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Our Stories: being diagnosed with a rarer ovarian cancer - Monday 22 January, 3pm - 4pm
Good morning everyone We wanted to let you all know that next week, we will be hosting another session of the 'Our Stories' member-led series. In this new series, the Ovacome team will be joined by member speakers who will share their experiences of one specific aspect of living with a diagnosis of
Good morning everyone We wanted to let you all know that next week, we will be hosting another session of the 'Our Stories' member-led series. In this new series, the Ovacome team will be joined by member speakers who will share their experiences of one specific aspect of living with a diagnosis of
OvacomeSupport
My Ovacome Team
in
My Ovacome
9 months ago
Overwhelmed, what do I do next? Mutations In my Germline & a Tier 1 ATM Frameshift Alteration
My Germline is I’m missing a blm copy like a bloom syndrome drop My Genomic Tier 1 is a ATM Frameshift Alteration I have a battery of mutations listed in my profile bio. My PSA in the last 4 months is rising from <0.06 in October to 0.46 last week. I’m on Firmagon monthly, Zytiga with Prednisone
My Germline is I’m missing a blm copy like a bloom syndrome drop My Genomic Tier 1 is a ATM Frameshift Alteration I have a battery of mutations listed in my profile bio. My PSA in the last 4 months is rising from <0.06 in October to 0.46 last week. I’m on Firmagon monthly, Zytiga with Prednisone
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
Bad ct scan
Good morning Ladies, Does anyone have any information on pleural fluid in the lung? I’m currently on first line of RX for MBC in lung with faslodex. Scans are showing small pleural fluid and nodules, etc. I’m so scared! Any thoughts? Thanks, Susie
Good morning Ladies, Does anyone have any information on pleural fluid in the lung? I’m currently on first line of RX for MBC in lung with faslodex. Scans are showing small pleural fluid and nodules, etc. I’m so scared! Any thoughts? Thanks, Susie
Likes
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SHARE Metastatic Breast Cancer
6 months ago
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Left Basilar Atelectasis and consolidation, elevation of left hemidiaphragm
Your experience with atelectasis and consolidation including elevated diaphragm? Pulmonologist much better than thoracic surgeon I'm guessing? My primary referred me to thoracic surgeon for new 12mm lung nodule. The surgeon (seems very highly rated, lots of experience) said the nodule was not suspicious
Your experience with atelectasis and consolidation including elevated diaphragm? Pulmonologist much better than thoracic surgeon I'm guessing? My primary referred me to thoracic surgeon for new 12mm lung nodule. The surgeon (seems very highly rated, lots of experience) said the nodule was not suspicious
RichZi
in
Lung Conditions Community Forum
2 months ago
In vivo and on breast cancer bone metastasis but....100% with repurposed drugs
Ok they are not saying which drugs and I can quite understand them, but results seem very promising: https://medicalxpress.com/news/2024-04-drugs-hinder-bone-metastasis-breast.html "Based on their findings, the researchers predict that in the future, the treatment can be applied to human patients with
Ok they are not saying which drugs and I can quite understand them, but results seem very promising: https://medicalxpress.com/news/2024-04-drugs-hinder-bone-metastasis-breast.html "Based on their findings, the researchers predict that in the future, the treatment can be applied to human patients with
Maxone73
in
Fight Prostate Cancer
6 months ago
HELP WITH SIDE EFFECTS FROM ENZALUTAMIDE
In 2019 after a prolonged bout of diarrhea a blood test was ordered, the cause of the diarrhea was not discovered but the test indicated bone cancer. From there tests showed extensive bone mets and grade 9 Gleason APC. Chemotherapy radiation and firmagon followed. My psa went way down for about 18 months
In 2019 after a prolonged bout of diarrhea a blood test was ordered, the cause of the diarrhea was not discovered but the test indicated bone cancer. From there tests showed extensive bone mets and grade 9 Gleason APC. Chemotherapy radiation and firmagon followed. My psa went way down for about 18 months
Desrochers
in
Advanced Prostate Cancer
9 months ago
Treatment Options
PSA 4.7 (over 2 years it double and then doubled again) This is the Pathology report A: Prostate gland, left lateral posterior, biopsy: Benign prostatic tissue with mild chronic inflammation, no tumor present. B: Prostate gland, left lateral mid, biopsy: Benign prostatic tissue with mild chronic
PSA 4.7 (over 2 years it double and then doubled again) This is the Pathology report A: Prostate gland, left lateral posterior, biopsy: Benign prostatic tissue with mild chronic inflammation, no tumor present. B: Prostate gland, left lateral mid, biopsy: Benign prostatic tissue with mild chronic
Vortex12
in
Prostate Cancer Network
9 months ago
Any Data or MO Advice Regarding Dutasteride / Finasteride At Very Early Biochemical Recurrence?
