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Happy Thanksgiving Eve
Also Happy Hump Day 😁 https://youtu.be/PBsjggc5jHM?si=JPeepmKsrlzyNL0E Silly Kaiser thinks that Abiraterone is chemo and won't mail it, so gotta go down to Bakersfield monthly to get it, but this time I brought Chocolate covered Macadamia Nuts for the AIS Cancer Center Onco and Radiation staff.
Also Happy Hump Day 😁 https://youtu.be/PBsjggc5jHM?si=JPeepmKsrlzyNL0E Silly Kaiser thinks that Abiraterone is chemo and won't mail it, so gotta go down to Bakersfield monthly to get it, but this time I brought Chocolate covered Macadamia Nuts for the AIS Cancer Center Onco and Radiation staff.
dockam
in
Advanced Prostate Cancer
8 months ago
Radiation and diarrhea/ GI issues/ please help
looking for other experiences with radiation. My dad just went through -4.5 weeks of radiation. I believe it was standard radiation EBRT or IMRT not sure which. It was fine at first, no side effects. By week 4 the side effects started - diarrhea, constipation, abdominal discomfort, gas. He is so uncomfortable
looking for other experiences with radiation. My dad just went through -4.5 weeks of radiation. I believe it was standard radiation EBRT or IMRT not sure which. It was fine at first, no side effects. By week 4 the side effects started - diarrhea, constipation, abdominal discomfort, gas. He is so uncomfortable
alysona828
in
Advanced Prostate Cancer
6 months ago
Medichecks hormone test. Any thoughts?
I’ve been on thyroid replacement for about six years now and starting to feel that quite soon I will have improved as much as I’m going to and I’m wondering if HRT could be the last part of what I need to feel more like me. I’ve remained reasonably well all things considered but it’s as though I’m a
I’ve been on thyroid replacement for about six years now and starting to feel that quite soon I will have improved as much as I’m going to and I’m wondering if HRT could be the last part of what I need to feel more like me. I’ve remained reasonably well all things considered but it’s as though I’m a
Noelnoel
in
Thyroid UK
8 months ago
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Dad with Stage 4 PCa - Need some words of wisdom...again please!
Hi everyone. Just got back from appointment with Dad's oncologist. To keep you up to speed - 3 months ago, his ADT injections stopped working and his PSA started to climb up slowly. Oncologist put Dad on Enzalutamide - been on it for 6 cycles - tolerated well but his PSA has gone from 76 to 87 in one
Hi everyone. Just got back from appointment with Dad's oncologist. To keep you up to speed - 3 months ago, his ADT injections stopped working and his PSA started to climb up slowly. Oncologist put Dad on Enzalutamide - been on it for 6 cycles - tolerated well but his PSA has gone from 76 to 87 in one
kikinini
in
Advanced Prostate Cancer
8 months ago
Post Menopausal?
Hello This is my first time on this board but I am also on the Thyroid UK board - hello! I've always wondered about this - and hope that someone might be able to answer or have any other explanation? When I was 43 - nearly 10 years ago - I was diagnosed with an underactive thyroid via an ordinary
Hello This is my first time on this board but I am also on the Thyroid UK board - hello! I've always wondered about this - and hope that someone might be able to answer or have any other explanation? When I was 43 - nearly 10 years ago - I was diagnosed with an underactive thyroid via an ordinary
missrees
in
Menopause and Perimenopause Support
8 months ago
When To End An ADT Holiday
Just had a lengthy conversation with my MD Anderson MO who agrees with my Houston Methodist MO, i.e., it’s probably better, after an ADT holiday, to allow PSA to reach 0.5 so a PSMA scan can be used to identify any metastices, then zap the met(s), then go back on ADT to put the cancer back into remission
Just had a lengthy conversation with my MD Anderson MO who agrees with my Houston Methodist MO, i.e., it’s probably better, after an ADT holiday, to allow PSA to reach 0.5 so a PSMA scan can be used to identify any metastices, then zap the met(s), then go back on ADT to put the cancer back into remission
6357axbz
in
Advanced Prostate Cancer
8 months ago
Weird optical lights/constant bad headache
Hi everyone ❤️ OK for a while now I've been having bad headaches just thought it was apart of everything I've been going through... Struggling with thyroid medication, and being diagnosed with primary hyperparathyroidism. About 3 weeks ago I started seeing weird optical lights and strange light disturbances
Hi everyone ❤️ OK for a while now I've been having bad headaches just thought it was apart of everything I've been going through... Struggling with thyroid medication, and being diagnosed with primary hyperparathyroidism. About 3 weeks ago I started seeing weird optical lights and strange light disturbances
birkie
in
Thyroid UK
10 months ago
Stage 4. IMRT + HDR Brachytherapy
I have Stage 4 (metastasis in L2). Currently on ADT. I have chosen IMRT followed by HDR Brachytherapy. I'm starting IMRT in January 2024. What was you experience with this combination? Did it work? Any side effects? Thank you for your responses.
