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Sifrol hell
Hi, I am a 57yo lady. Maybe mid 2018 I was prescribed Sifrol aka Pramipexole, Mirapex etc to combat RSL whilst withdrawing from Slow Release Tramadol used for about 16 years for Fibromyalgia. I had NO idea at the time this drug SIFROL is harder to get off than opiates...unless you use opiate meds
Hi, I am a 57yo lady. Maybe mid 2018 I was prescribed Sifrol aka Pramipexole, Mirapex etc to combat RSL whilst withdrawing from Slow Release Tramadol used for about 16 years for Fibromyalgia. I had NO idea at the time this drug SIFROL is harder to get off than opiates...unless you use opiate meds
Hidden
in
Restless Legs Syndrome
5 years ago
Let the FDA know that you support for autologous dopamine neuron replacement therapy for Parkinson's disease - NOW.
This is the very promising project of Dr. Jeanne Loring https://www.summitforstemcell.org/ about induced pluripotent stem cells that is applying to FDA for test trials. I just received this email from them asking to let the FDA know we need it NOW ! I wanted to share it with all you guys to get a loud
This is the very promising project of Dr. Jeanne Loring https://www.summitforstemcell.org/ about induced pluripotent stem cells that is applying to FDA for test trials. I just received this email from them asking to let the FDA know we need it NOW ! I wanted to share it with all you guys to get a loud
marnegro
in
Cure Parkinson's
5 years ago
Serotonin solves decades-old mystery in Parkinson's disease. (DYSKINESIA)
Serotonin solves decades-old mystery in Parkinson's disease June 30, 2010 , AAAS Serotonin solves decades-old mystery in Parkinson's disease PET image of a healthy brain. Credit: Image courtesy of Marios Politis Sudden, uncontrolled movements called dyskinesias—a common side effect of treatment for
Serotonin solves decades-old mystery in Parkinson's disease June 30, 2010 , AAAS Serotonin solves decades-old mystery in Parkinson's disease PET image of a healthy brain. Credit: Image courtesy of Marios Politis Sudden, uncontrolled movements called dyskinesias—a common side effect of treatment for
akgirlsrock
in
Cure Parkinson's
5 years ago
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Can you reduce risk of acquiring PD?
My Dad has PD and my mother has Alzheimers. Her mother also has Alzheimers. I'm their caretaker and am very proactive in keeping them as comfortable as possible and also on top of all treatment modalities. BUT, I'm curious...is there anything that I can do to help prevent these diseases from reaching
My Dad has PD and my mother has Alzheimers. Her mother also has Alzheimers. I'm their caretaker and am very proactive in keeping them as comfortable as possible and also on top of all treatment modalities. BUT, I'm curious...is there anything that I can do to help prevent these diseases from reaching
Akrow
in
Cure Parkinson's
5 years ago
Canadian guideline for Parkinson disease
KEY POINTS This guideline update reflects substantial changes in the literature on diagnosis and treatment of Parkinson disease, and adds information on palliative care. Impulse control disorders can develop in a person with Parkinson disease who is on any dopaminergic therapy at any stage in the disease
KEY POINTS This guideline update reflects substantial changes in the literature on diagnosis and treatment of Parkinson disease, and adds information on palliative care. Impulse control disorders can develop in a person with Parkinson disease who is on any dopaminergic therapy at any stage in the disease
Farooqji
in
Cure Parkinson's
5 years ago
Bipolar I - Anyone else doing ok without meds?
