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Daivonex
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Hair Loss
I've had 2 half doses and my hair is coming out in wads. My scalp itches horribly. I went to the Dermatologist to see if there was a skin problem -- or even cooties. 🤔 Nope, neither. I've always been told that I have pretty, naturally curly hair. It is thinning too. Is there anything on the market
I've had 2 half doses and my hair is coming out in wads. My scalp itches horribly. I went to the Dermatologist to see if there was a skin problem -- or even cooties. 🤔 Nope, neither. I've always been told that I have pretty, naturally curly hair. It is thinning too. Is there anything on the market
bshiggins
in
My MSAA Community
5 years ago
Hello everyone I'm new to this!
Hello I am Ladybriars, I was diagnosis 6/2009 RRMS. I'm started out with Rebif for 6 months. Too much flu like symptoms. Now I take Avonex and so far doing alot better.
Hello I am Ladybriars, I was diagnosis 6/2009 RRMS. I'm started out with Rebif for 6 months. Too much flu like symptoms. Now I take Avonex and so far doing alot better.
Ladybriars
in
My MSAA Community
5 years ago
Avonex at 65
Hi, I've been on Avonex for about 15 years. I retired this year at the age of 65 and through my insurance company got 3 months of Avonex. I am at the end of my last refill. My neurologist has me switching to every 2 weeks until it runs out. The problem is Medicare does not cover the drug. When I called
Hi, I've been on Avonex for about 15 years. I retired this year at the age of 65 and through my insurance company got 3 months of Avonex. I am at the end of my last refill. My neurologist has me switching to every 2 weeks until it runs out. The problem is Medicare does not cover the drug. When I called
P00dleLady
in
My MSAA Community
5 years ago
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Vaccines FYI
[u]Vaccine Safety When You Have MS[/u] Which Ones Are Safe and Which Ones Are Not By Colleen Doherty, MD Updated June 25, 2019 Medically reviewed by Andy Miller, MD
https://www.verywellhealth.com/vaccine-safety-in-ms-4119468?utm_term=&utm_campaign=list_ms&utm_medium=email&utm_source=cn_nl&utm_content
[u]Vaccine Safety When You Have MS[/u] Which Ones Are Safe and Which Ones Are Not By Colleen Doherty, MD Updated June 25, 2019 Medically reviewed by Andy Miller, MD
https://www.verywellhealth.com/vaccine-safety-in-ms-4119468?utm_term=&utm_campaign=list_ms&utm_medium=email&utm_source=cn_nl&utm_content
sashaming1
in
My MSAA Community
5 years ago
Avonex vs Ocrevus
Does anyone use Avonex? I’m just wondering because I started Ocrevus but lost a lot of hair. Was wondering if some of you still use Avonex?
Does anyone use Avonex? I’m just wondering because I started Ocrevus but lost a lot of hair. Was wondering if some of you still use Avonex?
Horse714
in
My MSAA Community
5 years ago
Avonex vs OCREVUS
My neurologist says no but does anyone know if you can go back to Avonex after the doctor put you on Ocrevus and you don’t feel comfortable with it???
My neurologist says no but does anyone know if you can go back to Avonex after the doctor put you on Ocrevus and you don’t feel comfortable with it???
Horse714
in
My MSAA Community
5 years ago
Do you see the possibilities around "YOU"?
