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vaccinations
Hi advice from anyone please? I’m on holiday in Egypt the End of the month and wondered if anyone had there vaccinations ie. Tetanus booster, hepatitis A, Typhoid booster. Just not sure if I should go ahead and have them any help I would appreciate? 😊 also I’m on Benapali drug.
Hi advice from anyone please? I’m on holiday in Egypt the End of the month and wondered if anyone had there vaccinations ie. Tetanus booster, hepatitis A, Typhoid booster. Just not sure if I should go ahead and have them any help I would appreciate? 😊 also I’m on Benapali drug.
Swanfull
in
NRAS
7 months ago
Covid day four....U.K
Hi all. This sounds so stupid but I thought it was a regular cold. Just did a COVID test and it's positive. I think it maybe too late to access antivirals now? What should I do? Sorry, just a bit panicked. Thank you in advance.
Hi all. This sounds so stupid but I thought it was a regular cold. Just did a COVID test and it's positive. I think it maybe too late to access antivirals now? What should I do? Sorry, just a bit panicked. Thank you in advance.
Basil01
in
CLL Support
8 months ago
Cough
So, since having a virus causing a sinus cold at the start of Easter holidays, I have had a flare up which has gradually gotten worse since. I think, symptoms-wise I might have stabilized. Anyhow, I have realized that since about halfway through April I started with a light cough and it has increased
So, since having a virus causing a sinus cold at the start of Easter holidays, I have had a flare up which has gradually gotten worse since. I think, symptoms-wise I might have stabilized. Anyhow, I have realized that since about halfway through April I started with a light cough and it has increased
Obsdian
in
Thyroid UK
3 months ago
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Overactive thyroid and possibly Graves due to symptoms -not medically diagnosed.
Hi there , I am very new to this and I struggle at the moment as I’m falling apart. The whole of December I been basically bedridden and was wondering if you could give me some advice for when I see my doctor. I have an appointment on the 8th and I really want to understand what he is going to discuss
Hi there , I am very new to this and I struggle at the moment as I’m falling apart. The whole of December I been basically bedridden and was wondering if you could give me some advice for when I see my doctor. I have an appointment on the 8th and I really want to understand what he is going to discuss
Danathediva1
in
Thyroid UK
8 months ago
Is this Scabies?
Please tell me if this looks like scabies? This is right under the armpit. I have tried to crop and focus on the problem area but can share another version of this photo if it is not clear. I am morbidly obese so a lot of skin stretching is happening.
Please tell me if this looks like scabies? This is right under the armpit. I have tried to crop and focus on the problem area but can share another version of this photo if it is not clear. I am morbidly obese so a lot of skin stretching is happening.
TryingItOn
in
MY SKIN
3 months ago
Anyone here with cervical arthritis?
I recently found out that the pains I've been having in my neck, shoulders and arms is arthritis. Specifically c4-c5, c6-c7. I don't want ibuprofen, Tylenol isn't working and I'm allergic to sulfa drugs; I'm kinda concerned about all the drugs, but need something to help so I can continue to work. I
I recently found out that the pains I've been having in my neck, shoulders and arms is arthritis. Specifically c4-c5, c6-c7. I don't want ibuprofen, Tylenol isn't working and I'm allergic to sulfa drugs; I'm kinda concerned about all the drugs, but need something to help so I can continue to work. I
Fleur29
in
Osteoarthritis Action
8 months ago
Stopped Prednisone Completely
Diagnosed in the fall of 2022 with PMR. Put on 13mg daily, the relief from the discomfort of PMR was immediate; overnight to be specific. The next month, began reducing my dosage about 1mg/mo. On 2023-10-06, began every other day dosage of 1mg. On 2023-12-26 I took my last dose and so far, so good
Diagnosed in the fall of 2022 with PMR. Put on 13mg daily, the relief from the discomfort of PMR was immediate; overnight to be specific. The next month, began reducing my dosage about 1mg/mo. On 2023-10-06, began every other day dosage of 1mg. On 2023-12-26 I took my last dose and so far, so good
Mansplainer101
in
PMRGCAuk
8 months ago
Methotrexate and sinus/nasal issues
I've been on MTX for a year now and over the months I keep saying I feel like I'm coming down with a cold but it doesn't happen. I get a blockage in the back of my nasal passage and that causes post nasal drip and a sore throat. I was taking sulphasalazine but have stopped that as I felt so tired on
I've been on MTX for a year now and over the months I keep saying I feel like I'm coming down with a cold but it doesn't happen. I get a blockage in the back of my nasal passage and that causes post nasal drip and a sore throat. I was taking sulphasalazine but have stopped that as I felt so tired on
Gottarelax
in
NRAS
9 months ago
Cough, chest pressure, GCA
I am being treated for GCA, but had a negative biopsy. I am now taking 40 mg of prednisone and will drop to 35 mg tomorrow. My first rheumatology appointment is May 16. I am in no pain but I am very fatigued and I continue to cough, especially when I speak, and have chest heaviness. My primary care
I am being treated for GCA, but had a negative biopsy. I am now taking 40 mg of prednisone and will drop to 35 mg tomorrow. My first rheumatology appointment is May 16. I am in no pain but I am very fatigued and I continue to cough, especially when I speak, and have chest heaviness. My primary care
Moaningxcat
in
PMRGCAuk
4 months ago
Second Treatment -Feeling scared
My husband has CLL and finished FCR in April 2019. Due to low platelets, enlarged spleen and ALC doubling he needs to start his next treatment even though he feels wellV&R is the treatment starting on 15th May. I have researched extensively including within this group, and am aware of the treatment
My husband has CLL and finished FCR in April 2019. Due to low platelets, enlarged spleen and ALC doubling he needs to start his next treatment even though he feels wellV&R is the treatment starting on 15th May. I have researched extensively including within this group, and am aware of the treatment
Sanders9
in
CLL Support
4 months ago
Methotrexate and a head cold
Hi, I have been on methotrexate for 9 weeks and am starting with a head cold.Do I need to inform anyone? It's the first "illness" since starting methotrexate.
