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Devastated to learn son may have CMT
Hi all, After many many months of trying to find out why my eldest handsome 16 year old son has developed scoliosis, muscle atrophy, losing weight and foot drop, a nerve conduction study and EMG revealed he has nerve damage in his arms and legs. Neurologist suspects hereditary poly neuropathy aka CMT
Hi all, After many many months of trying to find out why my eldest handsome 16 year old son has developed scoliosis, muscle atrophy, losing weight and foot drop, a nerve conduction study and EMG revealed he has nerve damage in his arms and legs. Neurologist suspects hereditary poly neuropathy aka CMT
KayJayTee
in
Charcot-Marie-Tooth UK
4 years ago
Stopped taking pessaries and Oestrogen UPDATE**
Hi so yesterday I had my 8 week scan and it all looked positive and could hear a strong heart beat which is great. I was told to also stop all medication i.e pessaries and oestrogen tablet, however since stopping I have been feeling AF cramp like feelings, more so today. Is this normal? I have emailed
Hi so yesterday I had my 8 week scan and it all looked positive and could hear a strong heart beat which is great. I was told to also stop all medication i.e pessaries and oestrogen tablet, however since stopping I have been feeling AF cramp like feelings, more so today. Is this normal? I have emailed
Olivia11
in
Fertility Network UK
4 years ago
Sensitive post...8 weeks + 1 scan...
Hi all Just thought I would give you an update on my first scan this morning. All went well and I saw the little peanut plus listened to the strong heart beat 💓. I feel so overwhelmed and numb as I've never seen or experienced this before. I was told to stop pessaries and oestrogen tablets. Hopefully
Hi all Just thought I would give you an update on my first scan this morning. All went well and I saw the little peanut plus listened to the strong heart beat 💓. I feel so overwhelmed and numb as I've never seen or experienced this before. I was told to stop pessaries and oestrogen tablets. Hopefully
Olivia11
in
Fertility Network UK
4 years ago
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The “I’m going absolutely mad” post of the 2WW
Title says it all 🤣 I am 5dp5dt and I am going mad! I have just ordered my tests online ! I ordered the first response early tests but do the rapid results test early too? I honestly can’t call it and would love to get your opinions on my very over analysed symptoms 🙈 Headaches - I have woken up
Title says it all 🤣 I am 5dp5dt and I am going mad! I have just ordered my tests online ! I ordered the first response early tests but do the rapid results test early too? I honestly can’t call it and would love to get your opinions on my very over analysed symptoms 🙈 Headaches - I have woken up
Walton776
in
Fertility Network UK
4 years ago
Who is up for solving this thyroid/perimenopausal puzzle?! I desperately need some help! 🙏🏻
I have Hashimotos which was diagnosed about 5 years ago. I started on Levo and after increasing my dosage, I felt worse. A friend of mine with Hashimotos suggested that I probably was not converting T4 to T3 and could try to take NDT because of the T3 in it. Luckily I found a doctor who prescribed it
I have Hashimotos which was diagnosed about 5 years ago. I started on Levo and after increasing my dosage, I felt worse. A friend of mine with Hashimotos suggested that I probably was not converting T4 to T3 and could try to take NDT because of the T3 in it. Luckily I found a doctor who prescribed it
mindyhoward10
in
Thyroid UK
4 years ago
New labs after abstaining from all(!) supplements for a month. Previous tests were done after only eight days and therefore meaningless
In my last post about my results, after abstaining from ALL supplements for about eight days, including metavive and adrenavive (whole bovine/porcine gland and whole adrenal gland respectively) I had blood tests and reported the following: Ft3 4.6 pmol/L (3.5 - 6.5) TSH mU/L< 0.03 (0.35 - 5.5) Ft4
In my last post about my results, after abstaining from ALL supplements for about eight days, including metavive and adrenavive (whole bovine/porcine gland and whole adrenal gland respectively) I had blood tests and reported the following: Ft3 4.6 pmol/L (3.5 - 6.5) TSH mU/L< 0.03 (0.35 - 5.5) Ft4
Noelnoel
in
Thyroid UK
4 years ago
Period changes after FET BFN
Hello, I’m just after a bit of reassure off possible? And apologies in advance if it’s all a bit TMI... After my BFN I stopped meds and had a bleed a few days later. All seemed quite normal. Had another AF which also seemed very normal for me (albeit a shorter cycle than usual). Now my current cycle
Hello, I’m just after a bit of reassure off possible? And apologies in advance if it’s all a bit TMI... After my BFN I stopped meds and had a bleed a few days later. All seemed quite normal. Had another AF which also seemed very normal for me (albeit a shorter cycle than usual). Now my current cycle
BetsyBo
in
Fertility Network UK
4 years ago
Advice after first post stimulation scan - response and thyroid
Hi fellow warriors 💪🍍💛 I had my first monitoring scan today following a week of taking a dose of 300iu Gonal F shots for six days. The sonographer said my lining was developing well and my follicles were beginning to develop but were still small. They have increased my Gonal F dose to 375. My oestrogen
Hi fellow warriors 💪🍍💛 I had my first monitoring scan today following a week of taking a dose of 300iu Gonal F shots for six days. The sonographer said my lining was developing well and my follicles were beginning to develop but were still small. They have increased my Gonal F dose to 375. My oestrogen
Kat_15
in
Fertility Network UK
4 years ago
Given all clear re Lymphnodes 8 months ago, but sentinel node biopsy didn’t work, now they have found cancer! Has anyone been through this?
