Search
Search
About
Log in
Join
Experiences with
Fabry disease
Posts
Communities
42,923 public posts
Filter results
new member
hi everyone l joined this group today was wondering could l get any advice, am 38 been recently diagnosed with underactive thyroid l am currently on 100mg of Lev tablets but l still feel tired l have put on so much weigh in past few years and didn’t know what was causing it, I have bought the semuglutide
hi everyone l joined this group today was wondering could l get any advice, am 38 been recently diagnosed with underactive thyroid l am currently on 100mg of Lev tablets but l still feel tired l have put on so much weigh in past few years and didn’t know what was causing it, I have bought the semuglutide
Preciouspearl
in
Thyroid UK
2 months ago
Lupus re-diagnosis UCTD
Hello All, so when I last posted I had been to the rheumatologist Prof X and told my bloods were not suggestive of lupus but he did not suggest want condition could be the underlying cause of my symptoms. This morning he chose not to see me, instead I saw a very nice female doctor in clinical research
Hello All, so when I last posted I had been to the rheumatologist Prof X and told my bloods were not suggestive of lupus but he did not suggest want condition could be the underlying cause of my symptoms. This morning he chose not to see me, instead I saw a very nice female doctor in clinical research
KeepingUpBeat
in
LUPUS UK
2 months ago
Carnosine as potential initial PCa treatment
Researchers have discovered that a naturally-occurring molecule could potentially be an effective first line of treatment against prostate cancer. Nottingham Trent University (NTU) scientists investigated the anti-cancer properties of carnosine, which can be produced in the body and is also found
Researchers have discovered that a naturally-occurring molecule could potentially be an effective first line of treatment against prostate cancer. Nottingham Trent University (NTU) scientists investigated the anti-cancer properties of carnosine, which can be produced in the body and is also found
Derf4223
in
Advanced Prostate Cancer
6 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Study: Depression is largely prevalent, but undiagnosed in SLEResearchers in Pakistan surveyed 40 people with SLE using PHQ-9 scale
Depression is highly prevalent among people with systemic lupus erythematosus (SLE), but often goes undiagnosed, according to a single center study in Pakistan. The “treatment of depression is a vital component in the management of these patients and should be offered where appropriate,” the researchers
Depression is highly prevalent among people with systemic lupus erythematosus (SLE), but often goes undiagnosed, according to a single center study in Pakistan. The “treatment of depression is a vital component in the management of these patients and should be offered where appropriate,” the researchers
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 months ago
I wonder how many of us have this gene snip?It seems responsible for some autoimmune Thyroid disease and is quite rare
I have my nebula genomics results and this snip in particular seems relevant . Does anyone else have their results? Snip rs2476601 it says in snpedia.com that it is bad to have an A and very rare to have 2 AA Can cause lots of other autoimmune diseases too Best wishes Manjushri
I have my nebula genomics results and this snip in particular seems relevant . Does anyone else have their results? Snip rs2476601 it says in snpedia.com that it is bad to have an A and very rare to have 2 AA Can cause lots of other autoimmune diseases too Best wishes Manjushri
Manjushri
in
Thyroid UK
2 months ago
T3 when to take it
have been put on a T3 trial by a private doctor who specialises in thyroid conditions, just wondered what time of day morning and evening is best to take it, as have been told to take it twice a day. Been on thyroid medication for over 70 years. For a underactive thyroid. As members say the thyroid
have been put on a T3 trial by a private doctor who specialises in thyroid conditions, just wondered what time of day morning and evening is best to take it, as have been told to take it twice a day. Been on thyroid medication for over 70 years. For a underactive thyroid. As members say the thyroid
elwins
in
Thyroid UK
2 months ago
Does anyone with LUPUS get reoccurring Shingles/ Herpes Zoster infections?
