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Dyskinesia
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Pains in Hip, Knees and Thighs
Background - I have ben taking Sinemet Plus for about 6 years, Amantadine for about the same and Azilect for about 4 years Question - As I have seen many references to pains in the hip and knee (like arthritis) and thigh (like you've been overworking them) I wondered if these pains are a side effect
Background - I have ben taking Sinemet Plus for about 6 years, Amantadine for about the same and Azilect for about 4 years Question - As I have seen many references to pains in the hip and knee (like arthritis) and thigh (like you've been overworking them) I wondered if these pains are a side effect
froggatt55
in
Cure Parkinson's
12 years ago
Is there any help after a shopping addiction while on Mirapex?
I was on Mirapex for about 9 months, and ran up about $30,000 due to shopping addiction. I've been off of it for about 6 months and just now getting to where it isn't a daily struggle. Does anyone know if there is legal recourse for this side effect? The doctor did warn me of possible OCB. But have to
I was on Mirapex for about 9 months, and ran up about $30,000 due to shopping addiction. I've been off of it for about 6 months and just now getting to where it isn't a daily struggle. Does anyone know if there is legal recourse for this side effect? The doctor did warn me of possible OCB. But have to
minicoopmom
in
Cure Parkinson's
12 years ago
DOES ANYONE WITH PSP HAVE HAD DRUGS THAT HELP
HI I`VE BEEN DIAGNOSED WITH PSP FOR ABOUT A YEAR BUT 5 YEARS AGO IT WAS PARKINSONS IVE HAD NUMEROUS AMOUNTS OF DRUGS BUT NOTHING HAS IMPROVED MY BALANCE OR STOPPED MY FALLS,ANY ADVICE WOULD BE GREAT I AM CURRENTLY ON L;DOPA ,AMANTADINE. +MODAFINA + AN anti depressant
HI I`VE BEEN DIAGNOSED WITH PSP FOR ABOUT A YEAR BUT 5 YEARS AGO IT WAS PARKINSONS IVE HAD NUMEROUS AMOUNTS OF DRUGS BUT NOTHING HAS IMPROVED MY BALANCE OR STOPPED MY FALLS,ANY ADVICE WOULD BE GREAT I AM CURRENTLY ON L;DOPA ,AMANTADINE. +MODAFINA + AN anti depressant
jams
in
PSP Association
12 years ago
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Caffeine may improve Parkinsons symptoms
In an article accompanying these findings it was noted that a study was conducted 40 years ago that found benefits of combining Caffeine with Levadopa, but the dose was too high (about 1100mgs per day) bringing on
dyskinesia
, At lower doses caffeine does appear to have benefits without negative effects
In an article accompanying these findings it was noted that a study was conducted 40 years ago that found benefits of combining Caffeine with Levadopa, but the dose was too high (about 1100mgs per day) bringing on
dyskinesia
, At lower doses caffeine does appear to have benefits without negative effects
Kat00
in
Cure Parkinson's
12 years ago
WHAT COULD IT BE ?
I have bad
dyskinesia
again. There are a couple of thing I can think of As it the holiday period my GP, NEURO and PDN have all took the same 2 weeks off . which isn't good news . Any way my question is this would stopping Clonazepam give me in voluntary movement or low battery's in my DBS.
I have bad
dyskinesia
again. There are a couple of thing I can think of As it the holiday period my GP, NEURO and PDN have all took the same 2 weeks off . which isn't good news . Any way my question is this would stopping Clonazepam give me in voluntary movement or low battery's in my DBS.
export
in
Cure Parkinson's
12 years ago
medicaion
i am 43 and was diagnosed when i was 40. i am taking sinemet and mirapex and sometimes i feel like the meds make me feel worse. does anyone else experience that? i also sometimes think i take too much. i take every 2 hrs. is that about normal? sometimes i need sooner and sometimes when i take a
i am 43 and was diagnosed when i was 40. i am taking sinemet and mirapex and sometimes i feel like the meds make me feel worse. does anyone else experience that? i also sometimes think i take too much. i take every 2 hrs. is that about normal? sometimes i need sooner and sometimes when i take a
tmhiggs
in
Cure Parkinson's
12 years ago
Azilect and Wellbutrin
Anyone taking Azilect with Wellbutrin XL? I think my husband is in need of an antidepressant and I have read that Wellbutrin is one of the ones that may increase dopamine. What other ones are you taking and how are they working for you? Thank you. This community is a blessing and so are all of you.
