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Major Progression on Orserdu. Went from one spine met to multiple Mets and now liver. Has anyone had Tredlovy infusions?
HR/PR+HER- Chemo/Radiation/Mastectomy Ibrance/Faslodex/Orserdu
HR/PR+HER- Chemo/Radiation/Mastectomy Ibrance/Faslodex/Orserdu
Elle713
in
SHARE Metastatic Breast Cancer
4 months ago
How often do you have MRI scans?
I was diagnosed with a 5mm acoustic neuroma a year ago after having chronic migraine and several other neurological symptoms for a few years. A month ago, I had another MRI to check if the tumour has grown. It hasn't, it's the same size. Now I received a letter saying that my next scan will be in 3 years
I was diagnosed with a 5mm acoustic neuroma a year ago after having chronic migraine and several other neurological symptoms for a few years. A month ago, I had another MRI to check if the tumour has grown. It hasn't, it's the same size. Now I received a letter saying that my next scan will be in 3 years
Lemon00
in
Acoustic Neuroma Support
4 months ago
I would appreciate it if you could give me your help and advice!
Hello everybody I would like to ask you about my dad! He is 65 years old with metastatic cancer (PCa)at his liver! He underwent chemotherapy (10 rounds of Cabazitaxel) and today was his last one! I would like to know what the next steps,according to your personal experience! He will have scans and everything
Hello everybody I would like to ask you about my dad! He is 65 years old with metastatic cancer (PCa)at his liver! He underwent chemotherapy (10 rounds of Cabazitaxel) and today was his last one! I would like to know what the next steps,according to your personal experience! He will have scans and everything
Natashakay
in
Advanced Prostate Cancer
4 months ago
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Colon Journey
I thought I’d share my journey leading up to this point and I hope to continue to update as things move along. I hate it when nobody updates. Timeline: 12 years ago: After my first daughter turned 1 I went to the bathroom with blood in stool. It was super bright red and a lot. Went to the doctor and
I thought I’d share my journey leading up to this point and I hope to continue to update as things move along. I hate it when nobody updates. Timeline: 12 years ago: After my first daughter turned 1 I went to the bathroom with blood in stool. It was super bright red and a lot. Went to the doctor and
Cleaneats
in
Colon Cancer Connected
8 months ago
Metastatic breast cancer and lung cancer
I had breast cancer diagnosed in 2007 along with unrelated lung cancer. Bilateral mastectomies, chemo and radiation then upper left lung removed. Started oral chemo on Afinitor and exemestane shortly thereafter. Have had gamma radiation times three for liver mets and currently have three new tumors in
I had breast cancer diagnosed in 2007 along with unrelated lung cancer. Bilateral mastectomies, chemo and radiation then upper left lung removed. Started oral chemo on Afinitor and exemestane shortly thereafter. Have had gamma radiation times three for liver mets and currently have three new tumors in
Oberammergaux2
in
SHARE Metastatic Breast Cancer
4 months ago
Heart Disease and Abiraterone/Zytiga
Hello Warriors My husband had a calcium score done and it shows atherosclerotic disease. Dr wants to increase statin dose but the Zytiga side effects are giving him increase joint pain and discomfort.We will see his cardiologist in April. Have any of you seen any increase in heart related issues( calcification
Hello Warriors My husband had a calcium score done and it shows atherosclerotic disease. Dr wants to increase statin dose but the Zytiga side effects are giving him increase joint pain and discomfort.We will see his cardiologist in April. Have any of you seen any increase in heart related issues( calcification
Keeper70
in
Advanced Prostate Cancer
8 months ago
fast-rising PSA
I’m in the control group for the new Lutetium-177–PSMA-617 study re: use of Lutetium in the early stages of treatment for metastatic disease, pre-chemo. I was diagnosed 3/23 - high volume/high risk, and have been on Firmagon and Abiraterone plus pred. In Sept my PSA started to rise, with testosterone
I’m in the control group for the new Lutetium-177–PSMA-617 study re: use of Lutetium in the early stages of treatment for metastatic disease, pre-chemo. I was diagnosed 3/23 - high volume/high risk, and have been on Firmagon and Abiraterone plus pred. In Sept my PSA started to rise, with testosterone
NewGame
in
Advanced Prostate Cancer
8 months ago
List of good Genetic Tests in Homologous Recombination Deficiency in PCa and the Mechanisms of Resistance to PARP Inhibitors
I was searching RAD50 and PARPinhibitors and since i am going for a high risk genetic consult i came across this good explanation of different genetic testing. Title of article:
Homologous Recombination Deficiency in Ovarian, Breast, Colorectal, Pancreatic, Non-Small Cell Lung and Prostate Cancers
I was searching RAD50 and PARPinhibitors and since i am going for a high risk genetic consult i came across this good explanation of different genetic testing. Title of article:
Homologous Recombination Deficiency in Ovarian, Breast, Colorectal, Pancreatic, Non-Small Cell Lung and Prostate Cancers
KocoPr
in
Advanced Prostate Cancer
4 months ago
Looking for options after Verzenio.
