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Diagnosed in 1987 three years after my PhD defense and beginning R&D in biotechnology Industry.
Hello fellow folks dealing with the effects of MS. I was diagnosed quite a while ago, in1987. Initially, demyelinating disease, i.e. MS or multiple sclerosis, caused me great fatigue after I would come home from working a ten or twelve hour day. I was 30 years old and didn't even have a primary care
Hello fellow folks dealing with the effects of MS. I was diagnosed quite a while ago, in1987. Initially, demyelinating disease, i.e. MS or multiple sclerosis, caused me great fatigue after I would come home from working a ten or twelve hour day. I was 30 years old and didn't even have a primary care
DavidMaskalick
in
My MSAA Community
6 years ago
G'day Newbies
My name is Royce, I am your self appointed temporary Bus Driver for this stage of your ms journey. I am not a Dr, any kind of therapist just an ordinary person like you with a little experience with this illness/disease/journey we I like to call my travels as a disabled man with ms in 2018. Feel free
My name is Royce, I am your self appointed temporary Bus Driver for this stage of your ms journey. I am not a Dr, any kind of therapist just an ordinary person like you with a little experience with this illness/disease/journey we I like to call my travels as a disabled man with ms in 2018. Feel free
RoyceNewton
in
My MSAA Community
6 years ago
Hot temps & MS
Nice weather here in Ireland,sunny but not too warm.😎.Heading to Spain in a few weeks.How does the heat affect MS?Any advice would be appreciated.Had Avonex pen injection last night,best advice is to keep taking paracetamol every 4 hours to help with temp/aches & pains.Made mistake last week & stopped
Nice weather here in Ireland,sunny but not too warm.😎.Heading to Spain in a few weeks.How does the heat affect MS?Any advice would be appreciated.Had Avonex pen injection last night,best advice is to keep taking paracetamol every 4 hours to help with temp/aches & pains.Made mistake last week & stopped
Curran1970
in
My MSAA Community
6 years ago
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Avonex pen experience.
Took my 1st Avonex pen injection last fri night week at 10.00pm.Took paracetamol & Brufen 1 hr beforehand.Woke at 3.30 am shaking & shivering.Pains & aches for all of Sat.Feeling better Sun dinner time.Took My 2nd one Fri night,set my alarm every 5 hours to take the above tabs .Felt way better 2nd time.Crucial
Took my 1st Avonex pen injection last fri night week at 10.00pm.Took paracetamol & Brufen 1 hr beforehand.Woke at 3.30 am shaking & shivering.Pains & aches for all of Sat.Feeling better Sun dinner time.Took My 2nd one Fri night,set my alarm every 5 hours to take the above tabs .Felt way better 2nd time.Crucial
Curran1970
in
My MSAA Community
6 years ago
Question about meds
I have been on aubagio for a couple of yrs and like taking it but they found 1 new lesion after a VERY stressful holiday season. My dr wants me to switch to one of the meds that has the pml assoc with it and Im jc positive and refuse to take any of them. Already got off avonex cant take shots..so thinking
I have been on aubagio for a couple of yrs and like taking it but they found 1 new lesion after a VERY stressful holiday season. My dr wants me to switch to one of the meds that has the pml assoc with it and Im jc positive and refuse to take any of them. Already got off avonex cant take shots..so thinking
Takersgals
in
My MSAA Community
6 years ago
Avonex pen
Just wondering if many members have been on Avonex injections once weekly.Have decided with advice that this is my best choice.Glad for any feedback.Hope everyone has a good day😀🍀.
Just wondering if many members have been on Avonex injections once weekly.Have decided with advice that this is my best choice.Glad for any feedback.Hope everyone has a good day😀🍀.
Curran1970
in
My MSAA Community
6 years ago
To inject or not to inject? That is the question!!!
