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Drug Holidays?
I am currently on 1000mg aberaterone and 5mg steroid daily. Lupron every six months. Diagnosed in January 2024. Gleson 4+5=9. Metastatic. L2 and T2 bones mets treated with EBRT. PSA was 466 in February when I started triplet therapy. Have had a great response with PSA now at <.10. Tried docetaxel chemo
I am currently on 1000mg aberaterone and 5mg steroid daily. Lupron every six months. Diagnosed in January 2024. Gleson 4+5=9. Metastatic. L2 and T2 bones mets treated with EBRT. PSA was 466 in February when I started triplet therapy. Have had a great response with PSA now at <.10. Tried docetaxel chemo
4tunate1
in
Advanced Prostate Cancer
4 months ago
Jevtana and carboplatin
I have done 10 rounds of Docetaxol, had a PSMA scan which showed progression in a lymph node ( I only have lymph node disease no bone or organ mets.) I started Jevtana and carboplatin about 9 weeks ago. I have what is described as" PSA surge". When I started my psa was 4.4 now 8.3. Has anyone else
I have done 10 rounds of Docetaxol, had a PSMA scan which showed progression in a lymph node ( I only have lymph node disease no bone or organ mets.) I started Jevtana and carboplatin about 9 weeks ago. I have what is described as" PSA surge". When I started my psa was 4.4 now 8.3. Has anyone else
wat380bjw
in
Advanced Prostate Cancer
4 months ago
Pluvicto patient
74 yo male 3rd round of pluvicto PSA started at 9.8 down to 1.41 !! Been on Luprone for 18 months! Prostrate has been removed and cancer has spread to liver and spine. Surprisingly I feel good, no pain yet! I am a farmer still going 12 hours a day! I use quad-med shots for ED , but they don’t work as
74 yo male 3rd round of pluvicto PSA started at 9.8 down to 1.41 !! Been on Luprone for 18 months! Prostrate has been removed and cancer has spread to liver and spine. Surprisingly I feel good, no pain yet! I am a farmer still going 12 hours a day! I use quad-med shots for ED , but they don’t work as
Reltubs
in
Advanced Prostate Cancer
4 months ago
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what is the risk from ALA?
What is this community’s take on ALA, as found in flaxseed oil? Is there risk for prostate cancer? If there is “risk”, is that solely an association with increased PSA? i.e. do significant amounts of flaxseed oil cause a change only in one’s baseline PSA? i.e. does it promote the [i]
production[
What is this community’s take on ALA, as found in flaxseed oil? Is there risk for prostate cancer? If there is “risk”, is that solely an association with increased PSA? i.e. do significant amounts of flaxseed oil cause a change only in one’s baseline PSA? i.e. does it promote the [i]
production[
lokibear0803
in
Advanced Prostate Cancer
4 months ago
PCA Prognosis?
Hi All! I am due for my 4rd Lupron treatment and follow-up next week. My bloodwork is done and my PSA is still <.01 for 9 months now. I have BRCA 1 and 2. When my Urologist gave me my initial diagnosis after my biopsies (Gleason 4+3=7 and 11 of 12 biopsies positive). nHe gave me a full report
Hi All! I am due for my 4rd Lupron treatment and follow-up next week. My bloodwork is done and my PSA is still <.01 for 9 months now. I have BRCA 1 and 2. When my Urologist gave me my initial diagnosis after my biopsies (Gleason 4+3=7 and 11 of 12 biopsies positive). nHe gave me a full report
Sagewiz
in
Advanced Prostate Cancer
4 months ago
Lower Platelet count after HDR Brachytherapy
I am 76 and have had a low platelet count for at least the past 30 years. My results had usually been in the 125,000 range, with 140,000 to 150,000 being the minimum value to be considered normal. I had HD Brachytherapy for prostate cancer in November 2021, and ever since then my platelet count has
