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LT and cyberknife
My PSA went down to .5 from 6.0 after cyberknife. Six months later it is back to 1.0 should I be worried?
My PSA went down to .5 from 6.0 after cyberknife. Six months later it is back to 1.0 should I be worried?
crony
in
Advanced Prostate Cancer
1 year ago
Prostatitis advice
My partner (in his mid 60s) had prostate biopsies (over 60 samples) done in summer 2023. He needed a catheter for many weeks afterwards and was in a lot of pain and passing many blood clots. Over the last year since the biopsies he's had recurrent bouts of slow and intermittent urine flow, now having
My partner (in his mid 60s) had prostate biopsies (over 60 samples) done in summer 2023. He needed a catheter for many weeks afterwards and was in a lot of pain and passing many blood clots. Over the last year since the biopsies he's had recurrent bouts of slow and intermittent urine flow, now having
ConcernedOtherHalf
in
Men's Health Forum
1 year ago
What would be next?
From my hx, Gleason 9 RP. PSA went to 0.2 8 months later. PSMA 4 hot spots. IMRT, Lupron and Zytiga. Doing great thus far. MO said if recurrence, Provenge next. Agree? No scan till PSA rise. Agree?thank you
From my hx, Gleason 9 RP. PSA went to 0.2 8 months later. PSMA 4 hot spots. IMRT, Lupron and Zytiga. Doing great thus far. MO said if recurrence, Provenge next. Agree? No scan till PSA rise. Agree?thank you
rfgh20
in
Advanced Prostate Cancer
1 year ago
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Advice for my husband, looking at treatment options
My husband's history - I don't have all the PSA numbers currently. He is 63 yrs now, under care of a urologist in a multidisciplinary group. No comorbidities other than well controlled hypertension. Nov 2021 Diagnosed via MRI, biopsy. At that time Grade 2 Gleason 3+4 on 1 core, numerous Grade 1
My husband's history - I don't have all the PSA numbers currently. He is 63 yrs now, under care of a urologist in a multidisciplinary group. No comorbidities other than well controlled hypertension. Nov 2021 Diagnosed via MRI, biopsy. At that time Grade 2 Gleason 3+4 on 1 core, numerous Grade 1
MidwifeK
in
Prostate Cancer Network
1 year ago
Expericence with Xtandi
I had very good results for over a year with no side effects. It was part of a clinical study. My PSA is rising so time to move on to another drug. Good luck to you!
I had very good results for over a year with no side effects. It was part of a clinical study. My PSA is rising so time to move on to another drug. Good luck to you!
PastaMan20
in
Advanced Prostate Cancer
1 year ago
What’s the pros and cons of Casodex and Lupron as the only treatment for Gleason 4+5 (9).
I was diagnosed with PC, March 2022. Gleason 4+5 (9). Urologist wanted to do a radical prostatectomy. I chose to change my diet, exercise and lifestyle to a plant-based detox from chemicals in my food and in my house. My PSA went from 13.7 to 100 in one year. It metastasized to my pelvic area and seminal
I was diagnosed with PC, March 2022. Gleason 4+5 (9). Urologist wanted to do a radical prostatectomy. I chose to change my diet, exercise and lifestyle to a plant-based detox from chemicals in my food and in my house. My PSA went from 13.7 to 100 in one year. It metastasized to my pelvic area and seminal
RealtorDude
in
Advanced Prostate Cancer
1 year ago
UserName Change Search Link
I just changed my username name from the impersonal "JHMX" to "JohnInTheMiddle". Among other things I liked the TV show Malcolm in the Middle. And when I signed up it was in that kind of crazy time of DX that many people here will recognize. But as I become familiar with the stories and exploration here
I just changed my username name from the impersonal "JHMX" to "JohnInTheMiddle". Among other things I liked the TV show Malcolm in the Middle. And when I signed up it was in that kind of crazy time of DX that many people here will recognize. But as I become familiar with the stories and exploration here
JohnInTheMiddle
in
Advanced Prostate Cancer
1 year ago
Apology Re: Bring PSA from 6.7 to 3.1 in 4 weeks by pure water fast (3wks) and vegan diet (1 wk).
