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Why Won't My Neurologist Listen (Explanation)
While my #1 Neurologist diagnosed me with something I never wanted, my #1 Neurologist was one I was very lucky to have known. I only had two one hour visits with him, he was so passionate and willing to help. He told the wife and I, anytime you need my advice or help phone me any time, email me any
While my #1 Neurologist diagnosed me with something I never wanted, my #1 Neurologist was one I was very lucky to have known. I only had two one hour visits with him, he was so passionate and willing to help. He told the wife and I, anytime you need my advice or help phone me any time, email me any
72andnotout
in
Cure Parkinson's
10 months ago
what to do?
a few months ago, I finally decided to try meditation, specifically C/L. I had no reaction to instant release, so we tried titrating up on CR C/L 25/100. I got up to 2 pills three times a day. I was on this dose 3-4 weeks and I happened to have a neurologist appointment. They said there’s no reason to
a few months ago, I finally decided to try meditation, specifically C/L. I had no reaction to instant release, so we tried titrating up on CR C/L 25/100. I got up to 2 pills three times a day. I was on this dose 3-4 weeks and I happened to have a neurologist appointment. They said there’s no reason to
MomoP
in
Cure Parkinson's
10 months ago
sulfur in dopamine agonists
I tried dopamine agonists: Pramipexole and Rotigotine. Both give me stomach problems. My neurologist says they are the lightest and that the others on the market have more side effects. It is true? I have seen the chemical formulas of these drugs: C19H25NOS and C10H17N3S both contain S (sulphur). While
I tried dopamine agonists: Pramipexole and Rotigotine. Both give me stomach problems. My neurologist says they are the lightest and that the others on the market have more side effects. It is true? I have seen the chemical formulas of these drugs: C19H25NOS and C10H17N3S both contain S (sulphur). While
michelagvolpe
in
Cure Parkinson's
11 months ago
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UPDATE How to gradually reduce dosage of desiccated thyroid (armour)?
A couple of weeks ago I posted asking about how would you go about reducing medication for genetic hypothyroidism. I was on 6 grains of Armour Thyroid which concerts roughly to 54mcg of t3 and 228mcg of T4. On this dosage I get in the higher quarter/ third of range for t3 and despite my average heart
A couple of weeks ago I posted asking about how would you go about reducing medication for genetic hypothyroidism. I was on 6 grains of Armour Thyroid which concerts roughly to 54mcg of t3 and 228mcg of T4. On this dosage I get in the higher quarter/ third of range for t3 and despite my average heart
Aligoth
in
Thyroid UK
11 months ago
Dialysis / RLS
Wow, this sub is a lot more active than the Kidney Disease sub, one would think it would be the other way around. I guess RLS is a lot more prevalent than people think? I never experienced or even heard of RLS before starting dialysis but boy did it hit me hard. It's already hard to sleep while doing
Wow, this sub is a lot more active than the Kidney Disease sub, one would think it would be the other way around. I guess RLS is a lot more prevalent than people think? I never experienced or even heard of RLS before starting dialysis but boy did it hit me hard. It's already hard to sleep while doing
bumblebee_tuna
in
Restless Legs Syndrome
11 months ago
Sleep for Pain relief
The worst part of my off time is awful pain in one foot. It drives me mad. Levodopa does a good job of relieving the situation but I can also get relief by sleeping. Overnight is fair enough because you expect systems to repair and renew and tine for dopamine stores to build. But for me, even a 15 minute
The worst part of my off time is awful pain in one foot. It drives me mad. Levodopa does a good job of relieving the situation but I can also get relief by sleeping. Overnight is fair enough because you expect systems to repair and renew and tine for dopamine stores to build. But for me, even a 15 minute
Buckholt
in
Cure Parkinson's
11 months ago
the curse of lifelong RLS…
I have had RLS for 33 years, I am 63 now with two grown up daughters. My symptoms first presented when I was pregnant, they were annoying but relatively intermittent and manageable - this is how it continued for many years with symptoms presenting during the night. I coped without medication, massaging
I have had RLS for 33 years, I am 63 now with two grown up daughters. My symptoms first presented when I was pregnant, they were annoying but relatively intermittent and manageable - this is how it continued for many years with symptoms presenting during the night. I coped without medication, massaging
soundofmetal
in
Restless Legs Syndrome
11 months ago
Why I pay no attention to studies of PD in mice.
