Search
Search
About
Log in
Join
Experiences with
Dyskinesia
Posts
Communities
908 public posts
Filter results
Duo Dopamine pump
The benefit of this treatment is that drug side effects like
dyskinesia
are avoided and there is no "off time" Has anyone out there outside of the US had experience with this?
The benefit of this treatment is that drug side effects like
dyskinesia
are avoided and there is no "off time" Has anyone out there outside of the US had experience with this?
Kat00
in
Cure Parkinson's
11 years ago
How much levodopa do you take?
My drug regime daily is: 1.25mg Zelapar, 750mg Sinemet Plus and 200mg of Sinemet Plus. I have been taking 300 mg of Amantadine but it led to the blotchy skin condition Livedo Reticulasis, urination difficulties and other disagreeable side effects. Amantadine did help me to cope better with pd and stopping
My drug regime daily is: 1.25mg Zelapar, 750mg Sinemet Plus and 200mg of Sinemet Plus. I have been taking 300 mg of Amantadine but it led to the blotchy skin condition Livedo Reticulasis, urination difficulties and other disagreeable side effects. Amantadine did help me to cope better with pd and stopping
batwing7
in
Cure Parkinson's
11 years ago
Primary Ciliary Dyskinesia
Anyone got it? Looks like Im gonna be tested for it probably. Interestingly one of the syndromes I have involves ciliary motility... hence my deafness. Has anyone been tested for it? I havent a clue how they do it, but cant imagine it involves anything nice lol http://www.pcdsupport.org.uk/index.php
Anyone got it? Looks like Im gonna be tested for it probably. Interestingly one of the syndromes I have involves ciliary motility... hence my deafness. Has anyone been tested for it? I havent a clue how they do it, but cant imagine it involves anything nice lol http://www.pcdsupport.org.uk/index.php
Hidden
in
Asthma Community Forum
11 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Low Dose Naltrexone (LDN), good, bad or useless?
I know it has been asked before but has anyone got experiences with LDN (Low dose naltrexone)? I know it's a controversial subject but I would like to try to take LDN and see if I can titrate down the amount of stalevo I need. I currently take Stalevo (3x125 + 5x100), Azilect and Amantadine (3x100mg
I know it has been asked before but has anyone got experiences with LDN (Low dose naltrexone)? I know it's a controversial subject but I would like to try to take LDN and see if I can titrate down the amount of stalevo I need. I currently take Stalevo (3x125 + 5x100), Azilect and Amantadine (3x100mg
rons
in
Cure Parkinson's
11 years ago
Just for fun ..... A non PD post...
Looking back... Those were the days.... Back in 1970 something ... Pans People became Legs & Co ... That was so wrong! 'I am sailing' and Rod hogged the number spot, Leo was hoping the show would go on and a song called ' mouldy o'l dough ' made the charts. I had denim wedges, a denim coat. Charlie
Looking back... Those were the days.... Back in 1970 something ... Pans People became Legs & Co ... That was so wrong! 'I am sailing' and Rod hogged the number spot, Leo was hoping the show would go on and a song called ' mouldy o'l dough ' made the charts. I had denim wedges, a denim coat. Charlie
Hidden
in
Cure Parkinson's
11 years ago
Side effect of Stalevo and Sinemet
I know that the above medications, and others, cause discolouration of Urine. However, on my off days my tremor is not controlled at all and I have noticed that my urine is a natural colour. I think this must mean that I am not absorbing my meds and this is why they are not working. This usually rights
I know that the above medications, and others, cause discolouration of Urine. However, on my off days my tremor is not controlled at all and I have noticed that my urine is a natural colour. I think this must mean that I am not absorbing my meds and this is why they are not working. This usually rights
Court
in
Cure Parkinson's
11 years ago
Has anyone had problems related to "pancreatic insufficiency" leading to unplanned weight loss?
