Looking for a less conservative strategy

[PARKINPONS]

Modopar , sinemet etc...The supplementation in dopamine seems to be the only response to P.D for most neurologists in France . This website relates new approaches but it seems that the sale of synthetic dopamine is a precious market!! I may be wrong but it seems that in Canada for example the "Centre de Neurologie de Montreal " offers other approaches for neuro stimulation .

IDEM with the use of vitamine B1, D ... etc Any suggestion to promote new treatments after real study and testing .?

[Parkie-]

Hello Parkinpons

Can you provide more info on:

"Centre de Neurologie de Montreal " offers other approaches for neuro stimulation"

I am treated at this center and to my knowledge, there is absolutely nothing like this offered to PD patients. On the contrary, Levodopa (and other pd traditional drugs) is the absolute single thing offered, or even discussed, in their office...

[WinnieThePoo]

I have found my french neurologist in Carcassone open to ideas, and a promoter of exercise (there are tai chi classes advertised on his waiting room walls). However, B1.. D..

Vitamin B1 has a large following on the forum as almost a medication and there are Italian doctors who incorporate it in their treatment regimes. There is persuasive anecdotal evidence from this forum and some of the doctors as to its efficacy (although some are not helped, and some struggle to find an optimal dose), there are a chunky number reporting significant benefits. But there is no clinical trial evidence, and I can't see you finding a french neurologist promoting such a therapy

Vitamin D is different. There isn't a high dose vitamin D therapy fan club promoting it as a therapeutic add-on to levadopa therapy, like there is for B1. But French doctors are big blood testers, and my GP observed low vitamin D levels and advocated substantial supplementation for me

There are no alternative therapies (apart from exercise) which are "after real study and testing" - in France , or elsewhere, if by that you mean orthodox clinical trials

There are plenty of clinical trials in progress in France, which you could look to join if you want something different, and want to contribute to research and progress in improving PD. By definition you will be in the care of top PD specialist neurologists. I am currently participating in the SPARK trial at Toulouse. Although that particular trial is no longer recruiting there are plenty of others - the MJFF trial finder is a good source of information