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Stopping Tagrisso
Hi, I was diagnosed in May 2021 with lung cancer, adenocarcinoma, EFGR, I was very breathless, couldn’t eat and fatigued at the beginning. When I had results of lung biopsy, I was told I was suitable to be treated with Tagrisso, a target treatment, daily tablet, this was July 2021. I had few side
Hi, I was diagnosed in May 2021 with lung cancer, adenocarcinoma, EFGR, I was very breathless, couldn’t eat and fatigued at the beginning. When I had results of lung biopsy, I was told I was suitable to be treated with Tagrisso, a target treatment, daily tablet, this was July 2021. I had few side
Goldmoon
in
The Roy Castle Lung Cancer Foundation
6 months ago
Another Xray but why ?
Hi all. I haven't been here for quite a long time so I hope that you are all coping and getting all the help and support you need. This forum helped me so much. Unfortunately, I now have multiple problems because of the lung misdiagnosis and because of negligence by our hospital. Another long story
Hi all. I haven't been here for quite a long time so I hope that you are all coping and getting all the help and support you need. This forum helped me so much. Unfortunately, I now have multiple problems because of the lung misdiagnosis and because of negligence by our hospital. Another long story
Danni54
in
Lung Cancer Support
6 months ago
Please Join Us! Tuesday January 9th, Gathering HOPE Community Social
Hello, Happy New Year! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, January 9th, at 5pm
Hello, Happy New Year! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, January 9th, at 5pm
Michelezeh
Partner
in
Lung Cancer Support
6 months ago
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Appointment update
Well guys, I've had my appointment today at the head and neck cancer clinic.I do not have head & neck cancer on my lungs I have lung cancer of various types in miniscule sizes that are causing me no problems at the moment. I will have 3 monthly ct scan 2 see if they grow if not have anything done, if
Well guys, I've had my appointment today at the head and neck cancer clinic.I do not have head & neck cancer on my lungs I have lung cancer of various types in miniscule sizes that are causing me no problems at the moment. I will have 3 monthly ct scan 2 see if they grow if not have anything done, if
Mindini1964
in
The Roy Castle Lung Cancer Foundation
6 months ago
new diagnosis
Hi I am new here. 49 and Just had the results of my ct scan and it’s looking like lung cancer not much more info. I have no symptoms apart from a sore shoulder blade, I was referred for a chest xray in Dec after having a bad cough from what I think was covid. I have a biopsy on the 3rd and should have
Hi I am new here. 49 and Just had the results of my ct scan and it’s looking like lung cancer not much more info. I have no symptoms apart from a sore shoulder blade, I was referred for a chest xray in Dec after having a bad cough from what I think was covid. I have a biopsy on the 3rd and should have
Clairemc0974
in
The Roy Castle Lung Cancer Foundation
6 months ago
Alone and Surgery 03/01/2024
Hello All, I am 60 on the 1st January 2024 and I am having an upper lobectomy 2 days after. Cancer was picked up by the targeted lung cancer team initiative CT scan and confirmed by PET scan, luckily it seems to have been picked up early and not spread elsewhere I live alone and don't have a support
Hello All, I am 60 on the 1st January 2024 and I am having an upper lobectomy 2 days after. Cancer was picked up by the targeted lung cancer team initiative CT scan and confirmed by PET scan, luckily it seems to have been picked up early and not spread elsewhere I live alone and don't have a support
xinte60
in
The Roy Castle Lung Cancer Foundation
7 months ago
Re Introduction Hi everyone
Hi everyone My name is sara brown.I joined this community a long time ago because I was diagnosed with ILD in 2019 but havent posted for years so I thought Id better re-introduce myself A lot has happened to me -I have been put on Oxygen 24/7 at home which does limit my going out for example
Hi everyone My name is sara brown.I joined this community a long time ago because I was diagnosed with ILD in 2019 but havent posted for years so I thought Id better re-introduce myself A lot has happened to me -I have been put on Oxygen 24/7 at home which does limit my going out for example
horseygirl_0103
in
Living with Interstitial Lung Disease (ILD)
7 months ago
Lung Transplant appointment 28/11/23 Cancellled for the 2nd time due to Failure of Patient Transport
I was supposed to be having my lung transplant assessment today (28/11) at 2.45 but as before the NWAS didnt turn up. The manager at the Transplant section phoned & told me if I didnt come to the hospital they wouldn't see me. We had to explain we were waiting for the ambulance - he then cancelled the
I was supposed to be having my lung transplant assessment today (28/11) at 2.45 but as before the NWAS didnt turn up. The manager at the Transplant section phoned & told me if I didnt come to the hospital they wouldn't see me. We had to explain we were waiting for the ambulance - he then cancelled the
Sara_2611
in
Lung Conditions Community Forum
7 months ago
Newly Diagnosed
Hello every one, I've had a terrible 3 or 4 months. My sister was diagnosed with lung cancer in August and unfortunately died in September aged 61.I was heartbroken and was suffering with a very hoarse voice. My doctor sent me for an xray which showed a shadow on my lung. I have since had a pet scan
Hello every one, I've had a terrible 3 or 4 months. My sister was diagnosed with lung cancer in August and unfortunately died in September aged 61.I was heartbroken and was suffering with a very hoarse voice. My doctor sent me for an xray which showed a shadow on my lung. I have since had a pet scan
Mindini1964
in
The Roy Castle Lung Cancer Foundation
7 months ago
lung cancer
Recently diagnosed and now awaiting surgery to remove lower lung. I feel very anxious and would love to hear from anyone who has gone through this.
