Sugars…. If i was told i had to confirm what it is today id say sugars. Its like diabetes but specifically in the brain behind the blood brain barrier. Why sugar? High link to diabetes, causes high inflammation in both brain & gut, sugar effects dopamine levels which are misbalanced, my personal bad experience following ice cream/fried food/milk/ bread/cereal, the lixeisenatide drug working, the improvement with diet/exercise/ meditation,, the surprising rise of Parkinson in the modern age…
i don’t seem to read much about people cutting out sugar and their experiences. Anyone want to agree or disagree?
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Edge999
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Sugar consumption in relation to PD has been found to have a boomerang effect, as highlighted by the conclusions of a study recent posted by Bolt_Upright: "On the one hand, there is evidence suggesting that short-term sugar intake could improve motor and non-motor symptoms in PD patients by increasing dopamine release. On the other hand, it could also lead to progressive neurodegeneration in the long term." Considering the associated risks of general health issues such as obesity and type 2 diabetes, as well as the potential link to insulin resistance in the brain among PD patients, it seems advisable to reduce or eliminate sugar intake. However, for many of us, including myself, who apparently have a recognized PWP sensitivity to sugar addiction, this may prove to be a challenging task.
Parkinson’s Disease and Sugar Intake—Reasons for and Consequences of a Still Unclear Craving
People with diabetes are at increased risk for PD.
People with PD, even without being diabetic, frequently have insulin resistance as I discussed here and it seems relevant to your topic. I suggest supplements that may help to fight insulin resistance :
Sugar has different ways it affects the brain. The first is being a short term energy source. It is also source of inflammation and last but not least it’s a biome food of the wrong kind, causing overgrowth of certain biome. Subsequently this leads to disruption of the neurotransmitter production and distribution.
While I do not know the scholarly writings or studies on the point, I noticed that when I had more sugar in my diet I more regularly had a problem with Restless Leg Syndrome. I have started to cut back on sugars and noticed in the short term ( about 3 weeks now) that I have substantially reduced RLS. Hope it continues. (Bye bye M and M peanuts-!!!)
i agree. It does appear that there is a correlation. It is also worth noting that some see a benefit in a ketogenic diet or using ketone esters because the brain is less dependent on glucose.
Yes, I'm newly diagnosed and I've just started with William Curtis's protocol, MCT Coffee, Ketone ester (10ml) and HIIT, etc. I'm early in the process and am now regularly checking my blood sugar levels. Have noticed that blood sugar, atm, rarely drops below 98 even in the morning in a fasted state - but also rarely climbs above 120, even after some carbs. I'm thinking of also trying Brian Johnsons's blueprint diet for 30 days to see if that brings blood sugar further down, and am considering Metaformin, Rapamycin - basically the kitchen sink! Not familiar with Jon Coleman - do you have a link?
As far as I've read, our body has never needed sugar and its a relatively new addition to the bodies intake.I can only see negativity in all the products saturated with it.
Any reduction in sugar, in whatever way can only be beneficial in whatever ailments someone has.
Until three centuries ago when refined sugar became available the only sugar we had was fruit sugar, honey and malted grain and we survived quite well, indeed there was only one recprded death from a heart attack in the USA before fefined sugar became available.
I'd love my WWP to do Keto. I do a low carb diet, not keto.
WWP complains about my restrictive eating.
If I suggested keto to her and she being below BMI scale, I'd be hit with ' how can I put on weight doing keto" and having to drastically change her eating habit, so unfortunately, it won't happen.
I'm quite thin, as well. The way to keep weight up is to drink your calories, and to snack like crazy. (Exactly what you shouldn't be doing to keep weight down!)
I happen to think fasting is important, so I try to have one long spread where I eat nothing, but once I start eating I nibble a lot. And most days I down a huge milkshake: yogurt, frozen berries, heavy cream...or keto chocolate ice cream, peanut butter, heavy cream.
As for changing eating habits: it's a choice. It's worked well for me (nearly ten years in, still one-sided, still mild) so I'm willing to do it.
How are you doing now as im considering switching to keto?
I’ve been following Laurie Mischleys propd diet for nearly a year which does help but dont think its quite there. Her diet cuts processed food & fried foods focusing more on a med diet which is why I think im a bit better but its still progressing. I have already cut all processed sugars but not fruits and natural carbs (rice, potatoes, oats). I think i see a correlation with sugar and carbs…
Yes, after all, carbs are just chains of sugar. Your body breaks it all down and it goes to the same place.
I can't help it--I take Dr. Mischley's advice with a grain of salt. (I've been part of her study, BTW)
Example: People who use fresh herbs do not necessarily help their PD--more likely, people who choose and can afford fresh herbs: cook foods from scratch/eat less processed food/are wealthy thus get better medical care.
No dairy?Does she mean skim milk, fine cheese, butter, yogurt, factory farmed, grass fed...what? And why?
Her study asks about fried food, but doesn't separate fast food french fries or battered frozen nuggets from olive oil home-fried Brussels sprouts. I think they are completely different.
Correlation is NOT causation!
For myself: I guess can't conclude much, as I am a research study of 1, but after ten years I am doing well. I DO cook most of my own food, so very little is processed. I eat a TON of fat (yes fried, yes butter and cream and cheese). I cut out ALL sugar, not just processed, and all carbs, though I eat green veggies and berries.
I'm still in stage 1. I just recently started sinemet, 1 ER pill a day, which I like to take before I go to the gym. I DO exercise--I think that's pretty helpful too?
Starch is just a long chain of glucose molecules which is easily broken down by enzymes in the gut so you may think that you haven't but you probably have unless you've been on a pure carnivore diet.
interesting discussion on how, even though we are well fed, our neurons are energy deficient. ketones can be used as energy by brain but most of us never make them due to never fasting longer than 8-10 hours
ive been focusing my diet on going ultra low sugar and carbs and the improvement to everything except tremor is very noticeable. (Especially sleep and poo). Maybe the tremor takes more time? Been using cronometer app to track.
I also read sugar also spikes dopamine as well as being highly inflammatory! Maybe it disbalances more the already disbalanced dopamine levels?
Been reading it’s more than dopamine too. Also acetylcholine, norepinephrine (adrenaline) and serotonin. There is hints on the web tremor is caused by ddisbalance of dopamine and acetylcholine. Going to try to boost choline levels.
I also acknowledge cutting back on sugars likely has a positive impact to anybody….
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