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Ongoing saga of getting back my b12 prescription.
Pharmacy telephone appointment on having to change surgeries. B12 reinstated May 2023 The removed in Ausgust Then reinstated The removed. Told I needed s Gps appointment . Reinstated 12/10 Removed 27/ 10 3 letters. No reply. Then 1 ampoule reinstated. The one I geg at the surgery I presume.
Pharmacy telephone appointment on having to change surgeries. B12 reinstated May 2023 The removed in Ausgust Then reinstated The removed. Told I needed s Gps appointment . Reinstated 12/10 Removed 27/ 10 3 letters. No reply. Then 1 ampoule reinstated. The one I geg at the surgery I presume.
Nackapan
in
Pernicious Anaemia Society
10 months ago
Spinal stenosis & b12 deficiency
Hi, Have just been diagnosed with severe spinal stenosis. I have reasons to believe it has a congenital aspect with me so that would eliminate b12 deficiency. But in reading I found some correlation studies with b12 deficiency. I thought that b12 deficiency only caused issues with degeneration of
Hi, Have just been diagnosed with severe spinal stenosis. I have reasons to believe it has a congenital aspect with me so that would eliminate b12 deficiency. But in reading I found some correlation studies with b12 deficiency. I thought that b12 deficiency only caused issues with degeneration of
Litatamon
in
Pernicious Anaemia Society
7 months ago
Trying to balancing T3 and T4
Sad and disappointed to be here asking for help yet again. Yes, I have been chopping and changing my doses desperately trying to find my sweet spot, not knowing who or what to believe. My latest results are : June 23 (0n 118mcg T4 and 17.5mcg T3) (bloods taken 9am before morning meds) TSH 0.01
Sad and disappointed to be here asking for help yet again. Yes, I have been chopping and changing my doses desperately trying to find my sweet spot, not knowing who or what to believe. My latest results are : June 23 (0n 118mcg T4 and 17.5mcg T3) (bloods taken 9am before morning meds) TSH 0.01
hobbycat
in
Thyroid UK
10 months ago
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Anomalous results - follow up
Hello everyone, This is a follow up to my last post two months ago which described the anomalous results from two tests one NHS and one Medichecks only one day apart and both done following the usual protocol. These were done following an increase in levo to 100mcg on 1 June. As I expected when my GP
Hello everyone, This is a follow up to my last post two months ago which described the anomalous results from two tests one NHS and one Medichecks only one day apart and both done following the usual protocol. These were done following an increase in levo to 100mcg on 1 June. As I expected when my GP
Italiangirl123
in
Thyroid UK
10 months ago
Updated Results
Results advice would be appreciated. Yearly boods By GP 27.July.23 Serum TSH 0.30 mIU/L (Range: 0.35 - 4.94) Serum Free T3 3.9 pmol/L (Range: 2.4- 6.0) Serum Free T4 12.6 pmol/L (Range: 8.0 - 19.1) Receptionist called to say my bloods were fine. Still on 50mg Levo. Stopped 24 hours prior
Results advice would be appreciated. Yearly boods By GP 27.July.23 Serum TSH 0.30 mIU/L (Range: 0.35 - 4.94) Serum Free T3 3.9 pmol/L (Range: 2.4- 6.0) Serum Free T4 12.6 pmol/L (Range: 8.0 - 19.1) Receptionist called to say my bloods were fine. Still on 50mg Levo. Stopped 24 hours prior
Albaangel
in
Thyroid UK
10 months ago
Need Help Please
Hi all. My story is long so here goes. In 2010 I was hit twice by the same car on a hwy and had a lot of issues and pain etc. Ten mths later I literally thought I was going to die. Was off work for 14 mths w/ b12 def. My dad has PA and to my knowledge I was never tested but assume I have it. Life
Hi all. My story is long so here goes. In 2010 I was hit twice by the same car on a hwy and had a lot of issues and pain etc. Ten mths later I literally thought I was going to die. Was off work for 14 mths w/ b12 def. My dad has PA and to my knowledge I was never tested but assume I have it. Life
Swift20
in
Pernicious Anaemia Society
10 months ago
Researchers identify bacterial mechanism for vitamin B12 uptake.
