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Coronary vasospastic disease
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Husband with PSP
Hi there My husband was 80 last week also diagnosed with Psp after an initial diagnosis of Parkinson’s He is Madopar four times a day plus to Amantandine the medication has helped a lot with his tremor His mobility is very poor, he had another fall today. The lack of empathy is very common and
Hi there My husband was 80 last week also diagnosed with Psp after an initial diagnosis of Parkinson’s He is Madopar four times a day plus to Amantandine the medication has helped a lot with his tremor His mobility is very poor, he had another fall today. The lack of empathy is very common and
Poodlelady1
in
PSP Association
4 months ago
Cat's Claw
Anyone out there know of taking Cat's Claw tiincture for Parkinson's shake ( tremor)? Anyother benefit?
Anyone out there know of taking Cat's Claw tiincture for Parkinson's shake ( tremor)? Anyother benefit?
b-bobble
in
Cure Parkinson's
4 months ago
CTO of AV circumflex
I had CABG just over a year ago. Continued to have same symptoms as before after discharge from hospital. Angiography revealed that CABG had failed. MRI revealed CTO of AV circumflex. Now been referred to interventionist to “risk assess” procedure. This I take to mean they will likely go nothing
I had CABG just over a year ago. Continued to have same symptoms as before after discharge from hospital. Angiography revealed that CABG had failed. MRI revealed CTO of AV circumflex. Now been referred to interventionist to “risk assess” procedure. This I take to mean they will likely go nothing
Bergid65
in
British Heart Foundation
27 days ago
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Kidney issues because of CLL
Hello all! Anyone had kidney issues related to CLL? I will do the treatment not because of my lab results but because CLL filled my kidneys with white cells and led my to nephrotic syndrome. My hematologist is confident that with the treatment they will start to work again because those with cells
Hello all! Anyone had kidney issues related to CLL? I will do the treatment not because of my lab results but because CLL filled my kidneys with white cells and led my to nephrotic syndrome. My hematologist is confident that with the treatment they will start to work again because those with cells
BMFCDRW
in
CLL Support
4 months ago
Liver tumor
Hi there, I have been diagnosed 2 years ago with a rear benign condition in my peritoneum. Because of this, I have MRIs and CT scans every 4-5 months. In January, my doctors found out a new lesion in my liver. I had a MRI if my liver in March. They come back to me and said that the lesion not changed
Hi there, I have been diagnosed 2 years ago with a rear benign condition in my peritoneum. Because of this, I have MRIs and CT scans every 4-5 months. In January, my doctors found out a new lesion in my liver. I had a MRI if my liver in March. They come back to me and said that the lesion not changed
dibk
in
British Liver Trust
4 months ago
Massage for Relaxation
Just wondering if others have been in my position. I had an NSTEMI in late December and had a stent fitted. Before then I would have a regular massage as a monthly treat.I asked the Cardiac Nurse today if I could start them up again and she said that the relaxation benefits probably outway any potential
Just wondering if others have been in my position. I had an NSTEMI in late December and had a stent fitted. Before then I would have a regular massage as a monthly treat.I asked the Cardiac Nurse today if I could start them up again and she said that the relaxation benefits probably outway any potential
Comfycousin1
in
British Heart Foundation
5 months ago
Please join!
For all of our new members, PLEASE make sure one of the first things you do after your diagnosis is to join The PBC Foundation. It's free. There is so much accurate and up to date information there on the disease itself, glossary of terms you might not be familiar with. place to record your lab results
For all of our new members, PLEASE make sure one of the first things you do after your diagnosis is to join The PBC Foundation. It's free. There is so much accurate and up to date information there on the disease itself, glossary of terms you might not be familiar with. place to record your lab results
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
Can am echocardiogram detect if a stent is working ok?
