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Median PFS for FCR treated CLL patients with IGHV-M was 14.6 years vs 4.2 years for patients with IGHV-UM. V+O and I+R look to be superior
An update of the long-term follow-up results from the original 300-patient FCR (fludarabine,
cyclophosphamide
, and rituximab) study initiated at MD Anderson in 1999,
Sustained remissions in CLL after frontline FCR treatment with very-long-term follow-up,
reports ~47% of patients with mutated IGHV
An update of the long-term follow-up results from the original 300-patient FCR (fludarabine,
cyclophosphamide
, and rituximab) study initiated at MD Anderson in 1999,
Sustained remissions in CLL after frontline FCR treatment with very-long-term follow-up,
reports ~47% of patients with mutated IGHV
AussieNeil
Partner
in
CLL Support
3 months ago
PICC LINE CATHETER FOR SYSTEMIC SCLEROSIS
Recently, my doctors planned to prescribe intravenous
cyclophosphamide
and methylprednisolone to help manage my condition. However, due to the vasculitis affecting my veins, medical professionals are facing challenges accessing my veins for the required treatments.
Recently, my doctors planned to prescribe intravenous
cyclophosphamide
and methylprednisolone to help manage my condition. However, due to the vasculitis affecting my veins, medical professionals are facing challenges accessing my veins for the required treatments.
Lo1234
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
lymphocytes/neutrophils
After 5 of 6 of fludarabine
cyclophosphamide
rituximab I went into semi remission and now after many hospitalizations with infection have IVIG once a month that works quite well at keeping me out of the hospital.
After 5 of 6 of fludarabine
cyclophosphamide
rituximab I went into semi remission and now after many hospitalizations with infection have IVIG once a month that works quite well at keeping me out of the hospital.
Kimsome
in
CLL Support
1 year ago
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A tunnelling ulcer in Sweet's syndrome after chemotherapy
He had received immune-chemotherapy with a BV-CHP regimen, including brentuximab vedotin (BV, 1.8 mg/kg on day 1),
cyclophosphamide
(750 mg/m2 on day 1), doxorubicin (50 mg/m2 on day 1), and prednisone (100 mg on days 1–5) (4) for four cycles and achieved complete remission (CR) during the second cycle
He had received immune-chemotherapy with a BV-CHP regimen, including brentuximab vedotin (BV, 1.8 mg/kg on day 1),
cyclophosphamide
(750 mg/m2 on day 1), doxorubicin (50 mg/m2 on day 1), and prednisone (100 mg on days 1–5) (4) for four cycles and achieved complete remission (CR) during the second cycle
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
1 year ago
Antineutrophilic cytoplasmic antibody (ANCA) Vasculitis
Treatment for vasculitis includes using steroids along with other medication the suppress the immune system, such as
cyclophosphamide
or rituximab. I am not coughing up blood like one of the symptoms. But I cough a lot, very thick clear mucus.
Treatment for vasculitis includes using steroids along with other medication the suppress the immune system, such as
cyclophosphamide
or rituximab. I am not coughing up blood like one of the symptoms. But I cough a lot, very thick clear mucus.
EllaNore
in
Pernicious Anaemia Society
1 year ago
Venetoclax
Hi everyone , I am so glad with this site. My name is Anja, 67 years old , and I live in the Netherlands. I was diagnosed with CLL in september 2010. In 2012 I got FCR for six rounds. After that I was stuffy and it occurred that I had heart failure because of the chemo therapy. It took me years
Hi everyone , I am so glad with this site. My name is Anja, 67 years old , and I live in the Netherlands. I was diagnosed with CLL in september 2010. In 2012 I got FCR for six rounds. After that I was stuffy and it occurred that I had heart failure because of the chemo therapy. It took me years
jroon08
in
CLL Support
20 days ago
CLL & skin infection
I was diagnosed with CLL in 2002 & been on wait & watch until recently. Treatment with FCR is imminent but only after a severe skin infection has cleared up. Dermatologist took 2 biopsies which the Pathologist reported skin infection/rash was Hypersensitive Dermatitis. I had an IV when I had a CT
I was diagnosed with CLL in 2002 & been on wait & watch until recently. Treatment with FCR is imminent but only after a severe skin infection has cleared up. Dermatologist took 2 biopsies which the Pathologist reported skin infection/rash was Hypersensitive Dermatitis. I had an IV when I had a CT
Happy-Daze
in
CLL Support
24 days ago
Apparent PD on Ven
Hi I had 3 rounds FCR in Winter 2018 stopped for Neutropenia. My doc did NO testing for mrd or even flow. Ignorance was bliss til release 2 years later. Started V + O March 2023 for R/R. At one year, 3/24 was umrd 4 on PB and 4/10,000 on BM. 5 months later or month 18 of Ven mrd increased
Hi I had 3 rounds FCR in Winter 2018 stopped for Neutropenia. My doc did NO testing for mrd or even flow. Ignorance was bliss til release 2 years later. Started V + O March 2023 for R/R. At one year, 3/24 was umrd 4 on PB and 4/10,000 on BM. 5 months later or month 18 of Ven mrd increased
skipro
in
CLL Support
1 month ago
End of the road for PBS-available treaments for me.
