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Fabry disease
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After Transplant
I had my transplant 9 weeks ago I can’t believe the difference it has had. I sleep all night, no boiling up in the night, my breathing is better I use breathe so loud I think it was all the fluids inside me I was struggling to breathe I feel like I’m 20 years old again and I’m 50 . My mind is so much
I had my transplant 9 weeks ago I can’t believe the difference it has had. I sleep all night, no boiling up in the night, my breathing is better I use breathe so loud I think it was all the fluids inside me I was struggling to breathe I feel like I’m 20 years old again and I’m 50 . My mind is so much
lonmallin50
in
British Liver Trust
6 months ago
Cholesterol level and Q Risk
I don't remember seeing any discussions about the Q Risk with relation to a stroke or heart attack. My last bloods came back normal, no action. My cholesterol was 5.3 and I'm on 2mg pred.I asked the nurse what the Q risk was and it came up as 25% chance of a stroke or heart attack within the next 10
I don't remember seeing any discussions about the Q Risk with relation to a stroke or heart attack. My last bloods came back normal, no action. My cholesterol was 5.3 and I'm on 2mg pred.I asked the nurse what the Q risk was and it came up as 25% chance of a stroke or heart attack within the next 10
diana1998
in
PMRGCAuk
2 months ago
delayed reconstruction
I had a subdural haemorrhage in may 2023 removing most of the right side of my scull even encroached my forehead that’s some 10 months ago now. I was supposed to receive reconstructive surgery and have titanium implant to protect the sensitive area where my skin is my only protection to my brain. That
I had a subdural haemorrhage in may 2023 removing most of the right side of my scull even encroached my forehead that’s some 10 months ago now. I was supposed to receive reconstructive surgery and have titanium implant to protect the sensitive area where my skin is my only protection to my brain. That
Jodieb73
in
Headway
6 months ago
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heart rate 134 when out walking
Hi all, I have PAF diagnosed Sept 23, I’m taking 1.25 Bisoprolol and 5mg x 2. I recently had my Bisoprolol reduced from 2.50 as it was making me very lacking in energy. I’m 73. We went out for a walk today, it involved a couples of inclines but nothing major, we stopped for lunch after about two miles
Hi all, I have PAF diagnosed Sept 23, I’m taking 1.25 Bisoprolol and 5mg x 2. I recently had my Bisoprolol reduced from 2.50 as it was making me very lacking in energy. I’m 73. We went out for a walk today, it involved a couples of inclines but nothing major, we stopped for lunch after about two miles
Crumbling
in
Atrial Fibrillation Support
2 months ago
accidental overdose of thyroxine
I’m on 100 mcg thyroxine and the kart prescription they only had 25 mcg so I was taking 4 tablets a day and then the recent prescription was 100 mcg. I’ve just realised today that I’ve been taking 4 100 mcg a day I think for 4 days from how many are gone. In a bit of a panic. I’ve rang 111 and they called
I’m on 100 mcg thyroxine and the kart prescription they only had 25 mcg so I was taking 4 tablets a day and then the recent prescription was 100 mcg. I’ve just realised today that I’ve been taking 4 100 mcg a day I think for 4 days from how many are gone. In a bit of a panic. I’ve rang 111 and they called
Tjqui00
in
Thyroid UK
6 months ago
Not PCa but related. Imuno therapies keeps getting better.
