For how long after FCR are you supposed to tak... - CLL Support

CLL Support

22,868 members39,236 posts

For how long after FCR are you supposed to take Aciclovir and Cotrimoxazole tablets on a daily basis ?

keepfit123 profile image
14 Replies
Written by
keepfit123 profile image
keepfit123
To view profiles and participate in discussions please or .
Read more about...
14 Replies
MarkTC profile image
MarkTC

I am taking them for an additional 3 months, but I am having no problems post treatment. It may vary from person to person and bloods.

Cllcanada profile image
CllcanadaTop Poster CURE Hero

I took Valtrex for two months post treatment... but I also had a shingles rectivation during treatment.

louise66 profile image
louise66

I've just finished FCR and been told I will be on them for approx. 18 months to 2 years.

Louise

bandsman profile image
bandsman in reply to louise66

How was your experience of FCR? my husband is due to start on the 24th Sept after 6 wks on steroids.

louise66 profile image
louise66 in reply to bandsman

Hi Bandsman, I did 5 rounds of FCR - last one Aug 6th, it was decided with my consultant not to do number 6. I was one of the unlucky ones who was sick, a lot of people aren't, but once I was over the sickness I will say I felt really well. In fact I feel better now than I have for a very long time. I hope all goes well for your husband.

bandsman profile image
bandsman in reply to louise66

thanku louise66 we hope you continue to feel well, it is such a lot to take in at the start, I like to be prepared for whatever we face, thanks again

Oleboyredw-uk profile image
Oleboyredw-uk

I finished FCR in December, still on Aciclover and Septrin (cotrimoazole). I expect to be on them at least until December when i see my consultant next. That is, unless my GP decides to stop them in the meantime, which I doubt.

Currently taking one Aciclover in morning and one in evening seven days a week. Septrin taken one a day Mon, Wed and Fri (yes, three a week).

Consultant's comment was along lines of 'added protection just in case'.

Rob

foolish profile image
foolish

I have been on Cotriaxamole for 18 months and my consultant wants me to stay on them until February 2014. I take two tablets daily every Saturday and Sunday. As yet I have had no infection in spite of spending lots of time with young grandchildren who are often coughing and spluttering over me. I understand the tablets prevent chest infections. My GP said "they are a good old-fashioned antibiotic." No side effects either.

Foolish

Whichway profile image
Whichway

I have been on cotrimoxazol and septrin for 11 (eleven) years. I take the septrin three days each week. After fludara I had a bad case of shingles resulting in me being peg fead and chest infections when I had fluid drained from my lungs twice but since then despite having FCR chlorambucil and now GS1101 I have not had any further episodes.

Marisa profile image
Marisa

I was not aware of these drugs and have not taken them! Should I have taken them? I finished FCR nearly 2 years ago with no side effects and am still very well.

keepfit123 profile image
keepfit123

I've been taking 2 Aciclovir and 1 Cotrimoxazole per day for 3months as directed by my Senior Nurse Specialist. My Consultant said carry on for another 3 months even though I've been quite well. There doesn't seem to be any standardisation !!

Cllcanada profile image
CllcanadaTop Poster CURE Hero in reply to keepfit123

It depends I believe, on the state of the immune system going into and after treatment. Everyone's immune systems are at different points, some need extra help and protection.

10Pen profile image
10Pen

I had my 6th and final FCR in July and my specialist has told me that I can stop taking the aclovir but to continue with the septrin for 6 months.

bigunwill2 profile image
bigunwill2

I’ve taken acyclovir since I started BR treatment in November 2015. I’ve had 2 very small areas of shingles. I will continue on it indefinitely.

Not what you're looking for?

You may also like...

Safe to travel London and the South of England, thoughts on huggin and interacting with your adult child after not seeing them for 18 months

Hi All, Has anyone got any thoughts or relevant information regarding a 2 week holiday I intend to...

Pretend it didn't happen – expert advice on how to behave after receiving a single dose of any of the Covid-19 vaccines

I haven't seen this posted yet, so thought I would share. The message is in the title, and the...

Hoping to turn a corner on this long road...sorry in advance for a long intro...it's been a long road

When my husband was 47 he had routine blood work that revealed an elevated lymphocyte count. His...

“I had no immune system for months after my bone marrow transplant. Here’s how I avoided viral illness, and how you can, too.

“I had no immune system for months after my bone marrow transplant. Here’s how I avoided viral...

How sick will the coronavirus make you? The answer may be in your genes and researchers are on the hunt.

COVID-19 is strangely—and tragically—selective. Only some infected people get sick and although...