Hi. I live in Adelaide, Australia and I'm anxious about possible treatments now. I was diagnosed at the end of 2016. Starting in 2019 I've had FCR, Nov 2022 splenomegaly and other leukemia symptoms so January 2023 I started on Ibrutinib, giving partial remission but with colitis side effects. Sept
Hi. I live in Adelaide, Australia and I'm anxious about possible treatments now. I was diagnosed at the end of 2016. Starting in 2019 I've had FCR, Nov 2022 splenomegaly and other leukemia symptoms so January 2023 I started on Ibrutinib, giving partial remission but with colitis side effects. Sept
Jotame
in
CLL Support
2 months ago
Swollen lymph node in my neck & armpit
I now have a swollen lymph node near my collarbone on my neck which is the size of a hard boiled egg and one under my armpit on the same side which is duck egg size. I’ve had three courses of chemo over the years: FCR, twice and not sure what the third dose was (CVR?) though it didn’t work anyway. 4
I now have a swollen lymph node near my collarbone on my neck which is the size of a hard boiled egg and one under my armpit on the same side which is duck egg size. I’ve had three courses of chemo over the years: FCR, twice and not sure what the third dose was (CVR?) though it didn’t work anyway. 4
Veebeegeebee
in
CLL Support
2 months ago
Finding joy and peace in God and His beautiful creations
I know I'm preaching to the choir yet it's nice to have a listening understanding ear. Just had my 16th and 17th malignant skin cancer removed since receiving FCR in 2018 despite following all the recommendations My back pain that became radicular pain is due to some severe spinal stenosis and a large
I know I'm preaching to the choir yet it's nice to have a listening understanding ear. Just had my 16th and 17th malignant skin cancer removed since receiving FCR in 2018 despite following all the recommendations My back pain that became radicular pain is due to some severe spinal stenosis and a large
skipro
in
CLL Support
2 months ago
Allograft
Just wanted to know if anyone knew anything about Allograft. My husband has just finished 2 yrs on ventaclax, all blood's good, and we expected to just go away and go back for blood's until maybe time for a different treatment, but was told they would like us to have a chat to a specialist about allograft
Just wanted to know if anyone knew anything about Allograft. My husband has just finished 2 yrs on ventaclax, all blood's good, and we expected to just go away and go back for blood's until maybe time for a different treatment, but was told they would like us to have a chat to a specialist about allograft
sue6741
in
CLL Support
2 months ago
STEM CELL TRANSPLANT FINALLY SCHEDULED (WE HOPE)
Hi everyone. As you may know, my husband was diagnosed with CLL back in 2013, treated with six cycles of FCR, and achieved a "full response with incomplete recovery of the bone marrow." He had severe complications after treatment, but the CLL never recurred. In November 2023 he began to experience
Hi everyone. As you may know, my husband was diagnosed with CLL back in 2013, treated with six cycles of FCR, and achieved a "full response with incomplete recovery of the bone marrow." He had severe complications after treatment, but the CLL never recurred. In November 2023 he began to experience
dwolden
in
CLL Support
3 months ago
POST 3 - CAR-T cell therapy
Lymphodepletion {chemotherapy} will also commence:
Cyclophosphamide
{D-6} also Fludarabine for four days {D-6 to D-3} followed by two days rest and then Day 0 {14th June} will be the exciting day that I receive the first small dose of the modified T-cells.
