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Experiences with
Dilated cardiomyopathy
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Purchase of B12 for self administration
Would anyone have details to purchase B12 for self administration via IM injection I am in the UK I am a retired qualified nurse so capable and competent to administer my own injections thanks
Would anyone have details to purchase B12 for self administration via IM injection I am in the UK I am a retired qualified nurse so capable and competent to administer my own injections thanks
Katrina999666
in
Pernicious Anaemia Society
3 years ago
Cardiomyopathy - newly diagnosed
Anyone with
cardiomyopathy
, non
dilated
/heart failure/ LBBB? Newly diagnosed. All a bit of a shock. Lived with type 1 diabetes for 30 years but HF not linked.
Anyone with
cardiomyopathy
, non
dilated
/heart failure/ LBBB? Newly diagnosed. All a bit of a shock. Lived with type 1 diabetes for 30 years but HF not linked.
LesleyBreckRoad
in
British Heart Foundation
3 years ago
My partner's story
Hello to everyone, I've been a silent member of this group for a few weeks and I have found your posts really helpful. I have decided that now is the time to share with you the story so far with my partner and his diagnosis of alcohol related liver disease. He's 43 years old and he's been a daily drinker
Hello to everyone, I've been a silent member of this group for a few weeks and I have found your posts really helpful. I have decided that now is the time to share with you the story so far with my partner and his diagnosis of alcohol related liver disease. He's 43 years old and he's been a daily drinker
Bibbs
in
British Liver Trust
3 years ago
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Will I ever feel better?
Previous to the HA I was pretty well, despite having
dilated
cardiomyopathy
- this is v mild and isn’t thought to be an influence in the HA. My arteries are clear and I didn’t have a stent - I’m under three cardiologists who are all stumped as to why I had a heart attack.
Previous to the HA I was pretty well, despite having
dilated
cardiomyopathy
- this is v mild and isn’t thought to be an influence in the HA. My arteries are clear and I didn’t have a stent - I’m under three cardiologists who are all stumped as to why I had a heart attack.
FiftyNotOut
in
British Heart Foundation
3 years ago
Feeling a bit sad and down
I'm having one of those moments when I'd love to reach out and say I'm feeling a bit low - but reality is I don't know who to ring/don't like to bother folks/my husband hates fuss!!! Today he came home from work at 1, having only gone in at 10, he's fast asleep on the sofa again. I know we are lucky
I'm having one of those moments when I'd love to reach out and say I'm feeling a bit low - but reality is I don't know who to ring/don't like to bother folks/my husband hates fuss!!! Today he came home from work at 1, having only gone in at 10, he's fast asleep on the sofa again. I know we are lucky
Ewife
in
British Liver Trust
3 years ago
Fibroscan results today
I finally received my Fibroscan results from the hepatolgist. The KPA was very low and the CAP was very high. The doctor said F0 on the KPA. He told me the CAP just tells us there is fat in your liver which we already knew. He did not mention percentage of fat. He said the fat is not causing any issues
I finally received my Fibroscan results from the hepatolgist. The KPA was very low and the CAP was very high. The doctor said F0 on the KPA. He told me the CAP just tells us there is fat in your liver which we already knew. He did not mention percentage of fat. He said the fat is not causing any issues
Tenngirl
in
British Liver Trust
3 years ago
Does liver effect your hair
Just a question Does fatty liver have any effect on hair. I feel my hair is really thinning to a worrying degree. Not sure if allowed to use Manoxidil (Regaine) the only topical scalp medication that dr recommends. As it’s only applied to scalp not digested, but not sure if I can use it.
Just a question Does fatty liver have any effect on hair. I feel my hair is really thinning to a worrying degree. Not sure if allowed to use Manoxidil (Regaine) the only topical scalp medication that dr recommends. As it’s only applied to scalp not digested, but not sure if I can use it.
Seoe
in
British Liver Trust
3 years ago
NAFLD online calculator
How accurate is the NAFLD online calculator? Did anyone use this tool and found it to be fairly accurate after receiving test results from your doctor? I am finally getting my Fibroscan results tomorrow (after 6 weeks) and my anxiety is kicking in. I contacted the nurse about a month ago via email and
How accurate is the NAFLD online calculator? Did anyone use this tool and found it to be fairly accurate after receiving test results from your doctor? I am finally getting my Fibroscan results tomorrow (after 6 weeks) and my anxiety is kicking in. I contacted the nurse about a month ago via email and
Tenngirl
in
British Liver Trust
3 years ago
Deranged bloods, no fatty liver no fibrosis
A little further down my road of tests, in summary I have no symptoms but it all started with a cholesterol test of 8.9, gp said it could be liver related as it’s too high to be diet. Had liver bloods and ALT was high at 150. Repeat test and ALT was 350.Refer to liver specialist, just had ultrasound
A little further down my road of tests, in summary I have no symptoms but it all started with a cholesterol test of 8.9, gp said it could be liver related as it’s too high to be diet. Had liver bloods and ALT was high at 150. Repeat test and ALT was 350.Refer to liver specialist, just had ultrasound
woodland12
in
British Liver Trust
3 years ago
New here with diagnosed heart failure
The cardiologist has been useless so far, with just giving me my diagnosis by letter in technical jargon, non ischaemic
cardiomyopathy
, ejection fraction 27% severely
dilated
left ventricle which i then googled.
The cardiologist has been useless so far, with just giving me my diagnosis by letter in technical jargon, non ischaemic
cardiomyopathy
, ejection fraction 27% severely
dilated
left ventricle which i then googled.
tdiesel41
in
British Heart Foundation
2 years ago
Not long now.