Does anyone know of any studies or MO advice they've gotten regarding use of Dutasteride or Finasteride at very early signs of Biochemical Reccurrence (uPSA in the 0.03 - 0.1 range) prior to Salvage Radiotherapy? It's obviously going to slow PSA doubling time and thereby probably lengthen the time
Does anyone know of any studies or MO advice they've gotten regarding use of Dutasteride or Finasteride at very early signs of Biochemical Reccurrence (uPSA in the 0.03 - 0.1 range) prior to Salvage Radiotherapy? It's obviously going to slow PSA doubling time and thereby probably lengthen the time
jazj
in
Advanced Prostate Cancer
9 months ago
PSA Response From Broccoli Sprout Extract (Sulforaphane) May Due To Just Being Moderate ADT
I forgot I ran across this a 2 years ago as many with PCa diagnosis are very interested in Sulforaphane due to a lot of excitement from a few studies a few years ago. (This fueled an explosion of supplements on Amazon.) This however is one of the more expensive supplements and my jury is still out
I forgot I ran across this a 2 years ago as many with PCa diagnosis are very interested in Sulforaphane due to a lot of excitement from a few studies a few years ago. (This fueled an explosion of supplements on Amazon.) This however is one of the more expensive supplements and my jury is still out
jazj
in
Advanced Prostate Cancer
9 months ago
father psa 7 right after surgery
Hello! My father (61) was diagnosed with prostate cahcer in August with PSA 13 and Gleason 7.... - we are in Boston - he couldn't be seen for several months - had his prostate removed about 6 weeks ago - surgeon and pathologist thought they got it all, told us they took out an extra lymph to be safe
Hello! My father (61) was diagnosed with prostate cahcer in August with PSA 13 and Gleason 7.... - we are in Boston - he couldn't be seen for several months - had his prostate removed about 6 weeks ago - surgeon and pathologist thought they got it all, told us they took out an extra lymph to be safe
Ccullen91011
in
Advanced Prostate Cancer
9 months ago
Declining psa #9
Gm folks, hope all are having a wonderful New Year. I’m following up n giving results on using ivermectin, cbd oil, turmeric Vit b3,6,12 Vit c And zinc solely after eliminating ADT after 7 months, post Rp n rad… Psa dropped another .29 points to .66 down from .95 n psa was hovering 7 when I first got
Gm folks, hope all are having a wonderful New Year. I’m following up n giving results on using ivermectin, cbd oil, turmeric Vit b3,6,12 Vit c And zinc solely after eliminating ADT after 7 months, post Rp n rad… Psa dropped another .29 points to .66 down from .95 n psa was hovering 7 when I first got
Nfler
in
Advanced Prostate Cancer
9 months ago
ACTOv clinical trial
HiWonder if anyone is taking part in the ACTOv, trial for patients with high-grade serous and endometrioid ovarian cancer. My wife is facing a reoccurrence and further carboplatin treatment
HiWonder if anyone is taking part in the ACTOv, trial for patients with high-grade serous and endometrioid ovarian cancer. My wife is facing a reoccurrence and further carboplatin treatment
Cardiff05
in
My Ovacome
6 months ago
AMG 509 (Xaluritamig): update on this immunotherapy for mCRPC
They published the first findings on Cancer Discovery. "Efficacy as measured both by PSA and objective response by RECIST were encouraging in this heavily pretreated mCRPC population, and responses occurred with greater frequency in the higher-dose cohorts. PSA declines were seen starting with 0.1 mg
They published the first findings on Cancer Discovery. "Efficacy as measured both by PSA and objective response by RECIST were encouraging in this heavily pretreated mCRPC population, and responses occurred with greater frequency in the higher-dose cohorts. PSA declines were seen starting with 0.1 mg
Maxone73
in
Advanced Prostate Cancer
9 months ago
64Cu-SAR-bisPSMA Is Safe and Highly Effective in Detecting Tumours in Prostate Cancer Patients: results from COBRA trial