https://phys.org/news/2023-11-bacterial-mechanism-vitamin-b12-uptake.html This work was done by a physicist. The scientist who work for the pharmaceutical companies will likely be aware of it and incorporate it into their work. . Like it or not scientists who work for the pharmaceutical are Premier
https://phys.org/news/2023-11-bacterial-mechanism-vitamin-b12-uptake.html This work was done by a physicist. The scientist who work for the pharmaceutical companies will likely be aware of it and incorporate it into their work. . Like it or not scientists who work for the pharmaceutical are Premier
WIZARD6787
in
Pernicious Anaemia Society
10 months ago
slow release T3
good morning can anyone give me some advice on SR T3 , TSH 1.02 FT3 3.9 FT4 21.1 B12 active 150 pmol/l Ferritin 323 ug/l folate 30.5 nmol/l Vit D 128 nmol/l Managed to get SR T3 from roseway labs. £80 for 100 tablets. Not sure now ,I have chronic constipation will this affect SR T3 in my
good morning can anyone give me some advice on SR T3 , TSH 1.02 FT3 3.9 FT4 21.1 B12 active 150 pmol/l Ferritin 323 ug/l folate 30.5 nmol/l Vit D 128 nmol/l Managed to get SR T3 from roseway labs. £80 for 100 tablets. Not sure now ,I have chronic constipation will this affect SR T3 in my
PJ39
in
Thyroid UK
10 months ago
folate vs folic acid
I’ve been searching for a post that says not to take folic acid if your folate level is low. My daughter’s folate level is 2.95 (side effect of netformin)and her b12 is only 283. Hee GP has given her folic acid and will only repeat after 1 yr! Madness. Her tsh is 0.9 and they didn’t test t4 or t3.
I’ve been searching for a post that says not to take folic acid if your folate level is low. My daughter’s folate level is 2.95 (side effect of netformin)and her b12 is only 283. Hee GP has given her folic acid and will only repeat after 1 yr! Madness. Her tsh is 0.9 and they didn’t test t4 or t3.
bikebabe
in
Thyroid UK
10 months ago
Continue with monthly injection?
Hello everybody, my B12 was 218 (range 206-1000) now 2000 after two injections, one per month.Ferritin was 19.9 (range 23-393) now 25.2 after two months of one daily tablet of 305mg ferrous fumarate. Folate was 3.4 (range 4.5-20) now 4.1 after two months of daily of one 0.4mg folic acid.
Hello everybody, my B12 was 218 (range 206-1000) now 2000 after two injections, one per month.Ferritin was 19.9 (range 23-393) now 25.2 after two months of one daily tablet of 305mg ferrous fumarate. Folate was 3.4 (range 4.5-20) now 4.1 after two months of daily of one 0.4mg folic acid.
Sotired3
in
Pernicious Anaemia Society
10 months ago
Vitamin/Mineral blood test correlation with diet
Hello I am new here and just getting to grips with everything Can anyone help me understand the correlation between blood test results and diet/supplements.
I am trying to understand what period of time
might affect my test results. For example if my B12 is low does that reflect my
Hello I am new here and just getting to grips with everything Can anyone help me understand the correlation between blood test results and diet/supplements.
I am trying to understand what period of time
might affect my test results. For example if my B12 is low does that reflect my
Spritze
in
Thyroid UK
10 months ago
My Current Criteria for dosage, form and frequency of injections.
I have always been about I should not inject any more or more often than is appropriate for my body. I have also been about I should not inject less although I was overly influenced by the EOD methodology. Any less than EOD I quickly decided made no sense to inject less unless I was symptom free. Determining
I have always been about I should not inject any more or more often than is appropriate for my body. I have also been about I should not inject less although I was overly influenced by the EOD methodology. Any less than EOD I quickly decided made no sense to inject less unless I was symptom free. Determining
WIZARD6787
in
Pernicious Anaemia Society
10 months ago
Going Round in Circles - ???
