Experiences with

Debulking surgery

Finally is live on Amazon the english translated version of my book "Running on hope", about how I have been managing my Parkinson's Disease for16 years and the importance of lifestyle changes and it's impact on disease progression, Also tells my story that i had posted here some chapters about my FUS

Hello all - just wanted to say it's great to have found this group and it's been reassuring to read a lot of the posts here. I was told I would have to wait until October - January for my valve replacement but things have moved quickly in the past couple of weeks. I am now being admitted on Monday with

As usual, I am not sure where to post this: Firstly I have antibet2glycoprotein 1 antibodies which thicken the blood. I should be taking a daily aspirin but often forget mainly becasue I am not motivated to as I also have low platelets. Will have been waiting for nearly a year to see my rheumatologist

Hi I'm based in the UK, 1st time posting. I've been advised to have a partial thyroidectomy by an ENT consultant following a Thy3 test result. It's going to happen soon, I am being fast tracked for surgery, pre-op in 2 days. Found the lump in March but it may have been there for some time. Its about

I’ve been researching the implications of testosterone replacement therapy (TRT) as it relates to the odds of biochemical recurrence with prostate cancer. I went down this path because my prostatectomy surgeon, who is very well respected in the field (200+ papers) and has performed over 5000 surgeries

I am planning to go through a DBS surgery in near future. I believe there are two brands supplying the devices - Boston Scientific - Medtronix Can someone refer me to some literature where two devices are compared for directional rechargeable type? As I patient should I even care or let the neurologist

Following up to my previous post about well-controlled (or not) asthma, I filled in an online consultation form. Had a phone call from the surgery pharmacy team who suggested I try trimbow. I did explain my concerns about the anticholinergic bit as I had a rough time trying Spiriva in November and

Back in November I noticed a swelling under my arm. My doctor set me up with ultrasounds and found it was swollen lymph nodes. After the surgery in December to remove the largest one, I was told I had SLL. My world turned upside down. I had a PET scan in January and I lit up like a Christmas tree. The

I cane to Malta on a cruise ship in May, not feeling well i saw the ships doctor who said i needed to go to hospital. 5 days later i was having surgery in Malta hospital. 5 days after that i was released with having a double bypass. We have had to find accommodation and family are flying to and fro from

I have osteoporosis, and spinal stenosis, waiting for surgery.My latest blood test for vit. D is - Serum total 25-hydroxy vitamin D levels. 174nmol/L. [. >51]at risk of toxicity, consider discontinuation of suppliments. I have discontinued but I remember reading somewhere that as I have coeliacs disease

This is much more than just a simple update, it is a major development in the Synnovis hack case. [i]Records on 300m patient interactions with NHS stolen in Russian hack[/i] [i]Exclusive: health service scrambling to set up helpline after Qilin gang put stolen data into public domain overnight

Hi lovely ladies hope you're enjoying the sun ☀️. I'm having hernia surgery soon and just wondered If anyone has any experience of this. Recovery time etc. I have 3 hernias along my debulking scar so not really sure how they will repair this. Thank you Kate xx

I'm about to go back to a gynaecologist next week to resume investigations after two pregnancy losses (1 ectopic, one missed miscarriage). I'm keen for any suggestions on what I should be asking / what they should be looking out for.Basically my symptoms are intense pain in my side, normally the right

Hi everyone. I am seeking your helpful advice once again. My daughter was diagnosed with High Serous Grade 3 Ovarian Cancer in June 2023 with full debaulking surgery in July 2023. She is currently on 100mg Paraparib which has had an effect on her haemoglobin levels but appear to have now settled.

Hi, been on Armour for 12 years. Fortunate to have it prescribed by my GP & there has never been a problem but the pharmacy at the surgery say there is a problem & they can't get it. They have recently changed hands & it has been a problem to get the particular brand of another medicine I need to not

2018. diagnosed with breast cancer-stage one,left breast.Had chemo,surgery and 11 lymph nodes removed,and 2 months radiotherapy. 6 years later (3 months ago)metastatic breast cancer appeared as left side of lung nodule 12 mm,an early stage.Had a surgery.Upper lung lobe,and lymph nodes removed.Did Pet-scan

I went and saw the endometriosis specialist for my initial consultation. He said he’d already read the symptoms (that I’d had to send in to be offered an appointment.) I gave him a new list cause it included symptoms I hadn’t previously mentioned, he read it and scanned it on his phone. He said normally

I previously posted a question about post surgical pain and Belbuca (buccal Buprenorphine,). I had hip replacement one week ago. The pain is excruciating. I conferred with my surgeon prior to the surgery because I was afraid of this. He told me not to worry. Ha! I am taking Oxycodone every 6 hours

I have stage 4 endo (DIE), frozen pelvis, bilateral tubo-ovarian complex so endo through tubes, bowel endo and distortion of the parametrial and cardinal ligaments. And adenomyosis (diffuse and focal). The ovaries are kissing and described as 'right hand side tubo-ovarian endometriotic complex extends

I'm due to have a hip replacement but nervous because I have paroxysmal A Fib. I' m on Edoxaban and have bisoprolol as a P I P, told to take after a few hours if it didn't resolve, but haven't had to take it . Would welcome some reassurance 😊