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New 2024 AUA/ASTRO/SUO Guidelines for Salvage Therapy
https://www.auanet.org/guidelines-and-quality/guidelines/salvage-therapy-for-prostate-cancer Not surprising. I think they should recommend adjuvant ADT at a PSA≥0.35 instead of ≥0.7 because I think patients are hoping for curative SRT and not just equivalent survival. https://www.prostatecancer.news
https://www.auanet.org/guidelines-and-quality/guidelines/salvage-therapy-for-prostate-cancer Not surprising. I think they should recommend adjuvant ADT at a PSA≥0.35 instead of ≥0.7 because I think patients are hoping for curative SRT and not just equivalent survival. https://www.prostatecancer.news
Tall_Allen
in
Advanced Prostate Cancer
6 months ago
Experience, thus far with Lupron and Abiraterone
I am 78 years old. I was diagnosed in May 2022 with PCa after my PSA was measured at 23.79. I have no other health issues. Following the determination that PCa was still within the prostrate capsule and had not spread to any other organ, I was placed on Lupron (6 monthly IM injections for 2 years). Clinically
I am 78 years old. I was diagnosed in May 2022 with PCa after my PSA was measured at 23.79. I have no other health issues. Following the determination that PCa was still within the prostrate capsule and had not spread to any other organ, I was placed on Lupron (6 monthly IM injections for 2 years). Clinically
Sanctus
in
Advanced Prostate Cancer
8 months ago
Finally!
Back in July I had a response to a FOI, which I challenged. I sent out numerous emails to different NHS governing bodies. I met a brick wall. Today an email turned up out of the blue from my Health Board. It only took them five months. The complaint was that the blood testing for thyroid did not
Back in July I had a response to a FOI, which I challenged. I sent out numerous emails to different NHS governing bodies. I met a brick wall. Today an email turned up out of the blue from my Health Board. It only took them five months. The complaint was that the blood testing for thyroid did not
serenfach
in
Thyroid UK
8 months ago
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Art and music therapy for kidney patients
Coping with kidney disease can be difficult. Sometimes you have to think outside the box! Have you considered music or art therapy? Listen today to hear Social Worker Melissa Fry and patient Steven Light share their experiences with using music and art as coping strategies. https://www.podbean.com/ep
Coping with kidney disease can be difficult. Sometimes you have to think outside the box! Have you considered music or art therapy? Listen today to hear Social Worker Melissa Fry and patient Steven Light share their experiences with using music and art as coping strategies. https://www.podbean.com/ep
JackieJ_NKF
Partner
in
Parents of Children with Kidney Disease
8 months ago
Must be doing something right!
Attended for my annual supplementary oxygen therapy review today and wahooooo, the prescription doesn't need to be increased! This is first time it hasn't needed to be increased year on year for the last 7 years. Very chuffed. A great Christmas gift.....Long may it last.
Attended for my annual supplementary oxygen therapy review today and wahooooo, the prescription doesn't need to be increased! This is first time it hasn't needed to be increased year on year for the last 7 years. Very chuffed. A great Christmas gift.....Long may it last.
