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Subclinical hypothyroidism advice for next appointment
Hi, I was told I was I had Subclinical hypothyroidism in 2017 but was not significant so no further input. Unsure of exact results but TSH was raised, but <10 with normal T4 (but do not have a copy of the results). Past few years have noticed hair loss, muscle aches & pains, tiredness, some weight gain
Hi, I was told I was I had Subclinical hypothyroidism in 2017 but was not significant so no further input. Unsure of exact results but TSH was raised, but <10 with normal T4 (but do not have a copy of the results). Past few years have noticed hair loss, muscle aches & pains, tiredness, some weight gain
bluepenguin
in
Thyroid UK
1 month ago
Figuring things out - first year since diagnosis
Hi, I'm posting here as I don't know anyone in real life with lupus and have been struggling to work out what my expectations should be in terms of symptoms. I was diagnosed just over a year ago following about a year of strange symptoms - GI issues, weight loss, Raynaud's, mouth ulcers, hand and wrist
Hi, I'm posting here as I don't know anyone in real life with lupus and have been struggling to work out what my expectations should be in terms of symptoms. I was diagnosed just over a year ago following about a year of strange symptoms - GI issues, weight loss, Raynaud's, mouth ulcers, hand and wrist
CGSLE
in
LUPUS UK
1 month ago
Just saw my first rheumatologist yesterday, very confused by diagnosis?
Can you have negative rheumatoid factor, negative CCP antibodies, no pain, stiffness, swelling or symptoms in the small joints (hands, feet etc) & it still be possible to have rheumatoid arthritis? All of my symptoms for the past 5 and 1/2 months seem to be classical PMR (before I started taking prednisone
Can you have negative rheumatoid factor, negative CCP antibodies, no pain, stiffness, swelling or symptoms in the small joints (hands, feet etc) & it still be possible to have rheumatoid arthritis? All of my symptoms for the past 5 and 1/2 months seem to be classical PMR (before I started taking prednisone
LarMarge6
in
PMRGCAuk
2 months ago
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Newbie and confused. Functional B12 deficiency?
Hi everyone, I am new here but I have been a member of the thyroid forum for many years. I've also just joined the Sjogren's and the lupus groups because some of my symptoms could be attributed to these though I have no diagnoses, and the Changing Faces group for my rhinophyma. I have Hashi's and thyroid
Hi everyone, I am new here but I have been a member of the thyroid forum for many years. I've also just joined the Sjogren's and the lupus groups because some of my symptoms could be attributed to these though I have no diagnoses, and the Changing Faces group for my rhinophyma. I have Hashi's and thyroid
grumpyold
in
Pernicious Anaemia Society
2 months ago
Suspected Pernicious Anemia - what next?
Hello, I am very glad to have found this forum as I have been researching B12D and PA a lot recently. I became familiar with the society’s website and found it so helpful. I am 29F in the US and I suspect I have Pernicious Anemia. This is what I know so far (sorry in advance if this post rambles on)
Hello, I am very glad to have found this forum as I have been researching B12D and PA a lot recently. I became familiar with the society’s website and found it so helpful. I am 29F in the US and I suspect I have Pernicious Anemia. This is what I know so far (sorry in advance if this post rambles on)
Marlowekat
in
Pernicious Anaemia Society
2 months ago
Achilles tendonitis and damage due to antibiotic side effect - odd icy sensation?
