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Upcoming Webinar - Enjoy the Beat: Music, Brain Health, and MS
Music plays an important role in our lives. Research also suggests that music can benefit our physical and mental health in numerous ways. Join MSAA’s upcoming webinar “Enjoy the Beat: Music, Brain Health, and MS” Monday, June 17th, at 8:00PM Eastern with MS specialist Dr. Augusto Miravalle and MS
Music plays an important role in our lives. Research also suggests that music can benefit our physical and mental health in numerous ways. Join MSAA’s upcoming webinar “Enjoy the Beat: Music, Brain Health, and MS” Monday, June 17th, at 8:00PM Eastern with MS specialist Dr. Augusto Miravalle and MS
DanaMSAA
Partner
in
My MSAA Community
2 months ago
My DIY red light therapy / photobiomodulation helmet build. If you have built one and would like to share pictures please do.
I originally posted here asking some questions about building a red light therapy hat. https://healthunlocked.com/cure-parkinsons/posts/150630223/a-question-for-anyone-who-built-a-red-light-therapy-helmet-hat.?responses=150932897 I would like to say thank you to the people in that thread for helping
I originally posted here asking some questions about building a red light therapy hat. https://healthunlocked.com/cure-parkinsons/posts/150630223/a-question-for-anyone-who-built-a-red-light-therapy-helmet-hat.?responses=150932897 I would like to say thank you to the people in that thread for helping
Glenfarclas
in
Cure Parkinson's
2 months ago
Has anyone done the proton therapy?
Just curious if anyone had their MO suggest doing the proton therapy? When I have my discussion with my new MO, I want to ask if proton therapy would be a fit for myself. I have to deal with the prostate cancer and the met pelvic lymph nodes as well as the met bone issue.
Just curious if anyone had their MO suggest doing the proton therapy? When I have my discussion with my new MO, I want to ask if proton therapy would be a fit for myself. I have to deal with the prostate cancer and the met pelvic lymph nodes as well as the met bone issue.
PARKER3237
in
Advanced Prostate Cancer
2 months ago
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update on oxygen therapy
a friend with MS got me into this, we are lucky to have an MS centre with a hyperbaric chamber in Hereford. It’s not NHS They kindly accepted me as a trial as it’s usually MS patients, burns patients and cancer recovery but also fibromyalgia and inflammation. I’ve just completed my 20th session which
a friend with MS got me into this, we are lucky to have an MS centre with a hyperbaric chamber in Hereford. It’s not NHS They kindly accepted me as a trial as it’s usually MS patients, burns patients and cancer recovery but also fibromyalgia and inflammation. I’ve just completed my 20th session which
Regenallotment
in
Thyroid UK
2 months ago
EIS-12656, a first-in-class allosteric inhibitor of ALC1: will soon start a phase 1 trial
to PARP or not to PARP.... “EIS-12656 selectively targets tumors with no apparent effects on normal tissues.” ....“Our clinical study will also explore combination therapies that were hindered by combinatorial toxicity in the past.” https://www.bio-m.org/en/news/news-detail/eisbach-bio-announces-fda-clearance-of-ind-application-for-eis
to PARP or not to PARP.... “EIS-12656 selectively targets tumors with no apparent effects on normal tissues.” ....“Our clinical study will also explore combination therapies that were hindered by combinatorial toxicity in the past.” https://www.bio-m.org/en/news/news-detail/eisbach-bio-announces-fda-clearance-of-ind-application-for-eis
Maxone73
in
Advanced Prostate Cancer
2 months ago
surely no more - - -
wonderful supportive group, I contacted you with my chronic constipation, really seems I have inability to poop, currently having biofeedback , was so hopeful at first but session today shows little if any improvement- messing with diet, ( fibre that doesn’t block me up) active cultures that made things
wonderful supportive group, I contacted you with my chronic constipation, really seems I have inability to poop, currently having biofeedback , was so hopeful at first but session today shows little if any improvement- messing with diet, ( fibre that doesn’t block me up) active cultures that made things
Dudders123
in
IBS Network
2 months ago
Failed RP & SRT; Negative PSMA PET
Greetings. I had a radical prostatectomy that failed and then salvage radiation therapy that appears to have failed as well. A recent PSMA PET scan showed no signs of recurrent prostate cancer or metastases. By way of background: NOV 2010 - Dx at age 52; positive DRE, Gleason 3+3, PSA 5.0; prostate