I've lost just over 2 stone (approx 12 kg) in the past year, unintentionally. Whilst I can fit into clothes two sizes smaller, so there are advantages (!), it's beginning to impact on my bone density, so not really a good thing. My docs have been excellent at carrying out a full battery of tests,
I've lost just over 2 stone (approx 12 kg) in the past year, unintentionally. Whilst I can fit into clothes two sizes smaller, so there are advantages (!), it's beginning to impact on my bone density, so not really a good thing. My docs have been excellent at carrying out a full battery of tests,
Womanfriday
in
Hughes Syndrome APS Forum
11 years ago
Misplaced L-dopa/C-dopa pills...
Twas the day before Christmas and I'm far away, From where my neurologist and family doctor stay. I refilled my pills, a three-month supply. But now I can't find them, I think I might cry. Tried calling my neuro, but his clinic is closed until day after tomorrow, I heard as I froze.
Twas the day before Christmas and I'm far away, From where my neurologist and family doctor stay. I refilled my pills, a three-month supply. But now I can't find them, I think I might cry. Tried calling my neuro, but his clinic is closed until day after tomorrow, I heard as I froze.
wordworks2001
in
Cure Parkinson's
11 years ago
Dyskinesia?
Hi I am a 40 yr old, have had PD for a year and am having problems with
dyskinesia
. I have very bad foot stomping and at times walking is quite hard. Just wondering if anyone has any ideas on how to deal with this? Thanks
Hi I am a 40 yr old, have had PD for a year and am having problems with
dyskinesia
. I have very bad foot stomping and at times walking is quite hard. Just wondering if anyone has any ideas on how to deal with this? Thanks
steven-c
in
Parkinson's New Zealand
12 years ago
Comtan
i have been treated for parkinson's since my diagnosis in 2009, but now am under going some further eval's and testing because the doc. thinks i may have something else, called msa. anyway he started me on comtan to take with my sinemet and mirapax to try and help with my "wearing off" periods in between
i have been treated for parkinson's since my diagnosis in 2009, but now am under going some further eval's and testing because the doc. thinks i may have something else, called msa. anyway he started me on comtan to take with my sinemet and mirapax to try and help with my "wearing off" periods in between
tmhiggs
in
Cure Parkinson's
12 years ago
Anyone trying LDN or interested in it?
I have recently had an appointment with my neurologist and, as expected, he told me basically that the only way to achieve a reasonable quality of life into the future is to have DBS surgery. He spoke of the risks, that not everyone is suitable etc etc. And that was it. DBS or continue to steadily decline
I have recently had an appointment with my neurologist and, as expected, he told me basically that the only way to achieve a reasonable quality of life into the future is to have DBS surgery. He spoke of the risks, that not everyone is suitable etc etc. And that was it. DBS or continue to steadily decline
batwing7
in
Cure Parkinson's
12 years ago
Did you know that only half of our disease is being treated?
It also is looking like it is the locus of
dyskinesia
, So what does this mean for me? It means you may have another way to treat this without experiencing the dark side of levodopa.
It also is looking like it is the locus of
dyskinesia
, So what does this mean for me? It means you may have another way to treat this without experiencing the dark side of levodopa.
Conductor71
in
Cure Parkinson's
12 years ago
Has anyone noticed the chemical smell that comes with taking Sinemet
I was taking Sinemet and Mirapex and gave up on the sinemet because i couldnt tolerate the smell of it.. Somehow this drug affected my sense of smell and everything i was exposed to. Coffee smelled terrible.. and even my breath had that chemical smell. One friend said he could tell if someone had pk
I was taking Sinemet and Mirapex and gave up on the sinemet because i couldnt tolerate the smell of it.. Somehow this drug affected my sense of smell and everything i was exposed to. Coffee smelled terrible.. and even my breath had that chemical smell. One friend said he could tell if someone had pk
Lawrencium
in
Cure Parkinson's
12 years ago
Do anybody know if Zandopa would work without taking Sinemet? I've had PD for almost 15 years and have been on Mirapex and
Amanadine the entire time. I have a prescription for Sinemet, but am weary of starting it. I don't know if my medications have carbidopa? Do you know if it is necessary to take something with the Zandopa or does it contain carbidopa. Please help me if you can. Thanks. Also where did you order it from
Amanadine the entire time. I have a prescription for Sinemet, but am weary of starting it. I don't know if my medications have carbidopa? Do you know if it is necessary to take something with the Zandopa or does it contain carbidopa. Please help me if you can. Thanks. Also where did you order it from
maryalice
in
Cure Parkinson's
12 years ago
Amantadine Syrup
I've been diagnosed with PD since 2005...and have been on Amantadine 100 MG capsules, and other meds ever since. The effects of Amantadine capsules are dry throat, nose and eyes.My throat was so dry that I could feel the food I swallowed start to "stack up" and not go down. (This may sound weird, but
I've been diagnosed with PD since 2005...and have been on Amantadine 100 MG capsules, and other meds ever since. The effects of Amantadine capsules are dry throat, nose and eyes.My throat was so dry that I could feel the food I swallowed start to "stack up" and not go down. (This may sound weird, but
CJ49
in
Cure Parkinson's
12 years ago
Is anyone experiencing any of the OCD behavior from Mirapex?