Hi, My wife was diagnosed with BC, she had it removed and had a sentinel node biopsy, was all clear. 8 Months later an ultrasound revealed cancer in a Lymphnode. She just had 8 nodes removed and they found microscopic cancer in 3 other nodes. They are sure it was there from the start. They have tested
Hi, My wife was diagnosed with BC, she had it removed and had a sentinel node biopsy, was all clear. 8 Months later an ultrasound revealed cancer in a Lymphnode. She just had 8 nodes removed and they found microscopic cancer in 3 other nodes. They are sure it was there from the start. They have tested
ikikuru
in
My Breast Cancer Community
4 years ago
My Wife’s story to help others. (Fibroids)
My Amazing Wife’s story I just wanted to tell my story in the hope that it might help someone in a similar position. I am 41 years old and I found a lump/ hardness in the lower, left hand side of my pelvis. The lump would move lightly at different times of the day and sometimes I couldn’t feel it at
My Amazing Wife’s story I just wanted to tell my story in the hope that it might help someone in a similar position. I am 41 years old and I found a lump/ hardness in the lower, left hand side of my pelvis. The lump would move lightly at different times of the day and sometimes I couldn’t feel it at
Rlr2020
in
Pelvic Pain Support Network
4 years ago
New on the site with Estrogen Replacement query
Good afternoon I started estrogen and progesterone replacement therapy 2 months ago along with B12 injections. I have several small brown rectangle shaped Marks on my face come up since starting. And dark freckles (darker than usual) appearing on my body. Has anyone any experience of this after starting
Good afternoon I started estrogen and progesterone replacement therapy 2 months ago along with B12 injections. I have several small brown rectangle shaped Marks on my face come up since starting. And dark freckles (darker than usual) appearing on my body. Has anyone any experience of this after starting
smilingjane
in
Women's Health
4 years ago
Quert re brown small patches on face and darker freckles and B12 injctions
Morning everyone I started B12 injections a couple of months ago and since have come up with several small brown patches on my face and some of dark freckles on my body. I am usually freckly but not dark freckles. It's also worth noting that I started progesterone and estrogen replacement around the
Morning everyone I started B12 injections a couple of months ago and since have come up with several small brown patches on my face and some of dark freckles on my body. I am usually freckly but not dark freckles. It's also worth noting that I started progesterone and estrogen replacement around the
smilingjane
in
Pernicious Anaemia Society
4 years ago
Low testosterone - GP won’t help - Help / Advice please
About 10 years ago I went for tests when my wife and I were struggling to conceive. My testosterone level was said to be borderline at that point (9.9). I went to my GP about 2 years ago and was tested again as I was struggling with lack of libido, felt down and had extreme tiredness and my result was
About 10 years ago I went for tests when my wife and I were struggling to conceive. My testosterone level was said to be borderline at that point (9.9). I went to my GP about 2 years ago and was tested again as I was struggling with lack of libido, felt down and had extreme tiredness and my result was
UK_man
in
Men's Health Forum
4 years ago
HRT & Supplements
Hi I’ve been on HRT for a month now (oestrogen gel and progesterone tablets). I’m also taking Levo and T3. I’m slowly easing back in my supplements as I wanted to start the HRT on its own. I’m now back on vitamin B complex and vitamin D but I want to add in magnesium. However I’m not sure if it’s
Hi I’ve been on HRT for a month now (oestrogen gel and progesterone tablets). I’m also taking Levo and T3. I’m slowly easing back in my supplements as I wanted to start the HRT on its own. I’m now back on vitamin B complex and vitamin D but I want to add in magnesium. However I’m not sure if it’s
Spangle15
in
Thyroid UK
4 years ago
some ways to alleviate anxiety and stay out of the depths of depression