This could mean being way more precise in finding micro metastasis and in guided surgery! https://www.urotoday.com/recent-abstracts/urologic-oncology/prostate-cancer/149903-initial-cobra-results-clarity-s-sar-bispsma-is-safe-and-highly-effective-in-detecting-tumours-in-prostate-cancer-patients-phase
This could mean being way more precise in finding micro metastasis and in guided surgery! https://www.urotoday.com/recent-abstracts/urologic-oncology/prostate-cancer/149903-initial-cobra-results-clarity-s-sar-bispsma-is-safe-and-highly-effective-in-detecting-tumours-in-prostate-cancer-patients-phase
Maxone73
in
Advanced Prostate Cancer
7 months ago
High volume, advanced metastatic prostate cancer
Hello. I am looking for guidance. My dad (now 81) was diagnosed with metastatic prostate cancer at the initial point of diagnosis in the ER on 10/25/2022. It had spread to 8 bones and was all over his spine, hip, base of skull, etc, but also as far as the base of the skull, and shoulder. His PSA was
Hello. I am looking for guidance. My dad (now 81) was diagnosed with metastatic prostate cancer at the initial point of diagnosis in the ER on 10/25/2022. It had spread to 8 bones and was all over his spine, hip, base of skull, etc, but also as far as the base of the skull, and shoulder. His PSA was
lgutman
in
Advanced Prostate Cancer
7 months ago
Been on Firmagon with Zytiga and Prednisone PSA rising, what can I do next?
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
Piqray/Alpelisib (plus Fulvestrant injections) Trial so far
Hello everyone. From Stevie and me. Just popping in to let you all know that I am nearly 2 months into my Piqray journey. (The trial is called CAPTURE here in Melbourne) After having a terrible, terrible slump when I came off 5 1/2 years of Ibrance and Anastrozole, due to new mets in my liver, after
Hello everyone. From Stevie and me. Just popping in to let you all know that I am nearly 2 months into my Piqray journey. (The trial is called CAPTURE here in Melbourne) After having a terrible, terrible slump when I came off 5 1/2 years of Ibrance and Anastrozole, due to new mets in my liver, after
Timtam56
in
SHARE Metastatic Breast Cancer
9 months ago
Anti-Androgen Therapy and Bone Tumors in Prostate Cancer
Sorry guys, but I found this and all I can say is it scared the hell out of me. Now I don't know what to think. Maybe someone can sort it out. https://journals.lww.com/oncology-times/fulltext/2021/08050/anti_androgen_therapy_can_fuel_spread_of_bone.16.aspx Jeff Dunn AO, Professor and CEO of the Prostate
Sorry guys, but I found this and all I can say is it scared the hell out of me. Now I don't know what to think. Maybe someone can sort it out. https://journals.lww.com/oncology-times/fulltext/2021/08050/anti_androgen_therapy_can_fuel_spread_of_bone.16.aspx Jeff Dunn AO, Professor and CEO of the Prostate
85745
in
Advanced Prostate Cancer
9 months ago
SRBT and EXTEND trial
Does anybody have the full text of EXTEND trial results from June 2023? (my payment attempt is rejected and the tips on how to get a study without cost doesn´t work) https://pubmed.ncbi.nlm.nih.gov/37022702/ Addition of Metastasis-Directed Therapy to Intermittent Hormone Therapy for Oligometastatic
Does anybody have the full text of EXTEND trial results from June 2023? (my payment attempt is rejected and the tips on how to get a study without cost doesn´t work) https://pubmed.ncbi.nlm.nih.gov/37022702/ Addition of Metastasis-Directed Therapy to Intermittent Hormone Therapy for Oligometastatic
Purple-Bike
in
Advanced Prostate Cancer
9 months ago
Thyroid s supplier
forgot to mention in previous note any supplier detail needs to be DM’d!!! After 6 years of myxedema coma I’ve got brain of a muddled toddler. wee bit scary.
forgot to mention in previous note any supplier detail needs to be DM’d!!! After 6 years of myxedema coma I’ve got brain of a muddled toddler. wee bit scary.
joydot
in
Thyroid UK
9 months ago
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