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CLL - Next Generation Sequencing
I'm curious about Next Generation Sequencing for CLL. To my understanding, this type of test identifies resistant mutations, i.e., NOTCH1, ZAP-70, SF3B1, etc., and this can help your doctor to determine a targeted therapy that's more personalized. Not sure I have this correct so hopefully someone here
I'm curious about Next Generation Sequencing for CLL. To my understanding, this type of test identifies resistant mutations, i.e., NOTCH1, ZAP-70, SF3B1, etc., and this can help your doctor to determine a targeted therapy that's more personalized. Not sure I have this correct so hopefully someone here
Cave123
in
CLL Support
1 year ago
surgical menopause
hi! What are your thoughts on including progesterone in your hrt regime if you are in surgical menopause and previously had severe endo? My hysterectomy included endo excision by an endo specialist. Is it necessary?
hi! What are your thoughts on including progesterone in your hrt regime if you are in surgical menopause and previously had severe endo? My hysterectomy included endo excision by an endo specialist. Is it necessary?
Hidden
in
Endometriosis UK
1 year ago
drenching night sweats
I have been on Hrt for 6 years but drs found a brain tumour last year...it was removed but I have to stop my hrt as the tumour could come back as it feeds on estrogen. I am about to stop the patches after halving them for 2 months. I am having terrible drenching sweats and my legs are so painful and
I have been on Hrt for 6 years but drs found a brain tumour last year...it was removed but I have to stop my hrt as the tumour could come back as it feeds on estrogen. I am about to stop the patches after halving them for 2 months. I am having terrible drenching sweats and my legs are so painful and
Hidden
in
Menopause and Perimenopause Support
1 year ago
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The ParkinsonNet dream
ParkinsonNet is on a mission to improve the lives and guarantee the best possible care for those people impacted by Parkinson’s disease.
We are ParkinsonNet and would love to have your country on board of our global network.
ParkinsonNet was founded in 2004 in the Netherlands, were patient centered
ParkinsonNet is on a mission to improve the lives and guarantee the best possible care for those people impacted by Parkinson’s disease.
We are ParkinsonNet and would love to have your country on board of our global network.
ParkinsonNet was founded in 2004 in the Netherlands, were patient centered
Esperanto
in
Cure Parkinson's
1 year ago
I went to the neph doctor for the 1st time...ugh...a couple of questions
She said I have stage 3a chronic kidney disease...The only thing she based it off of was egfr...I am not sure if other things need to be considered? She is sending me for a ultrasound and said to come back in 6 months and didnt seem very informative or concerned...Is this normal? How often would
She said I have stage 3a chronic kidney disease...The only thing she based it off of was egfr...I am not sure if other things need to be considered? She is sending me for a ultrasound and said to come back in 6 months and didnt seem very informative or concerned...Is this normal? How often would
tresa56
in
Kidney Disease
1 year ago
Red light therapy
Hi , I’ve read up a lot about red light therapy & have held back but now considering buying one. Just interested to know if any of you have bought one, how you have got on with it, re results, plus if so any recommendations. I know I have seen posts in the past where people have mentioned they use one
Hi , I’ve read up a lot about red light therapy & have held back but now considering buying one. Just interested to know if any of you have bought one, how you have got on with it, re results, plus if so any recommendations. I know I have seen posts in the past where people have mentioned they use one
Durrell
in
NRAS
1 year ago
How long would it take HRT to worsen RLS?
Having had very mild RLS for a number of years it worsened dramatically in Feb 2020. In Jun this year I increased by HRT and am experiencing an escalation in my RLS symptoms and so now I’m wondering if my starting it in May 2019 could’ve been the original trigger for them worsening - is it possible
Having had very mild RLS for a number of years it worsened dramatically in Feb 2020. In Jun this year I increased by HRT and am experiencing an escalation in my RLS symptoms and so now I’m wondering if my starting it in May 2019 could’ve been the original trigger for them worsening - is it possible
Greenseagirl
in
Restless Legs Syndrome
1 year ago
What would be next?