PaulineHM
in
Lung Conditions Community Forum
8 months ago
Finding the Right Treatment
I have been really depressed for the last two years. I have been diagnosed with treatment resistant depression. I have tried 10 different medications, I do weekly therapy, see a psychiatric NP and I have finally resorted to ECT until my insurance company stopped paying for anesthesia. I can't afford
I have been really depressed for the last two years. I have been diagnosed with treatment resistant depression. I have tried 10 different medications, I do weekly therapy, see a psychiatric NP and I have finally resorted to ECT until my insurance company stopped paying for anesthesia. I can't afford
sunshinefan
in
Anxiety and Depression Support
5 months ago
Looking to connect
Hello, I would like to connect with survivors with these combinations in their medical experience, please. Can you help? 1. Have had heart failure 2. Have had a dissection B 3. Havd had a torn aorta 4. Have had a lumpectomy or mastectomy on the LEFT breast 5. Have had radiation or PROTON therapy
Hello, I would like to connect with survivors with these combinations in their medical experience, please. Can you help? 1. Have had heart failure 2. Have had a dissection B 3. Havd had a torn aorta 4. Have had a lumpectomy or mastectomy on the LEFT breast 5. Have had radiation or PROTON therapy
AVOCADOtastes
in
SHARE Breast Cancer Support
8 months ago
Looking to connect
Hello, I would like to connect with survivors with these combinations in their medical experience, please. Can you help? 1. Have had heart failure 2. Have had a dissection B 3. Havd had a torn aorta 4. Have had a lumpectomy or mastectomy on the LEFT breast 5. Have had radiation or PROTON therapy
Hello, I would like to connect with survivors with these combinations in their medical experience, please. Can you help? 1. Have had heart failure 2. Have had a dissection B 3. Havd had a torn aorta 4. Have had a lumpectomy or mastectomy on the LEFT breast 5. Have had radiation or PROTON therapy
AVOCADOtastes
in
SHARE Breast Cancer Support
8 months ago
New to this group
Hi all. I am new to this group. I am not new to mental illness having been diagnosed since 2006, but in the last two year, my depression has gotten much worse and landed me in the hospital 5 times. It also has me having a new diagnosis of treatment resistant depression. I have tried many medications,
Hi all. I am new to this group. I am not new to mental illness having been diagnosed since 2006, but in the last two year, my depression has gotten much worse and landed me in the hospital 5 times. It also has me having a new diagnosis of treatment resistant depression. I have tried many medications,
sunshinefan
in
Anxiety and Depression Support
6 months ago
TAPUR study
Following up on a genomics report (47 pages ! Plus 54 min consult) and came across this study (phase 2 basket trial) in the US. Essentially when exhausting, or before, standard of care options, allows patients to trial off label approved drugs using genomics to identify specific targetable variations
Following up on a genomics report (47 pages ! Plus 54 min consult) and came across this study (phase 2 basket trial) in the US. Essentially when exhausting, or before, standard of care options, allows patients to trial off label approved drugs using genomics to identify specific targetable variations
muzzatron
in
SHARE Metastatic Breast Cancer
8 months ago
Blood results interpretation required
Hi there, I need help interpreting my results. My symptoms are brain fog, joint aches, lack of energy and anxiety. These have been with me all my life. They got better in 2022 when I started combination therapy. However, I do not think I have reached my optimum (whatever that is) because these symptoms
Hi there, I need help interpreting my results. My symptoms are brain fog, joint aches, lack of energy and anxiety. These have been with me all my life. They got better in 2022 when I started combination therapy. However, I do not think I have reached my optimum (whatever that is) because these symptoms
Carlax
in
Thyroid UK
6 months ago
CBT Myths
A good article on some of the pitfalls of Cognitive Behavior Therapy https://adaa.org/learn-from-us/from-the-experts/blog-posts/consumer-professional/all-my-fault-addressing-myth-cbt
A good article on some of the pitfalls of Cognitive Behavior Therapy https://adaa.org/learn-from-us/from-the-experts/blog-posts/consumer-professional/all-my-fault-addressing-myth-cbt
mizzou7016
in
Anxiety and Depression Support
11 hours ago
HRT & Thyroid
Hi, Im 50 and started on combined HRT in the last 3 week to help with bad sleep and night sweats and i was fine with the oestrogen gel but when starting the utrogestan tablets i feel sick and dizzy and cant think straight, sore boobs. I take thyroid meds for Underactive thyroid and wonder if the hrt
Hi, Im 50 and started on combined HRT in the last 3 week to help with bad sleep and night sweats and i was fine with the oestrogen gel but when starting the utrogestan tablets i feel sick and dizzy and cant think straight, sore boobs. I take thyroid meds for Underactive thyroid and wonder if the hrt
Rudders
in
Thyroid UK
14 hours ago
Dizziness and sleepy on progesterone
Hi, Im 50 and started on combined HRT in the last 3 week to help with bad sleep and night sweats and i was fine with the oestrogen gel but when starting the utrogestan tablets i feel sick and dizzy and cant think straight, sore boobs. I take thyroid meds for Underactive thyroid and wonder if the hrt
Hi, Im 50 and started on combined HRT in the last 3 week to help with bad sleep and night sweats and i was fine with the oestrogen gel but when starting the utrogestan tablets i feel sick and dizzy and cant think straight, sore boobs. I take thyroid meds for Underactive thyroid and wonder if the hrt
Rudders
in
Menopause and Perimenopause Support
15 hours ago
Curious what you think?
