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My Last (IFN) Dose, my Fateful Decision One Year Ago
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
EPguy
in
MPN Voice
7 months ago
newbie
Hi all I’m new to this group. I was diagnosed 18 months ago with tinnitus after I went the to my local Boots for hearing test and they said I had a 60% loss in my left ear, I was rather surprised. I was referred to audiologist given a hearing aid and that was that. Had two sessions of tinnitus therapy
Hi all I’m new to this group. I was diagnosed 18 months ago with tinnitus after I went the to my local Boots for hearing test and they said I had a 60% loss in my left ear, I was rather surprised. I was referred to audiologist given a hearing aid and that was that. Had two sessions of tinnitus therapy
bmb64
in
Tinnitus UK
4 months ago
safe antidepressants
hi All, I wish I could cheer you up but unfortunately this is not a particularly happy post. I recently started suffering from pulsatile, tonal tinnitus , aural fullness and sound distortion in very quick succession. While the hearing test doesn’t show much change from previous ones, I am sure there
hi All, I wish I could cheer you up but unfortunately this is not a particularly happy post. I recently started suffering from pulsatile, tonal tinnitus , aural fullness and sound distortion in very quick succession. While the hearing test doesn’t show much change from previous ones, I am sure there
DanielaHobbs_
in
Tinnitus UK
4 months ago
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Bleeding while starting stims??
Hi All, First round of IVF so not sure if this is normal or not! I had my prostap injection to begin downregulation on 4th March, my period began a week later on 11th March. 4 days of heavy bleeding, pretty much normal for me as an endo sufferer! However, I have continued to lightly bleed since, ranging
Hi All, First round of IVF so not sure if this is normal or not! I had my prostap injection to begin downregulation on 4th March, my period began a week later on 11th March. 4 days of heavy bleeding, pretty much normal for me as an endo sufferer! However, I have continued to lightly bleed since, ranging
Behind_Hazel_Eyes
in
Fertility Network UK
5 months ago
Recommendations for a rheumatologist in Merseyside area please.
I was 65 in August, about six to eight weeks ago I started having really painful hips, fatigued, night sweats, eye and temple pains. I have mild lupus (remission) so was discharged by my rheumatologist in January 21 My GP recently did some bloods. ESR 10 He told me to contact rheumatology department
I was 65 in August, about six to eight weeks ago I started having really painful hips, fatigued, night sweats, eye and temple pains. I have mild lupus (remission) so was discharged by my rheumatologist in January 21 My GP recently did some bloods. ESR 10 He told me to contact rheumatology department
Pennypip
in
PMRGCAuk
9 months ago
Does tibilone get better?
Hello everyone, I've just finished a 6 month course of prostap with no add back hrt. I had a pretty rough time on prostap alone, apparently I was supposed to be prescribed hrt alongside but never was, and in order to carry on my consultant has now added in tibilone. I thought the prostap was bad but
Hello everyone, I've just finished a 6 month course of prostap with no add back hrt. I had a pretty rough time on prostap alone, apparently I was supposed to be prescribed hrt alongside but never was, and in order to carry on my consultant has now added in tibilone. I thought the prostap was bad but
Womble84
in
Endometriosis UK
9 months ago
Prostap or Dineogest
I have recently been diagnosed with Endometriosis and I have been started on Dineogest tablets, I dont really know much about this tablet and if I will still have a period etc? I have tried prostap injection before and it helped the pain I am wanting to know if prostap or dineogest tablets is better
I have recently been diagnosed with Endometriosis and I have been started on Dineogest tablets, I dont really know much about this tablet and if I will still have a period etc? I have tried prostap injection before and it helped the pain I am wanting to know if prostap or dineogest tablets is better
Lucyjanexoxo
in
Endometriosis UK
5 months ago
Prostap - Longer than normal bleed?