Greetings. I had a radical prostatectomy that failed and then salvage radiation therapy that appears to have failed as well. A recent PSMA PET scan showed no signs of recurrent prostate cancer or metastases. By way of background: NOV 2010 - Dx at age 52; positive DRE, Gleason 3+3, PSA 5.0; prostate
dans_journey
in
Advanced Prostate Cancer
6 months ago
Pneumocystis pneumonia - PCP
I am just making people aware of the above. This is fungi that in a healthy person would resolve in days. However, in immunosuppressed it can be fatal. I have never heard of this before. Because of taking immune surpression, this fungi has knocked me off my feet. I have been admitted to hospital, now
I am just making people aware of the above. This is fungi that in a healthy person would resolve in days. However, in immunosuppressed it can be fatal. I have never heard of this before. Because of taking immune surpression, this fungi has knocked me off my feet. I have been admitted to hospital, now
TEDDYM
in
LUPUS UK
2 months ago
Working on overcoming FND
Hello friends, in Dec 2008 I started having vocal issues during a cold. It has continue to come and go for the last 15 1/2 years. In addition to my voice after about 2 years, I began having myoclonic jerks, swallowing issues, dystonia, tremors, gait issues, spasms in my face. Tics, non epileptic & EPILEPTIC
Hello friends, in Dec 2008 I started having vocal issues during a cold. It has continue to come and go for the last 15 1/2 years. In addition to my voice after about 2 years, I began having myoclonic jerks, swallowing issues, dystonia, tremors, gait issues, spasms in my face. Tics, non epileptic & EPILEPTIC
cgarff
in
Functional Neurological Disorder - FND Hope
3 months ago
SBRT alternative
So I've been trying to decide on what treatment I wanted to do and finally decided that I'd go with SBRT. Well unfortunately the MRIdian SBRT is going away at the end of the month. I reached out to Dr. Kishan to verify and this was the response "Unfortunately that is likely correct. We will be doing
So I've been trying to decide on what treatment I wanted to do and finally decided that I'd go with SBRT. Well unfortunately the MRIdian SBRT is going away at the end of the month. I reached out to Dr. Kishan to verify and this was the response "Unfortunately that is likely correct. We will be doing
MauiJef
in
Prostate Cancer Network
10 months ago
Aspen Neuroscience to Present at International Society for Cell & Gene Therapy (ISCT) Annual Meeting
As part of the ISCT 2024 Translational Pathway Sessions, as well as the ISCT main program, Aspen's Chief Scientific Officer Xiaokui Zhang, Ph.D., and Chief Technology Officer Kim Raineri will discuss developments in autologous research and development, including for ANPD001, Aspen's autologous iPSC-derived
As part of the ISCT 2024 Translational Pathway Sessions, as well as the ISCT main program, Aspen's Chief Scientific Officer Xiaokui Zhang, Ph.D., and Chief Technology Officer Kim Raineri will discuss developments in autologous research and development, including for ANPD001, Aspen's autologous iPSC-derived
Farooqji
in
Cure Parkinson's
3 months ago
Just Tired
Hi Everyone - this is such a valuable community. I just wanted to vent a little. Are any parents on this journey just feeling tired? We have weathered the nasty teachers, the disinterested teachers, the play therapy, the behavior therapy, the unconventional treatments, the medications, the school
Hi Everyone - this is such a valuable community. I just wanted to vent a little. Are any parents on this journey just feeling tired? We have weathered the nasty teachers, the disinterested teachers, the play therapy, the behavior therapy, the unconventional treatments, the medications, the school
Uptowngirl12121
in
CHADD's ADHD Parents Together
3 months ago
[b]HOW LONG TO GET YOUR TESTOSTERONE BACK TO NORMAL (4-500) AFTER 4 MOS Treatment WITH ORGOVYX. It is now 5 months post treatment with Orgovyx.[/b]
[i]
HOW LONG TO GET YOUR TESTOSTERONE BACK AFTER 4 MOS TX WITH ORGOVYX.
[/i] Finally 7 mos . Post 20 imrt TX, 5 months post 4 mos. tx with Orgovyx, got my final blood labs:
PSA .2 PSA free.1
,very happy with this!
Testosterone 79
-VERY UNHAPPY WITH THIS ( still symptomatic for
[i]
HOW LONG TO GET YOUR TESTOSTERONE BACK AFTER 4 MOS TX WITH ORGOVYX.
[/i] Finally 7 mos . Post 20 imrt TX, 5 months post 4 mos. tx with Orgovyx, got my final blood labs:
PSA .2 PSA free.1
,very happy with this!