Background: I have to take my wife for all her appointments - doctors, hair, etc. Her MO who treats her blood cancer seemed like a good doctor but I know nothing about blood cancer. So I went to her with my records for a consult with the idea it would be easier and less hassle if we could get appointments
Background: I have to take my wife for all her appointments - doctors, hair, etc. Her MO who treats her blood cancer seemed like a good doctor but I know nothing about blood cancer. So I went to her with my records for a consult with the idea it would be easier and less hassle if we could get appointments
Mgtd
in
Advanced Prostate Cancer
2 days ago
Vulvodynia and fibromyalgia
Hi all, I've had fibromyalgia for 7 years, but after a number of months of new burning, sore pain down below, ive been diagnosed with vulvodynia 😒 Apparently it's quite common for folks with fibro 🙄 I've increased my amitryptaline to 60mg, and use lidocaine 5% ointment, hrt cream and usual self care
Hi all, I've had fibromyalgia for 7 years, but after a number of months of new burning, sore pain down below, ive been diagnosed with vulvodynia 😒 Apparently it's quite common for folks with fibro 🙄 I've increased my amitryptaline to 60mg, and use lidocaine 5% ointment, hrt cream and usual self care
Janpan7
in
Fibromyalgia Action UK
2 days ago
Hrt following hysterectomy
I am 6 months post op a total hysterectomy following 3 years of severe pelvic pain. I have always had heavy and painful periods.I had Adenomyosis and fibroids. Following the op I was blissfully pain-free for 8 weeks. Once I started hrt my pains came back with avengance :( I saw gynae again, who said
I am 6 months post op a total hysterectomy following 3 years of severe pelvic pain. I have always had heavy and painful periods.I had Adenomyosis and fibroids. Following the op I was blissfully pain-free for 8 weeks. Once I started hrt my pains came back with avengance :( I saw gynae again, who said
Mindfullness4791
in
Endometriosis UK
2 days ago
Rise in PSA and extra Eligard Injection
My psa has risen from <0.01 in Feb to 0.04 in April to 0.27 in July then 0.41 this week. I had a CT and full body scan on Tuesday, which according to my MO, who I saw today, showed no ‘hotspots’. Because my PCa metastasised to 4 places in 2016 when first diagnosed, I had radiation to the prostate followed
My psa has risen from <0.01 in Feb to 0.04 in April to 0.27 in July then 0.41 this week. I had a CT and full body scan on Tuesday, which according to my MO, who I saw today, showed no ‘hotspots’. Because my PCa metastasised to 4 places in 2016 when first diagnosed, I had radiation to the prostate followed
Brightman
in
Advanced Prostate Cancer
2 days ago
Sudden weight loss on Orgovyx/Tamsulosin
Despite my starting in 2023 with a diagnosis of stage 5, Gleason 9 scores in half of my prostate, the biopsy and scans showed that I was non-metastatic. My medical oncologist declared that my ADT and SBRT rendered me in remission as of June, 2024. I am 85. My question is that suddenly in late July
Despite my starting in 2023 with a diagnosis of stage 5, Gleason 9 scores in half of my prostate, the biopsy and scans showed that I was non-metastatic. My medical oncologist declared that my ADT and SBRT rendered me in remission as of June, 2024. I am 85. My question is that suddenly in late July
Worked_the_World
in
Advanced Prostate Cancer
2 days ago
Mass on pancreas (cancer) - mets from PC or pancreatic cancer…?
My Dad (77) was diagnosed in the spring with stage 4 prostate cancer, Gleason 10 with mets to spine. He has since started hormone therapy and had radiation to his prostate. Recent scan showed a mass on the pancreas which came as a big surprise as the radiation had shrunk the mets on his spine and his
My Dad (77) was diagnosed in the spring with stage 4 prostate cancer, Gleason 10 with mets to spine. He has since started hormone therapy and had radiation to his prostate. Recent scan showed a mass on the pancreas which came as a big surprise as the radiation had shrunk the mets on his spine and his
LDC2024
in
Advanced Prostate Cancer
2 days ago
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