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
Severancered9
in
LUPUS UK
3 months ago
Gluten free and vegetarian- struggling for choices
Hi, I am diagnosed with coeliac disease and I am also vegetarian. I am struggling for choices, and feel my diet is very bland and I tend to repeat meals several times a week. Particularly eating out, or free-from sections in supermarkets are difficult. They seem to cater for both, but not the two combined
Hi, I am diagnosed with coeliac disease and I am also vegetarian. I am struggling for choices, and feel my diet is very bland and I tend to repeat meals several times a week. Particularly eating out, or free-from sections in supermarkets are difficult. They seem to cater for both, but not the two combined
lauram1978
in
Gluten Free Guerrillas
6 months ago
metastatic prostate cancer
my dad has castrate resistant metastatic pc in bones- currently his psa is going up but his scans have been stable- he gets them Every three months- after Zytiga and xtandi are there still many treatments available- the scans were stable for over a year and he gets them Every three Months-
my dad has castrate resistant metastatic pc in bones- currently his psa is going up but his scans have been stable- he gets them Every three months- after Zytiga and xtandi are there still many treatments available- the scans were stable for over a year and he gets them Every three Months-
Chris52981
in
Advanced Prostate Cancer
6 months ago
PSA Bounce
Hello and happy New year distinguished gentlemen. I was wondering if I may please get your input on my latest PSA which bounced from 1.2 to 1.6. Why did this happen and is this something I should be concerned about? Thanks so much. Regards.
Hello and happy New year distinguished gentlemen. I was wondering if I may please get your input on my latest PSA which bounced from 1.2 to 1.6. Why did this happen and is this something I should be concerned about? Thanks so much. Regards.
caysary
in
Advanced Prostate Cancer
6 months ago
Could thyroid be causing the issues ?
I have enclosed my daughters ( age 22 ) last thyroid result panel. Her TSH in June last year was over 6 then swung down to under 2 in September but is on the rise again. Her T3/ T4 are always just above minimum. Her father has Hashimoto’s as did her Grandfather and so does her male cousin. Grandad unfortunately
I have enclosed my daughters ( age 22 ) last thyroid result panel. Her TSH in June last year was over 6 then swung down to under 2 in September but is on the rise again. Her T3/ T4 are always just above minimum. Her father has Hashimoto’s as did her Grandfather and so does her male cousin. Grandad unfortunately
BigMamma17
in
Thyroid UK
3 months ago
ACID REFLUX-ARTHRITIS
I rarely get time to read or comment on posts here ...but this morning I have and have been struck by the number of us who suffer from Acid Reflux ... Is this a chicken/egg situation ? do we get acid reflux as another sideline to Arthritis or is it caused by medication ? those of us with reflux issues
I rarely get time to read or comment on posts here ...but this morning I have and have been struck by the number of us who suffer from Acid Reflux ... Is this a chicken/egg situation ? do we get acid reflux as another sideline to Arthritis or is it caused by medication ? those of us with reflux issues
RUSTY750
in
NRAS
3 months ago
Underactive thyroid
Hi, my thyroid levels have been up and down recently. I've been on 125mcg and felt fine until the GP decided, after a blood test, to lower the dose. The dosage I need isn't available so I'm now on 100mcg for 5 days and then 112mcg for 2 days. Is this an ok thing to do? Thanks.
Hi, my thyroid levels have been up and down recently. I've been on 125mcg and felt fine until the GP decided, after a blood test, to lower the dose. The dosage I need isn't available so I'm now on 100mcg for 5 days and then 112mcg for 2 days. Is this an ok thing to do? Thanks.