Testosterone 79
-VERY UNHAPPY WITH THIS ( still symptomatic for
JWS13
in
Advanced Prostate Cancer
10 months ago
The 40 Hz flickering light restores synaptic plasticity and mitochondrial phenotype in experimental model of Alzheimer's disease May 2024
The 40 Hz flickering light restores synaptic plasticity and mitochondrial phenotype in experimental model of Alzheimer's disease May 2024
- https://www.researchgate.net/publication/380600451_The_40_Hz_flickering_light_restores_synaptic_plasticity_and_mitochondrial_phenotype_in_experimental_model_of_Alzheimer
The 40 Hz flickering light restores synaptic plasticity and mitochondrial phenotype in experimental model of Alzheimer's disease May 2024
- https://www.researchgate.net/publication/380600451_The_40_Hz_flickering_light_restores_synaptic_plasticity_and_mitochondrial_phenotype_in_experimental_model_of_Alzheimer
Bolt_Upright
in
Cure Parkinson's
3 months ago
Moving forward
Before my diagnosis, I had various symptoms that I could not control, and afterward would lose parts of my memories, it was people's names and events later I had a seizure but sometimes in my sleep. It was either when I was fully awake and alert and I could see my surroundings but then if I did have
Before my diagnosis, I had various symptoms that I could not control, and afterward would lose parts of my memories, it was people's names and events later I had a seizure but sometimes in my sleep. It was either when I was fully awake and alert and I could see my surroundings but then if I did have
mavem100
in
Functional Neurological Disorder - FND Hope
3 months ago
B.A.T and Provenge trial.
After 9mo the Arv-766 started to fail. I will be starting a combination therapy trial through Yale using B.A.T. And Provenge. This is the first time I’ve heard of such a combo. There are only 6 of us in this trial. Is there anyone else on this trial or have any experience with using both treatments
After 9mo the Arv-766 started to fail. I will be starting a combination therapy trial through Yale using B.A.T. And Provenge. This is the first time I’ve heard of such a combo. There are only 6 of us in this trial. Is there anyone else on this trial or have any experience with using both treatments
No_stone_unturned
in
Advanced Prostate Cancer
3 months ago
school anxiety
I’m in speech therapy grad school, something I’ve worked towards for a VERY long time. I made so many sacrifices to be here and I got a C in a clinical experience. In my program you have to get a B to pass and move forward. I have to redo this clinical experience and any time I have a meeting for it
I’m in speech therapy grad school, something I’ve worked towards for a VERY long time. I made so many sacrifices to be here and I got a C in a clinical experience. In my program you have to get a B to pass and move forward. I have to redo this clinical experience and any time I have a meeting for it
Pupsandpeonies
in
Anxiety and Depression Support
3 months ago
Supporting evidence for PIP
I’m ploughing through the online form and it keeps saying about supporting evidence. I was diagnosed in 2021 by my then GP in the midlands over the Covid period - so not many doctor visits. Not much prescribed, using paracetamol and/or ibuprofen as and when necessary. Basically have been self-managing
I’m ploughing through the online form and it keeps saying about supporting evidence. I was diagnosed in 2021 by my then GP in the midlands over the Covid period - so not many doctor visits. Not much prescribed, using paracetamol and/or ibuprofen as and when necessary. Basically have been self-managing
Gulfstream_Maggie
in
Fibromyalgia Action UK
3 months ago
List of good Genetic Tests in Homologous Recombination Deficiency in PCa and the Mechanisms of Resistance to PARP Inhibitors
I was searching RAD50 and PARPinhibitors and since i am going for a high risk genetic consult i came across this good explanation of different genetic testing. Title of article:
Homologous Recombination Deficiency in Ovarian, Breast, Colorectal, Pancreatic, Non-Small Cell Lung and Prostate Cancers
I was searching RAD50 and PARPinhibitors and since i am going for a high risk genetic consult i came across this good explanation of different genetic testing. Title of article:
Homologous Recombination Deficiency in Ovarian, Breast, Colorectal, Pancreatic, Non-Small Cell Lung and Prostate Cancers
KocoPr
in
Advanced Prostate Cancer
3 months ago
BLA for Subcutaneous Nivolumab Accepted by the FDA for Advanced/Metastatic Solid Tumors
A biologics license application (BLA) has been accepted by the FDA seeking approval of nivolumab (Opdivo) co-formulated with Halozyme’s proprietary recombinant human hyaluronidase (rHuPH20; subcutaneous nivolumab) for adult patients with solid tumors eligible for previously approved nivolumab indications
A biologics license application (BLA) has been accepted by the FDA seeking approval of nivolumab (Opdivo) co-formulated with Halozyme’s proprietary recombinant human hyaluronidase (rHuPH20; subcutaneous nivolumab) for adult patients with solid tumors eligible for previously approved nivolumab indications
God_Loves_Me
in
Advanced Prostate Cancer
3 months ago
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