I did but switched to Requip and the OCD is 99% gone. It does take care of the OCD better but also wears off quicker than Mirapex, made me very sleepy in afternoons and the tremors were a little more noticeable but it's worth the side affects to me.
I did but switched to Requip and the OCD is 99% gone. It does take care of the OCD better but also wears off quicker than Mirapex, made me very sleepy in afternoons and the tremors were a little more noticeable but it's worth the side affects to me.
PatrickW
in
Cure Parkinson's
12 years ago
Love Carrot
You know: Dining and dancing, tennis at the club, romantic vacations tours…Enjoying each other… She even said that the
dyskinesia
dance I do,( that Voodoo that I do) sometimes turns her on. Weird, right? I don’t care though, any port in a storm.. .
You know: Dining and dancing, tennis at the club, romantic vacations tours…Enjoying each other… She even said that the
dyskinesia
dance I do,( that Voodoo that I do) sometimes turns her on. Weird, right? I don’t care though, any port in a storm.. .
DeParkiePoet
in
Cure Parkinson's
12 years ago
Anyone know how long the waiting list is for DBS at the National Hospital for Neurology and Neurosurgery, Queen Square, London?
Hi everyone, hope you are all okay. I had my consultation this week. I was told that the only option for me was DBS as medication is not working. Next step is to meet with the DBS Team at Queen Square. I am now left in a situation where I am simply trying to manage this rather precarious situation
Hi everyone, hope you are all okay. I had my consultation this week. I was told that the only option for me was DBS as medication is not working. Next step is to meet with the DBS Team at Queen Square. I am now left in a situation where I am simply trying to manage this rather precarious situation
Yogibear
in
Cure Parkinson's
12 years ago
Fox Flash
By bypassing the dopamine system altogether, a glutamate-based treatment could provide the same symptomatic benefits of levodopa while avoiding disabling side effects such as
dyskinesia
(uncontrollable movement). The Vanderbilt team has focused on a specific glutamate receptor called mGluR4.
By bypassing the dopamine system altogether, a glutamate-based treatment could provide the same symptomatic benefits of levodopa while avoiding disabling side effects such as
dyskinesia
(uncontrollable movement). The Vanderbilt team has focused on a specific glutamate receptor called mGluR4.
Hidden
in
Cure Parkinson's
12 years ago
Does any know what I should do?
To control my Parkinson I take 12 meds per day. Sinemet, Azilect, Mirapex and Amantadine. Diagnosis was 5 years ago @ 50y/o. I still work FT. My medication regimen works for a while then it is back to the MD and medications are changed and/or a new one added? MD wanted me to take 2 Mirapex 3x/day
To control my Parkinson I take 12 meds per day. Sinemet, Azilect, Mirapex and Amantadine. Diagnosis was 5 years ago @ 50y/o. I still work FT. My medication regimen works for a while then it is back to the MD and medications are changed and/or a new one added? MD wanted me to take 2 Mirapex 3x/day
dstarnes
in
Cure Parkinson's
12 years ago
1
...
42
43
44
...
46
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
801 results
PSP Association
29 results
PCD Family Support Group (UK)
13 results
View top 10 communities
Sort by
Most Relevant
Newest