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looking for positive stories….
Hi, following on from my last post I wondered if anyones prognosis has been wrong? I am not sure our moderators will allow my post but I am in a sad hole.. My chemo ( 3rd line carbo then cisplatin and Gemcitabine) has been stopped after 3 treatments due to toxicity. I was really unwell on it . Ct shows
Hi, following on from my last post I wondered if anyones prognosis has been wrong? I am not sure our moderators will allow my post but I am in a sad hole.. My chemo ( 3rd line carbo then cisplatin and Gemcitabine) has been stopped after 3 treatments due to toxicity. I was really unwell on it . Ct shows
Laz66
in
My Ovacome
9 months ago
EGPA and Cancer
Hi Every one I was diagnosed with EGPA about 5 years ago. I have been on Methotrexate since then and on and off low doses of Prednisolone. I have hardly had any symptoms . However in February this year I was diagnosed with womb cancer, I had a hysterectomy which be re moved the cancer and chemo and
Hi Every one I was diagnosed with EGPA about 5 years ago. I have been on Methotrexate since then and on and off low doses of Prednisolone. I have hardly had any symptoms . However in February this year I was diagnosed with womb cancer, I had a hysterectomy which be re moved the cancer and chemo and
Farnorth
in
Vasculitis UK
9 months ago
Hello. Low grade Serous
Hi everyone. I was diagnosed with low grade serous ovarian cancer in Sept 22, I’ve had 2 massive ops and chemo and now take Letrozole. My recent scans have been clear, which is the best news. I haven’t really reached out to many support groups but feel I need to as I feel pretty isolated with my experience
Hi everyone. I was diagnosed with low grade serous ovarian cancer in Sept 22, I’ve had 2 massive ops and chemo and now take Letrozole. My recent scans have been clear, which is the best news. I haven’t really reached out to many support groups but feel I need to as I feel pretty isolated with my experience
GoldieH
in
My Ovacome
9 months ago
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Peripheral neuropathy
Hi everyone, I hope everyone is safe during this awful weather I have been told in my latest review that I have Stage 1 peripheral neuropathy. Bit of a blow as having read up it means I have to tell DVLA as I shouldn’t drive. All treatments and appointments are an hour away by car, longer by bus. No
Hi everyone, I hope everyone is safe during this awful weather I have been told in my latest review that I have Stage 1 peripheral neuropathy. Bit of a blow as having read up it means I have to tell DVLA as I shouldn’t drive. All treatments and appointments are an hour away by car, longer by bus. No
Skyeplus
in
My Ovacome
9 months ago
Treatment after Lu /Pluvicto?
It seems that there is paucity of data related to the effectiveness of treatments after Lu/Pluvicto. I'm beginning to suspect that pubished survival benefits for Radium 223/Pluvicto and chemotherapy cannot be assumed to be anticipated if the patient has had Pluvicto. My husband has completed 6 sessions
It seems that there is paucity of data related to the effectiveness of treatments after Lu/Pluvicto. I'm beginning to suspect that pubished survival benefits for Radium 223/Pluvicto and chemotherapy cannot be assumed to be anticipated if the patient has had Pluvicto. My husband has completed 6 sessions
cancervictim
in
Advanced Prostate Cancer
9 months ago
Hi Everyone!
Well, I've been on quite a journey. To say the least. I've had MS for22 years and I stopped all treatments back in 2018. I've had 17 years of injections. I still ended up in a wheelchair while on them. This July I was dx with Cancer of the mouth. It started with white patches. I had ALOT of Dr, PA, nurses
Well, I've been on quite a journey. To say the least. I've had MS for22 years and I stopped all treatments back in 2018. I've had 17 years of injections. I still ended up in a wheelchair while on them. This July I was dx with Cancer of the mouth. It started with white patches. I had ALOT of Dr, PA, nurses
ganna64
in
My MSAA Community
9 months ago
Anyone tried hyperbaric Oxygen therapy?
