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for some of our newer members
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Recently diagnosed with Liver disease.
Hi guys This is my first post on here, and im just looking for advice really? I've recently been diagnosed with fatty liver disease and enlarged liver, my g.p was surprised to hear that I rairly drink, and my diet isn't bad ( I cook most meals from scratch in the air frier) and takeaway 2/3 times a
Hi guys This is my first post on here, and im just looking for advice really? I've recently been diagnosed with fatty liver disease and enlarged liver, my g.p was surprised to hear that I rairly drink, and my diet isn't bad ( I cook most meals from scratch in the air frier) and takeaway 2/3 times a
KellyNASH
in
British Liver Trust
5 months ago
Looking for advice please
Hello folks. I've been on here for a couple weeks reading peoples comments/stories. but have not posted anything until now. Hope you all are doing ok. Im looking for a bit of advice if anyone can help please. Back in august last year i was diagnosed with Liver cirrhosis from drinking. for the
Hello folks. I've been on here for a couple weeks reading peoples comments/stories. but have not posted anything until now. Hope you all are doing ok. Im looking for a bit of advice if anyone can help please. Back in august last year i was diagnosed with Liver cirrhosis from drinking. for the
StokieB
in
British Liver Trust
5 months ago
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fibroscan
I have been diagnosed with NASH cirrhosis. When I had the fibroscan I had to lie on my left side and the scan was done on my back. Everything I have seen since is people lying on their back with their right arm stretched up. I have been wondering whether the scan was done properly. Has anyone else
I have been diagnosed with NASH cirrhosis. When I had the fibroscan I had to lie on my left side and the scan was done on my back. Everything I have seen since is people lying on their back with their right arm stretched up. I have been wondering whether the scan was done properly. Has anyone else
Darcy-22
in
British Liver Trust
5 months ago
Wednesday's Word
[u]
PP
[/u][u][i]
AR drugs
[/i][/u] - This is a class of drugs used as second line treatment in Urso non responders. These drugs have long been used as a lipid lowering drugs - although now statins are more widely used for this purpose of lowering cholesterol. They are not yet approved by
[u]
PP
[/u][u][i]
AR drugs
[/i][/u] - This is a class of drugs used as second line treatment in Urso non responders. These drugs have long been used as a lipid lowering drugs - although now statins are more widely used for this purpose of lowering cholesterol. They are not yet approved by
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Understand Your Blood Work
this is from a Canadian PBC Society PBC FACT SHEET (09/02/16) (may vary by lab) ALP Alkaline Phosphatase This enzyme occurs mainly in liver cells next to bile ducts, and in bone. The blood level is raised in PBC and is the main enzyme that is checked to see if you have a response to treatment
this is from a Canadian PBC Society PBC FACT SHEET (09/02/16) (may vary by lab) ALP Alkaline Phosphatase This enzyme occurs mainly in liver cells next to bile ducts, and in bone. The blood level is raised in PBC and is the main enzyme that is checked to see if you have a response to treatment
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
information about liver transplants/liver cancer
https://l.facebook.com/l.php?u=AT1q4nZnRGFEk9DREjCfOr32vqyD8L1g6K0RcC_EDbD4oCwtB3eulAZZduYdqnytaPjLXB9ZdFhw53LtO0m0MZWIG09DGKjSAU58KK3Gx6FqL1ztOVQvumdzQlbjfVPHGO8tFD2m0oK5VyAVEzzJoUzd2pJDkD8m4nCGQIsZDX8eZvxWwFuOeOlBzlzmIDXByapbNibWWnHsiBDPCpdlit3QCvc3HXSgyaugkx8LKnX9JUKbsPscdDYOai6FkVHhe7jUsezWDdM0phZl2Gas6b6w_e9YfCqvk9s_pVzncIu2r7Dt7s1gfemxBPiIXaHYEiuPp0OwY
https://l.facebook.com/l.php?u=AT1q4nZnRGFEk9DREjCfOr32vqyD8L1g6K0RcC_EDbD4oCwtB3eulAZZduYdqnytaPjLXB9ZdFhw53LtO0m0MZWIG09DGKjSAU58KK3Gx6FqL1ztOVQvumdzQlbjfVPHGO8tFD2m0oK5VyAVEzzJoUzd2pJDkD8m4nCGQIsZDX8eZvxWwFuOeOlBzlzmIDXByapbNibWWnHsiBDPCpdlit3QCvc3HXSgyaugkx8LKnX9JUKbsPscdDYOai6FkVHhe7jUsezWDdM0phZl2Gas6b6w_e9YfCqvk9s_pVzncIu2r7Dt7s1gfemxBPiIXaHYEiuPp0OwY
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
second time lucky ?