Dear colleagues, I wish to apologise for using the "cure" in the title of the post I made here about a week ago. For reference the title of the post has now been changed to "Bring PSA from 6.7 to 3.1 in 4 weeks by pure water fast (3wks) and vegan diet (1 wk)." I now realise that I made a big mistake
Dear colleagues, I wish to apologise for using the "cure" in the title of the post I made here about a week ago. For reference the title of the post has now been changed to "Bring PSA from 6.7 to 3.1 in 4 weeks by pure water fast (3wks) and vegan diet (1 wk)." I now realise that I made a big mistake
DADICIDAD
in
Advanced Prostate Cancer
1 year ago
Imaging Guidelines - Salvage IMRT Planning
I'm planning to start my post-op salvage treatment after my PSA breached 0.1 few weeks ago. I'm OK with the extent of the treatment proposed, which is 5 weeks of IMRT (VMAT) to the prostatic fossa and pelvic LNs. However, I'm not confident with the accuracy of radiation delivery to the target area. Knowing
I'm planning to start my post-op salvage treatment after my PSA breached 0.1 few weeks ago. I'm OK with the extent of the treatment proposed, which is 5 weeks of IMRT (VMAT) to the prostatic fossa and pelvic LNs. However, I'm not confident with the accuracy of radiation delivery to the target area. Knowing
Rams91
in
Prostate Cancer Network
1 year ago
Modified Citrus Pectin
New study below [1]. Earlier (2021) results [2] - full text. The study was on men with non-metastatic biochemically relapsed PCa. There was no placebo arm. Dr. Isaac Eliaz created PectaSol - Modified Citrus Pectin [P-MCP] thirty years ago. There are 110 PubMed references to it - Eliaz claims
New study below [1]. Earlier (2021) results [2] - full text. The study was on men with non-metastatic biochemically relapsed PCa. There was no placebo arm. Dr. Isaac Eliaz created PectaSol - Modified Citrus Pectin [P-MCP] thirty years ago. There are 110 PubMed references to it - Eliaz claims
pca2004
in
Fight Prostate Cancer
1 year ago
2 Years undetected
I have been on Zytiga 50gm daily taken an hour before breakfast + 5 gm prednisone with meal 3 monthy H T injection of Protrap for past 2 years with monthly blood tests resulting in PSA below 0.01 not been seen a consult in the 2 year only online call from pharmacy oncology. Should I insist
I have been on Zytiga 50gm daily taken an hour before breakfast + 5 gm prednisone with meal 3 monthy H T injection of Protrap for past 2 years with monthly blood tests resulting in PSA below 0.01 not been seen a consult in the 2 year only online call from pharmacy oncology. Should I insist
Chrisbaird
in
Advanced Prostate Cancer
1 year ago
enzalutamide dosing
I have ealrly stage 4 prostate cancer, have been on lupron for just over 4 months, and enzalutamide Xtandi for just under 4 months. Not enjoying the side effects of 160 mg I reduced my dosage to 80 mg and tolorate it a little better. Every medial professional and non medical professional cautions me
I have ealrly stage 4 prostate cancer, have been on lupron for just over 4 months, and enzalutamide Xtandi for just under 4 months. Not enjoying the side effects of 160 mg I reduced my dosage to 80 mg and tolorate it a little better. Every medial professional and non medical professional cautions me
3step
in
Advanced Prostate Cancer
1 year ago
A good day today
Wanted to share some good news, having asked for help and advice so much over the last 5 years. Dad had initial PSA of 17 and it was believed localised (2c) and received surgery in June 2018. Failed with a low score of 0.08, upgrade to 3a and subsequently received radiation in January 2019. 37 sessions
Wanted to share some good news, having asked for help and advice so much over the last 5 years. Dad had initial PSA of 17 and it was believed localised (2c) and received surgery in June 2018. Failed with a low score of 0.08, upgrade to 3a and subsequently received radiation in January 2019. 37 sessions
k538
in
Prostate Cancer Network
1 year ago
Just been told I have two years to live.