Hi All! Just wondering if anyone else has experienced this… is it normal? I had my prostap injection on 4th March for down-regulation and my ‘period’ started on 11th March, bang on normal schedule. However, my period usually lasts about 4/5 days, starting off light, going heavy and then finishing
Hi All! Just wondering if anyone else has experienced this… is it normal? I had my prostap injection on 4th March for down-regulation and my ‘period’ started on 11th March, bang on normal schedule. However, my period usually lasts about 4/5 days, starting off light, going heavy and then finishing
Behind_Hazel_Eyes
in
Fertility Network UK
5 months ago
throbbing lower leg
hi all, New here I’ve had endo for 15 years it eased up and I thought it had gone when I had my daughter 11 years ago but when she was 8 it came back with vengeance. Had a laparoscopy and encision surgery in Oct 2023 pain eased up for 3 months then came back yet again so now they have started me on
hi all, New here I’ve had endo for 15 years it eased up and I thought it had gone when I had my daughter 11 years ago but when she was 8 it came back with vengeance. Had a laparoscopy and encision surgery in Oct 2023 pain eased up for 3 months then came back yet again so now they have started me on
DanDan1991
in
Endometriosis UK
5 months ago
Busy, busy, busy!
Hello,, everyone! Just thought I'd pop in and say 'Hello!' as i've been really busy lately and not getting much chance to look in at the Forum. I sometimes get chance to read but not much time to respond - only to very few! I had COVID again a few weeks ago which has left me with an aversion to certain
Hello,, everyone! Just thought I'd pop in and say 'Hello!' as i've been really busy lately and not getting much chance to look in at the Forum. I sometimes get chance to read but not much time to respond - only to very few! I had COVID again a few weeks ago which has left me with an aversion to certain
MoyB
in
Lung Conditions Community Forum
9 months ago
Experience on Zoladex or Prostap for endometriosis
hey all, I was just looking to hear people’s experiences treating endo with zoladex/prostap injection. I finally saw an endo specialist and has recommended another laparoscopy but excision surgery as my first one was ablation, but he wants me to have this injection and see if my symptoms improve for
hey all, I was just looking to hear people’s experiences treating endo with zoladex/prostap injection. I finally saw an endo specialist and has recommended another laparoscopy but excision surgery as my first one was ablation, but he wants me to have this injection and see if my symptoms improve for
rachelgreen22
in
Endometriosis UK
5 months ago
Down reg carpal tunnel
Just starting my 1st cycle on the nhs and down regulating with prostap which I had injected on the 6th. I've had some mild CTS in the past but since the injection I've found it has flared up and is worse than I've ever had it before. I have heard that CTS can be linked to hormone changes, particularly
Just starting my 1st cycle on the nhs and down regulating with prostap which I had injected on the 6th. I've had some mild CTS in the past but since the injection I've found it has flared up and is worse than I've ever had it before. I have heard that CTS can be linked to hormone changes, particularly
Woolooblue
in
Fertility Network UK
5 months ago
Abdominal ultrasound
Hiya,Would just like people's views/experiences on if endo will be picked up on an ultrasound or the abdomen. I've had pelvic mri before which picked up endo everywhere and I'm awaiting surgery (endo,hysterectomy and bowel). I've not got abdomen pains so they've got me down for an ultrasound. I feel
Hiya,Would just like people's views/experiences on if endo will be picked up on an ultrasound or the abdomen. I've had pelvic mri before which picked up endo everywhere and I'm awaiting surgery (endo,hysterectomy and bowel). I've not got abdomen pains so they've got me down for an ultrasound. I feel
Loveneige
in
Endometriosis UK
9 months ago
PMR... back on 20mg
Be interesting to see whether
ESR
comes down to normal at next blood
test
. Took my first dose Tuesday afternoon and when I woke up on Wednesday morning, I did not need the walking stick to propel myself out of bed!
Be interesting to see whether
ESR
comes down to normal at next blood
test
. Took my first dose Tuesday afternoon and when I woke up on Wednesday morning, I did not need the walking stick to propel myself out of bed!
