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Experiences with
Cyclophosphamide
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Getting on my bloody nerves (literally)
Next Tuesday is my third chemo of the current
cyclophosphamide
season, so I was hoping to have seen some improvement by now. But I feel worse and I am now getting very worried about losing my mobililty...
Next Tuesday is my third chemo of the current
cyclophosphamide
season, so I was hoping to have seen some improvement by now. But I feel worse and I am now getting very worried about losing my mobililty...
Wellsie
in
Vasculitis UK
11 years ago
Any alternative Pneumonia vaccines?
Hi I was diagnosed with CLL in 2007 and had FCR in 2010/11, having only 5 of the six treatments. Prior to this I had been diagnosed with Psoriatic Arthritis in the hands which has spread to the knees and feet. The treatment for this is currently subcutaneous methotrexate (20mls) per week. Because of
Hi I was diagnosed with CLL in 2007 and had FCR in 2010/11, having only 5 of the six treatments. Prior to this I had been diagnosed with Psoriatic Arthritis in the hands which has spread to the knees and feet. The treatment for this is currently subcutaneous methotrexate (20mls) per week. Because of
Mick491
in
CLL Support
11 years ago
My husband's 2nd round of fcr was delayed again due to low hemoglobin but other blood values are within range. What could be causing this?
LAinNYC
in
CLL Support
11 years ago
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More help / info please SLL
Hi all I am seeking some more advice from you good people regarding my SLL. On my first visit to hospital 3 weeks ago I was diagnosed with SLL following a biopsy on my lymph nodes under my arm. I then had a CT scan , and on my second visit (2weeks after my initial diagnosis), I was told that after assessing
Hi all I am seeking some more advice from you good people regarding my SLL. On my first visit to hospital 3 weeks ago I was diagnosed with SLL following a biopsy on my lymph nodes under my arm. I then had a CT scan , and on my second visit (2weeks after my initial diagnosis), I was told that after assessing
sparkio
in
CLL Support
11 years ago
just diagnosed
Ok, here goes. I have just returned home after my first CT scan revealed that all is not as I had hoped. I was diagnosed with SLL 2 weeks ago, and although that blew me away I now feel even worse. After my original diagnosis I was given an examination and given that I have no other symptoms (i.e. night
Ok, here goes. I have just returned home after my first CT scan revealed that all is not as I had hoped. I was diagnosed with SLL 2 weeks ago, and although that blew me away I now feel even worse. After my original diagnosis I was given an examination and given that I have no other symptoms (i.e. night
sparkio
in
CLL Support
11 years ago
Patient Power are now posting videos taken at this week's IWCLL meeting in Cologne
Andrew Schorr has just posted this message to the CLL ACOR group Greetings CLL friends: I am just back from two days at the International Workshop on CLL in Cologne, Germany. Brian Koffman was there too. Both of us shot interviews with world experts and those are starting to show up for you online.
Andrew Schorr has just posted this message to the CLL ACOR group Greetings CLL friends: I am just back from two days at the International Workshop on CLL in Cologne, Germany. Brian Koffman was there too. Both of us shot interviews with world experts and those are starting to show up for you online.
AussieNeil
Administrator
in
CLL Support
11 years ago
Hi. I have Pulmonary Fibrosis and my consultant is considering Cyclophosphamide IV treatment - has anyone experienced this?
SMS2006
in
Lung Conditions Community Forum
11 years ago
For how long after FCR are you supposed to take Aciclovir and Cotrimoxazole tablets on a daily basis ?
keepfit123
in
CLL Support
11 years ago
Flare treatment
Still not enjoying the feeling of speeding from 1g of methyl pred mixed with the yack from the 1g of
cyclophosphamide
. All the worst bits of a roller coaster ride with the excitement removed.
Still not enjoying the feeling of speeding from 1g of methyl pred mixed with the yack from the 1g of
cyclophosphamide
. All the worst bits of a roller coaster ride with the excitement removed.
Wellsie
in
Vasculitis UK
11 years ago
Life after FCR.
After 3 years W&W I've just been told that I'll need treatment in the next year or so. (So far I have had no symptoms other than lymph node swellings and a rising blood count - no fatigue or night sweats) I know that everyone's experience with FCR is different but one thing that seems clear is that after
After 3 years W&W I've just been told that I'll need treatment in the next year or so. (So far I have had no symptoms other than lymph node swellings and a rising blood count - no fatigue or night sweats) I know that everyone's experience with FCR is different but one thing that seems clear is that after
Markdce
in
CLL Support
11 years ago
Prediction of poor outcome in CLL patients following first-line treatment with FCR
New data from the German CLL8 trial a few years ago looks at factors that make patients at high risk to fail and progress early after treatment with FCR... Full study... http://www.nature.com/leu/journal/v27/n9/pdf/leu2013190a.pdf
New data from the German CLL8 trial a few years ago looks at factors that make patients at high risk to fail and progress early after treatment with FCR... Full study... http://www.nature.com/leu/journal/v27/n9/pdf/leu2013190a.pdf
Cllcanada
Top Poster CURE Hero
in
CLL Support
11 years ago
What questions do you want Andrew Schorr of Patient Power to ask CLL world experts at the International Workshop on CLL?
