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Experiences with
Emphysema
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Knowing How To Cope is taking it's Toll
I have COPD and on Oxygen for activity In 2016 September 12th I had a left lung lobectomy bottom half removed , because of two cancers on lung, operation was successful, recovered from that, i also have fibrosis and
emphysema
, cannot have SABR treatment.
I have COPD and on Oxygen for activity In 2016 September 12th I had a left lung lobectomy bottom half removed , because of two cancers on lung, operation was successful, recovered from that, i also have fibrosis and
emphysema
, cannot have SABR treatment.
Guy59
in
Lung Conditions Community Forum
5 years ago
Need Advice on chemotherapy.
I've hardly been able to eat anything for about 4 days now and that's worrying because I've lost so much weight with the
emphysema
, I'm only 90 lbs now! So, I'm wondering. Do I really have a chest infection or did the chemo just make my
emphysema
symptoms even worse?
I've hardly been able to eat anything for about 4 days now and that's worrying because I've lost so much weight with the
emphysema
, I'm only 90 lbs now! So, I'm wondering. Do I really have a chest infection or did the chemo just make my
emphysema
symptoms even worse?
jeancosfo
in
Lung Conditions Community Forum
5 years ago
Emphysema
Hi I have had emphysemaa for 3years was bad at beginning now I feel worse again
Hi I have had emphysemaa for 3years was bad at beginning now I feel worse again
Shortlungs
in
Lung Conditions Community Forum
5 years ago
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Transurtethral Bladder Tumour Resection/BCG Vaccine infusion was successful!
Can't tell you how much I love British people and how everyone I met was so helpful and interested in my COPD/
emphysema
condition. Glad to tell you I'll be seeing Macca in Las Vegas in June and Dodger stadium in July.
Can't tell you how much I love British people and how everyone I met was so helpful and interested in my COPD/
emphysema
condition. Glad to tell you I'll be seeing Macca in Las Vegas in June and Dodger stadium in July.
Sharp5Flat13
in
Lung Conditions Community Forum
5 years ago
Newly diagnosed help
Hi all,I’ve just been diagnosed with
emphysema
and would very much like any help and advice on how to live with this condition i.e things to do that would help day to day more bearable,diet,excersise and fitness etc that im going to need to know about,what questions i need to be asking my g.p/consultant
Hi all,I’ve just been diagnosed with
emphysema
and would very much like any help and advice on how to live with this condition i.e things to do that would help day to day more bearable,diet,excersise and fitness etc that im going to need to know about,what questions i need to be asking my g.p/consultant
fenty
in
Lung Conditions Community Forum
5 years ago
Thanks to all replies
thanks to all who replied,i realise that being newly diagnosed with
emphysema
is only the start but I think managing and coping every day is a necessity to living and enjoying life alongside this form of lung disease and with communities like this and other people having the same difficulties as myself
thanks to all who replied,i realise that being newly diagnosed with
emphysema
is only the start but I think managing and coping every day is a necessity to living and enjoying life alongside this form of lung disease and with communities like this and other people having the same difficulties as myself
fenty
in
Lung Conditions Community Forum
5 years ago
Thanks for all comments
re more than appreciated,apologies for not replying please don’t think of me being rude and ignorant,a close relative my cousin has just passed away,we were very close more like brothers than cousins and it’s broke my heart he’s no longer with us,your advice and suggestions regarding all aspects of
emphysema
re more than appreciated,apologies for not replying please don’t think of me being rude and ignorant,a close relative my cousin has just passed away,we were very close more like brothers than cousins and it’s broke my heart he’s no longer with us,your advice and suggestions regarding all aspects of
emphysema
fenty
in
Lung Conditions Community Forum
5 years ago
Pressure to have a pooh when out of breath
When I walk a bit and get out of breath I feel pressure in my stomach and need a pooh .Has anyone else suffered with this .I do have
emphysema
and it making me lose my confidence in going out.Any advice will be much much appreciated
When I walk a bit and get out of breath I feel pressure in my stomach and need a pooh .Has anyone else suffered with this .I do have
emphysema
and it making me lose my confidence in going out.Any advice will be much much appreciated
kay1400
in
Lung Conditions Community Forum
5 years ago
Spirometry and diagnosis confused.
Basically anyone who has smoked for any length of time will have some
emphysema
. I said at that point that I was using ventolin several times a day. So they agreed to Spirometry.
Basically anyone who has smoked for any length of time will have some
emphysema
. I said at that point that I was using ventolin several times a day. So they agreed to Spirometry.
Gazza01
in
Lung Conditions Community Forum
5 years ago
Help please 😉 newly diagnosed
My tlco seems rather low for a diagnosis of mild
emphysema
?
My tlco seems rather low for a diagnosis of mild
emphysema
?
lynnie2010
in
Lung Conditions Community Forum
5 years ago
Should I get off the steroids
Have
emphysema
and asthma. Been told it's still mild only recently after spirometry. Then had a chat with the gp about inhalers as I was using ventolin several times a day.
Have
emphysema
and asthma. Been told it's still mild only recently after spirometry. Then had a chat with the gp about inhalers as I was using ventolin several times a day.
