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Immunotherapy
I'm just starting out on immunotherapy and would like to share experiences with others on the same drug. - Pembrolizumab. I'm due my 2nd treatment tomorrow. For someone who avoids taking anything stronger than paracetamol, it's all a bit scary. I haven't met anyone with lung cancer yet, and other
I'm just starting out on immunotherapy and would like to share experiences with others on the same drug. - Pembrolizumab. I'm due my 2nd treatment tomorrow. For someone who avoids taking anything stronger than paracetamol, it's all a bit scary. I haven't met anyone with lung cancer yet, and other
Gingergus
in
The Roy Castle Lung Cancer Foundation
4 months ago
DAO Supplement + Lung Transplant.
Hello, I realise this is going to be a very strange post, but this is stress that this is a genuine question / request, I may need a lung transplant in the near future. Nothing is set in stone yet, but it's a possibility. I haven't been in contact with a transplant team yet or anything. One possible
Hello, I realise this is going to be a very strange post, but this is stress that this is a genuine question / request, I may need a lung transplant in the near future. Nothing is set in stone yet, but it's a possibility. I haven't been in contact with a transplant team yet or anything. One possible
mrblue12
in
Lung Conditions Community Forum
4 months ago
Lung Transplant + Fermented Foods
Hello, I have a question for lung transplant recipients: are you allowed to eat anything fermented? I may need a transplant in the near future, but I have a histamine problem which is controlled with antihistamines and DAO tablets. The problem is that the DAO tablets are essentially fermented peas
Hello, I have a question for lung transplant recipients: are you allowed to eat anything fermented? I may need a transplant in the near future, but I have a histamine problem which is controlled with antihistamines and DAO tablets. The problem is that the DAO tablets are essentially fermented peas
mrblue12
in
Lung Conditions Community Forum
4 months ago
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Are you in London? Next Information Day 13/3
Hello all, If you have had a diagnosis or are supporting someone with lung cancer you might be interested in joining our next Information Day. This will be held from 9.45 - 15.30 in London at the AFC Wimbledon club SW17 0NR. The day will have updates on targeted therapies, surgery and other treatments
Hello all, If you have had a diagnosis or are supporting someone with lung cancer you might be interested in joining our next Information Day. This will be held from 9.45 - 15.30 in London at the AFC Wimbledon club SW17 0NR. The day will have updates on targeted therapies, surgery and other treatments
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
5 months ago
Treatment stopped
We thought Erlotinib was working for my dad, his tumour had reduced significantly on October scan ( started on drug Aug 23) but Jan scan showed growth, cough back and has been getting steadily worse with weight down to 7 stone ,diarrhoea and debilitating fatigue. Although Oncologist thought a standard
We thought Erlotinib was working for my dad, his tumour had reduced significantly on October scan ( started on drug Aug 23) but Jan scan showed growth, cough back and has been getting steadily worse with weight down to 7 stone ,diarrhoea and debilitating fatigue. Although Oncologist thought a standard
Adaughter
in
The Roy Castle Lung Cancer Foundation
5 months ago
Radiotherapy
Hello,I'm a 51 yrs old woman that has just very recently been diagnosed with advanced lung cancer. Just reaching out and trying to understand from others.
Hello,I'm a 51 yrs old woman that has just very recently been diagnosed with advanced lung cancer. Just reaching out and trying to understand from others.
Raggety
in
The Roy Castle Lung Cancer Foundation
5 months ago
Media request - London biopsy experience
Hello We have had this request from a producer at Sky news "This is Eleonora, Specialist Producer at Sky News, We’re planning to do a story about this technology trialled by Imperial researchers to detect lung cancer and were trying to speak with some people affected by lung cancer in London who
Hello We have had this request from a producer at Sky news "This is Eleonora, Specialist Producer at Sky News, We’re planning to do a story about this technology trialled by Imperial researchers to detect lung cancer and were trying to speak with some people affected by lung cancer in London who
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
5 months ago
Events for people affected by lung cancer
Hello all, We are starting a series of Information Days in a few weeks. These events which run from 9.45 - 3.30 are designed to offer information about managing diagnosis, treatment and services that can offer practical and emotional support. There is time for talking to other people and asking questions
Hello all, We are starting a series of Information Days in a few weeks. These events which run from 9.45 - 3.30 are designed to offer information about managing diagnosis, treatment and services that can offer practical and emotional support. There is time for talking to other people and asking questions
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
5 months ago
Please join us tomorrow, Tuesday February 20th, for our Living Room Discussion on Women and Lung Cancer
Hello, Please join us in our San Carlos office tomorrow, Tuesday February 20th in person or if you don’t live in the area, you can always join us virtually on GO2's YouTube Live channel. Our program topic will be Women and Lung Cancer. Our guest speaker is Narjust Florez, MD, Associate Director of
Hello, Please join us in our San Carlos office tomorrow, Tuesday February 20th in person or if you don’t live in the area, you can always join us virtually on GO2's YouTube Live channel. Our program topic will be Women and Lung Cancer. Our guest speaker is Narjust Florez, MD, Associate Director of
Michelezeh
Partner
in
Lung Cancer Support
5 months ago
FDA Approves Tepmetko (tepotinib) for People with Metastatic Non-Small Cell Lung Cancer with MET-Exon 14 Mutation
On Feb. 15, 2024, the U.S. Food and Drug Administration (FDA) granted traditional approval of Tepmetko (tepotinib) for people living with metastatic non-small cell lung cancer (NSCLC) with a MET-Exon 14 mutation. Tepmetko (tepotinib) initially received accelerated approval in 2021 based on initial results
On Feb. 15, 2024, the U.S. Food and Drug Administration (FDA) granted traditional approval of Tepmetko (tepotinib) for people living with metastatic non-small cell lung cancer (NSCLC) with a MET-Exon 14 mutation. Tepmetko (tepotinib) initially received accelerated approval in 2021 based on initial results
Miranda_GO2
Partner
in
Lung Cancer Support
5 months ago
Clinical trials?
