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long read: asking for community help deciding next steps -- worsening RLS/PLMD, medications, Neurologist, no sleep, HRT
Hi everyone, I haven’t been around in a long while because I’ve been unwell and dealing with family matters. I always feel guilty popping back in after a long while but I’ve not been able to maintain any sort of consistency the last several months. Up until I started HRT I was alright with what I
Hi everyone, I haven’t been around in a long while because I’ve been unwell and dealing with family matters. I always feel guilty popping back in after a long while but I’ve not been able to maintain any sort of consistency the last several months. Up until I started HRT I was alright with what I
HappyGreenBean
in
Restless Legs Syndrome
2 days ago
endometriosos, adenomyosis, pcos
I started my periods when I was 13 years old. I have suffered with painful periods for as long as I remember. I started to realise there was a problem when I was in pain throughout the whole of my cycle not just when I was on my period. This would cause me to cry and be in a lot of pain, but also bleed
I started my periods when I was 13 years old. I have suffered with painful periods for as long as I remember. I started to realise there was a problem when I was in pain throughout the whole of my cycle not just when I was on my period. This would cause me to cry and be in a lot of pain, but also bleed
nightsky2
in
Endometriosis UK
8 days ago
Is my pain normal & what to expect from first Endo Appointment.
HI There I am 43 and back in Early July I had been really suffering with abdo, hip & back pain. It all ended with me collapsing in my GP Office, then into A&E on Morphine, Ibruprofen, IV Antibiotics and a week admitted to a ward. Then I had basically 4 weeks signed off work due to pain. Since then
HI There I am 43 and back in Early July I had been really suffering with abdo, hip & back pain. It all ended with me collapsing in my GP Office, then into A&E on Morphine, Ibruprofen, IV Antibiotics and a week admitted to a ward. Then I had basically 4 weeks signed off work due to pain. Since then
Snuffle007
in
Endometriosis UK
13 days ago
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seeing GP tomorrow. Wish me luck
I have an appointment tomorrow evening. I am going armed with printouts about iron and RLS, medications list. Also going to request change off Sertraline to Trazadone. I took co-codamol last night and squirmed for a couple hours but actually got over 6 hours sleep and slept in the same bed as my husband
I have an appointment tomorrow evening. I am going armed with printouts about iron and RLS, medications list. Also going to request change off Sertraline to Trazadone. I took co-codamol last night and squirmed for a couple hours but actually got over 6 hours sleep and slept in the same bed as my husband
Squirmy69
in
Restless Legs Syndrome
18 days ago
Pulsatile tinnitus
I everyone I've had pulsatile tinnitus on and off 2 months ago started getting headaches really bad especially aching in lower back skull by spine went for physio told were tension headaches been to A&E said No red flags so gave me some co codamol seem to do the trick but not ideal as side effects are
I everyone I've had pulsatile tinnitus on and off 2 months ago started getting headaches really bad especially aching in lower back skull by spine went for physio told were tension headaches been to A&E said No red flags so gave me some co codamol seem to do the trick but not ideal as side effects are
boinger9
in
Tinnitus UK
21 days ago
Atorvastatin 20mg with PMR
Hi Guys, I have been taking this statin for almost 4 weeks and just wondered if anyone else who has PMR takes this. At first when taking I felt a bit queasy, so started to take it after evening dinner on its own. This did help but I have developed other side affects - I feel extremely tired all day
Hi Guys, I have been taking this statin for almost 4 weeks and just wondered if anyone else who has PMR takes this. At first when taking I felt a bit queasy, so started to take it after evening dinner on its own. This did help but I have developed other side affects - I feel extremely tired all day
jules1955
in
PMRGCAuk
22 days ago
Edoxaban
Hi I am about to start taking the above. I already take Bisoprolol for AF and also methotrexate for rheumatoid arthritis. I'm always concerned about side effects when I take any new drug. If there is someone out there taking the same combo or anything similar. I'd like to know if they've had any problems
Hi I am about to start taking the above. I already take Bisoprolol for AF and also methotrexate for rheumatoid arthritis. I'm always concerned about side effects when I take any new drug. If there is someone out there taking the same combo or anything similar. I'd like to know if they've had any problems
Paxim
in
British Heart Foundation
22 days ago
relatively new RLS sufferer, looking for guidance on the use of tramadol.