I was admittef to hospital yesterday, with afib. Was utterly devastated when troponin number was 285....following troponin test result many hours later 279. Severe damage to heart thats lrreversi le. I am literally terrified and so disappointed. My world fell apart. A+E cardiologists do not suspect actual
I was admittef to hospital yesterday, with afib. Was utterly devastated when troponin number was 285....following troponin test result many hours later 279. Severe damage to heart thats lrreversi le. I am literally terrified and so disappointed. My world fell apart. A+E cardiologists do not suspect actual
DizzyD
in
British Heart Foundation
5 months ago
Photopharmics kickstarts phototherapy trial for Parkinson’s disease
The US Food and Drug Administration (FDA)-approved device targets photoreceptors in the eye responsible for circadian signalling. Research has shown that Parkinson’s disease can damage the retina and impact the circadian system leading to symptoms such as trouble sleeping, cognition, depression, and
The US Food and Drug Administration (FDA)-approved device targets photoreceptors in the eye responsible for circadian signalling. Research has shown that Parkinson’s disease can damage the retina and impact the circadian system leading to symptoms such as trouble sleeping, cognition, depression, and
Farooqji
in
Cure Parkinson's
4 months ago
Holidays
Cabg triple bypass 4 yrs ago after 2 Ha's, 1 month ago HA and now on 5 more drugs for helping the heart more and angina. How soon is it possible to fly after this, my thinking is might as well rest in the sun as in the rain. Fit enough in my self - doing fair bit of walking, not out of breath or any
Cabg triple bypass 4 yrs ago after 2 Ha's, 1 month ago HA and now on 5 more drugs for helping the heart more and angina. How soon is it possible to fly after this, my thinking is might as well rest in the sun as in the rain. Fit enough in my self - doing fair bit of walking, not out of breath or any
Tugger1222
in
British Heart Foundation
1 month ago
Caffeic acid phenethyl ester (CAPE) is an ingredient in bee propolis. See below for invitro and mice evidence for inhibition AR-V7 by CAPE
Human studies needed. Caffeic acid phenethyl ester suppresses the expression of androgen receptor variant 7 via inhibition of CDK1 and AKT Ying-Yu Kuo, Chieh Huo, Chia-Yang Li & Chih-Pin Chuu Cancer Gene Therapy (2024) doi: 10.1038/s41417-024-00753-z Abstract Androgen receptor (AR) splice variant
Human studies needed. Caffeic acid phenethyl ester suppresses the expression of androgen receptor variant 7 via inhibition of CDK1 and AKT Ying-Yu Kuo, Chieh Huo, Chia-Yang Li & Chih-Pin Chuu Cancer Gene Therapy (2024) doi: 10.1038/s41417-024-00753-z Abstract Androgen receptor (AR) splice variant
Graham49
in
Advanced Prostate Cancer
4 months ago
Follow up ultrasound for cirrhosis, shown polyp In gallbladder
Hi, looking if anyone has experience/ info on this? is it common, linked to cirrhosis ? It’s completely thrown me as I’ve been feeling healthy since diagnosis last year. This was my first US since. I was hoping for news that my liver looked slightly better than original scan, as I’ve worked my backside
Hi, looking if anyone has experience/ info on this? is it common, linked to cirrhosis ? It’s completely thrown me as I’ve been feeling healthy since diagnosis last year. This was my first US since. I was hoping for news that my liver looked slightly better than original scan, as I’ve worked my backside
DaveQ67
in
British Liver Trust
4 months ago
Meds or diet
4 years ago at age 59 I had a heart attack out of the blue,got a stent and the usual cocktail of meds which I have taken religiously for 4 years. I have a healthy diet, don't smoke social drinker and walk every day, totally changed my lifestyle since heart attack and felt fit and well...I went for my
4 years ago at age 59 I had a heart attack out of the blue,got a stent and the usual cocktail of meds which I have taken religiously for 4 years. I have a healthy diet, don't smoke social drinker and walk every day, totally changed my lifestyle since heart attack and felt fit and well...I went for my
Sunnysummerdays
