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Experiences with
Deep brain stimulation (DBS)
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Low battery Medtronic DBS increasing off time
I’m currently waiting for approval for the replacement of my
DBS
battery. Im having more off time issues despite a voltage reading of 2.54. Anyone else experience this? Thanks
I’m currently waiting for approval for the replacement of my
DBS
battery. Im having more off time issues despite a voltage reading of 2.54. Anyone else experience this? Thanks
etterus
in
Cure Parkinson's
6 years ago
HDT for people who have had DBS
Just wondering if high dose thiamine is helpful for people who have had
DBS
? I contacted dr. Constantini regarding this issue, but I did not get a response from him. Tyia
Just wondering if high dose thiamine is helpful for people who have had
DBS
? I contacted dr. Constantini regarding this issue, but I did not get a response from him. Tyia
MarciAC4
in
Cure Parkinson's
6 years ago
Diminished memory and DBS battery replacement
I am wondering if there is a connection with memory being diminished when the
DBS
battery is runnning low and/or out?
I am wondering if there is a connection with memory being diminished when the
DBS
battery is runnning low and/or out?
Parkiewife
in
Cure Parkinson's
6 years ago
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Parkinsons and dental work
Has anyone had extensive dental work after having
DBS
. I am needing implants and am concerned about possible heeating of
DBS
lead, etc.
Has anyone had extensive dental work after having
DBS
. I am needing implants and am concerned about possible heeating of
DBS
lead, etc.
Cbauer
in
Cure Parkinson's
6 years ago
Lactulose
Anyone taking Lactulose for constipation? I was prescribed it after not having a bowel movement for 10 days and no relief. Now today I called my dr. and they doubled the dose for me to take. If I don't go by tommorow I have to go in and have them take exrays. This is so embarresing especially if they
Anyone taking Lactulose for constipation? I was prescribed it after not having a bowel movement for 10 days and no relief. Now today I called my dr. and they doubled the dose for me to take. If I don't go by tommorow I have to go in and have them take exrays. This is so embarresing especially if they
lauriefontaine67
in
British Liver Trust
5 years ago
DBS hybrid: Medtronic leads with Boston Scientific stimulator
I have had effective control of my motor complaints of dystonia and dyskinesia for 4 years with the standard Medtronic unit implanted in my globus pallidus internus. The battery life has been limited due to the high output of 2.7 &4.8. I managed to get 30 months out of the initial battery but at current
I have had effective control of my motor complaints of dystonia and dyskinesia for 4 years with the standard Medtronic unit implanted in my globus pallidus internus. The battery life has been limited due to the high output of 2.7 &4.8. I managed to get 30 months out of the initial battery but at current
etterus
in
Cure Parkinson's
6 years ago
Bacterial overgrowth in gut/intestines question
Hello all (Quick background) Diagnosed Limited Cutaneous Systemic Sclerosis and Secondary Raynauds. Saw my rheumatologist today and spoke about my worsening GI symptoms, she suspects bacterial overgrowth in gut/intestines. Just wondering if anyone could shed any light on this? What treatments are available
Hello all (Quick background) Diagnosed Limited Cutaneous Systemic Sclerosis and Secondary Raynauds. Saw my rheumatologist today and spoke about my worsening GI symptoms, she suspects bacterial overgrowth in gut/intestines. Just wondering if anyone could shed any light on this? What treatments are available
-missymoo
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
ANYONE HEARD ABOUT THE NEW 2 HR. DBS?
ASLEEP
DBS
BY DR. DAVID VANSICKLE?HE HAS BEEN PERFORMING THIS SURGERY FOR THE LAST TWO YEARS IN LITTLETON, COLORADO. IT SOUNDS BETTER THAN THE AWAKE
DBS
AS FAR AS ACCURACY AND TYPICAL 4-6 HR SURGERY TIME. HE USES THE ABBOTT SYSTEM THAT HAS 8 ELECTRODES INSTEAD OF 4. I LIVE 1000 MILES AWAY.
ASLEEP
DBS
BY DR. DAVID VANSICKLE?HE HAS BEEN PERFORMING THIS SURGERY FOR THE LAST TWO YEARS IN LITTLETON, COLORADO. IT SOUNDS BETTER THAN THE AWAKE
DBS
AS FAR AS ACCURACY AND TYPICAL 4-6 HR SURGERY TIME. HE USES THE ABBOTT SYSTEM THAT HAS 8 ELECTRODES INSTEAD OF 4. I LIVE 1000 MILES AWAY.
ktbate
in
Cure Parkinson's
6 years ago
Gene Therapy: A possible future rival to DBS (and even stem-cell therapy)?
An interesting SoPD blog post from Simon, about an unexpected result from a gene-therapy trial. https://scienceofparkinsons.com/2018/12/08/gad/
An interesting SoPD blog post from Simon, about an unexpected result from a gene-therapy trial. https://scienceofparkinsons.com/2018/12/08/gad/
jeffreyn
in
Cure Parkinson's
6 years ago
Thiamine dosage
My problem is dyskinesia, sometimes pretty bad.I am seriously considering
DBS
but would like to try Thiamine first. Any suggestions on dosage to start with? Thanks.