Hello All! I hope everyone is having the best day ever!! This is my first post. I decided to join the chat because there is so much support and positivity going on here. Also, I would like for others to chime in with thoughts, views and experiences if you will :). I was diagnosed with MS in 2015. I started
Hello All! I hope everyone is having the best day ever!! This is my first post. I decided to join the chat because there is so much support and positivity going on here. Also, I would like for others to chime in with thoughts, views and experiences if you will :). I was diagnosed with MS in 2015. I started
Jozzi
in
My MSAA Community
7 years ago
Switching from Avonex to Plegridy
I'm considering switching from Avonex to Plegridy. The Avonex I inject once a week and for the two days following the injection I'm dealing with flu-like symptoms, extreme fatigue, and increased pain...the side effects of the Avonex. I've been on it for almost 4 years and the side effects had gotten
I'm considering switching from Avonex to Plegridy. The Avonex I inject once a week and for the two days following the injection I'm dealing with flu-like symptoms, extreme fatigue, and increased pain...the side effects of the Avonex. I've been on it for almost 4 years and the side effects had gotten
ynggal
in
My MSAA Community
7 years ago
MS getting worse 😢
I’ve had MS since March 1995. Until about 5-7 years ago I’ve had few to no problems with it. I do take Avonex, antidepressants, thyroid meds, hypertension meds, baclofen, clonipin, just started a statin, and a bladder med. until November 2017 I was an elementary teacher for 20 years 🙁. I was placed
I’ve had MS since March 1995. Until about 5-7 years ago I’ve had few to no problems with it. I do take Avonex, antidepressants, thyroid meds, hypertension meds, baclofen, clonipin, just started a statin, and a bladder med. until November 2017 I was an elementary teacher for 20 years 🙁. I was placed
Tracy79
in
My MSAA Community
7 years ago
New Insurance 2018
Well started the new year with new healthcare thru Mountain Health Coop. Just received Notice of Denied Medication/ Aubagio. Have been on it for ten months on other insurance, no problems. Hate going thru this again 🤬 Thru the years I have been on Copaxone, Avonex, Ribif, Tysabri, Tecfidera, and last
Well started the new year with new healthcare thru Mountain Health Coop. Just received Notice of Denied Medication/ Aubagio. Have been on it for ten months on other insurance, no problems. Hate going thru this again 🤬 Thru the years I have been on Copaxone, Avonex, Ribif, Tysabri, Tecfidera, and last
Kenu
in
My MSAA Community
7 years ago
Changed DMD need advice
Switched DMD fron Avonex to Extavia. Overall tolerating change pretty well. The biggest side effect is injection site turns vivid red, no heat, no itching, no swelling. Is this a normal side effect?
Switched DMD fron Avonex to Extavia. Overall tolerating change pretty well. The biggest side effect is injection site turns vivid red, no heat, no itching, no swelling. Is this a normal side effect?
msinca07
in
My MSAA Community
7 years ago
Secondary Progressive
1st diagnosed with RRMS 2009 have used Copaxone Rebif and now Avonex. Have been told by doctor that we are now looking at Secondary Progressive. He is not yet changing Medication and I have next appointment in Jan 2018. Currently on Avonex. I feel that Avonex is not a correct Medication. What have others
1st diagnosed with RRMS 2009 have used Copaxone Rebif and now Avonex. Have been told by doctor that we are now looking at Secondary Progressive. He is not yet changing Medication and I have next appointment in Jan 2018. Currently on Avonex. I feel that Avonex is not a correct Medication. What have others
chickadee59
in
My MSAA Community
7 years ago
Hello all~New to this site!