From my hx, Gleason 9 RP. PSA went to 0.2 8 months later. PSMA 4 hot spots. IMRT, Lupron and Zytiga. Doing great thus far. MO said if recurrence, Provenge next. Agree? No scan till PSA rise. Agree?thank you
From my hx, Gleason 9 RP. PSA went to 0.2 8 months later. PSMA 4 hot spots. IMRT, Lupron and Zytiga. Doing great thus far. MO said if recurrence, Provenge next. Agree? No scan till PSA rise. Agree?thank you
rfgh20
in
Advanced Prostate Cancer
10 months ago
The effect of light exposure on insomnia and nocturnal movement in Parkinson's disease: an open label, retrospective, longitudinal study
The effect of light exposure on insomnia and nocturnal movement in Parkinson's disease: an open label, retrospective, longitudinal study 2018 https://sci-hub.ru/10.1016/j.sleep.2018.01.001
Abstract
Insomnia, hypersomnia and REM Sleep Behavior Disorder (RSBD) during sleep are major problems for
The effect of light exposure on insomnia and nocturnal movement in Parkinson's disease: an open label, retrospective, longitudinal study 2018 https://sci-hub.ru/10.1016/j.sleep.2018.01.001
Abstract
Insomnia, hypersomnia and REM Sleep Behavior Disorder (RSBD) during sleep are major problems for
Bolt_Upright
in
Cure Parkinson's
1 year ago
Constipation caused by pelvic floor dysfunction
I have been diagnosed with obstructive defecation syndrome (pelvic floor dysfunction) from a proctogram - I’ve been given physiotherapy and it hasn’t worked. I’ve asked to be referred for biofeedback and my doctor says they won’t do anything else. Does anyone have any advice? It’s severely impacting
I have been diagnosed with obstructive defecation syndrome (pelvic floor dysfunction) from a proctogram - I’ve been given physiotherapy and it hasn’t worked. I’ve asked to be referred for biofeedback and my doctor says they won’t do anything else. Does anyone have any advice? It’s severely impacting
Pinkcrystal5
in
Pelvic Pain Support Network
1 year ago
HRT /anti depressants
Hi to all who are going through the peri menopause it’s awful 😞. I’ve been really struggling with my anxiety and depression that I’ve had to up my dosage of Sertraline that I’ve been on for a number of years . I thought it was helping somewhat but no yesterday I had another complete meltdown and today
Hi to all who are going through the peri menopause it’s awful 😞. I’ve been really struggling with my anxiety and depression that I’ve had to up my dosage of Sertraline that I’ve been on for a number of years . I thought it was helping somewhat but no yesterday I had another complete meltdown and today
Junkjournal1
in
Menopause and Perimenopause Support
1 year ago
Meds and CBT
Does anyone have any stories about how meds might of helped them with anxiety and depression, I have been on and constant up and down spiral for months, one week I might be extremely positive and confident with moments of bliss, then the next I can be rock bottom feel utterly hopeles and get paranoid
Does anyone have any stories about how meds might of helped them with anxiety and depression, I have been on and constant up and down spiral for months, one week I might be extremely positive and confident with moments of bliss, then the next I can be rock bottom feel utterly hopeles and get paranoid
Talkinghelps
in
Anxiety and Depression Support
1 year ago
End of my patience really unsure what to do feel completely alone and like nobody is listening Consultant confusing me what is wrong with me
I posted once before about starting injections whilst I wait for my hysterectomy I am 42 and my periods have been an issue my whole life heavy/painful etc except for when I was pg/breastfeeding my 3 kids it was the best period free time of my life. Things got very bad after I did not go back on the pill
I posted once before about starting injections whilst I wait for my hysterectomy I am 42 and my periods have been an issue my whole life heavy/painful etc except for when I was pg/breastfeeding my 3 kids it was the best period free time of my life. Things got very bad after I did not go back on the pill
LovelyLou81
in
Endometriosis UK
1 year ago
If immediately stopping after two years taking Orgovyx how long before testosterone begins to rise?