Short answer: Of the hundreds, perhaps thousands, of compounds studied in mice over the past 50 years, all with reports hyping the results, not a single one has turned out to be disease modifying. “PD does not … develop naturally in any animals except humans.” “The standard models for PD are designed
Short answer: Of the hundreds, perhaps thousands, of compounds studied in mice over the past 50 years, all with reports hyping the results, not a single one has turned out to be disease modifying. “PD does not … develop naturally in any animals except humans.” “The standard models for PD are designed
MBAnderson
in
Cure Parkinson's
11 months ago
Where was I?
I gave some insight recently into problems I’d had which led to a diagnosis of Vestibular Migraine. I posted as Everywhere. However, Everywhere disappeared and is now nowhere to be seen in the members list. As a result of an HU glitch which took them a week to sort out, I had to rejoin as Everywhere2
I gave some insight recently into problems I’d had which led to a diagnosis of Vestibular Migraine. I posted as Everywhere. However, Everywhere disappeared and is now nowhere to be seen in the members list. As a result of an HU glitch which took them a week to sort out, I had to rejoin as Everywhere2
Hidden
in
Thyroid UK
11 months ago
Dopamine to Pregabalin transition advice, please
I started taking Mirapexin in 2002. My dose increased over the years, reaching 5 x 0.088 mg tablets four years ago when augmentation set in. Three years ago, my doctor prescribed pregabalin and allowed me to manage my transition from Mirapexin. I have not yet completed that transition. Today, I take
I started taking Mirapexin in 2002. My dose increased over the years, reaching 5 x 0.088 mg tablets four years ago when augmentation set in. Three years ago, my doctor prescribed pregabalin and allowed me to manage my transition from Mirapexin. I have not yet completed that transition. Today, I take
MrVimes
in
Restless Legs Syndrome
11 months ago
Phenylethylamine is NOT Palmitoylethanolamide! They are both called PEA. I take Palmitoylethanolamide
SAGoodmanthis is for you: Phenylethylamine is NOT Palmitoylethanolamide! They are both called PEA. I take Palmitoylethanolamide
I originally posted this a year ago. You should check out the comment on that thread also
. https://healthunlocked.com/cure-parkinsons/posts/148290658/phenylethylamine-is-not-palmitoylethanolamide-they-are-both-called-pea-i-take-palmitoylethanolamide
SAGoodmanthis is for you: Phenylethylamine is NOT Palmitoylethanolamide! They are both called PEA. I take Palmitoylethanolamide
I originally posted this a year ago. You should check out the comment on that thread also
. https://healthunlocked.com/cure-parkinsons/posts/148290658/phenylethylamine-is-not-palmitoylethanolamide-they-are-both-called-pea-i-take-palmitoylethanolamide
Bolt_Upright
in
Cure Parkinson's
11 months ago
Ipsen and IRLAB enter exclusive worldwide licensing agreement aimed to improve the lives of people living with Parkinson’s disease
Mesdopetam is being assessed in Phase IIb clinical trials as a potential treatment option for people living with Parkinson’s disease (PD) experiencing levodopa-induced dyskinesia (LID). It is estimated that approximately 40-50 percent of people living with PD will experience LID after five years of initiating
Mesdopetam is being assessed in Phase IIb clinical trials as a potential treatment option for people living with Parkinson’s disease (PD) experiencing levodopa-induced dyskinesia (LID). It is estimated that approximately 40-50 percent of people living with PD will experience LID after five years of initiating
Farooqji
in
Cure Parkinson's
11 months ago
MS and RLS, Top UK Neurologist talks about Dopamine Agonists
One of the top MS neurologists in the UK has written about RLS in MS patients and states that he does not prescribe dopamine agonists because of the risk of augmentation. He also prescribes methadone for refractory RLS. It's a small step, but hopefully, little by little, the message will get through
One of the top MS neurologists in the UK has written about RLS in MS patients and states that he does not prescribe dopamine agonists because of the risk of augmentation. He also prescribes methadone for refractory RLS. It's a small step, but hopefully, little by little, the message will get through
Joolsg
in
Restless Legs Syndrome
11 months ago
Provigil (Modafinil) for fatigue 'n stuff
Saw my Neurologist yesterday for my 6 month regular visit. He asked how I was doing. I told him good in that I intermittently get my sense of smell back, but bad because I get fatigued very easily, despite the crazy amount of exercise I do. Without hesitation, he offered to have me try Provigil. I had
