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What's on at Ovacome next week? (week commencing Monday 6 May 2024)
Good morning everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 7 May - Gentle strengthening exercise class between 11:00am – 12:00pm : https://www.ovacome.org.uk/Event/exercise-class - Coventry &
Good morning everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 7 May - Gentle strengthening exercise class between 11:00am – 12:00pm : https://www.ovacome.org.uk/Event/exercise-class - Coventry &
OvacomeSupport
My Ovacome Team
in
My Ovacome
5 months ago
Uncertainty is the worst
Hello!To cut a long story short, I had Hodgkins lymphoma in 2005 and therefore am at higher risk of breast cancer. A CT scan showed that something in my right breast took the dye. The follow mammogram is not showing anything but I have very dense breast tissue. The right breast is now a whole cup size
Hello!To cut a long story short, I had Hodgkins lymphoma in 2005 and therefore am at higher risk of breast cancer. A CT scan showed that something in my right breast took the dye. The follow mammogram is not showing anything but I have very dense breast tissue. The right breast is now a whole cup size
Nightkittens
in
SHARE Breast Cancer Support
8 months ago
Pluvicto Treatment
So, I just completed my 3rd round of Pluvicto and my primary oncologist wanted me to do a CT scan w/contrast and a bone scan. The Ct showed some increase in cancer in the liver and a number of other spots. I am only doing Pluvicto and no other treatment as requested. Are there other people who are receiving
So, I just completed my 3rd round of Pluvicto and my primary oncologist wanted me to do a CT scan w/contrast and a bone scan. The Ct showed some increase in cancer in the liver and a number of other spots. I am only doing Pluvicto and no other treatment as requested. Are there other people who are receiving
Parscore
in
Advanced Prostate Cancer
5 months ago
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interesting concepts (not applicable yet): Modulating extracellular matrix stiffness - a strategic approach to boost cancer immunotherapy
”How can targeting ECM stiffness be optimized to achieve maximal efficacy in various types of cancer immunotherapy?”….now that’s a hell of a question! https://www.nature.com/articles/s41419-024-06697-4
”How can targeting ECM stiffness be optimized to achieve maximal efficacy in various types of cancer immunotherapy?”….now that’s a hell of a question! https://www.nature.com/articles/s41419-024-06697-4
Maxone73
in
Advanced Prostate Cancer
5 months ago
Triplet Therapy for HSPC
This article came over on the Prostate Cancer Newletter. https://www.onclive.com/view/dr-sharma-on-questions-regarding-the-optimal-use-of-triplet-therapies-in-hspc?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter I am unsure based on lack of detail and to a smaller extent a comment by
This article came over on the Prostate Cancer Newletter. https://www.onclive.com/view/dr-sharma-on-questions-regarding-the-optimal-use-of-triplet-therapies-in-hspc?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter I am unsure based on lack of detail and to a smaller extent a comment by
treedown
in
Advanced Prostate Cancer
8 months ago
Scared and Feeling Helpless
Let me start by saying that it was my intention to wait for an official diagnosis for my dad before I started posting here. I found this group recommended on the Prostate Cancer Reddit Forum. I’ve been really struggling lately with absolute utter fear and lack of control (more on that later). My dad
Let me start by saying that it was my intention to wait for an official diagnosis for my dad before I started posting here. I found this group recommended on the Prostate Cancer Reddit Forum. I’ve been really struggling lately with absolute utter fear and lack of control (more on that later). My dad
Cafu6
in
Advanced Prostate Cancer
8 months ago
Testosterone too high?