I am 76 and have had a low platelet count for at least the past 30 years. My results had usually been in the 125,000 range, with 140,000 to 150,000 being the minimum value to be considered normal. I had HD Brachytherapy for prostate cancer in November 2021, and ever since then my platelet count has
PopCubby
in
Prostate Cancer Network
4 months ago
My prostate journey and testosterone side effects
I have been following this website for over a year now and have learned so much from others who have shared their journey that I feel compelled to share my story in hopes that it might help someone in their decision making process. First of all, a big thank you to everyone who posts on this site. The
I have been following this website for over a year now and have learned so much from others who have shared their journey that I feel compelled to share my story in hopes that it might help someone in their decision making process. First of all, a big thank you to everyone who posts on this site. The
PT49
in
Prostate Cancer Network
4 months ago
Arcticfox44
Hello - I'm about to return to the Mayo for the first review since my previous visit last November. As I've reported here, my last major treatment was chemo with cabazitaxel at the Oncology Center in Nicosia, Cyprus, where I live. This was successful: PSA fell from 83 at the start of chemo to about 3
Hello - I'm about to return to the Mayo for the first review since my previous visit last November. As I've reported here, my last major treatment was chemo with cabazitaxel at the Oncology Center in Nicosia, Cyprus, where I live. This was successful: PSA fell from 83 at the start of chemo to about 3
Arcticfox44
in
Advanced Prostate Cancer
4 months ago
Some good news to start the day: Complete Response in First Patient Ever Treated with 2 Doses of Cu-67 SAR-bisPSMA at 8GBq...6 months
I have already written about this, but then he approached the 6 months mark, so... "The patient remains with undetectable levels of Prostate Specific Antigen (PSA) for almost 6 months, following the administration of the second dose of 67Cu-SAR-bisPSMA. PSA is a marker used to assess clinical response
I have already written about this, but then he approached the 6 months mark, so... "The patient remains with undetectable levels of Prostate Specific Antigen (PSA) for almost 6 months, following the administration of the second dose of 67Cu-SAR-bisPSMA. PSA is a marker used to assess clinical response
Maxone73
in
Advanced Prostate Cancer
4 months ago
So the odds we all read about... are they true?
When my husband (age 52) was diagnosed with metastatic prostate cancer two and a half years ago, he was told the outlook was "grim." Everything we read told us once it moves to the bone (his has) then you're looking at months, not years, of life left. He had TEMPUS done, which was basically the oncologist
When my husband (age 52) was diagnosed with metastatic prostate cancer two and a half years ago, he was told the outlook was "grim." Everything we read told us once it moves to the bone (his has) then you're looking at months, not years, of life left. He had TEMPUS done, which was basically the oncologist
Anatalya
in
Advanced Prostate Cancer
4 months ago
PSA Nadir 6 Months After Primary RT Correlates With Prostate Cancer Outcomes — Or does it?, MedPage Today May 22, 2024
[i]This article from MedPage Today is reproduced in full along with the link to the full access editorial comment is also provided. However, it has numerous hyperlinks to the the research cited within. The link to the MedPage article provides those links. [/i] [i]* * *[/i]
PSA Nadir 6 Months After
[i]This article from MedPage Today is reproduced in full along with the link to the full access editorial comment is also provided. However, it has numerous hyperlinks to the the research cited within. The link to the MedPage article provides those links. [/i] [i]* * *[/i]
PSA Nadir 6 Months After
cujoe
in
Fight Prostate Cancer
4 months ago
Anyone out there try the carnivore diet.
