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Experiences with
Familial mediterranean fever (FMF)
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Malaria tablets
Hi everyone, am I the process of looking at a holiday. I know yellow fever vaccine is a big no no. Am on hydroxycarbamide and daily aspirin with a diagnosis of ET. Has anyone taken malaria tablets with such a condition? TIA.
Hi everyone, am I the process of looking at a holiday. I know yellow fever vaccine is a big no no. Am on hydroxycarbamide and daily aspirin with a diagnosis of ET. Has anyone taken malaria tablets with such a condition? TIA.
SazzaC
in
MPN Voice
5 months ago
Culture & Sensitivity
These are medical tests which look for bacteria, viruses or fungi. They can be ordered for body fluids such as urine, blood or stools. Some of us with P.A. or B12 deficiency might have H.pylori or overgrowth of microorganisms in the small intestine. I had a stool test and gut microbiome tests. The microbiome
These are medical tests which look for bacteria, viruses or fungi. They can be ordered for body fluids such as urine, blood or stools. Some of us with P.A. or B12 deficiency might have H.pylori or overgrowth of microorganisms in the small intestine. I had a stool test and gut microbiome tests. The microbiome
Narwhal10
in
Pernicious Anaemia Society
1 year ago
Colchicine and SARS-CoV-2: Management of the hyperinflammatory state
Today it is used effectively in the treatment of gout, Behçet's disease, for the prevention of pericarditis,
Familial
Mediterranean
Fever
(FMF), Sweet's syndrome."
Today it is used effectively in the treatment of gout, Behçet's disease, for the prevention of pericarditis,
Familial
Mediterranean
Fever
(FMF), Sweet's syndrome."
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
4 years ago
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Hadassah researchers pinpoint source of corona blood clots
They are testing colchicine, an oral medication used for gout and
familial
Mediterranean
fever
. It has succeeded in reducing Alpha-defensin levels and blood clots in mice. They are waiting approval to begin human trials.
They are testing colchicine, an oral medication used for gout and
familial
Mediterranean
fever
. It has succeeded in reducing Alpha-defensin levels and blood clots in mice. They are waiting approval to begin human trials.
lupus-support1
Administrator
in
Hughes Syndrome APS Forum
4 years ago
Hadassah researchers pinpoint source of corona blood clots
They are testing colchicine, an oral medication used for gout and
familial
Mediterranean
fever
. It has succeeded in reducing Alpha-defensin levels and blood clots in mice. They are waiting approval to begin human trials.
They are testing colchicine, an oral medication used for gout and
familial
Mediterranean
fever
. It has succeeded in reducing Alpha-defensin levels and blood clots in mice. They are waiting approval to begin human trials.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Familial Mediterranean Fever (FMF)
Hi I've been taking Colchicine now since about 40 years ago. Today im feeling pain in my feet and hands. The orthopedic I saw today is kind of blaming it on the long term intake of Colchicine. Could this be possible? Anyone with FMF taking Colchicine can help pls? Thx a lot.
Hi I've been taking Colchicine now since about 40 years ago. Today im feeling pain in my feet and hands. The orthopedic I saw today is kind of blaming it on the long term intake of Colchicine. Could this be possible? Anyone with FMF taking Colchicine can help pls? Thx a lot.
Alinek
in
ABDA
7 years ago
MORE Updated DNA REPORTS
Familial
Dysautonom.
Familial
Hyperinsulinism (ABCC8-related).
Familial
Mediterranean
Fever
. Fanconi Anemia (FANCC-related). G6PD Deficiency. GRACILE Syndrome. Gaucher Disease. Glycogen Storage Disease Type 1a Glycogen Storage Disease Type 1b Hereditary Fructose Intolerance.
Familial
Dysautonom.
Familial
Hyperinsulinism (ABCC8-related).
Familial
Mediterranean
Fever
. Fanconi Anemia (FANCC-related). G6PD Deficiency. GRACILE Syndrome. Gaucher Disease. Glycogen Storage Disease Type 1a Glycogen Storage Disease Type 1b Hereditary Fructose Intolerance.
Hidden
in
Lung Conditions Community Forum
7 years ago
Writing to the ME Association
http://dailym.ai/1oViUDY I now plan to work with Jill on our shared misdiagnosis project that will cover both pituitary disorders and other diseases such as Behçet’s, Ehlers Danlos,
Familial
Mediterranean
Fever
and other serious illnesses.
http://dailym.ai/1oViUDY I now plan to work with Jill on our shared misdiagnosis project that will cover both pituitary disorders and other diseases such as Behçet’s, Ehlers Danlos,
Familial
Mediterranean
Fever
and other serious illnesses.
Herbiv4
in
Behçet's UK
10 years ago
Gluten intolerance person,
I also am a part of an American group of people called Melungeons who get diseases that appear to be Behcets and
Mediterranean
Familial
Fever
but have been most likely misdiagnosed because these people are poor coal miners.
I also am a part of an American group of people called Melungeons who get diseases that appear to be Behcets and
Mediterranean
Familial
Fever
but have been most likely misdiagnosed because these people are poor coal miners.
Guyla
in
Gluten Free Guerrillas
10 years ago
Interest from a member of the House of Lords for my misdiagnosis project
Ehlers Danlos Syndrome and
Familial
Mediterranean
Fever
are now added to the list of conditions along with Behçet's disease - all being smothered by the use of the CFS diagnosis. When I hear back from my MP I'll post another update.
Ehlers Danlos Syndrome and
Familial
Mediterranean
Fever
are now added to the list of conditions along with Behçet's disease - all being smothered by the use of the CFS diagnosis. When I hear back from my MP I'll post another update.
Herbiv4
in
Behçet's UK
11 years ago
Undiagnosed...& new here!
It's still possible, as is Lupus,
Familial
Mediterranean
Fever
, Enteropathic arthritis, Hypersensitivity arthritis, Behcet's Disease etc. I had never heard of Behcet's until I sent my saliva off to 23andMe in desperation for some clues to a diagnosis.
It's still possible, as is Lupus,
Familial
Mediterranean
Fever
, Enteropathic arthritis, Hypersensitivity arthritis, Behcet's Disease etc. I had never heard of Behcet's until I sent my saliva off to 23andMe in desperation for some clues to a diagnosis.
AusBehcets
in
Behçet's UK
11 years ago
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