Hidden
in
Thyroid UK
3 months ago
Three Distinct MS Subtypes Identified
[i]I'm so sorry. I sent a bad link. Hopefully this one will work better.[/i]
MDedge/Neurology 09 Apr 2024
https://www.mdedge.com/neurology/article/268641/multiple-sclerosis/three-distinct-ms-subtypes-identified
[i]I'm so sorry. I sent a bad link. Hopefully this one will work better.[/i]
MDedge/Neurology 09 Apr 2024
https://www.mdedge.com/neurology/article/268641/multiple-sclerosis/three-distinct-ms-subtypes-identified
BettysMom
in
My MSAA Community
3 months ago
Suspect I have Addison's
I had a blood test yesterday and my serum cortisol was 330 nm/l.I have some hyperpigmentation & vitaligo. I think my GP was checking for Addison's. Hopefully now I can see an endocrinologist
I had a blood test yesterday and my serum cortisol was 330 nm/l.I have some hyperpigmentation & vitaligo. I think my GP was checking for Addison's. Hopefully now I can see an endocrinologist
antiloquax
in
Thyroid UK
3 months ago
Stomach issues
Morning all, So I am just about at my wits end with chronic gastric reflux and chronic wind up and down without much smell. Sometimes I vomit with it, and now I can only eat jasmine rice and even struggle to get water down at the moment. My stomach feels like I have been beat up from the inside
Morning all, So I am just about at my wits end with chronic gastric reflux and chronic wind up and down without much smell. Sometimes I vomit with it, and now I can only eat jasmine rice and even struggle to get water down at the moment. My stomach feels like I have been beat up from the inside
M0wnt
in
LUPUS UK
3 months ago
Three Distinct MS Subtypes Identified
From MDedge/neurology 09April 2024
https://www.mdedge.com/neurology/article/268641/multiple-sclerosis/three-distinct-ms-subtypes-identified?ecd=WNL_EVE_240411_mdedge&icd=login_success_email_match_norm&print=1
From MDedge/neurology 09April 2024
https://www.mdedge.com/neurology/article/268641/multiple-sclerosis/three-distinct-ms-subtypes-identified?ecd=WNL_EVE_240411_mdedge&icd=login_success_email_match_norm&print=1
BettysMom
in
My MSAA Community
3 months ago
My folate deficiency merry-go-round.
Hi all,I have joined here in hope of learning more about why l keep getting folate decifiency. It is currently 2.1. I become deficient usually every 7/8 months and it has been this way for about 3 years. Each time it happens, l complain to my GP that l feel exhausted, he runs blood tests and it is
Hi all,I have joined here in hope of learning more about why l keep getting folate decifiency. It is currently 2.1. I become deficient usually every 7/8 months and it has been this way for about 3 years. Each time it happens, l complain to my GP that l feel exhausted, he runs blood tests and it is
Blue_feather
in
Pernicious Anaemia Society
3 months ago
GCA - kidney problem
Hi All warriors. Diagnosed with GCA July, 2023. Put on 60 mg now tapered down to l7mg (Dec. 2023). All symptoms under control at this time. My last blood work showed my Creatinine at 104 and GFR at 45. This showed a mild to moderate decrease in kidney function. As a result I had a kidney/bladder
Hi All warriors. Diagnosed with GCA July, 2023. Put on 60 mg now tapered down to l7mg (Dec. 2023). All symptoms under control at this time. My last blood work showed my Creatinine at 104 and GFR at 45. This showed a mild to moderate decrease in kidney function. As a result I had a kidney/bladder
Groda
in
PMRGCAuk
6 months ago
Can anyone help please?
Hi everyone. I am 9 years undiagnosed 🙄 my Rheumatologist thought I was a possible for Lupus but wasn't prepared to diagnose me there and then, this was 2015. I had had a positive Cryoglobulinemia blood test which was negative for Hep C, he said this was an indication of Lupus? Has anyone else got
Hi everyone. I am 9 years undiagnosed 🙄 my Rheumatologist thought I was a possible for Lupus but wasn't prepared to diagnose me there and then, this was 2015. I had had a positive Cryoglobulinemia blood test which was negative for Hep C, he said this was an indication of Lupus? Has anyone else got
Jodelights
in
LUPUS UK
3 months ago
1
...
47
48
49
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
5647 results
British Liver Trust
4480 results
Advanced Prostate Cancer
4395 results
View top 10 communities
Sort by
Most Relevant
Newest