My problem is dyskinesia, sometimes pretty bad.I am seriously considering
DBS
but would like to try Thiamine first. Any suggestions on dosage to start with? Thanks.
Gailsnail
in
Cure Parkinson's
6 years ago
DBS and head-aces
I had
DBS
surgery 5 month ago and since than I suffer from bad head-aces one or twice a week. Surgery went well and with connection with Parkinson symptoms it is great. but the haedaces are hard to endure. Any one has it too?
I had
DBS
surgery 5 month ago and since than I suffer from bad head-aces one or twice a week. Surgery went well and with connection with Parkinson symptoms it is great. but the haedaces are hard to endure. Any one has it too?
imani100
in
Cure Parkinson's
6 years ago
DBS for Non-Tremor PD?
Couple of weeks ago, my neurologist suggested
DBS
to ease the dystonia in my arm and help my balance.
Couple of weeks ago, my neurologist suggested
DBS
to ease the dystonia in my arm and help my balance.
Motal
in
Cure Parkinson's
6 years ago
New here.
I have been looking more into
DBS
and would love to hear stories and experiences from others. My mother is supposed to be having myectomy with Dr. Andersonś clinic but she keeps putting it off. Poor thing is terrified to have her eyes cut on but i keep telling her go for it!
I have been looking more into
DBS
and would love to hear stories and experiences from others. My mother is supposed to be having myectomy with Dr. Andersonś clinic but she keeps putting it off. Poor thing is terrified to have her eyes cut on but i keep telling her go for it!
talynn
in
Dystonia Society
6 years ago
2019: Will Medicare Cover Parkinson's ?
Here's where we stand as noted by Kirk Hall in his blog www.shakypawsgrampa.com. (Of course who knows what will happen over the next two years with the idiot in the Whitehouse backed by gutless members of the POT). Parkinson’s disease (PD) is a challenging condition as it is, but the fact that it is
Here's where we stand as noted by Kirk Hall in his blog www.shakypawsgrampa.com. (Of course who knows what will happen over the next two years with the idiot in the Whitehouse backed by gutless members of the POT). Parkinson’s disease (PD) is a challenging condition as it is, but the fact that it is
FMundo
in
Cure Parkinson's
6 years ago
former Marine with Parkinson’s weeps as his tremor symptoms improve dramatically right in front of his eyes.
Only science gives us true miracles. h/t #
DBS
https://t.co/g716cpM3Ti" / Twitter] is good,have a look at it!
Only science gives us true miracles. h/t #
DBS
https://t.co/g716cpM3Ti" / Twitter] is good,have a look at it!
Farooqji
in
Cure Parkinson's
6 years ago
I am wondering if anyone had their DBS done in gainsville Florida by dr Foote and dr okum?
I am sceduled to have it done there in January. I’m starting to get very nervous as I will be awake. Just thought it would be good to hear from others who went through it. Thanks
I am sceduled to have it done there in January. I’m starting to get very nervous as I will be awake. Just thought it would be good to hear from others who went through it. Thanks
Lheinlel
in
Cure Parkinson's
6 years ago
Has anyone had a family member have Parkinson’s too?
My oldest sister was diagnosed about 2 years before me.She had
DBS
about two years ago. And another girl about a half block away has Parkinson’s to.
My oldest sister was diagnosed about 2 years before me.She had
DBS
about two years ago. And another girl about a half block away has Parkinson’s to.
Fishaholic
in
Cure Parkinson's
6 years ago
Deep brain stimulation first therapy to slow the progression of Parkinson's disease
“
DBS
is the first therapy to show disease-modifying effect—it can actually slow down cardinal features of Parkinson’s. There has been no therapy, drug, or device that has ever been able to do that,” said Dr.
“
DBS
is the first therapy to show disease-modifying effect—it can actually slow down cardinal features of Parkinson’s. There has been no therapy, drug, or device that has ever been able to do that,” said Dr.
stepan13
in
Cure Parkinson's
6 years ago
Sudden Downturn
My spouse has the
DBS
in oct 2016. The past 6 months, he’s been falling daily. Forgetting, occasionally leaving stove on... Finally, the doctor convinced him to get a walker. We’re also testing him to see if he can drive.
My spouse has the
DBS
in oct 2016. The past 6 months, he’s been falling daily. Forgetting, occasionally leaving stove on... Finally, the doctor convinced him to get a walker. We’re also testing him to see if he can drive.
3Fishies
in
Cure Parkinson's
6 years ago
Dystonia Tardive
I am contemplating
DBS
for tardive dystonia and wonder if there is anybody who has experienced this procedure for this condition- just to discuss pros and cons.
I am contemplating
DBS
for tardive dystonia and wonder if there is anybody who has experienced this procedure for this condition- just to discuss pros and cons.
heights
in
Dystonia Society
6 years ago
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