Do "YOU" see all the possibilities around "YOU? Seriously do "YOU"? Long long ago, Okay twenty years ago, when I first started my Relapsing Remitting ms(RRms) journey. I had one Disease Modifying Therapy (DMT) available for me to take. Interferon Beta 1b Betaseron or Betaferon depending on where"YOU
Do "YOU" see all the possibilities around "YOU? Seriously do "YOU"? Long long ago, Okay twenty years ago, when I first started my Relapsing Remitting ms(RRms) journey. I had one Disease Modifying Therapy (DMT) available for me to take. Interferon Beta 1b Betaseron or Betaferon depending on where"YOU
RoyceNewton
in
My MSAA Community
6 years ago
WBC not in normal range on last 2 tests
I have systemic scleroderma, Sjögrens and MS and I’ve been on Avonex for my MS for 9 years now. The last two lab tests my WBC has been low and the last one was the lowest yet at 3.1. The low end of normal for this lab is 4.0. The lab test before this last one my neurologist said not to worry, but this
I have systemic scleroderma, Sjögrens and MS and I’ve been on Avonex for my MS for 9 years now. The last two lab tests my WBC has been low and the last one was the lowest yet at 3.1. The low end of normal for this lab is 4.0. The lab test before this last one my neurologist said not to worry, but this
Hjr4
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
WBC keeps getting lower, anyone else on Avonex have this happen?
I’ve been on Avonex for 9 years now. The last two lab tests my WBC has been low and the last one was the lowest yet at 3.1. The low end of normal for this lab is 4.0. I also have scleroderma and Sjögrens. Has this happened to anyone else on Avonex and is your doctor not concerned? Has anyone seen a
I’ve been on Avonex for 9 years now. The last two lab tests my WBC has been low and the last one was the lowest yet at 3.1. The low end of normal for this lab is 4.0. I also have scleroderma and Sjögrens. Has this happened to anyone else on Avonex and is your doctor not concerned? Has anyone seen a
Hjr4
in
My MSAA Community
6 years ago
Still taking Avonex and what helps
I’m still taking the Avonex since 2010. just went to the doc and had an mri it did not show any progression the last two I just turned 50 and my doc for the first time talked about stopping at some point. I changed from the manual injection to the pen and it is much easier and so fast! Don’t have to
I’m still taking the Avonex since 2010. just went to the doc and had an mri it did not show any progression the last two I just turned 50 and my doc for the first time talked about stopping at some point. I changed from the manual injection to the pen and it is much easier and so fast! Don’t have to
Takinstill
in
My MSAA Community
6 years ago
7 weeks on Low Dose Naltrexone (LDN)
I am on a mission to eliminate the need for Mirapex (Pramipexole). I have been taking it for over 20 years and it has been very effective at controlling RLS even though it took a larger and larger dose to achieve mastery over the “dancing”. When my arms started joining in the Herky Jerky and I was experiencing
I am on a mission to eliminate the need for Mirapex (Pramipexole). I have been taking it for over 20 years and it has been very effective at controlling RLS even though it took a larger and larger dose to achieve mastery over the “dancing”. When my arms started joining in the Herky Jerky and I was experiencing
libraryannie
in
Restless Legs Syndrome
6 years ago
Has anyone with Secondary Progressive MS been prescribed Ocrevus or is on it?
I was diagnosed with RRMS in 1996 and about seven years ago my doctor took me off Avonex and I went on Gilenya. That didn’t work for me at all, I quickly worsened and now I have SPMS. My doctor doesn’t want me back on Avonex instead wants me on Ocrevus. I’m just not sure if this will work for SPMS
I was diagnosed with RRMS in 1996 and about seven years ago my doctor took me off Avonex and I went on Gilenya. That didn’t work for me at all, I quickly worsened and now I have SPMS. My doctor doesn’t want me back on Avonex instead wants me on Ocrevus. I’m just not sure if this will work for SPMS
Pia7
in
My MSAA Community
6 years ago
Hello, I am activist.