Spoke with my onc today and she said if Verzenio fails she’s thinking about Afinitor. Said I’m running out of options and IV chemo might not be far off after that. I’ve been on Faslodex, Anastrozole, Ibrance and Verzenio is my 3rd line of treatment. No mutations. I feel like there are many more options
Spoke with my onc today and she said if Verzenio fails she’s thinking about Afinitor. Said I’m running out of options and IV chemo might not be far off after that. I’ve been on Faslodex, Anastrozole, Ibrance and Verzenio is my 3rd line of treatment. No mutations. I feel like there are many more options
Nocillo
in
SHARE Metastatic Breast Cancer
4 months ago
Looking for medical oncologist at Memorial Sloan Kettering.
I was diagnosed one year ago with two very small tumors, one on each lobe. Gleason 6, grade group one. Less than 5% involvement in each tumor. Decipher of 0.28, which suggests low aggressiveness. PSA has remained 0.7 for a many years. Although I think Fox Chase Cancer center in Philadelphia is a fine
I was diagnosed one year ago with two very small tumors, one on each lobe. Gleason 6, grade group one. Less than 5% involvement in each tumor. Decipher of 0.28, which suggests low aggressiveness. PSA has remained 0.7 for a many years. Although I think Fox Chase Cancer center in Philadelphia is a fine
bubularich
in
Prostate Cancer Network
4 months ago
Experience/Opinions on: Pembrolizumab + Lenvatinib for NEPC/SCPC
In January I was diagnosed with SCPC with liver metastasis. My first line of treatment was Platinum based chemo (carboplatin+etoposide). This treatment failed after 3 infusions with radiographic progression on CT Scan. ----- ... HEPATOBILIARY: Innumerable bilobar hepatic metastasis have progressed
In January I was diagnosed with SCPC with liver metastasis. My first line of treatment was Platinum based chemo (carboplatin+etoposide). This treatment failed after 3 infusions with radiographic progression on CT Scan. ----- ... HEPATOBILIARY: Innumerable bilobar hepatic metastasis have progressed
skiingfiend
in
Advanced Prostate Cancer
4 months ago
delivery day: Body’s ‘message in a bottle’ delivers targeted cancer treatment
“Researchers at Karolinska Institutet in Sweden have succeeded in delivering targeted cancer treatment via small membrane bubbles that our cells use to communicate. A new study published in Nature Biomedical Engineering shows that the treatment reduces tumour growth and improves survival in mice.”
“Researchers at Karolinska Institutet in Sweden have succeeded in delivering targeted cancer treatment via small membrane bubbles that our cells use to communicate. A new study published in Nature Biomedical Engineering shows that the treatment reduces tumour growth and improves survival in mice.”