I have Stage 4 (metastasis in L2). Currently on ADT. I have chosen IMRT followed by HDR Brachytherapy. I'm starting IMRT in January 2024. What was you experience with this combination? Did it work? Any side effects? Thank you for your responses.
FightCancer101
in
Advanced Prostate Cancer
7 months ago
Extra heart beats - should I pursue this?
HiI have on going palpitations. They are partly what drove me to gp in 2019 when I was diagnosed. They are better than they were. I take 100/15. I have found They are less when I take my t3 all in one go. I am about to start trial of hrt. (I have a second post). The doctor sent me for an ECG. This
HiI have on going palpitations. They are partly what drove me to gp in 2019 when I was diagnosed. They are better than they were. I take 100/15. I have found They are less when I take my t3 all in one go. I am about to start trial of hrt. (I have a second post). The doctor sent me for an ECG. This
BiscuitBaby
in
Thyroid UK
8 months ago
HRT - does it take effect quickly?
Hi For those of you on hrt do you feel the difference quickly or is it slow like levo? I am just about to start a trial of oestrogen patches and progesterone tablets. I still have regular periods but have on going fatigue and muscle aches, palpitations etc. Gp thinks it's because I'm perimenopausal.
Hi For those of you on hrt do you feel the difference quickly or is it slow like levo? I am just about to start a trial of oestrogen patches and progesterone tablets. I still have regular periods but have on going fatigue and muscle aches, palpitations etc. Gp thinks it's because I'm perimenopausal.
BiscuitBaby
in
Thyroid UK
8 months ago
Stopped taking NDT thyroid
Hello, could you share your experiences if you tried stopping thyroid hormone replacement? I was on NDT for years, developed hyperthyroid symptoms +very low TSH (normal ft3 and ft4), had heart arrythmia and high blood pressure, lost a lot of hair. Taking NDT didn't help with my weight problems or other
Hello, could you share your experiences if you tried stopping thyroid hormone replacement? I was on NDT for years, developed hyperthyroid symptoms +very low TSH (normal ft3 and ft4), had heart arrythmia and high blood pressure, lost a lot of hair. Taking NDT didn't help with my weight problems or other
Monika4
in
Thyroid UK
8 months ago
ASH 2022 | Key highlights in CLL: clinical trial updates combination therapies novel BTKis Lindsey Roeker and Matthew Davids • 10 Dec 2022
ASH 2022 | Key highlights in CLL: clinical trial updates & the role of combination therapies and novel BTKis Lindsey Roeker and Matthew Davids • 10 Dec 2022 https://www.vjhemonc.com/video/m1hovnhu05w-key-highlights-in-cll-clinical-trial-updates-the-role-of-combination-therapies-and-novel-btkis/ https
ASH 2022 | Key highlights in CLL: clinical trial updates & the role of combination therapies and novel BTKis Lindsey Roeker and Matthew Davids • 10 Dec 2022 https://www.vjhemonc.com/video/m1hovnhu05w-key-highlights-in-cll-clinical-trial-updates-the-role-of-combination-therapies-and-novel-btkis/ https
lankisterguy
Volunteer
in
CLL Support
2 years ago
Addition of Metastasis-Directed Therapy to Intermittent Hormone Therapy for Oligometastatic PC. The EXTEND Phase 2 Randomized Clinical Trial
MDT and intermittent ADT offer a progression free survival advantage when compared with intermittent ADT alone. "MDT facilitated a longer time with eugonadal testosterone as part of an intermittent hormone therapy strategy." "Time to new lesion failure was longer for patients randomized to combined
MDT and intermittent ADT offer a progression free survival advantage when compared with intermittent ADT alone. "MDT facilitated a longer time with eugonadal testosterone as part of an intermittent hormone therapy strategy." "Time to new lesion failure was longer for patients randomized to combined
tango65
in
Advanced Prostate Cancer
1 year ago
TRT Causing Breast Enlargement
Has anyone on this site experienced breast enlargement while on TRT? Just curious as to how common this is. Am considering it because two years after ADT. (18 months Lupron and Bicalutamide) my T level is 66, PSA .28.