My bestie who is battling ovarian cancer is using this as part of her overcoming cancer plan and reckons it really helps. It gives her a boost of energy and seemes to have helped get her through the chemo stages with hardly any fatigue or sickness. It seems to be endorsed at least unofficially by many
My bestie who is battling ovarian cancer is using this as part of her overcoming cancer plan and reckons it really helps. It gives her a boost of energy and seemes to have helped get her through the chemo stages with hardly any fatigue or sickness. It seems to be endorsed at least unofficially by many
tangocharlie
in
PMRGCAuk
9 months ago
Current Triplet State
Hi all - was diagnosed in early August with advanced prostate cancer with couple mets on pubic bone and l5. Treatment plan is: Lupron injections every 3 mths Daralutamide now daily Chemo every 3rd week (docetaxel) ...this reads properly to you all and is the standard of care? They also want
Hi all - was diagnosed in early August with advanced prostate cancer with couple mets on pubic bone and l5. Treatment plan is: Lupron injections every 3 mths Daralutamide now daily Chemo every 3rd week (docetaxel) ...this reads properly to you all and is the standard of care? They also want
Yzinger
in
Advanced Prostate Cancer
9 months ago
Current advances of liquid biopsies in prostate cancer: Molecular biomarkers, Cell/Molecular Therapy Oncolytics, 09/21/23
Recent comprehensive paper on the use of liquid biopsies for diagnosis and treatment of PCa. Comprehensive summary tables are provided for both purposes. From the paper: [i]Introduction[/i] [i]The prostate-specific antigen (PSA) test is one of the most widely used screening tests for men at risk for
Recent comprehensive paper on the use of liquid biopsies for diagnosis and treatment of PCa. Comprehensive summary tables are provided for both purposes. From the paper: [i]Introduction[/i] [i]The prostate-specific antigen (PSA) test is one of the most widely used screening tests for men at risk for
CaptnMojoe
in
Fight Prostate Cancer
9 months ago
STAGE 1C1 Grade 2
Hello all Hope everyone is doing ok. I am new here. I found out end of August that I had a 17cm cyst on my left ovary. The MRI did not determine if the cyst was malignant or benign. My gynae-oncologist arranged for emergency surgery on the 6th September but during surgery it burst. I had my left
Hello all Hope everyone is doing ok. I am new here. I found out end of August that I had a 17cm cyst on my left ovary. The MRI did not determine if the cyst was malignant or benign. My gynae-oncologist arranged for emergency surgery on the 6th September but during surgery it burst. I had my left
Kscott10
in
My Ovacome
9 months ago
STAGE 1C1 Grade 2
Hello all Hope everyone is doing ok. I am new here. I found out end of August that I had a 17cm cyst on my left ovary. The MRI did not determine if the cyst was malignant or benign. My gynae-oncologist arranged for emergency surgery on the 6th September but during surgery it burst. I had my left
Hello all Hope everyone is doing ok. I am new here. I found out end of August that I had a 17cm cyst on my left ovary. The MRI did not determine if the cyst was malignant or benign. My gynae-oncologist arranged for emergency surgery on the 6th September but during surgery it burst. I had my left
Kscott10
in
SHARE Ovarian Cancer Support
9 months ago
Docetaxel only partially successful
I had a full body MRI scan this week at Royal Marsden in London. The purpose was to assess the effectiveness of docetaxel after 3 infusions. The results have been very disappointing, and I'm struggling to keep a sense of perspective - not least because I was feeling so good, and had seen all of my previous
I had a full body MRI scan this week at Royal Marsden in London. The purpose was to assess the effectiveness of docetaxel after 3 infusions. The results have been very disappointing, and I'm struggling to keep a sense of perspective - not least because I was feeling so good, and had seen all of my previous
CrocodileShoes
in
Advanced Prostate Cancer
9 months ago
Reduced-Dose Schedule of Cabazitaxel Viable for Seniors With mCRPC - MedPage Today, November 1, 2023
Modified dosing schedule from phase III randomized CABASTY trial for Jetvana (+ G-CSF) for older patients out of non-chemo treatment options. * * * [i]
Reduced-Dose Schedule of Cabazitaxel Viable for Seniors With mCRPC - Grade 3 or higher neutropenia, neutropenic complications reduced by 12-fold
Modified dosing schedule from phase III randomized CABASTY trial for Jetvana (+ G-CSF) for older patients out of non-chemo treatment options. * * * [i]
Reduced-Dose Schedule of Cabazitaxel Viable for Seniors With mCRPC - Grade 3 or higher neutropenia, neutropenic complications reduced by 12-fold
CaptnMojoe
in
Fight Prostate Cancer
9 months ago
Follow-up to my post
Thank you for all of your replies. My husband is now being very supportive and we had a good talk. I was so nervous on Tuesday when I went to get my blood test. My husband has been been incredibly supportive. My CA-125 is now down to 34 which is the normal range in my country. I did my 6th chemo session
Thank you for all of your replies. My husband is now being very supportive and we had a good talk. I was so nervous on Tuesday when I went to get my blood test. My husband has been been incredibly supportive. My CA-125 is now down to 34 which is the normal range in my country. I did my 6th chemo session
Chanterelle
in
My Ovacome
9 months ago
Is my cancer castrate resistant?