Lymphodepletion {chemotherapy} will also commence:
Cyclophosphamide
{D-6} also Fludarabine for four days {D-6 to D-3} followed by two days rest and then Day 0 {14th June} will be the exciting day that I receive the first small dose of the modified T-cells.
casanova
in
CLL Support
1 year ago
Asymptomatic Trandmission
Does anyone have any data or medical journal articles, addressing the contagious for either Pre symptomatic infections or individuals that have asymptomatic viral infections.. Also, in my home state of Utah in the USA, I have not been able to find any published data on the current incident or presence
Does anyone have any data or medical journal articles, addressing the contagious for either Pre symptomatic infections or individuals that have asymptomatic viral infections.. Also, in my home state of Utah in the USA, I have not been able to find any published data on the current incident or presence
skipro
in
CLL Support
4 months ago
V + O for R/R CLL post FCR
I sent this to skyshark based on some info he posted but I was[u] hoping for the whole group to chime in.[/u] I had 3 rounds of FCR in 2018 stopped because of profound neutropenia. I relapsed exactly 2 years later and though I did not start Tx until the 5 year point in 2023, would have gladly started
I sent this to skyshark based on some info he posted but I was[u] hoping for the whole group to chime in.[/u] I had 3 rounds of FCR in 2018 stopped because of profound neutropenia. I relapsed exactly 2 years later and though I did not start Tx until the 5 year point in 2023, would have gladly started
skipro
in
CLL Support
4 months ago
Burning tongue and metallic taste .
I was dx 10 years ago. Had FCR, Ibrutinib, and Venetoclax. I am on Venetoclax now for 18 months after 6 times of V+O. A year ago I lost my taste sense and everything tastes metallic,but the worse is a burning tongue sensation. Does it have any connetion to CLL or Venetoclax ?Gidi
I was dx 10 years ago. Had FCR, Ibrutinib, and Venetoclax. I am on Venetoclax now for 18 months after 6 times of V+O. A year ago I lost my taste sense and everything tastes metallic,but the worse is a burning tongue sensation. Does it have any connetion to CLL or Venetoclax ?Gidi
GIDI
in
CLL Support
5 months ago
Is it the time for initial treatment?
As I previously stated, my wife was diagnosed with CLL in 2020. Her markers are 13q deletion, 12 trisomy, and TP53, with IGHV muted. She is still in W&W form. So far, I've learned via reading literature and numerous posts about lymphocyte doubling time, lactate dehydrogenase, and lymph nodes. Her lymphocyte
As I previously stated, my wife was diagnosed with CLL in 2020. Her markers are 13q deletion, 12 trisomy, and TP53, with IGHV muted. She is still in W&W form. So far, I've learned via reading literature and numerous posts about lymphocyte doubling time, lactate dehydrogenase, and lymph nodes. Her lymphocyte
Sagarcanada
in
CLL Support
5 months ago
Second Treatment -Feeling scared
My husband has CLL and finished FCR in April 2019. Due to low platelets, enlarged spleen and ALC doubling he needs to start his next treatment even though he feels wellV&R is the treatment starting on 15th May. I have researched extensively including within this group, and am aware of the treatment
My husband has CLL and finished FCR in April 2019. Due to low platelets, enlarged spleen and ALC doubling he needs to start his next treatment even though he feels wellV&R is the treatment starting on 15th May. I have researched extensively including within this group, and am aware of the treatment
Sanders9
in
CLL Support
5 months ago
Wendy
My husband was diagnosed in 2010 at the age of 40. 2013 he had FCR. 11 years later, he is in week 5 of venteclax, Rituximab to follow next month. Swollen lymph nodes have disappeared.
My husband was diagnosed in 2010 at the age of 40. 2013 he had FCR. 11 years later, he is in week 5 of venteclax, Rituximab to follow next month. Swollen lymph nodes have disappeared.
Fluxthecat10
in
CLL Support
5 months ago
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