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polycystic liver disease
I wanted to find out if anyone else had experienced severe Polycystic Liver Disease. I had resection 12 years ago which was successful but my cysts have grown back more aggressively. I have been advised by specialist that they cannot de-roof as would space simply be filled by other cysts, resection
I wanted to find out if anyone else had experienced severe Polycystic Liver Disease. I had resection 12 years ago which was successful but my cysts have grown back more aggressively. I have been advised by specialist that they cannot de-roof as would space simply be filled by other cysts, resection
Sing2011
in
British Liver Trust
6 months ago
Olaparib for Metastatic Castration-Resistant Prostate Cancer With BRCA1 and/or BRCA2 Alterations
I know these results have been known for a while but me being germline and somatic BRCA 2, I thought it would be important to post this for those warriors with this condition. TAKE-HOME MESSAGE The phase III PROfound trial showed that patients with metastatic castration-resistant prostate cancer
I know these results have been known for a while but me being germline and somatic BRCA 2, I thought it would be important to post this for those warriors with this condition. TAKE-HOME MESSAGE The phase III PROfound trial showed that patients with metastatic castration-resistant prostate cancer
Balsam01
in
Advanced Prostate Cancer
6 months ago
B12 prescription cancelled by pharmacist
Hello - I was diagnosed with B12 deficiency around 15 years ago. My GP at the time said that I had Pernicious Anaemia and was unable to absorb B12 from my food. Apart from a gap in 2016 when my then GP said that I had too much B12 in my system, withdrew the injections for a year which resulted in my
Hello - I was diagnosed with B12 deficiency around 15 years ago. My GP at the time said that I had Pernicious Anaemia and was unable to absorb B12 from my food. Apart from a gap in 2016 when my then GP said that I had too much B12 in my system, withdrew the injections for a year which resulted in my
Willow404
in
Pernicious Anaemia Society
3 months ago
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Low BP
I've used Amlodipine for long time to help Raynauds, recently BP has become quite low so have stopped Amlodipine. Has anyone used Naftidrofuryl as it has been suggested as doesn't lower BP.
I've used Amlodipine for long time to help Raynauds, recently BP has become quite low so have stopped Amlodipine. Has anyone used Naftidrofuryl as it has been suggested as doesn't lower BP.
Fishie1
in
Scleroderma & Raynaud's UK (SRUK)
2 months ago
overlap RA, medication?
I was Dx with overlap rheumatoid arthritis. I have had PBC for 15 years, controlled well by URSO. In terms of RA, rheumatologist says this really limits medications given so many of the standard RA medications can damage the liver. For now I am on steroids. Can anyone else in the PBC community speak
I was Dx with overlap rheumatoid arthritis. I have had PBC for 15 years, controlled well by URSO. In terms of RA, rheumatologist says this really limits medications given so many of the standard RA medications can damage the liver. For now I am on steroids. Can anyone else in the PBC community speak
CeeCee101
in
PBC Foundation
3 months ago
Dizziness
sorry not been on for a while , moved house then had another scare with my cancer in remission. It’s 2 years since my ruptured brain aneurysm, spoke to rehab consultant ( different one ) at last he listened about my dizziness and falls he has now referred me to a ENT consultant to see if he can help
sorry not been on for a while , moved house then had another scare with my cancer in remission. It’s 2 years since my ruptured brain aneurysm, spoke to rehab consultant ( different one ) at last he listened about my dizziness and falls he has now referred me to a ENT consultant to see if he can help
Blu37
in
Brain Aneurysm Support
6 months ago
Saliva cortisol test: should I talk to GP?
