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People of HU - From Stuntwoman and Triathlete to Parkinson’s Patient
[i]
Happy Friday everyone! Another month has passed, which means we have another inspiring story from one of our HealthUnlocked members, Kathryn. In this blog post, Kathryn shares her story of being diagnosed and treated for Parkinson’s Disease, a brain disorder that leads to shaking, stiffness, and
[i]
Happy Friday everyone! Another month has passed, which means we have another inspiring story from one of our HealthUnlocked members, Kathryn. In this blog post, Kathryn shares her story of being diagnosed and treated for Parkinson’s Disease, a brain disorder that leads to shaking, stiffness, and
MaddieHU
HealthUnlocked
in
HealthUnlocked Blog
3 years ago
Surely this can't be right
Hello I am currently taking clonazepam half a tablet every other night as my GP was concerned about the addictive nature of the drug. It does help a little but still up every night 2/3 times but managing to get about 5/6 hrs which is a lot better than I've had at other times. I had a private neurologist
Hello I am currently taking clonazepam half a tablet every other night as my GP was concerned about the addictive nature of the drug. It does help a little but still up every night 2/3 times but managing to get about 5/6 hrs which is a lot better than I've had at other times. I had a private neurologist
Operababe
in
Restless Legs Syndrome
3 years ago
RLS UK CAMPAIGN FOR EDUCATION OF GPS IN THE UK
RLS UK has kindly agreed to support a campaign for education of GPs in the UK and has approved the template letter for all UK members to send to the organisations/bodies listed below. The letter should be personalised to tell your own story about treatment (or lack thereof) and side effects and how RLS
RLS UK has kindly agreed to support a campaign for education of GPs in the UK and has approved the template letter for all UK members to send to the organisations/bodies listed below. The letter should be personalised to tell your own story about treatment (or lack thereof) and side effects and how RLS
Joolsg
in
Restless Legs Syndrome
3 years ago
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Combining Different Ideas About PD Can Be Enlightening
After reading park_bear's very interesting post regarding Permethrin as a potential cause of PD, it got me to thinking! Here is a link to his post : https://healthunlocked.com/cure-parkinsons/posts/146163776/did-you-ever-use-a-permethrin-product-prior-to-diagnosis-clothing-spray-elimite-nix-lyclear-acticin-flea-bomb
After reading park_bear's very interesting post regarding Permethrin as a potential cause of PD, it got me to thinking! Here is a link to his post : https://healthunlocked.com/cure-parkinsons/posts/146163776/did-you-ever-use-a-permethrin-product-prior-to-diagnosis-clothing-spray-elimite-nix-lyclear-acticin-flea-bomb
chartist
in
Cure Parkinson's
3 years ago
Some RLS experiences which might possibly be helpful in understanding the condition
I am 69 and I have had RLS with increasing severity for 50 years. I appreciate that everyone’s experience is different, but I would like to offer a few observations to add to the pool of anecdote which might help lead to a deeper understanding of the condition. First of all, my variant of RLS involves
I am 69 and I have had RLS with increasing severity for 50 years. I appreciate that everyone’s experience is different, but I would like to offer a few observations to add to the pool of anecdote which might help lead to a deeper understanding of the condition. First of all, my variant of RLS involves
Wairahi
in
Restless Legs Syndrome
3 years ago
Claimed improvement in symptoms following dental treatment.
As someone who is terrified of the dentist (with consequent rare attendance) I found this interesting. Particularly, as I now have to visit one very soon. In my experience, the Japanese are not prone to hyperbole/exaggeration... also you might prefer to skip the 'treatment' part of the video clip 😬
As someone who is terrified of the dentist (with consequent rare attendance) I found this interesting. Particularly, as I now have to visit one very soon. In my experience, the Japanese are not prone to hyperbole/exaggeration... also you might prefer to skip the 'treatment' part of the video clip 😬
Seamus6
in
Cure Parkinson's
3 years ago
Rebuilding the substantia nigra?