Maxone73
in
Advanced Prostate Cancer
4 months ago
Recurence
Hi wondered what side effects with niropirad as am being offereredjust out hospital after total hysterectomy omentom removed and shock stoma was given mopup chemo that put me in hospital just don't feel ready for more treatments as last year in out of hospital no normal life been told they removed
Hi wondered what side effects with niropirad as am being offereredjust out hospital after total hysterectomy omentom removed and shock stoma was given mopup chemo that put me in hospital just don't feel ready for more treatments as last year in out of hospital no normal life been told they removed
PaumicB123
in
My Ovacome
4 months ago
Zytiga issue solved…
A big thank you to all who weighed in on whether I should take a lesser dose of abiraterone with food or just go without for a few days…….when I called my insurance company and got to talk to someone who gave a hoot it was discovered that a new pre-Auth was NOT needed…….10 or more phone calls later
A big thank you to all who weighed in on whether I should take a lesser dose of abiraterone with food or just go without for a few days…….when I called my insurance company and got to talk to someone who gave a hoot it was discovered that a new pre-Auth was NOT needed…….10 or more phone calls later
Tommyj2
in
Advanced Prostate Cancer
8 months ago
Bilateral frontal calvarial metastases
Has anyone in the forum experienced bilateral frontal calvarial metastases associated with their PCa? I recently had a brain MRI where this metastases was identified. The assessing physicians impression was that there is no worrisome parenchymal or leptomeningeal enhancement and did not recommend any
Has anyone in the forum experienced bilateral frontal calvarial metastases associated with their PCa? I recently had a brain MRI where this metastases was identified. The assessing physicians impression was that there is no worrisome parenchymal or leptomeningeal enhancement and did not recommend any
kklott01
in
Advanced Prostate Cancer
6 months ago
IS THIS A PATTERN???? Thoughts and helpful ideas to guide a path
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Mrtroxely
in
Advanced Prostate Cancer
8 months ago
Is there seasonality to testosterone levels?
My ADT treatments (Lupron/Abiraterone/Prednisone) ended on May 02 2023 at which point both my PSA and Testosterone were flat lined. Here are the results of the four times I have been tested since the end of the ADT. * Aug 18 2023: PSA is 0.09, Testosterone is 3.3 nmol/l (95.2 ng/dL), Testosterone
My ADT treatments (Lupron/Abiraterone/Prednisone) ended on May 02 2023 at which point both my PSA and Testosterone were flat lined. Here are the results of the four times I have been tested since the end of the ADT. * Aug 18 2023: PSA is 0.09, Testosterone is 3.3 nmol/l (95.2 ng/dL), Testosterone
Mascouche
in
Advanced Prostate Cancer
8 months ago
Skull met!
I am receiving radiation on a skull med on my left side, just passed my optical nerve area. I am wondering if I should have another MRI after the fifth or sixth radiation treatment to see if the med has been eliminated or should they continue on with the complete 10 treatments? any suggestions would
I am receiving radiation on a skull med on my left side, just passed my optical nerve area. I am wondering if I should have another MRI after the fifth or sixth radiation treatment to see if the med has been eliminated or should they continue on with the complete 10 treatments? any suggestions would
docbulldog
in
Advanced Prostate Cancer
4 months ago
Well, three years in…..
Since initial DX of Gleason 4+4….. at that time was stage 4 high volume metastic disease. PSA can move up and down quickly. went up 10 points in a week went down 33 points in a month, without treatment. i went from NED of disease to PSA of 28.5 in six months. it’s a spunky little bastard. sorta like
Since initial DX of Gleason 4+4….. at that time was stage 4 high volume metastic disease. PSA can move up and down quickly. went up 10 points in a week went down 33 points in a month, without treatment. i went from NED of disease to PSA of 28.5 in six months. it’s a spunky little bastard. sorta like
FulThrotl
in
Advanced Prostate Cancer
4 months ago
treatment without surgery
hi, I’m new on here. First sorry to read and see what you are all going through, you are all very strong and brave. It’s my mum that has ovarian cancer stage 4, had 6 rounds of chemo then surgery - however the surgeon couldn’t operate as there was too much cancer to remove. My question is, has anyone
hi, I’m new on here. First sorry to read and see what you are all going through, you are all very strong and brave. It’s my mum that has ovarian cancer stage 4, had 6 rounds of chemo then surgery - however the surgeon couldn’t operate as there was too much cancer to remove. My question is, has anyone
Holsgram
in
My Ovacome
8 months ago
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