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Electroencephalogram (EEG)
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New symtoms
Hi I've posted a few weeks ago and got some great advice and have asked the neurology department for a prolong eeg. As I begun to have more moments of de ja vu and noticble jerk movement which nautally is making me anxious. I like many others living with epilpesy brings such emotional turmoil as the
Hi I've posted a few weeks ago and got some great advice and have asked the neurology department for a prolong eeg. As I begun to have more moments of de ja vu and noticble jerk movement which nautally is making me anxious. I like many others living with epilpesy brings such emotional turmoil as the
Anna_Mellor
in
Epilepsy Action
6 months ago
The growth stages of your new self
Hello team, can I ask if anyone else can identify with this? I've posted before about being a new person since my BI, the old version of me died with my illness. I'm not a completely different person, more like the child of the old me, and I'm growing up into my new self.I've been chatting to my therapist
Hello team, can I ask if anyone else can identify with this? I've posted before about being a new person since my BI, the old version of me died with my illness. I'm not a completely different person, more like the child of the old me, and I'm growing up into my new self.I've been chatting to my therapist
PurpleOverlord
in
Headway
6 months ago
currently going through diagnosis
Hi all, Just looking for some advice, my daughter is currently under investigation for epilepsy, we have had an EEG which showed seizure activity and currently awaiting an MRI scan, just wanting some advice with regards to what else to expect, are they the two main diagnostic tools? Will we be asked
Hi all, Just looking for some advice, my daughter is currently under investigation for epilepsy, we have had an EEG which showed seizure activity and currently awaiting an MRI scan, just wanting some advice with regards to what else to expect, are they the two main diagnostic tools? Will we be asked
masone22
in
Epilepsy Action
7 months ago
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Newly diagnosed with FND
Received EEG results yesterday . Neurologist finally confirms diagnosis of Functional Neurological Disorder (FND) with paroxysmal non-epileptic events. Being referred for CBT . Anyone had same diagnosis ? Any useful information on how to manage condition whilst waiting for CBT appt would be appreciated
Received EEG results yesterday . Neurologist finally confirms diagnosis of Functional Neurological Disorder (FND) with paroxysmal non-epileptic events. Being referred for CBT . Anyone had same diagnosis ? Any useful information on how to manage condition whilst waiting for CBT appt would be appreciated
Maynan17
in
FND Action
8 months ago
is Acid Reflux a FND symptom
I lost my voice - mid May 2022. I received medical treatment. After taking lots and lots of meds, I experienced stomach and bowel issues. A specialist performed a procedure to get my voice back. It was unsuccessful. After the procedure, I lost my sense of taste. I experience tremors in my hands.
I lost my voice - mid May 2022. I received medical treatment. After taking lots and lots of meds, I experienced stomach and bowel issues. A specialist performed a procedure to get my voice back. It was unsuccessful. After the procedure, I lost my sense of taste. I experience tremors in my hands.
Ravstar
in
Functional Neurological Disorder - FND Hope
8 months ago
Thoughts please
I hope this post is not too long but it's hard to fully explain. I have had severe RLS for 30 years - it started during pregnancy but unfortunately never left and has only worsened over the years. I feel like I have been on every drug with minimal help. I take 0.5 which I went through augmentation
I hope this post is not too long but it's hard to fully explain. I have had severe RLS for 30 years - it started during pregnancy but unfortunately never left and has only worsened over the years. I feel like I have been on every drug with minimal help. I take 0.5 which I went through augmentation
AnnMB
in
Restless Legs Syndrome
9 months ago
Generalised and focal epilepsy
Hi, so i was recently diagnosed with epilepsy and my EEG showed generalised epilepsy however all of my symptoms point towards focal epilepsy. I was wondering if this meant anything? i’ve only ever had petit mal sezuires. is this common?
Hi, so i was recently diagnosed with epilepsy and my EEG showed generalised epilepsy however all of my symptoms point towards focal epilepsy. I was wondering if this meant anything? i’ve only ever had petit mal sezuires. is this common?
lilymt3
in
Epilepsy Action
9 months ago
relieved?
