden
in
PSP Association
10 years ago
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