Hello, I’m happy to stumble across this supportive and Knowledgeable community. I’m 36, and started struggling with a frozen shoulder in April. I was prescribed co-codamol, then Tramadol for pain relief. After a few weeks, I started really struggling with restless legs. I’ve tried a number of things
Hello, I’m happy to stumble across this supportive and Knowledgeable community. I’m 36, and started struggling with a frozen shoulder in April. I was prescribed co-codamol, then Tramadol for pain relief. After a few weeks, I started really struggling with restless legs. I’ve tried a number of things
Daytripper72
in
Restless Legs Syndrome
1 month ago
Pain and Insomnia
Hi Everyone I am really struggling. I have had ME/CFS for over 20 years and last year when I saw a different doctor to my usual GP, he said I had Fibromyalgia as well. I am having great difficulty in sleeping, when I do get to sleep I only sleep for 1-2 hours before waking again and struggle to
Hi Everyone I am really struggling. I have had ME/CFS for over 20 years and last year when I saw a different doctor to my usual GP, he said I had Fibromyalgia as well. I am having great difficulty in sleeping, when I do get to sleep I only sleep for 1-2 hours before waking again and struggle to
AlphaWolf5195
in
Fibromyalgia Action UK
1 month ago
Medical Records
About two years ago I requested for the first time, full access to my records. This was granted but was very spasmodic at best. A recent hospital document briefly appeared and then disappeared. However the day prior to this a Discharge letter arrived at my home with similar contents namely my Spine
About two years ago I requested for the first time, full access to my records. This was granted but was very spasmodic at best. A recent hospital document briefly appeared and then disappeared. However the day prior to this a Discharge letter arrived at my home with similar contents namely my Spine
Nonameme
in
Pernicious Anaemia Society
1 month ago
Naproxen for fracture pain
I think I’ve had another fracture in lower back. GP referred me for urgent X-ray which takes 2 weeks. Paracetamol and Ibuprofen not doing much for pain and I’m extremely sore and stiff. Try to keep moving as sitting doesn’t do it any good at all. I’ve been prescribed Naproxen and Omeprazole and not
I think I’ve had another fracture in lower back. GP referred me for urgent X-ray which takes 2 weeks. Paracetamol and Ibuprofen not doing much for pain and I’m extremely sore and stiff. Try to keep moving as sitting doesn’t do it any good at all. I’ve been prescribed Naproxen and Omeprazole and not
Snowybear
in
Bone Health and Osteoporosis UK
2 months ago
GP visit
Hi there. I've had PMR/GCA for 10 years which once diagnosed was reasonably managed until 2018 when having tapered to 3.5 mgs, I was told to stop Pred within a fortnight by my rheumatologist who was confident it had gone. The resulting flare was worse even than the initial onset and after a good deal
Hi there. I've had PMR/GCA for 10 years which once diagnosed was reasonably managed until 2018 when having tapered to 3.5 mgs, I was told to stop Pred within a fortnight by my rheumatologist who was confident it had gone. The resulting flare was worse even than the initial onset and after a good deal
k-mac
in
PMRGCAuk
2 months ago
reaction to morphine
hello Is there any advice anywhere about recovering, or living with, broken pupic bone. I was knocked down by a cyclist . Tramaldan makes me sick, so does Co codamol. Blood pressure no bother just now but can’t get into another group . Thanks
hello Is there any advice anywhere about recovering, or living with, broken pupic bone. I was knocked down by a cyclist . Tramaldan makes me sick, so does Co codamol. Blood pressure no bother just now but can’t get into another group . Thanks
Sartrou
in
British Heart Foundation
2 months ago
Severe ulcer on foot caused by blocked arteries
Hi, i have blocked arteries in leg and the hospital couldn't do bypass or anything else, because of the pain ,i agreed to have it amputated and went into hospital Janurary to have operation. While there they discovered i had lung cancer and wouldn't operate and sent me home, I have got ulcer on foot
Hi, i have blocked arteries in leg and the hospital couldn't do bypass or anything else, because of the pain ,i agreed to have it amputated and went into hospital Janurary to have operation. While there they discovered i had lung cancer and wouldn't operate and sent me home, I have got ulcer on foot
HAZ60
in
Pain Concern
2 months ago
Can PMR last for 5years+?