Hello, I was diagnosed with RRMS 13 years ago and have been fortunate that my condition has not progressed. I have been on Avonex for most of the time. I tried Plegrity but my body did not like it. Even though I have had breast cancer twice, I have MS and I have a brain tumor I feel as if I am the
Hello, I was diagnosed with RRMS 13 years ago and have been fortunate that my condition has not progressed. I have been on Avonex for most of the time. I tried Plegrity but my body did not like it. Even though I have had breast cancer twice, I have MS and I have a brain tumor I feel as if I am the
activist
in
My MSAA Community
6 years ago
This is sort of obvious
msers, good Monday morning. YOU have a CHRONIC medical illness. Now that we have that clear what are YOU going to do about it? Something or nothing? If YOU pick nothing, then ignore this message it is not for YOU. On the other hand, being YOU and wanting to be in the best possible shape for
msers, good Monday morning. YOU have a CHRONIC medical illness. Now that we have that clear what are YOU going to do about it? Something or nothing? If YOU pick nothing, then ignore this message it is not for YOU. On the other hand, being YOU and wanting to be in the best possible shape for
RoyceNewton
in
My MSAA Community
6 years ago
Back to whining
I had my Copaxone shot last night with no reaction. But today my muscles feel like I had Avonex. I feel sore as if I had worked out (I didn’t). My head hurts and I hurt ALL OVER. If I take more muscle relaxers then I will be DEEPLY DEPRESSED tomorrow and I am very sad already. I am so tired of being
I had my Copaxone shot last night with no reaction. But today my muscles feel like I had Avonex. I feel sore as if I had worked out (I didn’t). My head hurts and I hurt ALL OVER. If I take more muscle relaxers then I will be DEEPLY DEPRESSED tomorrow and I am very sad already. I am so tired of being
TracyBelle
in
My MSAA Community
6 years ago
Aubagio usage
I am needing to switch my MS medication. I have been taking Avonex but it isn't doing the job. I am thinking about switching to Aubagio. Just wondering what others on it think of it. Thank you for any help.
I am needing to switch my MS medication. I have been taking Avonex but it isn't doing the job. I am thinking about switching to Aubagio. Just wondering what others on it think of it. Thank you for any help.
SandraFH
in
My MSAA Community
6 years ago
Headaches vs. migraines?
Hi, While it probably doesn’t matter what you call them, headaches really stink! I seem to go through spells when I’ll have four days in a row and three have migraines. I’ve kept up with a calendar of the headaches, eliminated trigger foods (I don’t do chocolate, caffeine in soft drinks, etc.)
Hi, While it probably doesn’t matter what you call them, headaches really stink! I seem to go through spells when I’ll have four days in a row and three have migraines. I’ve kept up with a calendar of the headaches, eliminated trigger foods (I don’t do chocolate, caffeine in soft drinks, etc.)
GeorgiaJunebug
in
My MSAA Community
6 years ago
HELLO!! I'm new here!! I am from Washington State!!
Hello everyone :) I was diagnosed with relapsing remitting MS in October of 2008. I fell at work, hitting my head and being unconscious for a minute or so. Because L&I had to be involved, they sent me to various drs. One doctor noticed I had problems with standing up while in a squatting position.
Hello everyone :) I was diagnosed with relapsing remitting MS in October of 2008. I fell at work, hitting my head and being unconscious for a minute or so. Because L&I had to be involved, they sent me to various drs. One doctor noticed I had problems with standing up while in a squatting position.
BarbL223
in
My MSAA Community
6 years ago
Poor medication choice!
Avonex didn't work for me. I had multiple relapses of optic neuritis on it and feared losing my sight permanently. I would NOT recommend it and choose another medication, such as tecfidera, immediately.
Avonex didn't work for me. I had multiple relapses of optic neuritis on it and feared losing my sight permanently. I would NOT recommend it and choose another medication, such as tecfidera, immediately.
injada
in
My MSAA Community
6 years ago
Dry, itchy skin
Avonex has been so hard on my skin. Regular body lotion does nothing to relieve the dryness. How are those of you with dry, itchy skin handling it? I'd love some product recommendations!
Avonex has been so hard on my skin. Regular body lotion does nothing to relieve the dryness. How are those of you with dry, itchy skin handling it? I'd love some product recommendations!
ynggal
in
My MSAA Community
6 years ago
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