These are the results of my recent online purchased cortisol tests. The midday one was actually just above zero, the evening just below 1 (I think). I took the morning one at 6am, as I wake up stupid early all the time, and im wondering if it was too early. I have hashimotos, and take 150 levo per day
These are the results of my recent online purchased cortisol tests. The midday one was actually just above zero, the evening just below 1 (I think). I took the morning one at 6am, as I wake up stupid early all the time, and im wondering if it was too early. I have hashimotos, and take 150 levo per day
Where_am_I
in
Thyroid UK
6 months ago
Recent blood test results
Hi everyone I am new to the forum and would like your advice on recent blood test results please. My story of under active thyroid and now diagnosed with Graves’ disease. 2010 I was told I had an under active thyroid and was started on levothyroxine 50mcg, I was on levothyroxine in varying amounts
Hi everyone I am new to the forum and would like your advice on recent blood test results please. My story of under active thyroid and now diagnosed with Graves’ disease. 2010 I was told I had an under active thyroid and was started on levothyroxine 50mcg, I was on levothyroxine in varying amounts
Senior1449
in
Thyroid UK
6 months ago
biopsy report, still waiting to see consultant.
hi all, had an email with the below conclusion of my biopsy, I have a very minuscule left lobe which they want to biopsy but were unable to due to the size. So the right lobe was biopsied. Until I see the consultant I don’t really understand the results, I know none of you are specialist or doctors
hi all, had an email with the below conclusion of my biopsy, I have a very minuscule left lobe which they want to biopsy but were unable to due to the size. So the right lobe was biopsied. Until I see the consultant I don’t really understand the results, I know none of you are specialist or doctors
Goneinsixtyseconds
in
British Liver Trust
6 months ago
Help me understand
I’m 32 next and since I was 25 I have had terrible joint pain and flare ups with terrible painful stiffness and swelling. Always in both my knees sometimes both my elbows all at the same time, I feel and ache all over with fatigue! I’ve been to the drs numerous times over the years with no help when
I’m 32 next and since I was 25 I have had terrible joint pain and flare ups with terrible painful stiffness and swelling. Always in both my knees sometimes both my elbows all at the same time, I feel and ache all over with fatigue! I’ve been to the drs numerous times over the years with no help when
Crazycatlady_101
in
NRAS
3 months ago
Help and advice for mum
Hey All, My mum has hidden her drinking, liver issues and cirrorsis for 15 years as I’ve been living in a different country. She was taken into hospital last winter, and I was told it was related to her liver, but no real further detail. Attending a consultant appointment with her last week has unearthed
Hey All, My mum has hidden her drinking, liver issues and cirrorsis for 15 years as I’ve been living in a different country. She was taken into hospital last winter, and I was told it was related to her liver, but no real further detail. Attending a consultant appointment with her last week has unearthed
PerpetuallySad
in
British Liver Trust
7 months ago
Compensated liver
I have went from ddcompensatd to compensated liver disease since being diagnosed in August 2023. I keep seeing prognosis is 9 to 12 years. Is this correct or can you live past 12 years. I haven't had any alcohol since diagnosed
I have went from ddcompensatd to compensated liver disease since being diagnosed in August 2023. I keep seeing prognosis is 9 to 12 years. Is this correct or can you live past 12 years. I haven't had any alcohol since diagnosed
Oasisman
in
British Liver Trust
7 months ago
Confused and seeking clarification
Hi folks . . . I have attached a letter from Hepatology which (to me anyway!) appears to contradict itself? In summary . . . a US in September 2021 showed increased parenchymal echogenicity (PE) due to fatty liver. Follow up bloods and a CT in April 2022 revealed nothing further. I then had a telephone
Hi folks . . . I have attached a letter from Hepatology which (to me anyway!) appears to contradict itself? In summary . . . a US in September 2021 showed increased parenchymal echogenicity (PE) due to fatty liver. Follow up bloods and a CT in April 2022 revealed nothing further. I then had a telephone
HouseHead
in
British Liver Trust
7 months ago
⏰Do you have 15 minutes to spare?⏰