At the oncology appointment yesterday my husband was given what I believe is an amazing opportunity, he has the option of starting standard care ( immunotherapy pembrolizumab ) or participating in clinical trials where they will be also adding a second drug for a two pronged approach. Whilst I know
At the oncology appointment yesterday my husband was given what I believe is an amazing opportunity, he has the option of starting standard care ( immunotherapy pembrolizumab ) or participating in clinical trials where they will be also adding a second drug for a two pronged approach. Whilst I know
Flay75
in
The Roy Castle Lung Cancer Foundation
5 months ago
Virtual website advisory board for US Residents
*This is post was approved by GO2 for Lung Cancer Admin* A healthcare company is seeking patients who are 18 years and older who have been diagnosed with lung, ovarian, breast, endometrial or other solid tumor cancers to participate in a virtual Website Advisory Board in early 2024. The objective of
*This is post was approved by GO2 for Lung Cancer Admin* A healthcare company is seeking patients who are 18 years and older who have been diagnosed with lung, ovarian, breast, endometrial or other solid tumor cancers to participate in a virtual Website Advisory Board in early 2024. The objective of
Miranda_GO2
Partner
in
Lung Cancer Support
5 months ago
Any tips for recovery please
Had 2/3 of my right lung removed beginning of January for yet unknown lung cancer (Will see consultant for pathology this week) I coped alone with recovery but was do able. 2 Weeks ago after visiting A&E and a CT scan, I was found to have Pulmonary Embolisms in both lungs and Pneumonia in surgery lung
Had 2/3 of my right lung removed beginning of January for yet unknown lung cancer (Will see consultant for pathology this week) I coped alone with recovery but was do able. 2 Weeks ago after visiting A&E and a CT scan, I was found to have Pulmonary Embolisms in both lungs and Pneumonia in surgery lung
xinte60
in
The Roy Castle Lung Cancer Foundation
5 months ago
Intersitial Lung Disease and Lung Cancer
Dear All, My father has stage 3B Lung Cancer which he was diagnosed just over 18 months ago now. He also has intersitial lung disease (which he didnt realise before treatment) so is limited to treatments. He did have 4 rounds of chemotherapy August to October 2022, and did have a fair amount of
Dear All, My father has stage 3B Lung Cancer which he was diagnosed just over 18 months ago now. He also has intersitial lung disease (which he didnt realise before treatment) so is limited to treatments. He did have 4 rounds of chemotherapy August to October 2022, and did have a fair amount of
Clairebrocks
in
The Roy Castle Lung Cancer Foundation
5 months ago
Life insurance
Hi everyone I had a single lung transplant 7 years ago . I am really struggling to get some form of life insurance to protect my family , has anyone had any success in finding cover ?
Hi everyone I had a single lung transplant 7 years ago . I am really struggling to get some form of life insurance to protect my family , has anyone had any success in finding cover ?
Hidden
in
Lung Conditions Community Forum
5 months ago
ONLINE SUPPORT GROUPS
Our support groups are such a good way to connect with other's in a similar situation, they have really helped so many people make friendships and gain valuable knowledge around their treatment and care. If you have any queries about anything please get in touch, we would love to hear from you and help
Our support groups are such a good way to connect with other's in a similar situation, they have really helped so many people make friendships and gain valuable knowledge around their treatment and care. If you have any queries about anything please get in touch, we would love to hear from you and help
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
5 months ago
new procedure
Using metered cryospray technology, pre-determined doses (based on patient anatomy) of liquid nitrogen are delivered systematically through the airways,” says Professor Shah. The RejuvenAir® System is designed with safety cut-off technology, which stops the flow of nitrogen once it reaches the required
Using metered cryospray technology, pre-determined doses (based on patient anatomy) of liquid nitrogen are delivered systematically through the airways,” says Professor Shah. The RejuvenAir® System is designed with safety cut-off technology, which stops the flow of nitrogen once it reaches the required
Trevor6
in
COPD Friends
5 months ago
Time flies... when you're having babies!
Afternoon all, Apologies for the radio silence for the best part of six months. I never intended to leave it this long before updating you all but life (and a certain little miss) got in the way! Cassie Jean Jackson came kicking and screaming in to the world at 8.28 am on Monday 16th October last
Afternoon all, Apologies for the radio silence for the best part of six months. I never intended to leave it this long before updating you all but life (and a certain little miss) got in the way! Cassie Jean Jackson came kicking and screaming in to the world at 8.28 am on Monday 16th October last
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
6 months ago
X-ray vs Ct scan
Hi All, I just wanted to ask if anyone has had a clear normal X-ray result of their lungs then had different result from CT scan with contrast please thank you xx
Hi All, I just wanted to ask if anyone has had a clear normal X-ray result of their lungs then had different result from CT scan with contrast please thank you xx
Nat107
in
The Roy Castle Lung Cancer Foundation
6 months ago
Radiotherapy for lung cancer
After an oncologist appointment I was left deflated. I did know the risk of extra damage to the lung and possibly needing oxygen. She was talking like she didn't want me to try. At the moment they said I have 18 months to 2 years left and the Radiotherapy would give me an extra year . All of this is
After an oncologist appointment I was left deflated. I did know the risk of extra damage to the lung and possibly needing oxygen. She was talking like she didn't want me to try. At the moment they said I have 18 months to 2 years left and the Radiotherapy would give me an extra year . All of this is
Lizzielock
in
The Roy Castle Lung Cancer Foundation
6 months ago
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