On April 4, 2024, Candel Therapeutics, Inc. (the “Company”) issued a press release announcing positive interim data from its randomized phase 2 clinical trial of CAN-2409 in non-metastatic pancreatic cancer. A copy of the full press release is attached as Exhibit 99.1 to this Current Report on Form
On April 4, 2024, Candel Therapeutics, Inc. (the “Company”) issued a press release announcing positive interim data from its randomized phase 2 clinical trial of CAN-2409 in non-metastatic pancreatic cancer. A copy of the full press release is attached as Exhibit 99.1 to this Current Report on Form
Scout4answers
in
Advanced Prostate Cancer
3 months ago
Trigeminy and Flecainide
I’m a female, 72 and have been in constant Trigeminy for a week now. Can someone tell me if taking 100 mg of Flecainide twice a day will help with the Trigeminy? My EP doctor prescribed the Flecainide in March for Afib however I haven’t started taking it yet because I have not been having problems with
I’m a female, 72 and have been in constant Trigeminy for a week now. Can someone tell me if taking 100 mg of Flecainide twice a day will help with the Trigeminy? My EP doctor prescribed the Flecainide in March for Afib however I haven’t started taking it yet because I have not been having problems with
Debjimmay
in
Atrial Fibrillation Support
2 months ago
Atrial Fibrillation
Hi, I have suffered with AF since 2018 resulting in 4 cardioversions and 3 ablations (the last was on Friday 17th May and was an AV node ablation linked with connection of a previously implanted Pacemaker. I had hoped that I would be feeling great, no breathlessness. Unfortunately that is not the case
Hi, I have suffered with AF since 2018 resulting in 4 cardioversions and 3 ablations (the last was on Friday 17th May and was an AV node ablation linked with connection of a previously implanted Pacemaker. I had hoped that I would be feeling great, no breathlessness. Unfortunately that is not the case
hollyandivy
in
Atrial Fibrillation Support
2 months ago
Do the NHS test for active b12 aswell a total b12?
I wonder because my sister was diagnosed with pernicious anemia years ago but now they say her b12 levels are really high normal.
I wonder because my sister was diagnosed with pernicious anemia years ago but now they say her b12 levels are really high normal.
Cesca-K
in
Pernicious Anaemia Society
3 months ago
Exercise induced AF
I’ve had a great 4 years since my AF diagnosis, able to live pretty normally in terms of my choice of exercise with 3 years AF free following my cardioversion and just a few increasing episodes of paroxysmal AF in the last year. Recently I felt that a triathlon bike/run training session set off my AF
I’ve had a great 4 years since my AF diagnosis, able to live pretty normally in terms of my choice of exercise with 3 years AF free following my cardioversion and just a few increasing episodes of paroxysmal AF in the last year. Recently I felt that a triathlon bike/run training session set off my AF
Daisy2908
in
Atrial Fibrillation Support
2 months ago
Statins
I had a call from my GP surgery about taking statins.Apparently my cholesterol is okay but I have a 38% risk of having a stroke or heart attack. Even though I take anticoagulant statins work in a different way and are recommended for me as I am in persistent afib I do not want to take statins but wondered
I had a call from my GP surgery about taking statins.Apparently my cholesterol is okay but I have a 38% risk of having a stroke or heart attack. Even though I take anticoagulant statins work in a different way and are recommended for me as I am in persistent afib I do not want to take statins but wondered
Swimsyroke
in
Atrial Fibrillation Support
2 months ago
digoxin
Have been on Digoxin now for 6/12 and it has had a profound effect. Unable to take more modern drugs because I have Asthma. I am certainly much better than I was. I think it’s probably your hypotension drug causing your problems and have a consultation with your Gp.
Have been on Digoxin now for 6/12 and it has had a profound effect. Unable to take more modern drugs because I have Asthma. I am certainly much better than I was. I think it’s probably your hypotension drug causing your problems and have a consultation with your Gp.
Decrepit
in
Atrial Fibrillation Support
2 months ago
"Failed" exercise stress test
I have AF, gradually worsening, with chest and throat pain during episodes. Cardiologist did an exercise stress test on Tuesday and stopped the test after 3 minutes. He told me I have ischaemic heart disease - which is a bit galling as I have never smoked and do not eat red meat, cheese, eggs etc. -
I have AF, gradually worsening, with chest and throat pain during episodes. Cardiologist did an exercise stress test on Tuesday and stopped the test after 3 minutes. He told me I have ischaemic heart disease - which is a bit galling as I have never smoked and do not eat red meat, cheese, eggs etc. -
Singingforever
in
Atrial Fibrillation Support
2 months ago
Travel with Afib
Plan to travel overseas in July. Permanent afib trying to adjust meds now to minimize side effects. On Digoxin, Lopressor, Eliquis. Any thoughts etc.