I recently had my quarterly PSA and T tests, following stopping 18 months of ADT (Orgovyx) in April of 2022. PSA continued to de undetectable (<0.01) and T was 761. The last quarterly T was 706. Having had an initial PC Dx of GL9, Stage 4, Decipher .76 (July 2019) should I be concerned that T is
I recently had my quarterly PSA and T tests, following stopping 18 months of ADT (Orgovyx) in April of 2022. PSA continued to de undetectable (<0.01) and T was 761. The last quarterly T was 706. Having had an initial PC Dx of GL9, Stage 4, Decipher .76 (July 2019) should I be concerned that T is
JPnSD
in
Advanced Prostate Cancer
8 months ago
*NEW online session - 6th February* Our stories: having a hereditary increased risk of ovarian cancer
Good morning all, On the 6th February at 2:00pm, Ovacome will be hosting the next in the 'Our stories' series, where we are joined by member speakers who will share their experiences of one specific aspect of living with a diagnosis. This session will feature Ovacome members Hilary and Sue, who will
Good morning all, On the 6th February at 2:00pm, Ovacome will be hosting the next in the 'Our stories' series, where we are joined by member speakers who will share their experiences of one specific aspect of living with a diagnosis. This session will feature Ovacome members Hilary and Sue, who will
OvacomeSupport
My Ovacome Team
in
My Ovacome
8 months ago
Niraparib Time Line?
Hi ladies I am a bit confused re the length of time you are kept on PARP treatment and what happens when you stop. I have been on Niraparib for over two years now, my oncologist said they will review after three years. I haven’t any problems, my bloods and CA 125 have always been good. I read so many
Hi ladies I am a bit confused re the length of time you are kept on PARP treatment and what happens when you stop. I have been on Niraparib for over two years now, my oncologist said they will review after three years. I haven’t any problems, my bloods and CA 125 have always been good. I read so many
Jingles6
in
My Ovacome
8 months ago
tp53 mutation
Hi All, my dad has been diagnosed with CLL and has just had it confirmed that he has the TP53 mutation/deletion. He is stable at the moment and is currently on watch & wait. His consultant has said if and when he starts treatment it will be for life or until it isn’t effective. I’ve read lots that say
Hi All, my dad has been diagnosed with CLL and has just had it confirmed that he has the TP53 mutation/deletion. He is stable at the moment and is currently on watch & wait. His consultant has said if and when he starts treatment it will be for life or until it isn’t effective. I’ve read lots that say
Fortheloveoffarming
in
CLL Support
5 months ago
liquid biopsy lung cancer
Hello everyone, Does anyone have experience of a liquid biopsy either via the NHS or privately? We got a second opinion, discussed the case with a professor who recommended a guardant 360 liquid biopsy due to the unusual spread into the other lung & appearance during biopsy which is apparently usually
Hello everyone, Does anyone have experience of a liquid biopsy either via the NHS or privately? We got a second opinion, discussed the case with a professor who recommended a guardant 360 liquid biopsy due to the unusual spread into the other lung & appearance during biopsy which is apparently usually
Clark74517796
in
The Roy Castle Lung Cancer Foundation
5 months ago
Different mutation?
I was just checking via my NHS app what had been sent to my GP, when I noticed on a letter from Guys this - it listed my mutations - CGN - normal karotype, NGS - CALR, L2AF1, ASXL2. (High risk markers) Previously I thought I was ASXL1, it could be a typo I suppose but does anyone know the difference
I was just checking via my NHS app what had been sent to my GP, when I noticed on a letter from Guys this - it listed my mutations - CGN - normal karotype, NGS - CALR, L2AF1, ASXL2. (High risk markers) Previously I thought I was ASXL1, it could be a typo I suppose but does anyone know the difference
lizzziep
in
MPN Voice
5 months ago
ADT Holiday?