I never believed I had PD. Although I have tremor in my dominant hand I don't have the other common signs. I don't freeze, I don't move slowly, I don't have balance problems. I don't have "Off" periods. Once during a race three years ago I kept falling while walking up a steep hillside. I
I never believed I had PD. Although I have tremor in my dominant hand I don't have the other common signs. I don't freeze, I don't move slowly, I don't have balance problems. I don't have "Off" periods. Once during a race three years ago I kept falling while walking up a steep hillside. I
kaypeeoh
in
Cure Parkinson's
3 years ago
MEDICAL CANNABIS AND RLS
Hello I have had RLS for 56 years and then FIBROMYALGIA for 24 years. I am about to go over the top with the RLS as it has all become too much. I have tried all the various prescription drugs that I have been offered by the GP and hospitals, been to a sleep laboratory, tried various alternative therapies
Hello I have had RLS for 56 years and then FIBROMYALGIA for 24 years. I am about to go over the top with the RLS as it has all become too much. I have tried all the various prescription drugs that I have been offered by the GP and hospitals, been to a sleep laboratory, tried various alternative therapies
palomino
in
Restless Legs Syndrome
3 years ago
A chronological model for the pathogenesis of PD
Hello everyone. This is work in progress. I invite you to download the Pdf file and give me your opinion of how easy this is to understand and any other comments you wish to make. Parkinson’s disease is characterized by the loss of dopaminergic neurons in the substantia nigra in the midbrain and a
Hello everyone. This is work in progress. I invite you to download the Pdf file and give me your opinion of how easy this is to understand and any other comments you wish to make. Parkinson’s disease is characterized by the loss of dopaminergic neurons in the substantia nigra in the midbrain and a
wriga
in
Cure Parkinson's
3 years ago
Wearing Off or Dyskinesia
Wearing Off or Dyskinesia Author: Jill Marjama-Lyons, MD and Mary J. Shoman ….possible changes to your medicines…discuss with your doctor. •Use Sinemet CR (controlled release) or Sinemet ER (extended release). •Add a dopamine agonist. •Add a COMT inhibitor to Sinemet (immediate release, CR form
Wearing Off or Dyskinesia Author: Jill Marjama-Lyons, MD and Mary J. Shoman ….possible changes to your medicines…discuss with your doctor. •Use Sinemet CR (controlled release) or Sinemet ER (extended release). •Add a dopamine agonist. •Add a COMT inhibitor to Sinemet (immediate release, CR form
Hidden
in
Cure Parkinson's
3 years ago
What is your fix?
My psychiatrist told me that a person with ADD usually have a “fix”, something that gets the dopamine to rush through his veins, something that calms down the restlessness. Things like tobacco, drugs and alcohol are common fixes but others find their fix in activities where they can hyper focus. If not
My psychiatrist told me that a person with ADD usually have a “fix”, something that gets the dopamine to rush through his veins, something that calms down the restlessness. Things like tobacco, drugs and alcohol are common fixes but others find their fix in activities where they can hyper focus. If not
JimDaydreamer
in
CHADD's Adult ADHD Support
3 years ago
Discharge
Not really a question I guess. But we have today had a case conference with the rehab unit which my husband is in. We are in month 4 and a something since he left home. He has been in the unit for about 3 months. When he went in he couldn't stand, balance, his left side was paralyzed, he couldn't
Not really a question I guess. But we have today had a case conference with the rehab unit which my husband is in. We are in month 4 and a something since he left home. He has been in the unit for about 3 months. When he went in he couldn't stand, balance, his left side was paralyzed, he couldn't
ored13
in
Headway
3 years ago
Temgesic Experience
I'd like to ask how others are getting on with Temgesic. I started on 200mcg (1 tablet) Temgesic last November and it immediately made such a difference to my nights - I finally slept right through! However after 3 months I needed to up the dose to 1.5 tablets (cut in half) and occasionally 2 tablets
I'd like to ask how others are getting on with Temgesic. I started on 200mcg (1 tablet) Temgesic last November and it immediately made such a difference to my nights - I finally slept right through! However after 3 months I needed to up the dose to 1.5 tablets (cut in half) and occasionally 2 tablets
RLSofManyYears
in
Restless Legs Syndrome
3 years ago
Hi! Just joined and could really use some help and support.