Gazza01
in
Lung Conditions Community Forum
5 years ago
Round and round we go
For the first four, nearly five weeks I had a severe exacerbation that ended with a hospital stay, where they diagnosed IPF (I also have severe COPD - Chronic Bronchitis and
Emphysema
) I had been out of hospital two days and got a stomach upset (no sickness) that has lasted 6 days.
For the first four, nearly five weeks I had a severe exacerbation that ended with a hospital stay, where they diagnosed IPF (I also have severe COPD - Chronic Bronchitis and
Emphysema
) I had been out of hospital two days and got a stomach upset (no sickness) that has lasted 6 days.
BrianTaylor
in
Lung Conditions Community Forum
5 years ago
Appt with consultant
I was told 8 yrs ago I had mild
emphysema
and given Tiotropium I have been fine all this time. 6/8 months ago I started getting more breathless until now going up stairs or uphill is a bit of a nightmare. I have a blue inhaler but it doesn’t help.
I was told 8 yrs ago I had mild
emphysema
and given Tiotropium I have been fine all this time. 6/8 months ago I started getting more breathless until now going up stairs or uphill is a bit of a nightmare. I have a blue inhaler but it doesn’t help.
Looseloafers
in
Lung Conditions Community Forum
5 years ago
Need to know!
Just out of hospital yesterday ,
Emphysema
lung function 33% now on Trimbow 2puffs x 2 daily, can this also be used as an reliever if required over and above normal dose age, be grateful if anyone can answer. Many thanks Oulpete.
Just out of hospital yesterday ,
Emphysema
lung function 33% now on Trimbow 2puffs x 2 daily, can this also be used as an reliever if required over and above normal dose age, be grateful if anyone can answer. Many thanks Oulpete.
oulpete2
in
Lung Conditions Community Forum
5 years ago
Emphysema
Ok im confused .copd can go on for years but all the posts i read on advancing
emphysema
speak roughly 5years life span !!!! Is this the case or what ?
Ok im confused .copd can go on for years but all the posts i read on advancing
emphysema
speak roughly 5years life span !!!! Is this the case or what ?
Nevergiveup73
in
Lung Conditions Community Forum
5 years ago
Pulmonary Fibrosis
This is on top of the diagnosis of severe COPD -
Emphysema
and Chronic Bronchitis, as well as a potential issue on the right side of my heart. Can anyone give me any honest information on PF? Dr Google is kinda scary 🤔 so I prefer to avoid it Thanks all 😎
This is on top of the diagnosis of severe COPD -
Emphysema
and Chronic Bronchitis, as well as a potential issue on the right side of my heart. Can anyone give me any honest information on PF? Dr Google is kinda scary 🤔 so I prefer to avoid it Thanks all 😎
BrianTaylor
in
Lung Conditions Community Forum
5 years ago
Bloating and Gas?
Later, lungs showed signs of
emphysema
. Now my records indicate asthma,
emphysema
and COPD. In the meantime, I’m always bloated and full of gas, sometimes bad stomach pains. Gasterologist did endoscopy and declared gastritis. Gave me pills that do nothing.
Later, lungs showed signs of
emphysema
. Now my records indicate asthma,
emphysema
and COPD. In the meantime, I’m always bloated and full of gas, sometimes bad stomach pains. Gasterologist did endoscopy and declared gastritis. Gave me pills that do nothing.
Debbiesue63
in
COPD Friends
5 years ago
emphysema
hi guys been nearly a year since I have written anything but regularly check in.was diagnosed with
emphysema
in January 2018 still struggling to quit smoking.
hi guys been nearly a year since I have written anything but regularly check in.was diagnosed with
emphysema
in January 2018 still struggling to quit smoking.
Casper20
in
Lung Conditions Community Forum
6 years ago
feeling low
off the horrible weed fighting a constant battle feel as if I have 2 heads one saying good the other saying what's the point damage done good side winning at the moment. since being diagnosed and having the breathing test a year ago I have never heard from anyone to offer flu jabs of a review of my
emphysema
off the horrible weed fighting a constant battle feel as if I have 2 heads one saying good the other saying what's the point damage done good side winning at the moment. since being diagnosed and having the breathing test a year ago I have never heard from anyone to offer flu jabs of a review of my
emphysema
Casper20
in
Lung Conditions Community Forum
5 years ago
Tough time
Emphysema
and asthma. Diagnosed at 64, now 66. Quit smoking 24 years ago. In addition to inhalers, was on klonopin or xanax daily for 2 years. Quit cold turkey about a month ago with no problem. Never, ever took more than 1 mg. per day. They did help with anxiety. Inhalers don't seem to help much.
Emphysema
and asthma. Diagnosed at 64, now 66. Quit smoking 24 years ago. In addition to inhalers, was on klonopin or xanax daily for 2 years. Quit cold turkey about a month ago with no problem. Never, ever took more than 1 mg. per day. They did help with anxiety. Inhalers don't seem to help much.
challny
in
Lung Conditions Community Forum
5 years ago
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