I’ve heard that testosterone returns quicker if using Orgovyx compared to Lupron. But I also heard that the longer on any ADT the longer the recovery. Or maybe testosterone never recovers? What do you guys think question
I’ve heard that testosterone returns quicker if using Orgovyx compared to Lupron. But I also heard that the longer on any ADT the longer the recovery. Or maybe testosterone never recovers? What do you guys think question
SViking
in
Advanced Prostate Cancer
1 year ago
New bone met
I have a consult with radiation oncologist on Wednesday and wanted to ask if any of you have had very targeted radiation therapy to one small new spot on bone when your systemic treatment (Ibrance and Letrozole) is still working on other mets. I saw there is SBRT and IMRT. Are these appropriate options
I have a consult with radiation oncologist on Wednesday and wanted to ask if any of you have had very targeted radiation therapy to one small new spot on bone when your systemic treatment (Ibrance and Letrozole) is still working on other mets. I saw there is SBRT and IMRT. Are these appropriate options
Trissh
in
SHARE Metastatic Breast Cancer
10 months ago
Just had Psma-pet scan... Confused
My initial Axium pet scan nearly 2 years ago showed "innumerable" mets throughout musculoskeletal system, from head to knees... Understandably, my PSA at the time was 480. After 1 year on ADT and 8 months of Xtandi another Axium showed mets in calvarial region (skull), neck and clavicle no longer present
My initial Axium pet scan nearly 2 years ago showed "innumerable" mets throughout musculoskeletal system, from head to knees... Understandably, my PSA at the time was 480. After 1 year on ADT and 8 months of Xtandi another Axium showed mets in calvarial region (skull), neck and clavicle no longer present
GSDF
in
Advanced Prostate Cancer
1 year ago
Anyone with PSP-PAGF
I am from India and new to this association. My husband age 69 was diagnosed (mis?) as Parkinson's patient in 2019. He was having speech issues and slow movements Last month, he started freezing and can only walk with baby steps. Consulted a movement disorder specialist who diagnosed it as PSP-PAGF.
I am from India and new to this association. My husband age 69 was diagnosed (mis?) as Parkinson's patient in 2019. He was having speech issues and slow movements Last month, he started freezing and can only walk with baby steps. Consulted a movement disorder specialist who diagnosed it as PSP-PAGF.
Sharsuk
in
PSP Association
1 year ago
Finding Support Groups
I am 84 and diagnosed with PCa in 2014. I had a multi-specialty work up Sibley Hospital in Washington DC (Johns Hopkins staffed clinic). No mets found. I was given 1 option, External beam; 70 Gray treatment went smoothly with no SE. I was given one injection of Lupron prior to the radiation. PSA
I am 84 and diagnosed with PCa in 2014. I had a multi-specialty work up Sibley Hospital in Washington DC (Johns Hopkins staffed clinic). No mets found. I was given 1 option, External beam; 70 Gray treatment went smoothly with no SE. I was given one injection of Lupron prior to the radiation. PSA
gbpmdjd
in
Advanced Prostate Cancer
1 year ago
My Small PCa Cells Don't Produce PSA
Hi All, Anyone here have these PCa cells and experience in treating them? Bio/history summary : - Dx Gleason 8 seven years ago - Prostate tumour metastasis to seminal vesicules and pelvic lymph nodes - PSA from about 150 to undetectable after ADT, enzalutamide , and 6 x docetaxal Now - March scans
Hi All, Anyone here have these PCa cells and experience in treating them? Bio/history summary : - Dx Gleason 8 seven years ago - Prostate tumour metastasis to seminal vesicules and pelvic lymph nodes - PSA from about 150 to undetectable after ADT, enzalutamide , and 6 x docetaxal Now - March scans
Bandit99
in
Advanced Prostate Cancer
1 year ago
Help with bloods
I have an appointment today with my doctor to look at changing my HRT from Evrol Conti 50 and testosterone. I have started having bleeds (mostly dark/blood clots). They have done a scan and i've had a biopsy which is ok so they want to change my HRT. I wanted to see my levels so asked for bloods to
I have an appointment today with my doctor to look at changing my HRT from Evrol Conti 50 and testosterone. I have started having bleeds (mostly dark/blood clots). They have done a scan and i've had a biopsy which is ok so they want to change my HRT. I wanted to see my levels so asked for bloods to
WendyW1964
in
Menopause and Perimenopause Support
1 year ago
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