Plan to travel overseas in July. Permanent afib trying to adjust meds now to minimize side effects. On Digoxin, Lopressor, Eliquis. Any thoughts etc.
farewelltoarms
in
Atrial Fibrillation Support
2 months ago
Bisoprolol
Hello, The cardiologist has swapped my medication from Verapamil to Bisoprolol, 2.5mg/day. So far so good as far as side effects go 👍 but there is one thing. I can't seem to get warm since the swap. The temperature here in the north east has dropped since our couple of days of summer but it's more than
Hello, The cardiologist has swapped my medication from Verapamil to Bisoprolol, 2.5mg/day. So far so good as far as side effects go 👍 but there is one thing. I can't seem to get warm since the swap. The temperature here in the north east has dropped since our couple of days of summer but it's more than
Ilovedogs12
in
Atrial Fibrillation Support
2 months ago
1 Year out Radiation treatment
2018, Gleason 9, family history, RP surgery. Not clear margin. PSA undetectable three years, then back knocking at the door, (.17 PSA rise 2022). BCR! PSMA scan clear. 35 IMRT Radiation treatments to surgery prostate bed, 6 months on Lupron. See my wonderful Radiation Onocolgist on Monday, Dr. Hung,
2018, Gleason 9, family history, RP surgery. Not clear margin. PSA undetectable three years, then back knocking at the door, (.17 PSA rise 2022). BCR! PSMA scan clear. 35 IMRT Radiation treatments to surgery prostate bed, 6 months on Lupron. See my wonderful Radiation Onocolgist on Monday, Dr. Hung,
rickyfish56
in
Advanced Prostate Cancer
6 months ago
Oximeters
I have just been diagnosed with a fib, after years of suspecting something was amiss, but never having episodes when a doctor, and even a cardiologist, was seeing me. I bought a Kardia6L, which showed many afib episodes. I took that to my GP of 13 years, and he immediately swung into impressive action
I have just been diagnosed with a fib, after years of suspecting something was amiss, but never having episodes when a doctor, and even a cardiologist, was seeing me. I bought a Kardia6L, which showed many afib episodes. I took that to my GP of 13 years, and he immediately swung into impressive action
Corazon17
in
Atrial Fibrillation Support
2 months ago
panicking!
Hi, My husband was diagnosed over 10 years ago with Prostate cancer with PSA 18 and Gleeson 4+3. He was never offered prostatectomy as they said there was a small metastases on the pelvis. So he had 2 weeks of radiation on his hip, and was then treated with 6 monthly injections of Decapeptyl, which
Hi, My husband was diagnosed over 10 years ago with Prostate cancer with PSA 18 and Gleeson 4+3. He was never offered prostatectomy as they said there was a small metastases on the pelvis. So he had 2 weeks of radiation on his hip, and was then treated with 6 monthly injections of Decapeptyl, which
Hidden
in
Advanced Prostate Cancer
6 months ago
Permanent AFib
Started on Digoxin .25 daily for past six days and cut Lopressor down to 25 twice a day. Am going to try to wean off. HR 80-110. Generally do not feel well and am going to revisit ablation. I had blurring of vision and dizziness on higher doses of Lopressor alone. Last cardioversion only lasted
Started on Digoxin .25 daily for past six days and cut Lopressor down to 25 twice a day. Am going to try to wean off. HR 80-110. Generally do not feel well and am going to revisit ablation. I had blurring of vision and dizziness on higher doses of Lopressor alone. Last cardioversion only lasted
farewelltoarms
in
Atrial Fibrillation Support
2 months ago
Covid Injections for April 2024
Hi Everyone. Has anybody received a letter yet about their April Covid jab? You follow the NHS App and it brings up an out of date link telling you about Autumn 2023 jabs. It then tells you further down that the page will be updated in 2026. I just looked on my personal NHS account and nowhere can
Hi Everyone. Has anybody received a letter yet about their April Covid jab? You follow the NHS App and it brings up an out of date link telling you about Autumn 2023 jabs. It then tells you further down that the page will be updated in 2026. I just looked on my personal NHS account and nowhere can
Blackwitch
in
NRAS
3 months ago
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