I'm posting for my husband. Gleason 9, cdk12, reoccurrence 18 months after RP. Scans cancer in lymph node and possibly sternum. Had radiation and 2 successful years of Orgovyx and Zytiga. Dr says he can take a holiday from meds but my husband is concerned that the cancer will return without meds
I'm posting for my husband. Gleason 9, cdk12, reoccurrence 18 months after RP. Scans cancer in lymph node and possibly sternum. Had radiation and 2 successful years of Orgovyx and Zytiga. Dr says he can take a holiday from meds but my husband is concerned that the cancer will return without meds
RunnerBiker
in
Advanced Prostate Cancer
8 months ago
Chemo Failed
My dad finished Docetaxel in November. He went to oncologist today. His PSA went from 0.58 to 2.3. Things he tried: Lupron (on for years before failed) Zytiga (worked for 18 months) Orchidectomy Then the chemo. He is not a candidate for radiation because of a previous cancer. He is going to
My dad finished Docetaxel in November. He went to oncologist today. His PSA went from 0.58 to 2.3. Things he tried: Lupron (on for years before failed) Zytiga (worked for 18 months) Orchidectomy Then the chemo. He is not a candidate for radiation because of a previous cancer. He is going to
Jshaw916
in
Advanced Prostate Cancer
8 months ago
Failing ADT
Hi- I thought I would seek some advice before I meet with my MO tomorrow morning. I have responded well to treatment of metPC since my dx 11+ years ago. About 2+ years ago my PSA became measurable and was rising. After about a year or so I think it reached .37. Following a PSMA scan, my MO saw only
Hi- I thought I would seek some advice before I meet with my MO tomorrow morning. I have responded well to treatment of metPC since my dx 11+ years ago. About 2+ years ago my PSA became measurable and was rising. After about a year or so I think it reached .37. Following a PSMA scan, my MO saw only
jfoesq
in
Advanced Prostate Cancer
8 months ago
Recently diagnosed and trying to work out what to do! All advice gratefully received.
I was diagnosed this week. Still in shock a bit as I am a fit and very active 58 with no real symptoms. I have a psa of 7.7. Gleason Score 3+4 = 7 one in 10 cores with a 2.5mm tumour length whoich is 20% of the core involved. 30% of cores showed cribreform pattern 4 glands. Area of concern on MRIs
I was diagnosed this week. Still in shock a bit as I am a fit and very active 58 with no real symptoms. I have a psa of 7.7. Gleason Score 3+4 = 7 one in 10 cores with a 2.5mm tumour length whoich is 20% of the core involved. 30% of cores showed cribreform pattern 4 glands. Area of concern on MRIs
welshsky
in
Prostate Cancer Network
5 months ago
Personal update
Ok, first blood work, 3 weeks after the last chemo of ARASENS protocol PSA is 0.39, it was 70 at diagnosis and 15 after 4-5 weeks (when I have started ARASENS) Testosterone 0.33 nmol/L well, that's it!
Ok, first blood work, 3 weeks after the last chemo of ARASENS protocol PSA is 0.39, it was 70 at diagnosis and 15 after 4-5 weeks (when I have started ARASENS) Testosterone 0.33 nmol/L well, that's it!
Maxone73
in
Advanced Prostate Cancer
8 months ago
Always hit pca hard especially in the beginning and follow your instincts, You are Your Own Best Advocate.
Update Husband fighting with Stage 4 pca 06/2022 3 lytic lesions Seen same Medical Oncologist since 07/2022 Received a call from PA after only in this fight for 1.8 years and my husband has liver metastaties We don’t know how many or how big, as MO has not released pet scan of course we are devastated
Update Husband fighting with Stage 4 pca 06/2022 3 lytic lesions Seen same Medical Oncologist since 07/2022 Received a call from PA after only in this fight for 1.8 years and my husband has liver metastaties We don’t know how many or how big, as MO has not released pet scan of course we are devastated
Shorehousejam
in
Advanced Prostate Cancer
5 months ago
Today was a good day
My husband had his PSMA scan today and it was negative for mets!! I am so relieved! He also had his PSA tested today and no change since December. I feel like I can breathe for a moment. We also met with the radiation oncologist this morning to discuss brachytherapy boost and it was a very positive meeting
My husband had his PSMA scan today and it was negative for mets!! I am so relieved! He also had his PSA tested today and no change since December. I feel like I can breathe for a moment. We also met with the radiation oncologist this morning to discuss brachytherapy boost and it was a very positive meeting
EvFC
in
Advanced Prostate Cancer
5 months ago
PSA to have stabilized after skyrocketing. What does this mean?
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
SViking
in
Advanced Prostate Cancer
8 months ago
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