Saw my Neurologist yesterday for my 6 month regular visit. He asked how I was doing. I told him good in that I intermittently get my sense of smell back, but bad because I get fatigued very easily, despite the crazy amount of exercise I do. Without hesitation, he offered to have me try Provigil. I had
bassofspades
in
Cure Parkinson's
11 months ago
Resting Tremor Stopped Briefly With Hypnosis
In 1995 I visited a GP. I forget the reason. She did something surprising that has persisted all these years. I think it may be important in understanding [i]some[/i] cases of "Parkinson's Disease". Out of the blue this GP said she could give me something that would help me relax. This turned out
In 1995 I visited a GP. I forget the reason. She did something surprising that has persisted all these years. I think it may be important in understanding [i]some[/i] cases of "Parkinson's Disease". Out of the blue this GP said she could give me something that would help me relax. This turned out
Likii
in
Cure Parkinson's
11 months ago
Incontinence and dopamine agonists
Hi - just a short post about my mum. Anyone know if DAs can affect bladder control at all? My mum seems blighted by this (she is elderly so it could just be an age thing). Thanks!
Hi - just a short post about my mum. Anyone know if DAs can affect bladder control at all? My mum seems blighted by this (she is elderly so it could just be an age thing). Thanks!
Boldgirl45
in
Restless Legs Syndrome
11 months ago
Could Psychedelics help in Parkinsons Disease treatment?
Long read. Promises hope for stroke victims. https://www.wired.com/story/the-psychedelic-scientist-who-sends-brains-back-to-childhood/ ----------------- Here is the responses from AI when fed this article. I asked Claude to summarize the article and hypothetically project possible treatment options
Long read. Promises hope for stroke victims. https://www.wired.com/story/the-psychedelic-scientist-who-sends-brains-back-to-childhood/ ----------------- Here is the responses from AI when fed this article. I asked Claude to summarize the article and hypothetically project possible treatment options
pdpatient
in
Cure Parkinson's
11 months ago
New Dopamine Receptors found
I find this research interesting. The researchers focused on Parkinsons Disease, but it seems reasonable to me that there may be more receptors that are specific to RLS as well. I hope future research will look at RLS as well as Parkinsons. https://www.sciencealert.com/surprise-discovery-about-dopamine-may-help-explain-parkinsons
I find this research interesting. The researchers focused on Parkinsons Disease, but it seems reasonable to me that there may be more receptors that are specific to RLS as well. I hope future research will look at RLS as well as Parkinsons. https://www.sciencealert.com/surprise-discovery-about-dopamine-may-help-explain-parkinsons
Qalba
in
Restless Legs Syndrome
11 months ago
Parkinson’s Treatment Tips on the Worst Drugs for Parkinson’s DiseaseParkinson’s Treatment Tips on the Worst Drugs for Parkinson’s Disease
Patients may not be aware that some common drugs used for conditions such as headache or gastrointestinal dysmotility may also block dopamine, and concomitantly worsen Parkinson’s disease, or alternatively result in parkinsonism. These drugs include Prochlorperazine (Compazine), Promethazine (Phenergan
Patients may not be aware that some common drugs used for conditions such as headache or gastrointestinal dysmotility may also block dopamine, and concomitantly worsen Parkinson’s disease, or alternatively result in parkinsonism. These drugs include Prochlorperazine (Compazine), Promethazine (Phenergan
Farooqji
in
Cure Parkinson's
11 months ago
Are you taking these antioxident vitamins to cure your gut?
As you know, the consensus from docs is that our PD started in our gut (and some say our nose, as well because we breathed-in crap that caused our PD) ... And I recently posted another very interesting YouTube interview with a top neurologist who says that our PD is caused by ... bacteria ... pathogens
As you know, the consensus from docs is that our PD started in our gut (and some say our nose, as well because we breathed-in crap that caused our PD) ... And I recently posted another very interesting YouTube interview with a top neurologist who says that our PD is caused by ... bacteria ... pathogens
PDWarrior1900
in
Cure Parkinson's
1 year ago
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