Hi allI was diagnosed with PMR in March 2019 after sudden onset of symptoms. CPR 95.3, ESR 71 which came down quickly after 15mg pred. Reduced to 5mg first year which continued for a further 3 years, then down to 2.5mg in the 5th year. From March 2023, neck and shoulder problems and flare December 2023
Hi allI was diagnosed with PMR in March 2019 after sudden onset of symptoms. CPR 95.3, ESR 71 which came down quickly after 15mg pred. Reduced to 5mg first year which continued for a further 3 years, then down to 2.5mg in the 5th year. From March 2023, neck and shoulder problems and flare December 2023
Phoebe12345
in
PMRGCAuk
3 months ago
I thought I knew about ablation…this is a new ball game
help guys! last ablation must have been a breeze apart from energy loss. This one is awgul so far. Walking to the loo is about my limit, fair enough, but on the three hour drive home I started to get pains . My throat whivh already hurt from the start, hurst now all the way down to my lungs when I
help guys! last ablation must have been a breeze apart from energy loss. This one is awgul so far. Walking to the loo is about my limit, fair enough, but on the three hour drive home I started to get pains . My throat whivh already hurt from the start, hurst now all the way down to my lungs when I
Morzine
in
Atrial Fibrillation Support
4 months ago
Posterior circulation migraines
For just over a year now I've been suffering from what my neurologist calls posterior circulation migraines. When I first started having them,it was about 2 or 3 per week,my symptoms are double vision,throbbing in back of head but no pain,balance and coordination problems and feeling confused. I never
For just over a year now I've been suffering from what my neurologist calls posterior circulation migraines. When I first started having them,it was about 2 or 3 per week,my symptoms are double vision,throbbing in back of head but no pain,balance and coordination problems and feeling confused. I never
Hidden
in
National Migraine Centre
4 months ago
Severe pain in Hips
Hello all, I haven’t been on this section for a long time, due to my many other conditions like Rheumatoid Arthritis & newish one, Smouldering Myeloma affecting me. But I would be glad of any advice/contact on the Osteoarthritis. I started with Fibromyalgia in my mid-late 40’s, now aged 62 & as
Hello all, I haven’t been on this section for a long time, due to my many other conditions like Rheumatoid Arthritis & newish one, Smouldering Myeloma affecting me. But I would be glad of any advice/contact on the Osteoarthritis. I started with Fibromyalgia in my mid-late 40’s, now aged 62 & as
Shamrockgirl
in
NRAS
4 months ago
Pericarditis
I don't know what to do, very strong Co-codamol doesn't touch the pain and there doesn't seem to be anyone to talk to. I can't take Ibuprofen due to Kidney Disease. I am a reasonably fit 76 year old , play golf 2-3 times a week, don't smoke, little alcohol. My first episode with chest pains came on
I don't know what to do, very strong Co-codamol doesn't touch the pain and there doesn't seem to be anyone to talk to. I can't take Ibuprofen due to Kidney Disease. I am a reasonably fit 76 year old , play golf 2-3 times a week, don't smoke, little alcohol. My first episode with chest pains came on
Evreham
in
British Heart Foundation
4 months ago
Gabapentin Hell!
Hi all, thought I would share my recent experience with Gabapentin. I have had RLS since I was 18 and am now 74. I started on Pramipexole about 15 years ago 0.18mgs and as predicted it has got steadily worse so increased it to 0.36mgs 6 years ago along with co codamol. Once again it has got worse and
Hi all, thought I would share my recent experience with Gabapentin. I have had RLS since I was 18 and am now 74. I started on Pramipexole about 15 years ago 0.18mgs and as predicted it has got steadily worse so increased it to 0.36mgs 6 years ago along with co codamol. Once again it has got worse and
jeanjack
in
Restless Legs Syndrome
5 months ago
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