I completely understand that mediation is a lifeline for a lot of people with bipolar disorder and I am not in anyway suggesting you should not take it, I just wonder if there is anyone on here who has a diagnosis of bipolar disorder and is managing their condition without medication and has not relapsed
I completely understand that mediation is a lifeline for a lot of people with bipolar disorder and I am not in anyway suggesting you should not take it, I just wonder if there is anyone on here who has a diagnosis of bipolar disorder and is managing their condition without medication and has not relapsed
AuroraDis
in
Mental Health Support
5 years ago
DLB
I don't if any member has seen this report *Long Post 19 Jul 2019 Lewy body dementia, the second-most-common progressive dementia after Alzheimer’s disease, receives relatively little attention and few research dollars, and often goes undiagnosed. Comedian Robin Williams, perhaps the most famous person
I don't if any member has seen this report *Long Post 19 Jul 2019 Lewy body dementia, the second-most-common progressive dementia after Alzheimer’s disease, receives relatively little attention and few research dollars, and often goes undiagnosed. Comedian Robin Williams, perhaps the most famous person
daddyt
in
Memory Health: Alzheimer's Support Group
5 years ago
GDNF reduces accumulation of α-synuclein aggregates in cultured dopamine neurons & in a mouse model of Parkinsons
https://doi.org/10.1101/752899
https://doi.org/10.1101/752899
Farooqji
in
Cure Parkinson's
5 years ago
Is the cure for Parkinson's just a supplement away? Researchers say vitamin B12 can inhibit a key Parkinson's enzyme
Can Parkinson’s disease be treated with supplements? A study published in the journal Cell Research suggests that it can be possible to treat hereditary Parkinson’s disease with the help of vitamin B12. The study found that an active form of vitamin B12 called AdoCbl (5’-deoxyadenosylcobalamin) could
Can Parkinson’s disease be treated with supplements? A study published in the journal Cell Research suggests that it can be possible to treat hereditary Parkinson’s disease with the help of vitamin B12. The study found that an active form of vitamin B12 called AdoCbl (5’-deoxyadenosylcobalamin) could
Farooqji
in
Cure Parkinson's
5 years ago
Switching to L-dopa from macuna, from cardopa/levadopa.
Trial on myself, I was trying Barlows 40% Pure l-dopa, worked good and now using 100%pure l-dopa from NutriVita which is very potent, I use just a pinch of the powder in water, it only last for 2 hours, and using Quercetin/ Bromelain I was hoping it would help to lengthen the l-dopa but I really don't
Trial on myself, I was trying Barlows 40% Pure l-dopa, worked good and now using 100%pure l-dopa from NutriVita which is very potent, I use just a pinch of the powder in water, it only last for 2 hours, and using Quercetin/ Bromelain I was hoping it would help to lengthen the l-dopa but I really don't
akgirlsrock
in
Cure Parkinson's
5 years ago
Research shows inflammation reduces dopamine
According to this scientific article inflammation can reduce dopamine release. I do believe that adopting a low inflammatory diet has helped me keep my RLS under control. "This was reported in a new paper published in the journal Trends in Cognitive Sciences. The research carried out at Emory University
According to this scientific article inflammation can reduce dopamine release. I do believe that adopting a low inflammatory diet has helped me keep my RLS under control. "This was reported in a new paper published in the journal Trends in Cognitive Sciences. The research carried out at Emory University
Goldy700
in
Restless Legs Syndrome
5 years ago
summary of a visit to my neurologist
Since I havent seen my neurologist in about TWO YEARS, I had a bunch of questions for him. here they are and here are his answers: Any value in genetic testing? No. Should we test my gut bacteria? No. Would Stem cell replacement be beneficial? Still experimental. No. Have you ever heard of the Marty
Since I havent seen my neurologist in about TWO YEARS, I had a bunch of questions for him. here they are and here are his answers: Any value in genetic testing? No. Should we test my gut bacteria? No. Would Stem cell replacement be beneficial? Still experimental. No. Have you ever heard of the Marty
bassofspades
in
Cure Parkinson's
5 years ago
Looking for a less conservative strategy
Modopar , sinemet etc...The supplementation in dopamine seems to be the only response to P.D for most neurologists in France . This website relates new approaches but it seems that the sale of synthetic dopamine is a precious market!! I may be wrong but it seems that in Canada for example the "Centre
Modopar , sinemet etc...The supplementation in dopamine seems to be the only response to P.D for most neurologists in France . This website relates new approaches but it seems that the sale of synthetic dopamine is a precious market!! I may be wrong but it seems that in Canada for example the "Centre
PARKINPONS
in
Cure Parkinson's
5 years ago
Effect alcohol has on dopamine agonist?
