I had encephalitis in December 2019. I can safely say I was the sickest I have ever been. There are 3 days I still cannot remember much about. I had confusion, slurred speech, headache, light sensitivity, noise sensitivity and nausea. Oh and I couldn't walk for falling over. I had 2 weeks of IV acyclovir. My brain MRI showed swelling and demyelination. I got sent home with sod all really. I've luckily got a good GP who has put support in place and signed me off work.
I'm left with short term memory loss. Tinnitus that often is deafening. I've lost some sight in my right eye and some peripheral vision. I am exhausted most days needing to sleep during the day. When I do too much I vomit. I started driving again a few weeks ago and am unable to get from a to b in my head. I need to plot the route before I start driving or rely on satnav.
2 weeks ago I had a repeat brain MRI. Which showed similar demyelination. I had a letter through from the consultant I saw when I was discharged from hospital (he only saw me that day, not over my 2 week stay). He says as I remain well and my brain MRI is similar to the first that my brain could just be like this. Oh and that possibly it was all a migraine and not encephalitis!!! I am livid. Confused. Upset. I don't know what to do. I've had to defer my uni study which will cost me if I don't have exceptional circumstances. I can't work.
Just need to vent in a safe space.