Experiences with

Familial mediterranean fever (FMF)

I had a Liver transplant in 2019 and recovered well. I have travelled to Europe and the States since, however, I need to visit family in The Gambia with all the vaccines that entails. Has anyone post Liver transplant got experience of not having the live Yellow Fever vaccine and travelling to The Gambia

Hi everyone, am I the process of looking at a holiday. I know yellow fever vaccine is a big no no. Am on hydroxycarbamide and daily aspirin with a diagnosis of ET. Has anyone taken malaria tablets with such a condition? TIA.

These are medical tests which look for bacteria, viruses or fungi. They can be ordered for body fluids such as urine, blood or stools. Some of us with P.A. or B12 deficiency might have H.pylori or overgrowth of microorganisms in the small intestine. I had a stool test and gut microbiome tests. The microbiome

Today it is used effectively in the treatment of gout, Behçet's disease, for the prevention of pericarditis, Familial Mediterranean Fever (FMF), Sweet's syndrome."

They are testing colchicine, an oral medication used for gout and familial Mediterranean fever. It has succeeded in reducing Alpha-defensin levels and blood clots in mice. They are waiting approval to begin human trials.

They are testing colchicine, an oral medication used for gout and familial Mediterranean fever. It has succeeded in reducing Alpha-defensin levels and blood clots in mice. They are waiting approval to begin human trials.

Hi I've been taking Colchicine now since about 40 years ago. Today im feeling pain in my feet and hands. The orthopedic I saw today is kind of blaming it on the long term intake of Colchicine. Could this be possible? Anyone with FMF taking Colchicine can help pls? Thx a lot.

Familial Dysautonom. Familial Hyperinsulinism (ABCC8-related). Familial Mediterranean Fever. Fanconi Anemia (FANCC-related). G6PD Deficiency. GRACILE Syndrome. Gaucher Disease. Glycogen Storage Disease Type 1a Glycogen Storage Disease Type 1b Hereditary Fructose Intolerance.

http://dailym.ai/1oViUDY I now plan to work with Jill on our shared misdiagnosis project that will cover both pituitary disorders and other diseases such as Behçet’s, Ehlers Danlos, Familial Mediterranean Fever and other serious illnesses.

I also am a part of an American group of people called Melungeons who get diseases that appear to be Behcets and Mediterranean Familial Fever but have been most likely misdiagnosed because these people are poor coal miners.

Ehlers Danlos Syndrome and Familial Mediterranean Fever are now added to the list of conditions along with Behçet's disease - all being smothered by the use of the CFS diagnosis. When I hear back from my MP I'll post another update.

It's still possible, as is Lupus, Familial Mediterranean Fever, Enteropathic arthritis, Hypersensitivity arthritis, Behcet's Disease etc. I had never heard of Behcet's until I sent my saliva off to 23andMe in desperation for some clues to a diagnosis.