Anyone taking Azilect with Wellbutrin XL? I think my husband is in need of an antidepressant and I have read that Wellbutrin is one of the ones that may increase dopamine. What other ones are you taking and how are they working for you? Thank you. This community is a blessing and so are all of you.
Mast
in
Cure Parkinson's
12 years ago
Mom's energy level is dropping. She started the Amantadine at Easter. It was wonderful, but now she's tired. Will it get better again.
She does look better in her face, younger even. But she's back to staying at home, worn-out, even though the tremors have improved. I'm worried about the weakness. Does anyone have the same experiences?
She does look better in her face, younger even. But she's back to staying at home, worn-out, even though the tremors have improved. I'm worried about the weakness. Does anyone have the same experiences?
SandyRose
in
Cure Parkinson's
12 years ago
Azilect and antidepressants ( used for sleep problems)
I am taking Azilect 1 MG, along with two other meds, (Amantadine & Carbidopa-Levo). I was experiencing sleep problems and told my PD neurologist, who prescibed Trazodone 50 MG Tablet....Directions instruct: TAKE ONE TABLET BY MOUTH AT BEDTIME INCREASING TO 2 TABLETS IF NEEDED FOR SLEEP. Earlier
I am taking Azilect 1 MG, along with two other meds, (Amantadine & Carbidopa-Levo). I was experiencing sleep problems and told my PD neurologist, who prescibed Trazodone 50 MG Tablet....Directions instruct: TAKE ONE TABLET BY MOUTH AT BEDTIME INCREASING TO 2 TABLETS IF NEEDED FOR SLEEP. Earlier
CJ49
in
Cure Parkinson's
12 years ago
DYSKINESIA has any one had this and it not the meds ???
Why am I
dyskinesia
and what can I do about it ??? yours EXPORT .
Why am I
dyskinesia
and what can I do about it ??? yours EXPORT .
export
in
Cure Parkinson's
12 years ago
Hello from a new boy
Hello Everyone - I have been diagnosed for 9 years and am better now than i was 4 years ago. I put that down to seeing a marvellous Neuorlogist in Cambridge (not my home town) who recommended Azilect as an adddition to my Sinemet Plus and Amantadine and to change my Ropinirole to Requip XL. This change
Hello Everyone - I have been diagnosed for 9 years and am better now than i was 4 years ago. I put that down to seeing a marvellous Neuorlogist in Cambridge (not my home town) who recommended Azilect as an adddition to my Sinemet Plus and Amantadine and to change my Ropinirole to Requip XL. This change
froggatt55
in
Cure Parkinson's
12 years ago
My question is below.
I know there is a possibility of
dyskinesia
, but what other side effects are there? How long before you start having side effects. I know we all respond differently, but I would appreciate you sharing your experience with the drug. If you could do it over would you still take the drug again?
I know there is a possibility of
dyskinesia
, but what other side effects are there? How long before you start having side effects. I know we all respond differently, but I would appreciate you sharing your experience with the drug. If you could do it over would you still take the drug again?
maryalice
in
Cure Parkinson's
12 years ago
Have you Impulsive Compulsive Behaviour? Do you know anyone who has this? Do you know anyone on Mirapex or Requip. Promipexal or Ropinirole?