Always looking, seeking, searching for News! Any way to deal with MS, that seems to change moment to moment sometimes, day by day. I used to primarily deal with overwhelming fatigue, and heat related issues, but now vertigo is a daily occurrence, stumbling around in general, depression--which I fight
Always looking, seeking, searching for News! Any way to deal with MS, that seems to change moment to moment sometimes, day by day. I used to primarily deal with overwhelming fatigue, and heat related issues, but now vertigo is a daily occurrence, stumbling around in general, depression--which I fight
PetieJ
in
My MSAA Community
7 years ago
Plaque psoriasis
Hi I live in the U.K. & suffered with psoriasis for 30 years. I have it on my arms, legs, back, bottom & hands. Have tried so many creams, lotions & ointments over the years. IMHO I find the only thing that makes it better is the sun. Am under dermatologist who offered me a course of phototherapy
Hi I live in the U.K. & suffered with psoriasis for 30 years. I have it on my arms, legs, back, bottom & hands. Have tried so many creams, lotions & ointments over the years. IMHO I find the only thing that makes it better is the sun. Am under dermatologist who offered me a course of phototherapy
mama27
in
Beyond Psoriasis
7 years ago
New to forum
I am new to the forum. I was diagnosed with RRMS in 2003. I took Avonex for 10 years, Tysabri for just under 2 years. Plegridy for 5 months, raised my liver enzymes. I have been on Aubagio since last Oct. I am doing well on this medication. Improvements on my physical exams.
I am new to the forum. I was diagnosed with RRMS in 2003. I took Avonex for 10 years, Tysabri for just under 2 years. Plegridy for 5 months, raised my liver enzymes. I have been on Aubagio since last Oct. I am doing well on this medication. Improvements on my physical exams.
mdok
in
My MSAA Community
7 years ago
Hello
Hello everyone, I'm 37 and live in the southwest U.S. My mother was diagnosed in 1998 and has been on Avonex since then. About 2008, she stopped talking, and began deteriorating, despite my father giving her incredible care. She has always had problems with urinary infections and fevers. After her latest
Hello everyone, I'm 37 and live in the southwest U.S. My mother was diagnosed in 1998 and has been on Avonex since then. About 2008, she stopped talking, and began deteriorating, despite my father giving her incredible care. She has always had problems with urinary infections and fevers. After her latest
bgabq
in
My MSAA Community
7 years ago
Starting Meds ~ Any opinions?
Hi everyone ... I was diagnosed in January with RRMS & will be starting medication soon. I have been given info on orals & injectables ... it all seems very overwhelming. Injectables: Avonex; Betaseron; Rebif; Copaxone Oral: Aubagio; Tecfidera Your thoughts ... Thank you, Carrie
Hi everyone ... I was diagnosed in January with RRMS & will be starting medication soon. I have been given info on orals & injectables ... it all seems very overwhelming. Injectables: Avonex; Betaseron; Rebif; Copaxone Oral: Aubagio; Tecfidera Your thoughts ... Thank you, Carrie
Daring_Greatly
in
My MSAA Community
7 years ago
Introducing me
I was diagnosed with RRMS in 1979. I am 65 and a retired teacher living in Michigan. Now my Dr. thinks I am in the second phase of this disease and has opted to take me off a bll MS therapies. Over the years, I have been on Betaseron, Avonex, and Tysabri. I fell and broke my left hip (Nov. 2015)
I was diagnosed with RRMS in 1979. I am 65 and a retired teacher living in Michigan. Now my Dr. thinks I am in the second phase of this disease and has opted to take me off a bll MS therapies. Over the years, I have been on Betaseron, Avonex, and Tysabri. I fell and broke my left hip (Nov. 2015)
DebbyLou
in
My MSAA Community
8 years ago
GODFIDENCE!
Hello, I was diagnosed with MS in August 2011. I then obtained a second opinion which it was confirmed October 2011. I then began to look for a physician that specialized in MS. In the first meeting with my physician, two of the first questions I asked is, 1.Will I have/need to give up wearing
Hello, I was diagnosed with MS in August 2011. I then obtained a second opinion which it was confirmed October 2011. I then began to look for a physician that specialized in MS. In the first meeting with my physician, two of the first questions I asked is, 1.Will I have/need to give up wearing
Kimlovesshoes
in
My MSAA Community
8 years ago
MS for 19 years but holding my own
I was diagnosed in 1997, injected Avonex for 10 years, then switched to Tysabri. Just had my 113th infusion at Johns Hopkins!
I was diagnosed in 1997, injected Avonex for 10 years, then switched to Tysabri. Just had my 113th infusion at Johns Hopkins!
sophiekerr1977
in
My MSAA Community
8 years ago
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