I have had severe depression and anxiety much of my life and having been through it for so long, i’ve learned some ways to help myself and stay motivated, manage mental illness and wanted to share in hopes it might help someone else. 1) do at least one productive task (a load of laundry, answer work
I have had severe depression and anxiety much of my life and having been through it for so long, i’ve learned some ways to help myself and stay motivated, manage mental illness and wanted to share in hopes it might help someone else. 1) do at least one productive task (a load of laundry, answer work
Hidden
in
Anxiety and Depression Support
4 years ago
Women, menopause and running
Having now started some real research on menopause and running, I’ve found this excellent advice via the Women’s Sports Network. How Oestrogen loss during peri-/menopause affects a runner's bones, muscles, tendons and joints. WITH: Sports Injury Physio . https://youtu.be/Pel15uj2kDc
Having now started some real research on menopause and running, I’ve found this excellent advice via the Women’s Sports Network. How Oestrogen loss during peri-/menopause affects a runner's bones, muscles, tendons and joints. WITH: Sports Injury Physio . https://youtu.be/Pel15uj2kDc
BonniesRest
in
Bridge to 10K
4 years ago
Laura Update - No More Chemo - On to Letrozole
Well, ladies, I have had some disappointing news these last few weeks. I went for my regular pre-Chemo blood tests, but my Oncologist called me the next day to say my Liver function looked bad. I wouldn’t be having Chemo and instead would get an Ultrasound of my liver. Also, my cancer marker had shot
Well, ladies, I have had some disappointing news these last few weeks. I went for my regular pre-Chemo blood tests, but my Oncologist called me the next day to say my Liver function looked bad. I wouldn’t be having Chemo and instead would get an Ultrasound of my liver. Also, my cancer marker had shot
Lindaura
in
My Ovacome
4 years ago
Uterosacral Ligaments
Hi ladies Does anyone have any advice on deep infiltrating endo on the uterosacral ligaments? I've had 3 surgeries over 20 years; in summary - ablation in 2002, ovaries removed in 2015 and then full hysterectomy in 2017. On top of my endo I also had adenomyosis. I was 44 in 2015 so went onto HRT then
Hi ladies Does anyone have any advice on deep infiltrating endo on the uterosacral ligaments? I've had 3 surgeries over 20 years; in summary - ablation in 2002, ovaries removed in 2015 and then full hysterectomy in 2017. On top of my endo I also had adenomyosis. I was 44 in 2015 so went onto HRT then
Juls1971
in
Endometriosis UK
4 years ago
I am 6 weeks today and today I felt slight cramping on and off through the day and then light bleeding... is this a bad sign?
I am 6 weeks pregnant today but I noticed light bleeding today. My viability scan is due 24th August. The nurse did say you may experience bleeding. I am so anxious now.. 😰 I would be grateful for any insight please x x x Updated: So had a call with the nurse and she told me to take it one day at
I am 6 weeks pregnant today but I noticed light bleeding today. My viability scan is due 24th August. The nurse did say you may experience bleeding. I am so anxious now.. 😰 I would be grateful for any insight please x x x Updated: So had a call with the nurse and she told me to take it one day at
Olivia11
in
Fertility Network UK
4 years ago
To be on Ibrance or not?
To be on Ibranceor not? I moved from CA to PA and last Nov. had a pet scan and it was cancer free, clear. I was on Ibrance and letrozole for two years as my cancer came back in left lymph nodes again. I had estrogen type cancer in left breast in 2009 and had a double mastectomy and chemo. Then for 5
To be on Ibranceor not? I moved from CA to PA and last Nov. had a pet scan and it was cancer free, clear. I was on Ibrance and letrozole for two years as my cancer came back in left lymph nodes again. I had estrogen type cancer in left breast in 2009 and had a double mastectomy and chemo. Then for 5
sujata2
in
SHARE Metastatic Breast Cancer
4 years ago
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