Search
Search
About
Log in
Join
Experiences with
Electroencephalogram (EEG)
Posts
Communities
499 public posts
Filter results
FND diagnosis
So I have had a long battle with getting to the bottom of my problems and on Tuesday I finally got all confirmed.I have been having symptoms for around 6 years and a lot of GP appointments! I have been back and forth to the doctor where I probably had a full blood count once per year (all okay) a urine
So I have had a long battle with getting to the bottom of my problems and on Tuesday I finally got all confirmed.I have been having symptoms for around 6 years and a lot of GP appointments! I have been back and forth to the doctor where I probably had a full blood count once per year (all okay) a urine
Kee10
in
Functional Neurological Disorder - FND Hope
8 months ago
Another update on hubby
They took him off sedation, he was shaking after 20 minutes, not all the time. Dr says not fitting so not epilepsy, so no eeg at this stage. After another 30 mins he stopped shaking. Then the so and so went to sleep, lol. They've sedated him again now, but only on half amount so will be easier tomorrow
They took him off sedation, he was shaking after 20 minutes, not all the time. Dr says not fitting so not epilepsy, so no eeg at this stage. After another 30 mins he stopped shaking. Then the so and so went to sleep, lol. They've sedated him again now, but only on half amount so will be easier tomorrow
Hidden
in
British Heart Foundation
8 months ago
Brain imaging for FND?
So according to Neurosymptoms.org there is "Brain Imaging and other studies starting to show us how and why the nervous system goes wrong" (see image; screenshot from website). Has anyone experienced this as part of their diagnosis or ongoing investigation? I'm still flabbergasted after being told
So according to Neurosymptoms.org there is "Brain Imaging and other studies starting to show us how and why the nervous system goes wrong" (see image; screenshot from website). Has anyone experienced this as part of their diagnosis or ongoing investigation? I'm still flabbergasted after being told
daverussell
in
Functional Neurological Disorder - FND Hope
8 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
FND diagnosis - What now?
So CT, MRI and EEG all clear. I was told I have FND and given some leaflets. I now have a neurology appointment end of March. What's next? I don't know what I should do.My symptoms are linked to amnesia/memory and processing, and not physical (fortunately). I now have a complete feeling of disassociation
So CT, MRI and EEG all clear. I was told I have FND and given some leaflets. I now have a neurology appointment end of March. What's next? I don't know what I should do.My symptoms are linked to amnesia/memory and processing, and not physical (fortunately). I now have a complete feeling of disassociation
daverussell
in
Functional Neurological Disorder - FND Hope
8 months ago
Desperately need help pls
So since last writing my previous post my Son has been experiencing “cluster seizures” - whereby he goes into a trance like state, talks gibberish and he can’t remember events and has no memory of what has happened. He has had approximately 3 or 4 of these “events” between May and December. The December
So since last writing my previous post my Son has been experiencing “cluster seizures” - whereby he goes into a trance like state, talks gibberish and he can’t remember events and has no memory of what has happened. He has had approximately 3 or 4 of these “events” between May and December. The December
Lisamarsh
in
Headway
9 months ago
Anti-epileptic drug
Hi! I have epilepsy since 2002. I use anti-epileptic drugs. I have T too for 3 years. Sometimes it is better sometimes worse. The interesting thing is that it is far better when I take in the "Cosim" (lacosamide). Do anybody have experience like this? The bad thing is that it's effect is lower now..
Hi! I have epilepsy since 2002. I use anti-epileptic drugs. I have T too for 3 years. Sometimes it is better sometimes worse. The interesting thing is that it is far better when I take in the "Cosim" (lacosamide). Do anybody have experience like this? The bad thing is that it's effect is lower now..
kchrisX
in
Tinnitus UK
9 months ago
Question about the Symptoms - FND and/or Insomnia.