Can I hope for a totally different result? Has anyone gone from NOTHING first round and then had a decent result on the second round? As I approach my second nhs icsi cycle I’m anxious, nervous and hopeful that I will get a better result this time. We collected three eggs which were quite small
Can I hope for a totally different result? Has anyone gone from NOTHING first round and then had a decent result on the second round? As I approach my second nhs icsi cycle I’m anxious, nervous and hopeful that I will get a better result this time. We collected three eggs which were quite small
Cuppppatea
in
Fertility Network UK
8 months ago
elevated liver enzymes for 10 years no answers
I’ve had up and down liver enzymes for 10 years since having my first child. I have 3 children now. I’ve had scans and yearly blood work. I’ve had autoimmune blood work as well as hep a b c ran. Everything comes back ok. No fat seen in the ultrasound as of yet. Idk 🤷🏻♀️ I’m about 10 lbs overweight
I’ve had up and down liver enzymes for 10 years since having my first child. I have 3 children now. I’ve had scans and yearly blood work. I’ve had autoimmune blood work as well as hep a b c ran. Everything comes back ok. No fat seen in the ultrasound as of yet. Idk 🤷🏻♀️ I’m about 10 lbs overweight
mtk0925
in
Liver4Life
5 months ago
Citicoline Warning
Citicoline and choline contain the trimethylamine structure which can be detached by gut bacteria into standalone trimethylamine. Trimethylamine is toxic. Excessive intake of choline results in a dramatic increase in the risk of cardiovascular disease. My writing on this subject here: https://tinyurl.com
Citicoline and choline contain the trimethylamine structure which can be detached by gut bacteria into standalone trimethylamine. Trimethylamine is toxic. Excessive intake of choline results in a dramatic increase in the risk of cardiovascular disease. My writing on this subject here: https://tinyurl.com
park_bear
in
Cure Parkinson's
8 months ago
peppermint oil and IBS
Has anyone had a positive experience with peppermint oil for bloating and gas in a setting of IBS
Has anyone had a positive experience with peppermint oil for bloating and gas in a setting of IBS
Samyyy
in
IBS Network
8 months ago
Have Ibrance mouth sores?
I found something that works! I used a good quality tea tree oil (Do Terra metaluca) and applied it directly onto the sores before bed. Most were gone in the morning. Hope this helps someone. Much love ladies. ❤️
I found something that works! I used a good quality tea tree oil (Do Terra metaluca) and applied it directly onto the sores before bed. Most were gone in the morning. Hope this helps someone. Much love ladies. ❤️
NeverOutOfTheFight
in
SHARE Metastatic Breast Cancer
6 months ago
Cirosis
I have high liver enzymes. AST 91. Alt 134. Ggt 235. Fibroscan cap 366 and kpa 5.6. What does this mean .
I have high liver enzymes. AST 91. Alt 134. Ggt 235. Fibroscan cap 366 and kpa 5.6. What does this mean .
