Mom's energy level is dropping. She started the Amantadine at Easter. It was wonderful, but now she's tired. Will it get better again.

[SandyRose]

She does look better in her face, younger even. But she's back to staying at home, worn-out, even though the tremors have improved. I'm worried about the weakness. Does anyone have the same experiences?

[Hidden]

I don't have the stamina I use to have. I know that I need to get as much sleep as I can.

The first several years on my meds I slept all of the time. My husband had to do all of the housework.

Changed my meds. I now have a life, but need to pace myself.

[froggatt55]

I use Amantadine together with other drugs and have been doing for 4 to 5 years. I was told by one Neurologist that since there is no obvious benefit in taking Amantadine (I took it inititiallly for tremor and it had no effect) I should cut it out but I ran out of energy when I did so restarted it and the combination of drugs seem to work with me

[Kadie57]

I would have the Amantadine re checked I was also told there is no good benifit from taking it but it may better for your MOM,(Med changes are hard , ask her first because changes can be scary) there must be a good reason to take it or I would look for a second opinon. A second opinion gave me back my life. When I say this it means I was so over medicated by another doctor/& clinc I could barely function. I've had PD 9 yrs and I sleep only when tired LOL my stamina stinks and why do the discount stores have such large areas to walk, I have to plan may every move when I go to a discount store. HATE IT!!

[Hidden in reply to Kadie57]

A 5th opinion gave me my life back. I tried going off of Amantadine, but decided that I'm doing well and don't want to change anything. I've haven had to change meds in 2 years.

[PatV]

I have to force myself to go out every day. Thank goodness for PD exercise classes that keep me moving. I'm actually enjoying this summer, not like last where I was trapped in the house. Walking class convinced me I should walk (with walker) because losing muscle mass. I had to stop taking vitamins because no energy. I am looking for magic diet that will cure constipation and give me all nutrients needed for energy and sleep!

[Hidden]

Exercise has played a major role in helping me.

I grind my wheat and them make bread. Lots of fiber, helps with constipation.

[SandyRose]

Thank you to everyone for your answers and support during a dificult time. I don't know what I'd do as a family member without people like you to answer questions and be so PATIENT. May God Bless everyone who reads these questions and answers.