Experiences with

Complex regional pain syndrome

A big thank you to those who kindly replied to my post of a couple weeks ago entitled HELP PLEASE TO REDUCE DOSE OF NEUPRO .To remind you I have terminal cancer with roughly six to nine months life expectancy. After reading your replies I decided not to try to reduce the Dopamine Agonist Receptor drugs

waiting on phone appointment like 5 mins ago. just get letter says as loads of bollocks, basically as CCP and RF neg it's osteo with a bit of inflammation, letter says wants to try cortisone injections and if it helps she'll consider hydroxychloroquine, not what I remembered but I was quite angry.

I'm on 50 - 100mg of tramadol a day and slowly getting augmentation. Started with 50mg and now I alternate nights at 100mg. I'm reluctant to go to 100mg everyday yet but most nights 50mg doesn't work great. My Dr has suggested I try a THC 10mg/CBD 10mg medication and stopping Tramadol, so I will give

Hi, I've got osteoarthritis and it's getting to the point where the can't enjoy everyday things. I can't walk far without both hips burning. My ankles aching. Can't pick things up without dropping them. Back aches, neck aches, knee pain and now I can't use my right arm as my shoulder joint is extremely

I haven't posted here for a while RLS has been over the years quite unbearable now I'm taking tramadol and Premaprexole and it has been a life saver I'm not saying I don't suffer at all but it is bearable I'm not walking round the bungalow all hours day or night I hope i can help someone else with this

Hi All, I hope everyone has had a peaceful weekend! After 20 years of unbearable pelvic pain throughout my period and ovulation and periods so heavy I daren’t leave the house, I was finally deemed ‘old enough’ for a referral to the gynaecologist (I’m 31 and have been told my entire life by medical

Hi, Finally, i had my appointment with a Rheumatologist consultant. I went through my history of pain, I was initially diagnosed with PMR in sept last year by G.P who started me on 15mg Prednisolone, and a miracle happened. I also explained that unfortunately, I have been unable to successfully reduce

In 2011 I had a seizure, and 'hurt' my shoulder, went down to A&E and had it X-rayed, gave me a couple of pain killers, 'pushed' me off home,🙄 and went back to watching a certain royal wedding, 6 days later, they rang me back telling me to come back, showed me the x-ray and indeed had broken clavicle

I want to share my personal experience in the hope that it might benefit someone else. I was prescribed Ropinirole 2mg slow-release and Pramipexole 0.18mg for restless leg syndrome, but they were not very effective. I had rough nights, and at least once or twice a week, I had to take Tramadol 50mg

He spent a week in ICU at his local hospital where he was extremely poorly and he briefly stopped breathing during a routine nursing manoeuvre, but recovered by himself without any resuscitation it was then when they put him into coma (intubated and given propofol and fentanyl) and moved him to an ICU

Hi, firstly thank you for your help I feel like reading some of these threads I finally feel like I may have an answer and feel slightly less like I am going mad! I have been experiencing pain under my ribs, my arms and right shoulder/ back for around 8 months now. This is worse when I eat cheese or

Hi I’m just looking for some advice on Targinact and just Oxycodone please. My neurologist wrote to my GP requesting that I be prescribed Targinact 10mg at night and 5mg mornings increasing if necessary by 5mg increments to maximum of 20mg twice a day, also changing the Venlafaxine I take to either

Hello All, Trust you are all doing well. Just trying to find somewhere that offer the ANTI-SPERM ANTIBODY (FEMALE PARTNER) & ANTI-DNA Blood Tests? My Clinic dont offer these and struggling to find somewhere that does. Really wanting these tests done as heard they can impact re-occurring failed implantation

I have been experiencing pancreatic pain for 6 mos now. Have been to the ED 5 times in that time period. I thought I knew what pain was with my lower back issues - but I was unfortunately mistaken. During these acute pancreatic episodes - the best way to describe the pain is to say that I was out of

Hi all,I was diagnosed with endometriosis back in December 2023 they ablated it during the laproscopy I recovered well but now I am back in a lot of pain :( I get the pain mostly in my pelvic area and right flank. I started to think the right flank pain was maybe coming from my kidney as I've had issues

Hi all, I'm 41 and never had painful periods up until 2 periods ago. The awful pain is everyday not just on my period so I feel like I've got period cramps all day every day. Some day I'm ok and pain free maybe 2 a week. I had a vaginal ultrasound and only showed a small fibroid it had reduced from

As described in my other posts, my dopamine agonist withdrawal is awful. I suffer from DAWS, and I've done several stays in an hospital neurology service, and they are doing their best to help me, but something is awfully wrong. I got out of the hospital the day after yesterday. Yesterday, I had a

Good afternoon, my name is Dori1 and I’ve just joined the forum to learn a little bit more. I don’t live in the UK, I live in Spain. Iv’e been reading your experiences and I’d like to share my journey so far. I went to my GP in the middle of February with a pain under my right arm moving to my rib

A little advice needed: I left my job back in January due to symptoms being at a point hat I wasn't fit to go to work, and being a high-stress job I wonder if that exacerbated my symptoms....? On the road most of the day, sales environment, 50hrs a week, pressure to hit targets, male dominated (so a

I am now on 4 mg on a very slow taper and a low blow has knocked me sideways - sciatica /, sacroilliac origin of some form yet to be confirmed but agonising pain. I am aware of the non compatibility of some pain killers but I can't sleep or walk with this pain. What is the strongest one advisable? Yes