Do others experience symptoms like they are caused by lack-of-sleep but has been confirmed as a result of FND?I'm beginning to relate to the symptoms, but I'm still unsure whether they are simply down to insomnia and poor sleep due to Tinnitus 24/7. A lot of it could easily be related to Ménières, which
Do others experience symptoms like they are caused by lack-of-sleep but has been confirmed as a result of FND?I'm beginning to relate to the symptoms, but I'm still unsure whether they are simply down to insomnia and poor sleep due to Tinnitus 24/7. A lot of it could easily be related to Ménières, which
daverussell
in
Functional Neurological Disorder - FND Hope
10 months ago
Hello after a forced absence.
I stopped getting email updates unexpectedly from PMRGCAuk and at the same time my husband started having health issues so most of my time was spent researching HIS symptoms and trying to make sense of it all. We are back in a waiting pattern till his 5 day EEG finally comes through so thought I would
I stopped getting email updates unexpectedly from PMRGCAuk and at the same time my husband started having health issues so most of my time was spent researching HIS symptoms and trying to make sense of it all. We are back in a waiting pattern till his 5 day EEG finally comes through so thought I would
Dydee
in
PMRGCAuk
10 months ago
FND or effects from severe Tinnitus
I'm new to FND and awaiting a EEG. My question is could I have FND? I've read so much in a short space of time and in some respects it has severe physical effects and on the other hand iit seems a very broad diagnosis. Here is my story.., I've had tinnitus several years, though in the last two years
I'm new to FND and awaiting a EEG. My question is could I have FND? I've read so much in a short space of time and in some respects it has severe physical effects and on the other hand iit seems a very broad diagnosis. Here is my story.., I've had tinnitus several years, though in the last two years
daverussell
in
Functional Neurological Disorder - FND Hope
10 months ago
Tinnitus and Cognitive effects (a follow up from my previous post)
I'm posting the following excerpts as they make some interesting reading about Tinnitus and Cognitive effects including how we respond to tinnitus. So hopefully this is interesting all round and not only about me :). So... I posted a few weeks ago "Promethazine sleeping tablets following insomnia and
I'm posting the following excerpts as they make some interesting reading about Tinnitus and Cognitive effects including how we respond to tinnitus. So hopefully this is interesting all round and not only about me :). So... I posted a few weeks ago "Promethazine sleeping tablets following insomnia and
daverussell
in
Tinnitus UK
10 months ago
Not Alzheimer's, Maybe PTSD?
Hello! I just found this place. I've been searching for 6 years to find a solution to my short-term memory problems. They started the day my 47yo husband died unexpectedly. It's just my short-term memory. Apparently, this isn't uncommon and sometimes called 'widow brain' or 'grief brain.' I can
Hello! I just found this place. I've been searching for 6 years to find a solution to my short-term memory problems. They started the day my 47yo husband died unexpectedly. It's just my short-term memory. Apparently, this isn't uncommon and sometimes called 'widow brain' or 'grief brain.' I can
Hidden
in
Memory Health: Alzheimer's Support Group
11 months ago
New symtoms
Hi I've posted a few weeks ago and got some great advice and have asked the neurology department for a prolong eeg. As I begun to have more moments of de ja vu and noticble jerk movement which nautally is making me anxious. I like many others living with epilpesy brings such emotional turmoil as the
Hi I've posted a few weeks ago and got some great advice and have asked the neurology department for a prolong eeg. As I begun to have more moments of de ja vu and noticble jerk movement which nautally is making me anxious. I like many others living with epilpesy brings such emotional turmoil as the
Anna_Mellor
in
Epilepsy Action
11 months ago
The growth stages of your new self
Hello team, can I ask if anyone else can identify with this? I've posted before about being a new person since my BI, the old version of me died with my illness. I'm not a completely different person, more like the child of the old me, and I'm growing up into my new self.I've been chatting to my therapist
Hello team, can I ask if anyone else can identify with this? I've posted before about being a new person since my BI, the old version of me died with my illness. I'm not a completely different person, more like the child of the old me, and I'm growing up into my new self.I've been chatting to my therapist
PurpleOverlord
in
Headway
11 months ago
currently going through diagnosis
Hi all, Just looking for some advice, my daughter is currently under investigation for epilepsy, we have had an EEG which showed seizure activity and currently awaiting an MRI scan, just wanting some advice with regards to what else to expect, are they the two main diagnostic tools? Will we be asked
Hi all, Just looking for some advice, my daughter is currently under investigation for epilepsy, we have had an EEG which showed seizure activity and currently awaiting an MRI scan, just wanting some advice with regards to what else to expect, are they the two main diagnostic tools? Will we be asked
masone22
in
Epilepsy Action
1 year ago
Newly diagnosed with FND
Received EEG results yesterday . Neurologist finally confirms diagnosis of Functional Neurological Disorder (FND) with paroxysmal non-epileptic events. Being referred for CBT . Anyone had same diagnosis ? Any useful information on how to manage condition whilst waiting for CBT appt would be appreciated
Received EEG results yesterday . Neurologist finally confirms diagnosis of Functional Neurological Disorder (FND) with paroxysmal non-epileptic events. Being referred for CBT . Anyone had same diagnosis ? Any useful information on how to manage condition whilst waiting for CBT appt would be appreciated
Hidden
in
FND Action
1 year ago
is Acid Reflux a FND symptom
I lost my voice - mid May 2022. I received medical treatment. After taking lots and lots of meds, I experienced stomach and bowel issues. A specialist performed a procedure to get my voice back. It was unsuccessful. After the procedure, I lost my sense of taste. I experience tremors in my hands.