Has there been anybody noticed the effect alcohol has on their dopamine agonist? I wear a 3mg dopamine 24 hour release patch, and have found that on the occasions that I have gone out for an evening with friends, and had a few beers that the patches are less effective. I have looked on the official
Has there been anybody noticed the effect alcohol has on their dopamine agonist? I wear a 3mg dopamine 24 hour release patch, and have found that on the occasions that I have gone out for an evening with friends, and had a few beers that the patches are less effective. I have looked on the official
Barnaby97
in
Restless Legs Syndrome
5 years ago
Meditation - A potential case of remission of Parkinson’s disease
Abstract: We present the case of a 78-year-old male who, 16 years ago, was diagnosed with Parkinson’s disease (PD) by a neurologist. He initially presented with left-hand tremor, stooped posture, shuffling gait, and frequent falls, which eventually progressed to bilateral motor symptoms after 3 years
Abstract: We present the case of a 78-year-old male who, 16 years ago, was diagnosed with Parkinson’s disease (PD) by a neurologist. He initially presented with left-hand tremor, stooped posture, shuffling gait, and frequent falls, which eventually progressed to bilateral motor symptoms after 3 years
Farooqji
in
Cure Parkinson's
5 years ago
Everything you need to know about nicotine.
Nicotine is a chemical that contains nitrogen, which is made by several types of plants, including the tobacco plant. It is also produced synthetically. Nicotiana tabacum, the type of nicotine found in tobacco plants, comes from the nightshade family. Red peppers, eggplant, tomatoes, and potatoes
Nicotine is a chemical that contains nitrogen, which is made by several types of plants, including the tobacco plant. It is also produced synthetically. Nicotiana tabacum, the type of nicotine found in tobacco plants, comes from the nightshade family. Red peppers, eggplant, tomatoes, and potatoes
jillygirl
Administrator
in
Quit Support
5 years ago
Dopamine
Morning. Ive read somewhere on here that compulsive eating and weight gain is a side effect of any medication with dopamine in. I am on Pramipexole and have been for years and it works for me. But over the years i have put on quite a bit of weight and always thinking about food although dont binge,is
Morning. Ive read somewhere on here that compulsive eating and weight gain is a side effect of any medication with dopamine in. I am on Pramipexole and have been for years and it works for me. But over the years i have put on quite a bit of weight and always thinking about food although dont binge,is
graciebes
in
Restless Legs Syndrome
5 years ago
How Does Smoking Affect Sleep??
I'm passing this on from one of our members, BlueEyedGal Each year, nearly 6 million people die worldwide from tobacco use and related diseases. Smoking has a long list of health risks, including cancer, depression, anxiety, heart disease, and much, much more. But smoking also interferes with your sleep
I'm passing this on from one of our members, BlueEyedGal Each year, nearly 6 million people die worldwide from tobacco use and related diseases. Smoking has a long list of health risks, including cancer, depression, anxiety, heart disease, and much, much more. But smoking also interferes with your sleep
TheTabbyCat
Administrator
in
Quit Support
5 years ago
A small study has recently suggested that Deep Brain Stimulation eases Parkinson’s symptoms by directly raising dopamine levels
“Even if dopamine-producing cells are not activated directly, electrically stimulating other parts of the brain, particularly those that receive information from dopamine-producing cells, can indirectly increase dopamine production ...” https://parkinsonsnewstoday.com/2019/08/23/deep-brain-stimulation-directly-raises-dopamine-levels-study-suggests
“Even if dopamine-producing cells are not activated directly, electrically stimulating other parts of the brain, particularly those that receive information from dopamine-producing cells, can indirectly increase dopamine production ...” https://parkinsonsnewstoday.com/2019/08/23/deep-brain-stimulation-directly-raises-dopamine-levels-study-suggests
jeffreyn
in
Cure Parkinson's
5 years ago
Coffee Consumption Linked to Less Severe Tremors in Men With Parkinson
A new study has found a dose-dependent relationship between coffee consumption and reduced severity of tremors in men with Parkinson disease. Previous research has established that coffee is a negative risk factor for PD, a neurodegenerative disorder that produces motor symptoms, including tremor, as
A new study has found a dose-dependent relationship between coffee consumption and reduced severity of tremors in men with Parkinson disease. Previous research has established that coffee is a negative risk factor for PD, a neurodegenerative disorder that produces motor symptoms, including tremor, as
Farooqji
in
Cure Parkinson's
5 years ago
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