Curryblue
in
British Liver Trust
5 months ago
Chronic Liver Disease Post Transplant
Hi, I had a liver transplant in October 2017 and apart from a little set back right at the beginning, meaning I was in Addenbrookes for 5 weeks, I have been really well. I haven’t even had Covid! However a couple of months ago, I had a CT scan which showed that I have chronic liver disease. To say
Hi, I had a liver transplant in October 2017 and apart from a little set back right at the beginning, meaning I was in Addenbrookes for 5 weeks, I have been really well. I haven’t even had Covid! However a couple of months ago, I had a CT scan which showed that I have chronic liver disease. To say
Dawnejoy
in
British Liver Trust
5 months ago
Help with diet
My husband has been told to cut out salt and reduce fluids to 1.5lt a day due to ascites, but increase protein and carbs and calories intake to around 3000 a day to maintain his weight. He is struggling with this as he has never had a big appetite and would happily exist on bread and sausage. He is type
My husband has been told to cut out salt and reduce fluids to 1.5lt a day due to ascites, but increase protein and carbs and calories intake to around 3000 a day to maintain his weight. He is struggling with this as he has never had a big appetite and would happily exist on bread and sausage. He is type
Breakfastbabe
in
British Liver Trust
5 months ago
nose bleed
was rushed to hospital 2weeks ago for pneumonia. Was discharged after a week. Wasn’t home 24 hrs. And out of the blue my nose started bleeding. It hasn’t stopped. Has this happened to anyone else and what did the doctors do to stop it?
was rushed to hospital 2weeks ago for pneumonia. Was discharged after a week. Wasn’t home 24 hrs. And out of the blue my nose started bleeding. It hasn’t stopped. Has this happened to anyone else and what did the doctors do to stop it?
Daytym
in
British Liver Trust
5 months ago
Blood test results
Hi, three weeks ago I had a Fibroscan in a mobile community testing van, the result was a reading of 15.1. The nurse suggested cirrhosis of the liver and said a referral for a CT scan was appropriate. I hadn't heard anything for two weeks, as you can imagine, I was beside myself with worry, I phoned
Hi, three weeks ago I had a Fibroscan in a mobile community testing van, the result was a reading of 15.1. The nurse suggested cirrhosis of the liver and said a referral for a CT scan was appropriate. I hadn't heard anything for two weeks, as you can imagine, I was beside myself with worry, I phoned
Hidden
in
British Liver Trust
5 months ago
liver
I’m 73 and been feeling extra tired recently, otherwise fit and well. I thought the tiredness might be caused by Keppra a drug I take for epilepsy, I’m also on statins … but anyway the GP did a blood test, the Serum Alanine transaminase was ‘out of range’ at 54 u/l. I’ve always been a drinker but stick
I’m 73 and been feeling extra tired recently, otherwise fit and well. I thought the tiredness might be caused by Keppra a drug I take for epilepsy, I’m also on statins … but anyway the GP did a blood test, the Serum Alanine transaminase was ‘out of range’ at 54 u/l. I’ve always been a drinker but stick
rogertb
in
British Liver Trust
5 months ago
Hope for confusion/brain fog
Umecrine Cognition is developing a completely new type of drug for neurological disorders in the brain that can occur as a result of a number of underlying diseases and lead to severely reduced cognition and alertness. The results from an internationally recognized clinical phase 2 study indicate that
Umecrine Cognition is developing a completely new type of drug for neurological disorders in the brain that can occur as a result of a number of underlying diseases and lead to severely reduced cognition and alertness. The results from an internationally recognized clinical phase 2 study indicate that
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Tuesday 'tips'
[i]What are some ways you cope with the fatigue?[/i] [i]How has the fatigue affected your life overall?[/i] [i]What have you found helpful on those days?[/i] [i]finally.....[/i][i]
..has you doctor ever asked you "how's the fatigue?"
[/i][i] I know for me, he has never ever asked me in the 20
[i]What are some ways you cope with the fatigue?[/i] [i]How has the fatigue affected your life overall?[/i] [i]What have you found helpful on those days?[/i] [i]finally.....[/i][i]
..has you doctor ever asked you "how's the fatigue?"
[/i][i] I know for me, he has never ever asked me in the 20
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
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