I got a message from the doctor today saying my EEG was normal. I should feel relieved but I don’t. I’m happy nothing is wrong but it leaves me without any answers. What are these episodes that I have? Will they eventually get worse? What’s causing them? I didn’t think these tests would prove anything
I got a message from the doctor today saying my EEG was normal. I should feel relieved but I don’t. I’m happy nothing is wrong but it leaves me without any answers. What are these episodes that I have? Will they eventually get worse? What’s causing them? I didn’t think these tests would prove anything
CLB1125
in
Anxiety and Depression Support
10 months ago
newly diagnosed
hello I am 49 and have recently started 2000mg a day of levecrartem (can’t spell it). I think my stories a bit of a weird one. In may I had the worse headache I’ve ever had - I’ve not been a headache sufferer before and then experienced left sided weakness and wasn’t able to think properly. An ambulance
hello I am 49 and have recently started 2000mg a day of levecrartem (can’t spell it). I think my stories a bit of a weird one. In may I had the worse headache I’ve ever had - I’ve not been a headache sufferer before and then experienced left sided weakness and wasn’t able to think properly. An ambulance
Cat1974
in
Epilepsy Action
10 months ago
Post op update.
Right the ongoing rush continues, this one is more information than a laugh.My appointment was for 12.30 at the day unit in Telford the princess royal hospital. Went to the pre op ward for the usual ob's and stuff. The observation bit was normal the 12 sticky pad were not so much, yet another eeg, then
Right the ongoing rush continues, this one is more information than a laugh.My appointment was for 12.30 at the day unit in Telford the princess royal hospital. Went to the pre op ward for the usual ob's and stuff. The observation bit was normal the 12 sticky pad were not so much, yet another eeg, then
Rogo23
in
British Heart Foundation
10 months ago
Diagnostics tests clear but still having seizures!
Hello everyone, I’ll try and keep it brief as possible but currently feeling at a loss and not sure how to continue. Had my first tonic clonic seizure in 2019 during a medical congress. Lots of GP/doctors around and eventually ambulance was called and brought to hospital. CT scan clear but referred
Hello everyone, I’ll try and keep it brief as possible but currently feeling at a loss and not sure how to continue. Had my first tonic clonic seizure in 2019 during a medical congress. Lots of GP/doctors around and eventually ambulance was called and brought to hospital. CT scan clear but referred
WillemRush
in
Epilepsy Research Institute
10 months ago
New and scared - possible MS?
Hello. I am new here and have not been diagnosed with MS. I am going through tons of testing and not getting a lot of direction at this point. I am hoping maybe someone here can help me understand if my symptoms sound familiar or what path they took when not finding answers. My symptoms started in
Hello. I am new here and have not been diagnosed with MS. I am going through tons of testing and not getting a lot of direction at this point. I am hoping maybe someone here can help me understand if my symptoms sound familiar or what path they took when not finding answers. My symptoms started in
CaliGirl4141
in
My MSAA Community
10 months ago
Not what I was expecting.