Has anyone on this site experienced breast enlargement while on TRT? Just curious as to how common this is. Am considering it because two years after ADT. (18 months Lupron and Bicalutamide) my T level is 66, PSA .28.
Jack54
in
Advanced Prostate Cancer
8 months ago
Biologic therapies
I am interested to know if anyone found the injection painful? My first was in the thigh and I am wondering if next time to try the arm or stomach area? Or am I just being a big baby?! 🫣
I am interested to know if anyone found the injection painful? My first was in the thigh and I am wondering if next time to try the arm or stomach area? Or am I just being a big baby?! 🫣
Headoverheels
in
Asthma Community Forum
1 year ago
coming off prostap
hi i had a Prostap injection 7 weeks ago for a pre op (which I didn’t have) I really did t get on well with it. Very very depressed mood and terrible anxiety, insomnia and crushing headaches. Also lost my appetite. I’ve never felt so poorly before :-( it was scary. Especially the mental health side
hi i had a Prostap injection 7 weeks ago for a pre op (which I didn’t have) I really did t get on well with it. Very very depressed mood and terrible anxiety, insomnia and crushing headaches. Also lost my appetite. I’ve never felt so poorly before :-( it was scary. Especially the mental health side
Lothead01
in
Endometriosis UK
8 months ago
Where to get Orgovyx?
Starting SBRT , likely next week with ADT starting at the time. I got my doc to prescribe Orgovyx rather than Lupron. On Medicare with Part D. Turns out Walgreens and Walmart cannot get Orgovyx. CVS said they could route it through a specialty pharmacy but could take 4 weeks. How have those of you taking
Starting SBRT , likely next week with ADT starting at the time. I got my doc to prescribe Orgovyx rather than Lupron. On Medicare with Part D. Turns out Walgreens and Walmart cannot get Orgovyx. CVS said they could route it through a specialty pharmacy but could take 4 weeks. How have those of you taking
ToolBeltZia
in
Prostate Cancer Network
8 months ago
Let's change the way we're treated by adding metabolic therapy to SOC
Some good recent videos on a subject Dr. Thomas Seyfried: https://youtu.be/u2s6z37YIzM?si=UXIhw6X4T0nPwAyV PCa specific discussion on the same: https://youtu.be/RbrX_ZrYxJg?si=wTRoC7-f2N6RDTY0 I must add: I've been on low-carb diet (Atkins) since 1999 and recently (August of this year) started
Some good recent videos on a subject Dr. Thomas Seyfried: https://youtu.be/u2s6z37YIzM?si=UXIhw6X4T0nPwAyV PCa specific discussion on the same: https://youtu.be/RbrX_ZrYxJg?si=wTRoC7-f2N6RDTY0 I must add: I've been on low-carb diet (Atkins) since 1999 and recently (August of this year) started
TryGuyCP
in
Advanced Prostate Cancer
8 months ago
help with Perimenopause anxiety/ depression
Hi has anyone found relief with their anxiety and depression using HRT. I’m feeling so desperate with many symptoms but these two are taking me over and a black cloud is following me everywhere. I’m on sertraline 100mg daily been on it a long time upping and downing the dosage. I was on 200mg last year
Hi has anyone found relief with their anxiety and depression using HRT. I’m feeling so desperate with many symptoms but these two are taking me over and a black cloud is following me everywhere. I’m on sertraline 100mg daily been on it a long time upping and downing the dosage. I was on 200mg last year
Junkjournal1
in
Menopause and Perimenopause Support
8 months ago
Dry-Needling and Low Level Laser Therapy By Physios: Does this really work and can it worsen tinnitus?
I triggered tinnitus and hyperacusis over 7 years ago now. Luckily it always went eventually but as of about 4 months ago it seems as if it is here to stay and a lot worse. An otologist told me that areas I said gave me pain could be consistent with TMJ issues and that he worked with a physio who could
I triggered tinnitus and hyperacusis over 7 years ago now. Luckily it always went eventually but as of about 4 months ago it seems as if it is here to stay and a lot worse. An otologist told me that areas I said gave me pain could be consistent with TMJ issues and that he worked with a physio who could
PuddingChipsAndGravy
in
Tinnitus UK
1 year ago
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