I lost my voice - mid May 2022. I received medical treatment. After taking lots and lots of meds, I experienced stomach and bowel issues. A specialist performed a procedure to get my voice back. It was unsuccessful. After the procedure, I lost my sense of taste. I experience tremors in my hands.
Ravstar
in
Functional Neurological Disorder - FND Hope
1 year ago
Thoughts please
I hope this post is not too long but it's hard to fully explain. I have had severe RLS for 30 years - it started during pregnancy but unfortunately never left and has only worsened over the years. I feel like I have been on every drug with minimal help. I take 0.5 which I went through augmentation
I hope this post is not too long but it's hard to fully explain. I have had severe RLS for 30 years - it started during pregnancy but unfortunately never left and has only worsened over the years. I feel like I have been on every drug with minimal help. I take 0.5 which I went through augmentation
AnnMB
in
Restless Legs Syndrome
1 year ago
Generalised and focal epilepsy
Hi, so i was recently diagnosed with epilepsy and my EEG showed generalised epilepsy however all of my symptoms point towards focal epilepsy. I was wondering if this meant anything? i’ve only ever had petit mal sezuires. is this common?
Hi, so i was recently diagnosed with epilepsy and my EEG showed generalised epilepsy however all of my symptoms point towards focal epilepsy. I was wondering if this meant anything? i’ve only ever had petit mal sezuires. is this common?
lilymt3
in
Epilepsy Action
1 year ago
relieved?
I got a message from the doctor today saying my EEG was normal. I should feel relieved but I don’t. I’m happy nothing is wrong but it leaves me without any answers. What are these episodes that I have? Will they eventually get worse? What’s causing them? I didn’t think these tests would prove anything
I got a message from the doctor today saying my EEG was normal. I should feel relieved but I don’t. I’m happy nothing is wrong but it leaves me without any answers. What are these episodes that I have? Will they eventually get worse? What’s causing them? I didn’t think these tests would prove anything
CLB1125
in
Anxiety and Depression Support
1 year ago
newly diagnosed
hello I am 49 and have recently started 2000mg a day of levecrartem (can’t spell it). I think my stories a bit of a weird one. In may I had the worse headache I’ve ever had - I’ve not been a headache sufferer before and then experienced left sided weakness and wasn’t able to think properly. An ambulance
hello I am 49 and have recently started 2000mg a day of levecrartem (can’t spell it). I think my stories a bit of a weird one. In may I had the worse headache I’ve ever had - I’ve not been a headache sufferer before and then experienced left sided weakness and wasn’t able to think properly. An ambulance
Cat1974
in
Epilepsy Action
1 year ago
1
2
3
...
25
Next page
10
20
Filter results
Clear filters
Posted in
All communities
Epilepsy Action
59 results
Headway
37 results
Functional Neurological Disorder - FND Hope
35 results
View top 10 communities
Sort by
Most Relevant
Newest