I have had RA for nearly 10 years, currently on Benepali and Metotrexate injections. Rheumatoid factor 74 and Anti-cpp 600 in 2014 and generally do not score above normal for blood CRP tests (interesting anomaly) even when ultrasound in clinic reviews shows inflammation. As well as small joint hand
I have had RA for nearly 10 years, currently on Benepali and Metotrexate injections. Rheumatoid factor 74 and Anti-cpp 600 in 2014 and generally do not score above normal for blood CRP tests (interesting anomaly) even when ultrasound in clinic reviews shows inflammation. As well as small joint hand
Braecoon
in
NRAS
2 months ago
Pernicious anaemia
Hi the result of my intrinsic factor came back positive and I start loading doses on Monday The results were written a little strangely though Intrinsic Factor antibodies 12.0 U/ml Negative=<7 Equiveocal= 7-10 Positive > 10 Looking on other websites the results are given in different measurements
Hi the result of my intrinsic factor came back positive and I start loading doses on Monday The results were written a little strangely though Intrinsic Factor antibodies 12.0 U/ml Negative=<7 Equiveocal= 7-10 Positive > 10 Looking on other websites the results are given in different measurements
mully
in
Pernicious Anaemia Society
2 months ago
Pernicious Anemia treatment
Hi I am writing to share my recent health diagnosis and to seek your advice on a more efficient treatment approach. I am a 37-year-old man who has been battling a series of debilitating symptoms for several years, including extreme fatigue, depression, anxiety, brain fog, decreased mental concentration
Hi I am writing to share my recent health diagnosis and to seek your advice on a more efficient treatment approach. I am a 37-year-old man who has been battling a series of debilitating symptoms for several years, including extreme fatigue, depression, anxiety, brain fog, decreased mental concentration
merfi
in
Pernicious Anaemia Society
2 months ago
⁹Newbie: can anybody help with local support to me? Surrey/Sussex/South London
Hello! I was diagnosed with UCTD 3 years ago after contracting awful covid. However during routine check-up bloods last month, for the first time, my Rheu picked up positive Lupus screen, ANA, rheumatoid factor alongside others i cant remember. (I have always had a negative autoimmune panel, but high
Hello! I was diagnosed with UCTD 3 years ago after contracting awful covid. However during routine check-up bloods last month, for the first time, my Rheu picked up positive Lupus screen, ANA, rheumatoid factor alongside others i cant remember. (I have always had a negative autoimmune panel, but high
Gm131987
in
LUPUS UK
2 months ago
Help! Have I messed up
I have just had a telephone consultation with a GP hoping for help with the symptoms I have been experiencing. I tried to point him in the direction of the relevant guidelines for treating B12 deficiency, he said that he was familiar with the NICE CKS as he deals with B12 all the time and I m not anaemic
I have just had a telephone consultation with a GP hoping for help with the symptoms I have been experiencing. I tried to point him in the direction of the relevant guidelines for treating B12 deficiency, he said that he was familiar with the NICE CKS as he deals with B12 all the time and I m not anaemic
SpringerMom
in
Pernicious Anaemia Society
2 months ago
help please
Hi I’ve just joined the forum , I’ve been diagnosed with pernicious anaemia it’s in the family ,and low folate , I’d had the basic B12 bloods done they said I was ok ? Bloods for B12 showed 2,000 high I only got diagnosed because I asked for an intrinsic factor antibodies gastric parietal cell blood
Hi I’ve just joined the forum , I’ve been diagnosed with pernicious anaemia it’s in the family ,and low folate , I’d had the basic B12 bloods done they said I was ok ? Bloods for B12 showed 2,000 high I only got diagnosed because I asked for an intrinsic factor antibodies gastric parietal cell blood
Windyway
in
Pernicious Anaemia Society
2 months ago
Raised MMA result
Hi everyone Have written before about my low active B12 results(medichecks). Latest one had been 36.7 (37.5~188). My previous 3 were slowly dropping from 60s to 50s to 40s. Advised to do MMA by medichecks. Eventually afforded one last week which came back high 38.5 (<32). They are now suggesting
Hi everyone Have written before about my low active B12 results(medichecks). Latest one had been 36.7 (37.5~188). My previous 3 were slowly dropping from 60s to 50s to 40s. Advised to do MMA by medichecks. Eventually afforded one last week which came back high 38.5 (<32). They are now suggesting
Pomart
in
Pernicious Anaemia Society
2 months ago
If taking B12 supps skew's PA Intrinsic Factor test, does it do the same for Gastric Parietal Cell AB too?
Hi Everyone, Im a bit out of my depth here and wondered if you could help please. Ive taken B Complex for nearly 25 years, I do wonder whether serum levels have always been scuppered, as I read again that to do a credible PA , MMA test I needed to be off B12 for minimum 4- 6 moths , possibly longer
Hi Everyone, Im a bit out of my depth here and wondered if you could help please. Ive taken B Complex for nearly 25 years, I do wonder whether serum levels have always been scuppered, as I read again that to do a credible PA , MMA test I needed to be off B12 for minimum 4- 6 moths , possibly longer
Gillybean1
in
Pernicious Anaemia Society
2 months ago
Can anyone shed some light on Anti CCP antibodies result?