I have Non-alcoholic Fatty Liver Disease (Decompensated). Looks like I'm coming to the end of my journey in life. On being diagnosed in July, my decent has been rapid. More & more of the end stage symptoms are showing. I thought maybe I'd have a couple of years to see if I could halt the damage & maybe
I have Non-alcoholic Fatty Liver Disease (Decompensated). Looks like I'm coming to the end of my journey in life. On being diagnosed in July, my decent has been rapid. More & more of the end stage symptoms are showing. I thought maybe I'd have a couple of years to see if I could halt the damage & maybe
Biggsy77
in
British Liver Trust
3 years ago
Dilated Cardiomyopathy is very traumatic...just need all the help I can get.
Hi everyone,I am Nnamdi Chibuzo.. I started experiencing palpitations since 2014...It wasn't until February,2021,that I was finally able to afford a cardiac MRI that diagnosed me with DCM..all those years of neglect and mismanagement, I believe, dealt extensive damage to my heart... Well, here I am.
Hi everyone,I am Nnamdi Chibuzo.. I started experiencing palpitations since 2014...It wasn't until February,2021,that I was finally able to afford a cardiac MRI that diagnosed me with DCM..all those years of neglect and mismanagement, I believe, dealt extensive damage to my heart... Well, here I am.
Chibuzo
in
British Heart Foundation
3 years ago
Has any one experienced trigger / worsening of psoriasis caused by carvedilol?
Hi everyone. I am diagnosed with Non Cirrhotic Portal Hypertension with Esophageal Varices. Along with EVL, the doctors have put me on beta blockers (Carvedilol). I am on this medicine for last three years. Since last 5 months my Psoriasis, which was in remission for many years, has gone in flare. Has
Hi everyone. I am diagnosed with Non Cirrhotic Portal Hypertension with Esophageal Varices. Along with EVL, the doctors have put me on beta blockers (Carvedilol). I am on this medicine for last three years. Since last 5 months my Psoriasis, which was in remission for many years, has gone in flare. Has
Binjal
in
British Liver Trust
3 years ago
RUQ Pain/No Fibrosis
Good Evening, I am waiting on Fibroscan results. Does anyone experience RUQ pain with fatty liver, but you do not have fibrosis? Thank you
Good Evening, I am waiting on Fibroscan results. Does anyone experience RUQ pain with fatty liver, but you do not have fibrosis? Thank you
Tenngirl
in
British Liver Trust
3 years ago
Here Again
I tried so hard to be positive. I stayed away cos I thought it was making my hypochondria worse but here I am. New bloods done and dr said all satisfactory. Picked a copy up today and bloods like ALT and GtGamma are the same as they were back in Feb. So I’m Feb, April and June dr wasn’t happy with them
I tried so hard to be positive. I stayed away cos I thought it was making my hypochondria worse but here I am. New bloods done and dr said all satisfactory. Picked a copy up today and bloods like ALT and GtGamma are the same as they were back in Feb. So I’m Feb, April and June dr wasn’t happy with them
Seoe
in
British Liver Trust
3 years ago
Diet.
I have
dilated
cardiomyopathy
and on beta blocker and blood pressure tablets. Just wondering if anyone else follows this way of eating? Thanks
I have
dilated
cardiomyopathy
and on beta blocker and blood pressure tablets. Just wondering if anyone else follows this way of eating? Thanks
alskasno
in
British Heart Foundation
3 years ago
Peripapillary CNV
After 18 months without an Eylea injection, I was given an appointment for treatment. The OCT showed a leak further out from the fovea than the one I had had before, which itself was some way from the fovea. I had a second OCT (which I've not seen) taken of the optic disc. In a letter that came after
After 18 months without an Eylea injection, I was given an appointment for treatment. The OCT showed a leak further out from the fovea than the one I had had before, which itself was some way from the fovea. I had a second OCT (which I've not seen) taken of the optic disc. In a letter that came after
ironbrain
in
Macular Society
3 years ago
Hepatic encephalopathy, Auto brewery syndrome, feeling drunk, waking up with a hangover
Hi all I was diagnosed with ARLD around 7 months ago, I’m recently out of hospital about a month ago. Since then my life has been chaos, losing my job, many friends and even some family due to this disease I believe. My uncle even died of liver disease. At the wake of his funeral is where this began,
Hi all I was diagnosed with ARLD around 7 months ago, I’m recently out of hospital about a month ago. Since then my life has been chaos, losing my job, many friends and even some family due to this disease I believe. My uncle even died of liver disease. At the wake of his funeral is where this began,
guard00
in
British Liver Trust
3 years ago
Hyperreflexia
I would love to hear others' experience with hyperreflexia as result of PA. I have periods (often in the last days before my injection), when I get low-level random muscle twitches, mostly in my arms and back, then they subside. I have been found to be hyperreflexive in reflex tests since my PA diagnosis
I would love to hear others' experience with hyperreflexia as result of PA. I have periods (often in the last days before my injection), when I get low-level random muscle twitches, mostly in my arms and back, then they subside. I have been found to be hyperreflexive in reflex tests since my PA diagnosis
Bellmore2089
in
Pernicious Anaemia Society
3 years ago
Palpitations treatment
I was experiencing heart palpitations for more than 15 years I went for an Echocardiogram and diagnised with
dilated
cardiomyopathy
symptoms. I was given Carvedilol but it worsened. I changed to verapamil for more than a month but nothing changed but becoming worse.
I was experiencing heart palpitations for more than 15 years I went for an Echocardiogram and diagnised with
dilated
cardiomyopathy
symptoms. I was given Carvedilol but it worsened. I changed to verapamil for more than a month but nothing changed but becoming worse.
Zimbabwe85
in
AF Association
3 years ago
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