Biba5
in
PMRGCAuk
6 months ago
One last push ..please...help for my Dad. NHS treatments no longer viable - Pca stage 4.
Guys...do not know how to connect this post to my previous ones..sorry. I'm also all over the place, forgive my ramblings! I have finally gotten hold of Dad's records. Nothing more NHS can do, so am looking at Turkey for Lu 177. I know this is an option, but want to literally exhaust anything in the
Guys...do not know how to connect this post to my previous ones..sorry. I'm also all over the place, forgive my ramblings! I have finally gotten hold of Dad's records. Nothing more NHS can do, so am looking at Turkey for Lu 177. I know this is an option, but want to literally exhaust anything in the
kikinini
in
Advanced Prostate Cancer
1 month ago
Infertility with IV Endo & Ando
I’m 39 been trying for a baby for 6yrs, undergone 6xIUIs, various IVFs inc 4xEC with transfers, 6xFETs with mine & wife’s embryos. 2x early pregnancy losses, one cervical ectopic. Then diagnosed IV Endo/Ando by MRI Feb2023. Tired down reg with Prostap followed by transfer. Due Llaproscopy, told will
I’m 39 been trying for a baby for 6yrs, undergone 6xIUIs, various IVFs inc 4xEC with transfers, 6xFETs with mine & wife’s embryos. 2x early pregnancy losses, one cervical ectopic. Then diagnosed IV Endo/Ando by MRI Feb2023. Tired down reg with Prostap followed by transfer. Due Llaproscopy, told will
Amelia1984
in
Endometriosis UK
5 months ago
Hi All. New member here.
I found this site after being utterly fed up and frustrated. A little back story first: I'm 53, male and I live in England. About a decade ago I noticed after a gig I attended as a punter that the usual "ringing in the ears" was taking longer than usual to go away, then after a few more weeks realised
I found this site after being utterly fed up and frustrated. A little back story first: I'm 53, male and I live in England. About a decade ago I noticed after a gig I attended as a punter that the usual "ringing in the ears" was taking longer than usual to go away, then after a few more weeks realised
MagikalMeeps
in
Tinnitus UK
9 months ago
upping steroids short term to boost recovery?
writing on behalf of my mum who is getting over a respiratory tract infection (or not getting over it to be precise). She has long PMR (getting on 40 yr) and is constantly trying to reduce pred. I recall reading in this forum a recommendation to temporarily increase dose when ill / having surgery etc
writing on behalf of my mum who is getting over a respiratory tract infection (or not getting over it to be precise). She has long PMR (getting on 40 yr) and is constantly trying to reduce pred. I recall reading in this forum a recommendation to temporarily increase dose when ill / having surgery etc
Gottarelax
in
PMRGCAuk
9 months ago
Promethazine sleeping tablets following insomnia and increased episodes amnesia
So my T journey continues. I would say insomnia has been the biggest problem through out but I thought I'd learned to live with it. However, it certainly seems it may be catching up with me (I posted about this last month ago - but I'll recap briefly). I had what appeared to be an isolated episode
So my T journey continues. I would say insomnia has been the biggest problem through out but I thought I'd learned to live with it. However, it certainly seems it may be catching up with me (I posted about this last month ago - but I'll recap briefly). I had what appeared to be an isolated episode
daverussell
in
Tinnitus UK
9 months ago
Pulsatile tinnitus
Hi there. Does anyone else have pulsatile T. Mostly it comes and goes, always one-sided as the T is that side. I can make it go away by turning my head to the opposite side. But when i turn it back the T comes back. Shrugging my shoulders helps as well as stretching my neck. Have spoken to the doctor
Hi there. Does anyone else have pulsatile T. Mostly it comes and goes, always one-sided as the T is that side. I can make it go away by turning my head to the opposite side. But when i turn it back the T comes back. Shrugging my shoulders helps as well as stretching my neck. Have spoken to the doctor
penelope2
in
Tinnitus UK
9 months ago
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