Hi everyone, my name is Claire. I’ve just received back some blood test results (Rheumatoid Factor and Anti CCP antibodies). The Rheumatoid Factor came back negative but the Anti CCP came back as 10.4 K/UL. The test states that normal range is under 2.9 K/Ul yet mine is over 3 times higher. The last
Hi everyone, my name is Claire. I’ve just received back some blood test results (Rheumatoid Factor and Anti CCP antibodies). The Rheumatoid Factor came back negative but the Anti CCP came back as 10.4 K/UL. The test states that normal range is under 2.9 K/Ul yet mine is over 3 times higher. The last
Cheshirecatz
in
NRAS
2 months ago
10yo daughters results…HELP!
Hello, I have posted before regarding my daughter who is 10yo but we have just had some very unusual and worrying results which may explain her health issues. She has a long term history of low platelets and I’ve been trying to solve this for her as it has been unexplained. We have strong family history
Hello, I have posted before regarding my daughter who is 10yo but we have just had some very unusual and worrying results which may explain her health issues. She has a long term history of low platelets and I’ve been trying to solve this for her as it has been unexplained. We have strong family history
RachelP03
in
Pernicious Anaemia Society
2 months ago
10yo daughters results HELP!
Hello, I have posted before regarding my daughter who is 10yo but we have just had some very unusual and worrying results which may explain her health issues. She has a long term history of low platelets and I’ve been trying to solve this for her as it has been unexplained. We have strong family history
Hello, I have posted before regarding my daughter who is 10yo but we have just had some very unusual and worrying results which may explain her health issues. She has a long term history of low platelets and I’ve been trying to solve this for her as it has been unexplained. We have strong family history
RachelP03
in
Thyroid UK
2 months ago
Help Needed! Have I got Pernicious Anaemia?
I hope this isn't too long and/or too boring. I suspect I have PA but as with a lot of people here, no-one seems to take B12 deficiency seriously. I also have hypothyroidism so as my symptoms got increasingly worse over the past few years, I blamed my thyroid - the two conditions have many symptoms
I hope this isn't too long and/or too boring. I suspect I have PA but as with a lot of people here, no-one seems to take B12 deficiency seriously. I also have hypothyroidism so as my symptoms got increasingly worse over the past few years, I blamed my thyroid - the two conditions have many symptoms
Grannypants
in
Pernicious Anaemia Society
3 months ago
Advice
Hi, I'm not sure if this is the right place to post, but im looking for some advice please. I've been back and fourth to the doctors since around June 2022 with symptoms of overwhelming constant exhaustion that doesn't go away even after a full night's sleep, making it hard to start the day, weakness
Hi, I'm not sure if this is the right place to post, but im looking for some advice please. I've been back and fourth to the doctors since around June 2022 with symptoms of overwhelming constant exhaustion that doesn't go away even after a full night's sleep, making it hard to start the day, weakness
Kma123
in
Pernicious Anaemia Society
3 months ago
Advice moving forward?
So I recently had blood tests that showed low b12, iron and vit D. Was prescribed tablets for the iron and vit D. And put on a course of B12 loading doses. 6 injections over 2 weeks. it's now been 2 weeks after the last b12 injection and none of my symptoms have improved. When I talked to the gp,
So I recently had blood tests that showed low b12, iron and vit D. Was prescribed tablets for the iron and vit D. And put on a course of B12 loading doses. 6 injections over 2 weeks. it's now been 2 weeks after the last b12 injection and none of my symptoms have improved. When I talked to the gp,
Dan444
in
Pernicious Anaemia Society
3 months ago
Confused again 😕
How do you know if your intrinsic factor antibody blood test is good or bad?
How do you know if your intrinsic factor antibody blood test is good or bad?
Popcorn12345
in
Pernicious Anaemia Society
3 months ago
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