Andrew Schorr recently posted this request on the ACOR CLL list, which I've repeated here for your input. I'll then summarise your responses for Andrew. [i]Greetings fellow CLL'ers: As you know, I have been living in Barcelona for the past 14 months and will continue there for this next school year
Andrew Schorr recently posted this request on the ACOR CLL list, which I've repeated here for your input. I'll then summarise your responses for Andrew. [i]Greetings fellow CLL'ers: As you know, I have been living in Barcelona for the past 14 months and will continue there for this next school year
AussieNeil
Administrator
in
CLL Support
11 years ago
If you are trisomy 12 and and then treated with FCR does the Trisomy12 disappear ?
keepfit123
in
CLL Support
11 years ago
Has anybody experienced or read about the problems of recurrent infections following FCR in spite of all blood test results being normal?
Having gone through the pain of FCR from August to December last year, I am now in remission with normal blood test results. However, I have suffered from recurrent infections, some more debilitating than others, since March. Sputum tests have identified Haemophilius influenza (spelling might be wrong
Having gone through the pain of FCR from August to December last year, I am now in remission with normal blood test results. However, I have suffered from recurrent infections, some more debilitating than others, since March. Sputum tests have identified Haemophilius influenza (spelling might be wrong
Bisto
CLLSA
in
CLL Support
11 years ago
More chemotherapy
There is also a further suggestion that I will then continue oral
cyclophosphamide
with either azathioprine or methotrexate after the cycles have bashed this thing in again. Feeling frustrated and a bit disconsolate right now; may be a bit of shock...
There is also a further suggestion that I will then continue oral
cyclophosphamide
with either azathioprine or methotrexate after the cycles have bashed this thing in again. Feeling frustrated and a bit disconsolate right now; may be a bit of shock...
Wellsie
in
Vasculitis UK
11 years ago
How to Plan Your Long-Term CLL Treatment Journey - Patient Power - Professor Peter Hillmen
Patient Power’s latest Andrew Schorr video broadcast just hit my inbox How to Plan Your Long-Term CLL Treatment Journey http://www.patientpower.info/video/how-to-plan-your-cll-treatment-journey-long-term/?autoplay=1&utm_source=health-topic-alert&utm_medium=email&utm_campaign=CLL-EU-2013-005-25&utm_content
Patient Power’s latest Andrew Schorr video broadcast just hit my inbox How to Plan Your Long-Term CLL Treatment Journey http://www.patientpower.info/video/how-to-plan-your-cll-treatment-journey-long-term/?autoplay=1&utm_source=health-topic-alert&utm_medium=email&utm_campaign=CLL-EU-2013-005-25&utm_content
HAIRBEAR_UK
Administrator
in
CLL Support
11 years ago
WWW final preparations
I've done no exercise since April due to a partial tear of my Achilles and tendonitis, and my PAN seems to be stirring with growing paralysis in my limbs, night sweats, and joint aches returning, and the spectre of more
cyclophosphamide
cycles looming.
I've done no exercise since April due to a partial tear of my Achilles and tendonitis, and my PAN seems to be stirring with growing paralysis in my limbs, night sweats, and joint aches returning, and the spectre of more
cyclophosphamide
cycles looming.
Wellsie
in
Vasculitis UK
11 years ago
Symptom Regression
So my rheumy is going to have a conference with my neuro to discuss if they bring out the big guns again;
cyclophosphamide
.
So my rheumy is going to have a conference with my neuro to discuss if they bring out the big guns again;
cyclophosphamide
.
Wellsie
in
Vasculitis UK
11 years ago
Cyclophosphamide and avoiding public places
I'm currently taking
Cyclophosphamide
and my white blood cells are around 6 (normal value is from 4.0 to 10.0). It's very sunny and I was wondering is it OK for me to go out in public? Is it still dangerous to use public transportation or to go to other places where there is a lot of people?
I'm currently taking
Cyclophosphamide
and my white blood cells are around 6 (normal value is from 4.0 to 10.0). It's very sunny and I was wondering is it OK for me to go out in public? Is it still dangerous to use public transportation or to go to other places where there is a lot of people?
Hidden
in
Vasculitis UK
11 years ago
Starting treatment FCR on Monday, what should I expect for side effects?
In Canada saying no to chemo is only an option once you have received chemo and failed. Wondering if anyone has words of wisdom to get prepared for chemo, this coming Monday?
In Canada saying no to chemo is only an option once you have received chemo and failed. Wondering if anyone has words of wisdom to get prepared for chemo, this coming Monday?
Musicguy
in
CLL Support
11 years ago
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