Just been told I have two years to live. Male, age 73, Eligard injections, Abiraterone and Predisnone for four and a half years, some radiotherapy. PSA levels initially 69, brought down to 7 by Abiraterone. Suddenly stopped working. Went on Radium 233 trial. Never again, and it didn't work. Since then
Just been told I have two years to live. Male, age 73, Eligard injections, Abiraterone and Predisnone for four and a half years, some radiotherapy. PSA levels initially 69, brought down to 7 by Abiraterone. Suddenly stopped working. Went on Radium 233 trial. Never again, and it didn't work. Since then
ChristopherM123
in
Advanced Prostate Cancer
1 year ago
Ten Months After All Treatments Ended
My Oncologist stopped my Eligard injections in October of 2022. My August 2023 bloodwork shows that my testosterone has risen from 2.0 to 10.0 in that time. My PSA was <0.1 ten months ago and is now 0.1 (Canadian units). I know that this cancer is a long game, but given my diagnosis in 2020, I am happy
My Oncologist stopped my Eligard injections in October of 2022. My August 2023 bloodwork shows that my testosterone has risen from 2.0 to 10.0 in that time. My PSA was <0.1 ten months ago and is now 0.1 (Canadian units). I know that this cancer is a long game, but given my diagnosis in 2020, I am happy
TottenhamMan
in
Advanced Prostate Cancer
1 year ago
nubequa
Question for anyone taking Nubequa. How long did it take to get PSA nondectable… or did it ever reach that low point? My husband began with it & Lupron in January. PSA was 14 and 6 months later only down to 4.3 He does not have a prostate … Journey began in 2017. All clear at time of surgery. Biochemical
Question for anyone taking Nubequa. How long did it take to get PSA nondectable… or did it ever reach that low point? My husband began with it & Lupron in January. PSA was 14 and 6 months later only down to 4.3 He does not have a prostate … Journey began in 2017. All clear at time of surgery. Biochemical
JolleySprings
in
Advanced Prostate Cancer
1 year ago
lucrin injections v firmagon
Hi Anyone experienced having Lucrin injections .I have been self injected firmagon since march 2022 going from originally PSA of 389 now hovering around 0.08 for the past 5 months with little or no side affects.The professors intern suggested maybe trying Lucrin injections every 3 months.A little
Hi Anyone experienced having Lucrin injections .I have been self injected firmagon since march 2022 going from originally PSA of 389 now hovering around 0.08 for the past 5 months with little or no side affects.The professors intern suggested maybe trying Lucrin injections every 3 months.A little
Brianne07
in
Advanced Prostate Cancer
1 year ago
Numb feet
Hi I have PSa and get very painful toes and other feet pain. My only question as I take all an sundry pills for all the issues I have is does anyone else get the numbness of their feet? it normally starts at the toes and then works back along the underside of my feet. Its most strange. Thanks Paul
Hi I have PSa and get very painful toes and other feet pain. My only question as I take all an sundry pills for all the issues I have is does anyone else get the numbness of their feet? it normally starts at the toes and then works back along the underside of my feet. Its most strange. Thanks Paul
Greenmil3
in
Beyond Psoriasis
1 year ago
Update post follow up PSMA PET/CT
Just updated my profile to include recent events. In brief, in March 2023 I had a PSMA PET/CT which Dr. Kwon at Mayo clinic somehow got my insurance to pay for even though my PSA was undetectable. It defined a abdominal retro-aortic mass that was significantly avid. Underwent 4 weeks of standard
Just updated my profile to include recent events. In brief, in March 2023 I had a PSMA PET/CT which Dr. Kwon at Mayo clinic somehow got my insurance to pay for even though my PSA was undetectable. It defined a abdominal retro-aortic mass that was significantly avid. Underwent 4 weeks of standard
slpdvmmd
in
Advanced Prostate Cancer
1 year ago
Any advice for a specialist in NYC to monitor my post-RP PSA?
I'm moving cross-country to a new job in New York City soon, so I am going to need someone to monitor my PSA. I had a RP a bit more than 3 years ago. My PSA was always <0.06 for the first two years, and over the last year or so the numbers have wavered between <0.06 and 0.03. So, still "undetectable"
I'm moving cross-country to a new job in New York City soon, so I am going to need someone to monitor my PSA. I had a RP a bit more than 3 years ago. My PSA was always <0.06 for the first two years, and over the last year or so the numbers have wavered between <0.06 and 0.03. So, still "undetectable"
Ribotom
in
Prostate Cancer Network
1 year ago
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