Hi, I have been on methotrexate for 9 weeks and am starting with a head cold.Do I need to inform anyone? It's the first "illness" since starting methotrexate.
pattypatchwork
in
LUPUS UK
4 months ago
Latest re -Lupus and Covid?
Hello All - I hope you all had a very happy Christmas. Does anyone know the latest position regarding Lupus patients testing positive for Covid please. My wife has had cold symptoms for the past couple of days and we decided to test for Covid this morning and we were both positive. My wife (who has
Hello All - I hope you all had a very happy Christmas. Does anyone know the latest position regarding Lupus patients testing positive for Covid please. My wife has had cold symptoms for the past couple of days and we decided to test for Covid this morning and we were both positive. My wife (who has
BeeManShrop
in
LUPUS UK
8 months ago
New RLS member
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
Ddski5
in
Restless Legs Syndrome
8 months ago
today/tonight
this afternoon I am going to the casino to hang out with some friends from college. We’re going to shop at the outlets before checking into our air bnb and getting ready for the evening. Our plan is to gamble a bit and go to a nightclub after. Because of my anxiety I already plan on not drinking. But
this afternoon I am going to the casino to hang out with some friends from college. We’re going to shop at the outlets before checking into our air bnb and getting ready for the evening. Our plan is to gamble a bit and go to a nightclub after. Because of my anxiety I already plan on not drinking. But
Daisy425
in
Anxiety and Depression Support
8 months ago
Christmas Covid present…
My husband tested positive for Covid Christmas Day evening after feeling ill for a couple of days. I tested negative and felt ok. We avoided each other and masked up. Today, after a couple of disturbed nights and drained days I’ve tested positive. I am on 4mg pred. Do I need to contact the doctor re
My husband tested positive for Covid Christmas Day evening after feeling ill for a couple of days. I tested negative and felt ok. We avoided each other and masked up. Today, after a couple of disturbed nights and drained days I’ve tested positive. I am on 4mg pred. Do I need to contact the doctor re
Bluey-1
in
PMRGCAuk
8 months ago
covid
I had covid two weeks ago. Thankyou by the way for those who answered my post when I didn’t realise I had covid, I had pains which I thought were the pmr returning. I am recovering quite slowly, no longer feel rotten but very breathless ( I have asthma) and having pmr type pains. I don’t know what to
I had covid two weeks ago. Thankyou by the way for those who answered my post when I didn’t realise I had covid, I had pains which I thought were the pmr returning. I am recovering quite slowly, no longer feel rotten but very breathless ( I have asthma) and having pmr type pains. I don’t know what to
Yellow-dog
in
PMRGCAuk
8 months ago
cellulitis
I’ve been diagnosed today with cellulitis - never had it before and knew nothing about it so it’s all been a bit of a shock. I’ve been prescribed Flucloxacillin but unfortunately, by the time I was discharged from Urgent Care, the hospital pharmacy was closed so I can’t start them until the morning
I’ve been diagnosed today with cellulitis - never had it before and knew nothing about it so it’s all been a bit of a shock. I’ve been prescribed Flucloxacillin but unfortunately, by the time I was discharged from Urgent Care, the hospital pharmacy was closed so I can’t start them until the morning
Janann25
in
PMRGCAuk
7 months ago
Taking Prolia with Rusolitinib (Jakafi)
I have been taking Jakafi (15 mg) twice a day for the last 3 years for my polycythemia vera. I also take blood thinners for my thrombocytosis since I have had blood clots in my lungs twice in the last 2 years. I have had osteoporosis for a while, but my T scores from bone density test are really
I have been taking Jakafi (15 mg) twice a day for the last 3 years for my polycythemia vera. I also take blood thinners for my thrombocytosis since I have had blood clots in my lungs twice in the last 2 years. I have had osteoporosis for a while, but my T scores from bone density test are really
Buggerbear
in
MPN Voice
4 months ago
I could have PMR…
I posted back in September for some invaluable advice from you lovely people. I suspected I might have PMR but after being in hospital and treated for ‘infection’ which is what the doctors said I had I thought no more about it. I had high inflammation markers which were thought to be due to infection
I posted back in September for some invaluable advice from you lovely people. I suspected I might have PMR but after being in hospital and treated for ‘infection’ which is what the doctors said I had I thought no more about it. I had high inflammation markers which were thought to be due to infection
MsWhistledown
in
PMRGCAuk
8 months ago
Shingles vaccine
Just got a phone call from GP booking me in for my shingles vaccine as I fit the criteria.Has anyone had any experience of the jab. Do I need to ask Rheumatology about changing my tcz infusion times . Thanks , I not after medical advice just whether you personally had to adjust your drip timings. I
Just got a phone call from GP booking me in for my shingles vaccine as I fit the criteria.Has anyone had any experience of the jab. Do I need to ask Rheumatology about changing my tcz infusion times . Thanks , I not after medical advice just whether you personally had to adjust your drip timings. I
allanah
in
NRAS
4 months ago
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