First, I apologize for my long post. It has been difficult to find support, so I'm kind-of pouring it all out right now. My 8 year old daughter was diagnosed with ADHD right before the pandemic hit, and while we have several concerns and lots of questions, we do not have much support to address those
First, I apologize for my long post. It has been difficult to find support, so I'm kind-of pouring it all out right now. My 8 year old daughter was diagnosed with ADHD right before the pandemic hit, and while we have several concerns and lots of questions, we do not have much support to address those
ColoradoMomma
in
CHADD's ADHD Parents Together
3 years ago
How Calories from Sugar/simple carbs, are different than calories from other food.
Most adult males require about 2,500 calories to maintain body weight. Most doctors will tell you that maintaining body weight is about calories in and calories out, regardless of caloric source. 3 teaspoons of sugar and one apple are calorically equal – about 50 calories. Theoretically, if you ate
Most adult males require about 2,500 calories to maintain body weight. Most doctors will tell you that maintaining body weight is about calories in and calories out, regardless of caloric source. 3 teaspoons of sugar and one apple are calorically equal – about 50 calories. Theoretically, if you ate
sos007
Ambassador
in
Cholesterol Support
3 years ago
Sinemet Slow-release Hard Candy
Has anyone tried making a home-made slow-release levodopa lozenge or hard candy that you can suck on and have constant levels of dopamine in your system?
Has anyone tried making a home-made slow-release levodopa lozenge or hard candy that you can suck on and have constant levels of dopamine in your system?
DeanGreen
in
Cure Parkinson's
3 years ago
Melatonin inhibit dopamine?
I was taking high doses of melatonin every night such as 3g. I've read that it could inhibit dopamine. I've stopped for now taking that melatonin because my RLS has been increasing a lot!! Ang guess what? After 3 days, for the first night I got it only in the middle of the night and I went for a cold
I was taking high doses of melatonin every night such as 3g. I've read that it could inhibit dopamine. I've stopped for now taking that melatonin because my RLS has been increasing a lot!! Ang guess what? After 3 days, for the first night I got it only in the middle of the night and I went for a cold
Zurp111
in
Restless Legs Syndrome
3 years ago
Dopamine
Hello all. I know that this has been a difficult time for us all. I have been researching the benefits of taking dopamine, to help moods, depression and to give a boost on how to cope with difficult situations. But the more I read, the more confused I become. There are many tablets that can be
Hello all. I know that this has been a difficult time for us all. I have been researching the benefits of taking dopamine, to help moods, depression and to give a boost on how to cope with difficult situations. But the more I read, the more confused I become. There are many tablets that can be
Peachandcream
in
Thyroid UK
3 years ago
Double Dopamine by taking a cold shower?
Interesting newspaper clip by Dr Mosley......a cold shower can double Dopamine levels....could it really be that simple?
Interesting newspaper clip by Dr Mosley......a cold shower can double Dopamine levels....could it really be that simple?
JustJeff
in
Cure Parkinson's
3 years ago
Dopamine agonists and their aftermath - A Survey
Hello All I have been off dopamine agonists for more than two years now, thanks to methadone and buprenorphine. Both were - and are - a blessing (insofar as any drugs could be called such), as many of you will know. But I would like to know how many of us feel, even long after quitting dopamine agonists
Hello All I have been off dopamine agonists for more than two years now, thanks to methadone and buprenorphine. Both were - and are - a blessing (insofar as any drugs could be called such), as many of you will know. But I would like to know how many of us feel, even long after quitting dopamine agonists
Parminter
in
Restless Legs Syndrome
3 years ago
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