🌟 PARTICIPATE IN A RESEARCH STUDY EXPLORING THE CONNECTIONS BETWEEN PVCS 🫀, MENTAL WELL-BEING 🧠, HEALTH BEHAVIOURS🚶♂️, AND QUALITY OF LIFE! 🌟 🔍 What's Involved? 🔍 Complete two online surveys on Qualtrics. The first is a 15-minute exploration of your PVC journey; the second is a quick 5-minute
🌟 PARTICIPATE IN A RESEARCH STUDY EXPLORING THE CONNECTIONS BETWEEN PVCS 🫀, MENTAL WELL-BEING 🧠, HEALTH BEHAVIOURS🚶♂️, AND QUALITY OF LIFE! 🌟 🔍 What's Involved? 🔍 Complete two online surveys on Qualtrics. The first is a 15-minute exploration of your PVC journey; the second is a quick 5-minute
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
2 months ago
Stress and thyroid disease
I have an treated underactive thyroid and i’m on levothyroxine. I’ve had hypothyroidism for 35 years, I’m now 61.. I’m finding that any stressful situation makes me feel very odd, all over the place, and feeling lime Ive drunk 30 cups of coffee. Awful.. Can that happen with thyroid disease. Any advice
I have an treated underactive thyroid and i’m on levothyroxine. I’ve had hypothyroidism for 35 years, I’m now 61.. I’m finding that any stressful situation makes me feel very odd, all over the place, and feeling lime Ive drunk 30 cups of coffee. Awful.. Can that happen with thyroid disease. Any advice
Atma123
in
Thyroid UK
4 months ago
Kidney biopsy confirms active GPA
Hi, Thought I'd update what has happened since my last post. I have seen my rheumatologist twice now, given pred and was put forward for rituximab. Due to the blood and protein in my pee I was referred to renal and had a kidney biopsy on Wednesday of this week. It has been confirmed that my vasculitis
Hi, Thought I'd update what has happened since my last post. I have seen my rheumatologist twice now, given pred and was put forward for rituximab. Due to the blood and protein in my pee I was referred to renal and had a kidney biopsy on Wednesday of this week. It has been confirmed that my vasculitis
lollypocket
in
Vasculitis UK
5 months ago
14 months post Successful Ablation & increasing Arrythmias.
Hi I am getting Arrythmias with increasing regularity after ablation Feb 23.Last talk with Arrythmia Nurse was Atrial ectopics with pause.My readings now seem to have chucked in a couple of premature beats. It feels like I am having AFib symptoms.Light headed,dizzy, exhausted but not all the time. Where
Hi I am getting Arrythmias with increasing regularity after ablation Feb 23.Last talk with Arrythmia Nurse was Atrial ectopics with pause.My readings now seem to have chucked in a couple of premature beats. It feels like I am having AFib symptoms.Light headed,dizzy, exhausted but not all the time. Where
kkatz
in
Atrial Fibrillation Support
2 months ago
Blood test Results AST/GGT
Hi all.I have a history of pancreatitis and liver issues. I did a private blood test in the week and it's come back that my AST and GGT are both high. GGT is worse. Should I be concerned? I'm going to ring my GP tomorrow for another blood test but wondering if I should go to A+E? I'm in pain and managing
Hi all.I have a history of pancreatitis and liver issues. I did a private blood test in the week and it's come back that my AST and GGT are both high. GGT is worse. Should I be concerned? I'm going to ring my GP tomorrow for another blood test but wondering if I should go to A+E? I'm in pain and managing
Koswecan
in
British Liver Trust
7 months ago
A return of the dreaded mongrel .......... ????? Part 2
Well, made contact with surgery ( I was 10th in the queue ) couldn't talk to anyone ( GP or Pharmacist ). Left a message and a return phone call a few hours later told me to take 2 blood pressure readings am and pm. for the next 7 days. Excellent stalling practice ! So, I've decided on a more aggressive
Well, made contact with surgery ( I was 10th in the queue ) couldn't talk to anyone ( GP or Pharmacist ). Left a message and a return phone call a few hours later told me to take 2 blood pressure readings am and pm. for the next 7 days. Excellent stalling practice ! So, I've decided on a more aggressive
BenHall1
in
Atrial Fibrillation Support
2 months ago
liver transplant : build up
hi everyone I’m really in need of some support. I’m 37 and have liver failure . I went to see my consultant in Belfast a few weeks ago and was my doctor when I attended Antrim hospital hospital. She was extremely direct and blunt with myself. She said my score is is high but didn’t tell me the range.
hi everyone I’m really in need of some support. I’m 37 and have liver failure . I went to see my consultant in Belfast a few weeks ago and was my doctor when I attended Antrim hospital hospital. She was extremely direct and blunt with myself. She said my score is is high but didn’t tell me the range.
Meanies
in
British Liver Trust
7 months ago
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