Recently diagnosed and now awaiting surgery to remove lower lung. I feel very anxious and would love to hear from anyone who has gone through this.
Sally789
in
The Roy Castle Lung Cancer Foundation
7 months ago
Please Join us tomorrow, November 16th for our Coming Together Globally to Combat Stigma Living Room
Hello, As we all know it is Lung Cancer Awareness Month (LCAM) so we at GO2 wanted to have a Living Room program that we could reach globally. In order to bring in speakers and a topic in our Living Room from all over the world we had to change the date, time and day. We are excited to bring together
Hello, As we all know it is Lung Cancer Awareness Month (LCAM) so we at GO2 wanted to have a Living Room program that we could reach globally. In order to bring in speakers and a topic in our Living Room from all over the world we had to change the date, time and day. We are excited to bring together
Michelezeh
Partner
in
Lung Cancer Support
8 months ago
Mum has lung cancer stage 4 BRAF Tumour
Hello Everyone My 84 year old Mum has just had a diagnosis of Lung Cancer Stage 4. It’s a BRAF tumour which is quite unusual. She has until now been fit and healthy walking and swimming regularly and has had only problems with her Thyroid. She has been told her prognosis is 3-6 months with treatment
Hello Everyone My 84 year old Mum has just had a diagnosis of Lung Cancer Stage 4. It’s a BRAF tumour which is quite unusual. She has until now been fit and healthy walking and swimming regularly and has had only problems with her Thyroid. She has been told her prognosis is 3-6 months with treatment
Beetro84
in
The Roy Castle Lung Cancer Foundation
8 months ago
International Lung Cancer Livingroom 1400 GMT. 16th November.
Save the date- the Roy Castle Foundation and Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Copy and pasted) -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov
Save the date- the Roy Castle Foundation and Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Copy and pasted) -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov
Denzie
in
The Roy Castle Lung Cancer Foundation
8 months ago
Special time for an International Lung Cancer Livingroom. Accessible to many countries. November 16 at 12:00 eastern.
Save the date- Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Coped and pasted from email). -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov. 16* during Lung
Save the date- Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Coped and pasted from email). -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov. 16* during Lung
Denzie
Volunteer
in
Lung Cancer Support
8 months ago
immunotherapy damaging kidneys
hi My mother has been having successful treatment for stage 3 lung cancer, but the immunotherapy has negatively affected her kidneys, so she is having steroids and they have said they cannot continue to offer the immunotherapy. We are awaiting a scan appointment & they may then discuss radiotherapy,
hi My mother has been having successful treatment for stage 3 lung cancer, but the immunotherapy has negatively affected her kidneys, so she is having steroids and they have said they cannot continue to offer the immunotherapy. We are awaiting a scan appointment & they may then discuss radiotherapy,
SharonTan
in
The Roy Castle Lung Cancer Foundation
8 months ago
Please Join Us! Tuesday November 14th, Gathering HOPE Community Social
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, November 14th, at 5pm PT/8pm ET.
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, November 14th, at 5pm PT/8pm ET.
Michelezeh
Partner
in
Lung Cancer Support
8 months ago
Nintedanib
Hi, I am absolutely useless with technology…… I wrote a lengthy update about myself, this drug, other drugs, hospital stay, decline of lung transplant at Harefield, referral to palliative care, oxygen - sorry goes on and on, just wanted to share the year’s overall experience. I can’t find the update
Hi, I am absolutely useless with technology…… I wrote a lengthy update about myself, this drug, other drugs, hospital stay, decline of lung transplant at Harefield, referral to palliative care, oxygen - sorry goes on and on, just wanted to share the year’s overall experience. I can’t find the update
Bonchops10
in
Living with Interstitial Lung Disease (ILD)
8 months ago
Waiting game
Hi everyone, I don't have the flu jab, mainly because I have so much pain in my arm and it makes me feel so unwell, doctor not happy as I have severe COPD, not had the jab for last 3 years, touch wood do not suffer from colds flu etc. No covid follow ups either. Call me stupid, but we all do what is
Hi everyone, I don't have the flu jab, mainly because I have so much pain in my arm and it makes me feel so unwell, doctor not happy as I have severe COPD, not had the jab for last 3 years, touch wood do not suffer from colds flu etc. No covid follow ups either. Call me stupid, but we all do what is
purdeyspringer
in
Lung Conditions Community Forum
8 months ago
just advice support
I don’t really know what I want from this post only that it’s nearly 2am and I feel completely broken and wanted to put it down somewhere. I feel like I am breaking and I don’t want to upset anyone else with my worries, because they are worrying to and I don’t want sympathy from people I love because
I don’t really know what I want from this post only that it’s nearly 2am and I feel completely broken and wanted to put it down somewhere. I feel like I am breaking and I don’t want to upset anyone else with my worries, because they are worrying to and I don’t want sympathy from people I love because
Helpplease_
in
ICUsteps
8 months ago
Lung Cancer Treatment
Have been diagnosed with lung cancer again (but now on the right), 6 years later, but this time they think caused by the radiotherapy I had for the breast cancer! Inoperable (have COPD), so I had the option of 'doing nothing' and was informed today may have 5 months left or agree to treatment, which
Have been diagnosed with lung cancer again (but now on the right), 6 years later, but this time they think caused by the radiotherapy I had for the breast cancer! Inoperable (have COPD), so I had the option of 'doing nothing' and was informed today may have 5 months left or agree to treatment, which
younginmind
in
Lung Conditions Community Forum
8 months ago
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