I have been on a low carb diet since my diagnosis back in March of 2023 . Eligard and Erleada have got my PSA down from 195 down to 0.01. I have been watching a lot of YouTube video's touting the health benefits of a carnivore diet. So far the only prostate diet person posting video's on YouTube that
I have been on a low carb diet since my diagnosis back in March of 2023 . Eligard and Erleada have got my PSA down from 195 down to 0.01. I have been watching a lot of YouTube video's touting the health benefits of a carnivore diet. So far the only prostate diet person posting video's on YouTube that
Bigmaristuff
in
Advanced Prostate Cancer
4 months ago
Request for Input
Before I leave this wonderful group I'd like to pick your individual/collective brains. Since it's too late to help my husband, I'm looking for info that I can pass on to my son and 6 grandsons so they might better understand this awful cancer should they ever get it. I'm also providing a bit more info
Before I leave this wonderful group I'd like to pick your individual/collective brains. Since it's too late to help my husband, I'm looking for info that I can pass on to my son and 6 grandsons so they might better understand this awful cancer should they ever get it. I'm also providing a bit more info
Shamrock46
in
Advanced Prostate Cancer
4 months ago
TSH low the rest normal
Can anyone explain why my TSH is low yet the rest is normal? I know my new doctor will be onto this in a flash when they do a test shortly and probably reduce my levothyroxine (I`ve had this battle for years) The following is a private test T4 = 121 range 59-154 TSH
Can anyone explain why my TSH is low yet the rest is normal? I know my new doctor will be onto this in a flash when they do a test shortly and probably reduce my levothyroxine (I`ve had this battle for years) The following is a private test T4 = 121 range 59-154 TSH
destiny234
in
Thyroid UK
11 months ago
"8mm sclerotic focus noted T12 vertebrae within left superior acetabulum"
MO ordered CT Abdomen/pelvis after having a couple blood clots in urine, no blood, about 4 mths ago with several quick sharp pains in bladder area daily since about that time (may be from straining to empty bladder when urinate or kegels). CT no issues noted other than the 8mm sclerotic focus in T12
MO ordered CT Abdomen/pelvis after having a couple blood clots in urine, no blood, about 4 mths ago with several quick sharp pains in bladder area daily since about that time (may be from straining to empty bladder when urinate or kegels). CT no issues noted other than the 8mm sclerotic focus in T12
jjpeabody
in
Advanced Prostate Cancer
4 months ago
High risk Decipher score, what now?
Hello, Im a 61 year old man, IIB, T2c, no mo, classified as unfavorable intermediate. I just finished my last day of 28 days of VMAT, ( total 70gy) ,last Weds day on May 15. Minimal SE so far. I also have 5 months in on ADT , Lupron, 1month, 1month , and 3 month shot. So I was feel pretty good
Hello, Im a 61 year old man, IIB, T2c, no mo, classified as unfavorable intermediate. I just finished my last day of 28 days of VMAT, ( total 70gy) ,last Weds day on May 15. Minimal SE so far. I also have 5 months in on ADT , Lupron, 1month, 1month , and 3 month shot. So I was feel pretty good
Surfer33
in
Prostate Cancer Network
4 months ago
ADT effectiveness duration for 80 plus age ?
For how long have those over 80 years with mets to bones , been able to keep their psa low with just ADT treatment ?
For how long have those over 80 years with mets to bones , been able to keep their psa low with just ADT treatment ?
Tinkudi
in
Advanced Prostate Cancer
4 months ago
Consult urologist or medical oncologist ?
My dad , 83 , was detected with prostate cancer with mets to bones and psa 18. Is it better to take treatment through a medical oncologist or a urologist ?
My dad , 83 , was detected with prostate cancer with mets to bones and psa 18. Is it better to take treatment through a medical oncologist or a urologist ?
Tinkudi
in
Advanced Prostate Cancer
4 months ago
PSA Testing Scandal Repost
This was my first post two years ago. It was about the scandal of my diagnosis. I don't think much has changed. Basically PSA testing is a good thing. https://healthunlocked.com/advanced-prostate-cancer/posts/148930895/psa-testing-scandal-lost-years-of-life-updated-re-qol [i]Posted later - please see
This was my first post two years ago. It was about the scandal of my diagnosis. I don't think much has changed. Basically PSA testing is a good thing. https://healthunlocked.com/advanced-prostate-cancer/posts/148930895/psa-testing-scandal-lost-years-of-life-updated-re-qol [i]Posted later - please see
JohnInTheMiddle
in
Advanced Prostate Cancer
4 months ago
Looking for medical oncologist at Memorial Sloan Kettering.
I was diagnosed one year ago with two very small tumors, one on each lobe. Gleason 6, grade group one. Less than 5% involvement in each tumor. Decipher of 0.28, which suggests low aggressiveness. PSA has remained 0.7 for a many years. Although I think Fox Chase Cancer center in Philadelphia is a fine
I was diagnosed one year ago with two very small tumors, one on each lobe. Gleason 6, grade group one. Less than 5% involvement in each tumor. Decipher of 0.28, which suggests low aggressiveness. PSA has remained 0.7 for a many years. Although I think Fox Chase Cancer center in Philadelphia is a fine
bubularich
in
Prostate Cancer Network
4 months ago
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