So yesterday I went for my needle biopsy, I arrived with time for a coffee in hand and was rather grateful for that (pro tip) if you are going to a appointment at Shrewsbury hospital on a Monday morning,park on Sunday night.After a bit of creative parking on a bit of grass I went to the outpatient surgery
So yesterday I went for my needle biopsy, I arrived with time for a coffee in hand and was rather grateful for that (pro tip) if you are going to a appointment at Shrewsbury hospital on a Monday morning,park on Sunday night.After a bit of creative parking on a bit of grass I went to the outpatient surgery
Rogo23
in
British Heart Foundation
10 months ago
2 year old Toddler with RLS
Hi there! Came here out of desperation. My soon to be 2 year old has had terrible sleep since day 1. He is extremely hyperactive, and would be up in the middle of the night for hours. We tried every natural syrup or solution recommended by doctors. Finally saw a neurologist and he suggested RLS. We are
Hi there! Came here out of desperation. My soon to be 2 year old has had terrible sleep since day 1. He is extremely hyperactive, and would be up in the middle of the night for hours. We tried every natural syrup or solution recommended by doctors. Finally saw a neurologist and he suggested RLS. We are
OrangeDino
in
Restless Legs Syndrome
11 months ago
NEUROFEEDBACK DEVICE HELPS PTSD SUFFERERS REGAIN CONTROL OVER EMOTIONS
By learning how to get agitated avatars to sit down in a virtual office, people with PTSD can regain control over their emotions and lower biomarkers associated with the condition. June is Post-Traumatic Stress Disorder Awareness Month, a fitting time for the soft launch in the United States of
By learning how to get agitated avatars to sit down in a virtual office, people with PTSD can regain control over their emotions and lower biomarkers associated with the condition. June is Post-Traumatic Stress Disorder Awareness Month, a fitting time for the soft launch in the United States of
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
11 months ago
Advice required
I had I seizure in 2010 and my MRI was clear, and I’m pretty sure I didn’t have an EEG. I was put on Epilim chrono 1200 mg and have been seizure free since. I went privately so looks like they just signed me off and I never got any NHS follow ups. About a year ago I went back to my GP and asked due
I had I seizure in 2010 and my MRI was clear, and I’m pretty sure I didn’t have an EEG. I was put on Epilim chrono 1200 mg and have been seizure free since. I went privately so looks like they just signed me off and I never got any NHS follow ups. About a year ago I went back to my GP and asked due
Halloumilover
in
Epilepsy Action
11 months ago
How Long Does it Take to Regain a Full State of Consciousness After a Medically Induced Coma?
Hello, My dad (aged 64) was recently admitted to the ICU on June 3rd. When he first arrived at the ER after suffering aphasia and impaired memory, the doctors found a lesion on his temporal lobe. Shortly thereafter he suffered a grand mal seizure. After the seizure the doctors were having difficulty
Hello, My dad (aged 64) was recently admitted to the ICU on June 3rd. When he first arrived at the ER after suffering aphasia and impaired memory, the doctors found a lesion on his temporal lobe. Shortly thereafter he suffered a grand mal seizure. After the seizure the doctors were having difficulty
natalierosejerome
in
ICUsteps
11 months ago
Help with blood test interpretation for my daughter
Hello Everyone, I'm new here and asking for my 18 year old daughter. I've come over from the Thyroid UK forum at their suggestion. She's been quite unwell for about 3-4 years slowly getting worse. We've been stuck with unhelpful medics both private and NHS who have not got anywhere with her symptoms
Hello Everyone, I'm new here and asking for my 18 year old daughter. I've come over from the Thyroid UK forum at their suggestion. She's been quite unwell for about 3-4 years slowly getting worse. We've been stuck with unhelpful medics both private and NHS who have not got anywhere with her symptoms
Sneedle
in
Pernicious Anaemia Society
11 months ago
Repeated episodes of unconsciousness due to potential Thyroid Storm?
I am currently taking 125mcg T4, and 18.75mcg T3 split into two daily doses (overall, 2/3 of a 25mcg tablet of T3). I’ve been taking T3 for around 5 years now. In terms of feeling better, it’s been a *huge* success. However, I’ve also been having episodes of unconsciousness over the past 5 years
I am currently taking 125mcg T4, and 18.75mcg T3 split into two daily doses (overall, 2/3 of a 25mcg tablet of T3). I’ve been taking T3 for around 5 years now. In terms of feeling better, it’s been a *huge* success. However, I’ve also been having episodes of unconsciousness over the past 5 years
Abi-Abster
in
Thyroid UK
1 year ago
epilepsy and restless leg syndrome
I’m just wondering is there a link between RLS and epilepsy? My parents had RLS as do I and my siblings. My husband occasionally gets it too. There’s no history of epilepsy in either of our families but our daughter has started having tonic clonic seizures in her early 20’s, she has never drank , smoked
I’m just wondering is there a link between RLS and epilepsy? My parents had RLS as do I and my siblings. My husband occasionally gets it too. There’s no history of epilepsy in either of our families but our daughter has started having tonic clonic seizures in her early 20’s, she has never drank , smoked
Heather-rose
in
Epilepsy Action
1 year ago
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