in
British Heart Foundation
5 months ago
Stopping Injections After 3 Loading Doses
Hi! I’m new here and learning so much from reading all of the posts here. I was diagnosed with low B12 levels earlier on this year, although my PA antibodies came back negative. I was put on injections, and was meant to have 6 over 2 weeks followed by 1 every 3 months, however my GP had to stop them
Hi! I’m new here and learning so much from reading all of the posts here. I was diagnosed with low B12 levels earlier on this year, although my PA antibodies came back negative. I was put on injections, and was meant to have 6 over 2 weeks followed by 1 every 3 months, however my GP had to stop them
Hidden
in
Pernicious Anaemia Society
4 months ago
2nd Dose at Sarah Cannon Research
Morning folks, Finishing second dose of XmAb808 and all is well so far. Blood work looks good and have to wait four hours post dose. On Cipro for UTI and that is better too Let’s kill those cancer cells
Morning folks, Finishing second dose of XmAb808 and all is well so far. Blood work looks good and have to wait four hours post dose. On Cipro for UTI and that is better too Let’s kill those cancer cells
Pmann
in
Advanced Prostate Cancer
4 months ago
PSMA PET SCAN AND PSA
I had a disagreement with my RO today and wonder if he is right. My last PSMA PET Scan in Dec 2023 showed no progression. End January onwards I have an on off pain in the left ribcage area with an increasing frequency. To recap....PT3bN1Mx, RP in 2019, IMRT 2020 and on ADT for 30 months, currently completed
I had a disagreement with my RO today and wonder if he is right. My last PSMA PET Scan in Dec 2023 showed no progression. End January onwards I have an on off pain in the left ribcage area with an increasing frequency. To recap....PT3bN1Mx, RP in 2019, IMRT 2020 and on ADT for 30 months, currently completed
Tally111
in
Advanced Prostate Cancer
4 months ago
Acute kidney failure - creatinine is climbing
My hubby's treatment is venetoclax and acalabrutinib (he previously had obinutuzumab too). He is also taking sulfameth trimeth (for ammonia) and valacyclivor (for shingles) dropped from 1200 to 800 mg a day. We just saw a Renal Specialist Dr and she said that they really don't know the full extent
My hubby's treatment is venetoclax and acalabrutinib (he previously had obinutuzumab too). He is also taking sulfameth trimeth (for ammonia) and valacyclivor (for shingles) dropped from 1200 to 800 mg a day. We just saw a Renal Specialist Dr and she said that they really don't know the full extent
spi3
in
CLL Support
4 months ago
Tired!
Hi everyone, I had an ST STEMI three and a half weeks ago. Stent fitted. I have the usual medication for an MI, however, I am so tired, all the time. Is this normal? Is it the medication do you think?
Hi everyone, I had an ST STEMI three and a half weeks ago. Stent fitted. I have the usual medication for an MI, however, I am so tired, all the time. Is this normal? Is it the medication do you think?
Rosie2003
in
British Heart Foundation
5 months ago
High serum creatinine
Hi im in a panic dr has worried me my serum creatinine is 97.....states on my result kidney trauma. Another test next week but now so stressed. Anyone else had this plz.
Hi im in a panic dr has worried me my serum creatinine is 97.....states on my result kidney trauma. Another test next week but now so stressed. Anyone else had this plz.
Ninnin67
in
NRAS
4 months ago
Progress?
Good morning, not really after any advice just some thoughts from you lovely people. Basically in Oct ‘23 I had a massive variceal bleed, 6l blood transfusion and a 9% survival rate, very jaundice, lost over 3 stone bringing me to just under 6 stone, progonsees liver failure, put on a transplant list
Good morning, not really after any advice just some thoughts from you lovely people. Basically in Oct ‘23 I had a massive variceal bleed, 6l blood transfusion and a 9% survival rate, very jaundice, lost over 3 stone bringing me to just under 6 stone, progonsees liver failure, put on a transplant list
Starlight79
in
British Liver Trust
4 months ago
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