I hope you will trust me with your life, if we by sharing our tales of woe about these sad meds we have to take, it could help the Pd people following up in our footsteps, be brave, share your stories, we don't need names, we are all in the same boat, I think it's called the Titanic. I know this is
I hope you will trust me with your life, if we by sharing our tales of woe about these sad meds we have to take, it could help the Pd people following up in our footsteps, be brave, share your stories, we don't need names, we are all in the same boat, I think it's called the Titanic. I know this is
Danny2401
in
Cure Parkinson's
12 years ago
I don't have a tremor. My symptoms are all movement related and I have
problems with fine motor movements in my hands. I was on Sinemet 25/100 (1 1/2 tabs 4 x day). At my last visit I told my specialist that I didn't think the meds worked as I never have on/off times. I saw my specialist on Tuesday after being off my meds for 48 hrs. He is now not sure if I have Parkinsons
problems with fine motor movements in my hands. I was on Sinemet 25/100 (1 1/2 tabs 4 x day). At my last visit I told my specialist that I didn't think the meds worked as I never have on/off times. I saw my specialist on Tuesday after being off my meds for 48 hrs. He is now not sure if I have Parkinsons
tlongmire
in
Cure Parkinson's
12 years ago
Stripping off at Tommys
Hi all, Please accept my apologies in advance ( I really am very shallow) ! The thing is my GP is refering me back to Tommys and I appreciate how lucky I am ,But the last time I had an appointment ( 8yrs ago ) well you had to strip off down to your underwear, as I recall, No gown etc,Is it still the
Hi all, Please accept my apologies in advance ( I really am very shallow) ! The thing is my GP is refering me back to Tommys and I appreciate how lucky I am ,But the last time I had an appointment ( 8yrs ago ) well you had to strip off down to your underwear, as I recall, No gown etc,Is it still the
mully
in
Hughes Syndrome APS Forum
12 years ago
Self managing PD - Are we serious or not?
Potentially this shortens the patient’s effective life on the drug as
dyskinesia
could be more likely the longer the patient is on sinemet. I also know of two people that have been put on Stalevo (Sinemet with Entacapone) as a first drug.
Potentially this shortens the patient’s effective life on the drug as
dyskinesia
could be more likely the longer the patient is on sinemet. I also know of two people that have been put on Stalevo (Sinemet with Entacapone) as a first drug.
Leyther
in
Cure Parkinson's
12 years ago
I'm on Sinemet 25/100 (1 1/2 tablet) 4 times a day. I can honestly say it doesn't seem like my symptoms ever change, I don't feel like I
have on/off periods. My Neuro is going to have me go off my meds for 48 hours then have me come into the office and run me through the usual tests. Then he is going to medicate me and then check me again to see what changes, if anything. I was diagnosed with Parkinson's in July 2010 and initially
have on/off periods. My Neuro is going to have me go off my meds for 48 hours then have me come into the office and run me through the usual tests. Then he is going to medicate me and then check me again to see what changes, if anything. I was diagnosed with Parkinson's in July 2010 and initially
tlongmire
in
Cure Parkinson's
12 years ago
DBS??
Hi need ur input on this.... my family thinks I shud consider DBS and hopefully it will help me get a better quality of life... Personally I am petrified and am not sure if I shud do it.... I was diagnosed in 2004 when I was 36...will turn 44 at the end of this month... was on requip, withdrew from
Hi need ur input on this.... my family thinks I shud consider DBS and hopefully it will help me get a better quality of life... Personally I am petrified and am not sure if I shud do it.... I was diagnosed in 2004 when I was 36...will turn 44 at the end of this month... was on requip, withdrew from
SuKas
in
Cure Parkinson's
12 years ago
Sticking and falling
Can anyone help me?I'm fed up with sticking and falling over. I broke my humerus (upper arm) last September when I fell over in the hall, then last week I fell in the kitchen and I broke the same arm just above the wrist. Then this week to crown it all whilst getting into the car I fell and broke my
Can anyone help me?I'm fed up with sticking and falling over. I broke my humerus (upper arm) last September when I fell over in the hall, then last week I fell in the kitchen and I broke the same arm just above the wrist. Then this week to crown it all whilst getting into the car I fell and broke my
camper
in
PSP Association
12 years ago
Sinemet best practice - take a tablet when you feel you need it or stick to 3 times a day and be uncomfortable.
I cannot stick to 1 tablet of Sinemet, 62.5mg 3 times a day as directed by my PD Nurse as I definitely need one every 4 hours or I wear off and have very uncomfortable, painful restless leg syndrome. I have started taking 5 a day and then add in Sinemet CR 25mg Levodopa at night to try and get some
I cannot stick to 1 tablet of Sinemet, 62.5mg 3 times a day as directed by my PD Nurse as I definitely need one every 4 hours or I wear off and have very uncomfortable, painful restless leg syndrome. I have started taking 5 a day and then add in Sinemet CR 25mg Levodopa at night to try and get some
Yogibear
in
Cure Parkinson's
12 years ago
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