I am hoping that you can help - although I am not sure what I am asking - but just need to offload - I hope that you will be able to see my previous posts when you will see that although not having had a B12 diagnosis, because of my many symptoms during the past two years, and no one being able to
I am hoping that you can help - although I am not sure what I am asking - but just need to offload - I hope that you will be able to see my previous posts when you will see that although not having had a B12 diagnosis, because of my many symptoms during the past two years, and no one being able to
Lemondrizz
in
Pernicious Anaemia Society
10 months ago
Atrial Fibrillation
l have recently linked my AF with lack of B12. I was diagnosed with AF and Pernicious Anemia at around about the same time, prescribed BetBeta Blockers and Warfarin for AF and B12 IM every 3 months. Looking back I know that the AF flutter would start when I was nearing the B12 IM. During lockdown I injected
l have recently linked my AF with lack of B12. I was diagnosed with AF and Pernicious Anemia at around about the same time, prescribed BetBeta Blockers and Warfarin for AF and B12 IM every 3 months. Looking back I know that the AF flutter would start when I was nearing the B12 IM. During lockdown I injected
Helliborous
in
Pernicious Anaemia Society
10 months ago
b12 iron relationship?
Hi friends…I was diagnosed with a b12 deficiency in June, which is thankfully improving with injections (I had horrible neuro symptoms). I had my iron tested twice over the summer, both well in the good range (over 100). However, this week I had an iron panel showing my iron is 40 (literally the bottom
Hi friends…I was diagnosed with a b12 deficiency in June, which is thankfully improving with injections (I had horrible neuro symptoms). I had my iron tested twice over the summer, both well in the good range (over 100). However, this week I had an iron panel showing my iron is 40 (literally the bottom
MuppDog
in
Pernicious Anaemia Society
10 months ago
Functional B12 deficiency?
My daughter was found to be deficient in B12 4 years ago. She started shots of 1ml hydroxocobalamin every 3 to 4 weeks. After 3 years she decided she didn't need them anymore, so she stopped. After about a year she started to get symptoms of deficiency again. She has been getting shots every 3 to
My daughter was found to be deficient in B12 4 years ago. She started shots of 1ml hydroxocobalamin every 3 to 4 weeks. After 3 years she decided she didn't need them anymore, so she stopped. After about a year she started to get symptoms of deficiency again. She has been getting shots every 3 to
Rummie
in
Pernicious Anaemia Society
10 months ago
Advice please re B12 to supplement or not
Following covid in July I have been experiencing tingling in feet and hands. I've left it until now in the hope it would resolve and while it has lessened it is still there. I currently take 100mg t4 and 10ug t3. GP blood test results 17 August : HbA1c 34mmol/mol (20-41) TSH 1.46 mu/L (0.3-4.2)
Following covid in July I have been experiencing tingling in feet and hands. I've left it until now in the hope it would resolve and while it has lessened it is still there. I currently take 100mg t4 and 10ug t3. GP blood test results 17 August : HbA1c 34mmol/mol (20-41) TSH 1.46 mu/L (0.3-4.2)
lolajone
in
Thyroid UK
10 months ago
Counter-intuitive.
I had in my head that the further I went along with my injections the harder it would be to evaluate the effects of the injection as I improved. In the last 7 months of injecting more B12 more often it has become easier to evaluate changes I make the more I heal. Most of it seems to be my neurological
I had in my head that the further I went along with my injections the harder it would be to evaluate the effects of the injection as I improved. In the last 7 months of injecting more B12 more often it has become easier to evaluate changes I make the more I heal. Most of it seems to be my neurological
WIZARD6787
in
Pernicious Anaemia Society
10 months ago
Blood tests
Morning all! I’m getting some blood tests tomorrow.. intrinsic factor IF (low B12 & folate) FBC and celiac? Questioning forPA? I have got my own B12 ampoules! Do I start my B12 complex at the same time as I start injecting? My folate is awful 3.8ug/L (<2.9) I have been taking my B12 complex sporadically
Morning all! I’m getting some blood tests tomorrow.. intrinsic factor IF (low B12 & folate) FBC and celiac? Questioning forPA? I have got my own B12 ampoules! Do I start my B12 complex at the same time as I start injecting? My folate is awful 3.8ug/L (<2.9) I have been taking my B12 complex sporadically
Doris11
in
Thyroid UK
10 months ago
methylfolate. Worried about my vitamins! Folic acid
I was taking pregnacare for three months before my first cycle of ivf but realised (especially after reading it starts with the egg) that the supplements are not sufficient for someone undergoing ivf or over 40 trying to conceive. I started taking a b12 supplement containing folic acid but realised
I was taking pregnacare for three months before my first cycle of ivf but realised (especially after reading it starts with the egg) that the supplements are not sufficient for someone undergoing ivf or over 40 trying to conceive. I started taking a b12 supplement containing folic acid but realised
Cuppppatea
in
Fertility Network UK
10 months ago
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