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Cutaneous T cell lymphoma (CTCL)
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NICE: Teprotumumab for treating thyroid eye disease ID 6432 - being scoped
I have just noticed a new NICE guideline has been started. Only a skeleton at present - in the guideline scoping state. It will probably be years before it is completed. It is good that it has been selected for further work but must be devastating for anyone suffering TED to see how far away this (potential
I have just noticed a new NICE guideline has been started. Only a skeleton at present - in the guideline scoping state. It will probably be years before it is completed. It is good that it has been selected for further work but must be devastating for anyone suffering TED to see how far away this (potential
helvella
Thyroid UK
in
Thyroid UK
5 months ago
Polyneuropathy.
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
Given Private Diagnosis But Antibody Test Is Negative? A Little Confused.
I recently had a private diagnosis of Autoimmune Thyroiditis. This was given in the context of seeking a diagnosis of my B12 deficiency which was said to be linked with the above, Pernicious Anaemia, antibodies attacking thyroid and gastric parietal cells. I have been on levothyroxin for 15yrs. He based
I recently had a private diagnosis of Autoimmune Thyroiditis. This was given in the context of seeking a diagnosis of my B12 deficiency which was said to be linked with the above, Pernicious Anaemia, antibodies attacking thyroid and gastric parietal cells. I have been on levothyroxin for 15yrs. He based
B12again
in
Pernicious Anaemia Society
1 month ago
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Given Private Diagnosis But Antibody Test Is Negative?
I recently had a private diagnosis of Autoimmune Thyroiditis. This was given in the context of seeking a diagnosis of my B12 deficiency which was said to be linked with the above, Pernicious Anaemia, antibodies attacking thyroid and gastric parietal cells. I have been on levothyroxin for 15yrs. He based
I recently had a private diagnosis of Autoimmune Thyroiditis. This was given in the context of seeking a diagnosis of my B12 deficiency which was said to be linked with the above, Pernicious Anaemia, antibodies attacking thyroid and gastric parietal cells. I have been on levothyroxin for 15yrs. He based
B12again
in
Thyroid UK
1 month ago
Autologous Cell Transplants - Promising Clinical Trial Getting Underway
August 7,2024 article from Scitechdaily.com Breakthrough Parkinson’s Treatment Enters Human Trials After Primate Success TOPICS:BrainNeuroscienceParkinson's DiseaseUniversity Of Wisconsin-Madison By UNIVERSITY OF WISCONSIN-MADISON AUGUST 7, 2024 A clinical trial has begun to offer a new treatment
August 7,2024 article from Scitechdaily.com Breakthrough Parkinson’s Treatment Enters Human Trials After Primate Success TOPICS:BrainNeuroscienceParkinson's DiseaseUniversity Of Wisconsin-Madison By UNIVERSITY OF WISCONSIN-MADISON AUGUST 7, 2024 A clinical trial has begun to offer a new treatment
Shorebirdsotherhalf
in
Cure Parkinson's
2 months ago
I got my results back for pernicious anemia! Looks like folate deficiency, but would really appreciate any comments
I finally got my blood test results back for pernicious anemia. It looks like I don't have it, and that my problem is folate deficiency. And low reticulocyte count which would be caused by low folate I suppose. My other results are all in range, though active B12 could maybe be higher I am thinking
I finally got my blood test results back for pernicious anemia. It looks like I don't have it, and that my problem is folate deficiency. And low reticulocyte count which would be caused by low folate I suppose. My other results are all in range, though active B12 could maybe be higher I am thinking
Carrie234
in
Pernicious Anaemia Society
2 months ago
B12 how much and how often
I’ve been struggling with PA for 2 and 1/2 years. No one would listen. Finally from Israel I was advised to get the Intrinsic Factor Antibody Blood Test and the Parietal Cell Antibody Blood Test. Pernicious Anemia. I have to take a shot of Methylcobalamin daily. The Israelis recommend taking a shot
I’ve been struggling with PA for 2 and 1/2 years. No one would listen. Finally from Israel I was advised to get the Intrinsic Factor Antibody Blood Test and the Parietal Cell Antibody Blood Test. Pernicious Anemia. I have to take a shot of Methylcobalamin daily. The Israelis recommend taking a shot
Jeep13
in
Pernicious Anaemia Society
2 months ago
Gastric Parietal Cell Antibody
Just wondering whether any members have had this test? I'm not really thinking about those who have had a B12 deficiency (or suspected Pernicious Anaemia) followed up by this test. Rather has anyone had done spontaneously as the link below [i]appears[/i] to imply. As I read it, the words say GPC should
Just wondering whether any members have had this test? I'm not really thinking about those who have had a B12 deficiency (or suspected Pernicious Anaemia) followed up by this test. Rather has anyone had done spontaneously as the link below [i]appears[/i] to imply. As I read it, the words say GPC should
helvella
Thyroid UK
in
Thyroid UK
3 months ago
Still on hold for stem cell transplant
David has now completed 3 cycles of Vidaza. He had a bone marrow biopsy several weeks ago. At first we thought the results were good, that his cancer cells had been reduced sufficiently to proceed with transplant. After our local oncologist spoke to the transplant specialist at Mayo, we received word
David has now completed 3 cycles of Vidaza. He had a bone marrow biopsy several weeks ago. At first we thought the results were good, that his cancer cells had been reduced sufficiently to proceed with transplant. After our local oncologist spoke to the transplant specialist at Mayo, we received word
dwolden
in
CLL Support
6 months ago
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks
From MedPage Today, by Charles Bankhead, Senior Editor, MedPage Today November 28, 2023, Last Updated November 29, 2023. Posted FYI without comment: [i]