Since detection of abdominal and pelvic mesastasis by PSMA scan in October 2018, intermittant Lupron was very effective in keeping my cancer under control until July 2022. From July 2022 until now I have been on continuous Lupron because PSA refused to become undetectable. From July 2022 until August
Since detection of abdominal and pelvic mesastasis by PSMA scan in October 2018, intermittant Lupron was very effective in keeping my cancer under control until July 2022. From July 2022 until now I have been on continuous Lupron because PSA refused to become undetectable. From July 2022 until August
dac500
in
Advanced Prostate Cancer
9 months ago
Pluvicto Failed - Next step
Hello Warriors: Pluvicto has failed. I went through four sessions and had severe side effects of exhaustion and GI problems as well as it seemed to stimulate my foot neuropathy. My PSA went down during injection 2 and 3 but then came back up in 4. Disappointing... I just met my new MO at the Mayo
Hello Warriors: Pluvicto has failed. I went through four sessions and had severe side effects of exhaustion and GI problems as well as it seemed to stimulate my foot neuropathy. My PSA went down during injection 2 and 3 but then came back up in 4. Disappointing... I just met my new MO at the Mayo
Hidden
in
Advanced Prostate Cancer
9 months ago
Antisapatory nausea
Hello! I am pretty sure I spelled antisapatory wrong. I am on Trodelvy. The first 2 months were very rough. I had nausea and fatigue. All the nausea meds made me sicker. I think my body adjusted and between Ativan and scopolimine patch it definitely got better. Unfortunately I have started
Hello! I am pretty sure I spelled antisapatory wrong. I am on Trodelvy. The first 2 months were very rough. I had nausea and fatigue. All the nausea meds made me sicker. I think my body adjusted and between Ativan and scopolimine patch it definitely got better. Unfortunately I have started
Ticket123
in
SHARE Metastatic Breast Cancer
9 months ago
Cavernous Tumor & Rising PSA
My husband had triple therapy with docetaxel (finished chemo in January), darolutimide, and Firmagon/Lupron. Recently he developed what seemed like a sinus infection but was really a tumor in his sinus cavity and behind his eye socket wrapped around his carotid arteries on the plate of his skull (
My husband had triple therapy with docetaxel (finished chemo in January), darolutimide, and Firmagon/Lupron. Recently he developed what seemed like a sinus infection but was really a tumor in his sinus cavity and behind his eye socket wrapped around his carotid arteries on the plate of his skull (
Izzygirl1
in
Advanced Prostate Cancer
9 months ago
Beginning To Despair.....
Just an update on my problems with low heart rate etc........ My long quest to try to discover why for several years now I have been waking up around 5 or 6 o'clock every morning feeling absolutely terrible continues on. My mobility has also got really very bad and it is becoming more and more difficult
Just an update on my problems with low heart rate etc........ My long quest to try to discover why for several years now I have been waking up around 5 or 6 o'clock every morning feeling absolutely terrible continues on. My mobility has also got really very bad and it is becoming more and more difficult
Channeal
in
British Heart Foundation
9 months ago
Shingrix vaccine for immunosuppressed people aged 50+
I thought I would just post this from the gov.uk website because I have just a bit of struggle convincing our surgery that I was eligible, so maybe other people haven't been invited either. The full list is on chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://assets.publishing.service.gov.uk
I thought I would just post this from the gov.uk website because I have just a bit of struggle convincing our surgery that I was eligible, so maybe other people haven't been invited either. The full list is on chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://assets.publishing.service.gov.uk
Sharitone
in
PMRGCAuk
9 months ago
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