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks, agency
From MedPage Today, by Charles Bankhead, Senior Editor, MedPage Today November 28, 2023, Last Updated November 29, 2023. Posted FYI without comment: [i]
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks, agency
cujoe
in
CLL Support
10 months ago
Gazyva and Ventalox
I started G/V treatment 4 months ago. Everything went smoothly for 3.5 months. Now some lymph nodes are appearing on my neck. My Doc stopped the treatment and called for a Pet scan and a biopsy of lymphnode. Anybody been in my situation and what was the plan, diagnosis, options etc.?? Very Nervous, Rob
I started G/V treatment 4 months ago. Everything went smoothly for 3.5 months. Now some lymph nodes are appearing on my neck. My Doc stopped the treatment and called for a Pet scan and a biopsy of lymphnode. Anybody been in my situation and what was the plan, diagnosis, options etc.?? Very Nervous, Rob
CityL
in
CLL Support
10 months ago
labs results that contraindicate one another
Hi all, I’ve been having pretty constant parasthesias on both sides of my body usually worse from shoulders down to fingers, initial B12 level was 190 (was 845 four years ago). New doctor had me test for IF antibodies immediately after giving me a B12 injection which was negative and she stated
Hi all, I’ve been having pretty constant parasthesias on both sides of my body usually worse from shoulders down to fingers, initial B12 level was 190 (was 845 four years ago). New doctor had me test for IF antibodies immediately after giving me a B12 injection which was negative and she stated
Katep66875
in
Pernicious Anaemia Society
4 months ago
Son tested positive for gastric parietal cell antibodies
My son has history with h pylori, which he was treated for, but the symptoms haven't gone away completely. Last week I was talking about my own b12 deficiency and he informed me he has the same symptoms. I know he has been more tried than normal, but I put it due to the h pylori, after effects. As that
My son has history with h pylori, which he was treated for, but the symptoms haven't gone away completely. Last week I was talking about my own b12 deficiency and he informed me he has the same symptoms. I know he has been more tried than normal, but I put it due to the h pylori, after effects. As that
fatfatfat
in
Pernicious Anaemia Society
5 months ago
some advice needed please
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Windyway
in
Pernicious Anaemia Society
5 months ago
Upcoming appointment with Rheumy Consultant - people's experiences/advice appreciated
Hi all Firstly, just wanting to explain that my user name is a reference to the nickname of the football team I support - I'm not interested in knife crime or anything like that! I might change it actually to avoid any confusion or concerns! I've got another appointment with Rheumy Consultant next
Hi all Firstly, just wanting to explain that my user name is a reference to the nickname of the football team I support - I'm not interested in knife crime or anything like that! I might change it actually to avoid any confusion or concerns! I've got another appointment with Rheumy Consultant next
BladesLover
in
PMRGCAuk
29 days ago
Hello - I'm interested in other GCA experiences
Hi. First time I've posted. I was diagnosed with GCA in February 2024 following hospital admission. It took medics a while to work it out but, once they did and started me on Prednisolone, my symptoms quickly improved. I returned to work early April and things seemed to be going in the right direction
Hi. First time I've posted. I was diagnosed with GCA in February 2024 following hospital admission. It took medics a while to work it out but, once they did and started me on Prednisolone, my symptoms quickly improved. I returned to work early April and things seemed to be going in the right direction
BladesLover
in
PMRGCAuk
2 months ago
Cholesterol readings
Hello medically-minded people Tryimg to decide whether to take statins or not. This is my latest cholesterol test readings. I knw that the total cholesterol level is high (as it tells me) but my diet is not bad (exercise level lowish though due to PMR) but are there any/enough mitigating factors? Due
Hello medically-minded people Tryimg to decide whether to take statins or not. This is my latest cholesterol test readings. I knw that the total cholesterol level is high (as it tells me) but my diet is not bad (exercise level lowish though due to PMR) but are there any/enough mitigating factors? Due
marionofnorwich
in
PMRGCAuk
2 months ago
Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
6 months ago
B CELL lymphoma
Hello friends, Question- had a fish test done and the test revealed negative for B Cell lymphoma has anyone had this reading before and still have CLL? lol I’m totally confused.. nothing new there! I did call the Doc to see what he thinks haven’t heard anything yet. Thought I would ask to see if you
Hello friends, Question- had a fish test done and the test revealed negative for B Cell lymphoma has anyone had this reading before and still have CLL? lol I’m totally confused.. nothing new there! I did call the Doc to see what he thinks haven’t heard anything yet. Thought I would ask to see if you
Tchapman
in
CLL Support
11 months ago
Life after Tocilizumab?
I've been off steroids since mid-May. Continuing to take methotrexate (15mg weekly) and Toxilizumab weekly. I seem to be doing well - bloods fine and health ok. I'm seeing rheumatologist next week and my concern is I'm guessing that I won't be eligible for further Tox after my current prescription runs
I've been off steroids since mid-May. Continuing to take methotrexate (15mg weekly) and Toxilizumab weekly. I seem to be doing well - bloods fine and health ok. I'm seeing rheumatologist next week and my concern is I'm guessing that I won't be eligible for further Tox after my current prescription runs
tweety_pie
in
PMRGCAuk
3 months ago
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