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Coagulation factor IX
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False reading?
Hi my daughters B12 was 143 & she was given prescribed B12 50mg x2 daily. She’s had a recent blood test & her levels are 479 n/g. Her consultant wants her to come off the tablets & take a multivitamin. I’m a bit concerned it could be a false reading because she’s taking B12. It’s the second time she
Hi my daughters B12 was 143 & she was given prescribed B12 50mg x2 daily. She’s had a recent blood test & her levels are 479 n/g. Her consultant wants her to come off the tablets & take a multivitamin. I’m a bit concerned it could be a false reading because she’s taking B12. It’s the second time she
Runner169
in
Pernicious Anaemia Society
3 years ago
Gastritis improvement with injections
I am curious if those with gastritis have found it improved after injections. I had an endoscopy last year, after monthly injections were started, which showed moderate gastritis. This year, the endoscopy showed marked improvement, along with better bowel movements and less intestinal cramping. The
I am curious if those with gastritis have found it improved after injections. I had an endoscopy last year, after monthly injections were started, which showed moderate gastritis. This year, the endoscopy showed marked improvement, along with better bowel movements and less intestinal cramping. The
siamesefrmsiam
in
Pernicious Anaemia Society
3 years ago
Positive intrinsic factor tests
Hi there, I have had 2 positive intrinsic factor antibody tests. I also have all of the symptoms of PA. Fatigue, nausea, pins and needles in feet, loose stools, acid reflux and difficulty concentrating. My blood serum B12 levels however seem within the normal range. What do you guys think this means
Hi there, I have had 2 positive intrinsic factor antibody tests. I also have all of the symptoms of PA. Fatigue, nausea, pins and needles in feet, loose stools, acid reflux and difficulty concentrating. My blood serum B12 levels however seem within the normal range. What do you guys think this means
JSD100
in
Pernicious Anaemia Society
3 years ago
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Lymphoma Questions
Hi All, Sorry to post on such a crappy topic. So this study came out and it kind of scared me a bit as I have a focus score of 8 from my biopsy at diagnosis which is quite high. The study is here: https://www.sciencedirect.com/science/article/abs/pii/S0896841121000561 It seems to suggest that the higher
Hi All, Sorry to post on such a crappy topic. So this study came out and it kind of scared me a bit as I have a focus score of 8 from my biopsy at diagnosis which is quite high. The study is here: https://www.sciencedirect.com/science/article/abs/pii/S0896841121000561 It seems to suggest that the higher
Insomniacette
in
LUPUS UK
3 years ago
Castor Oil
I said that I would report back after another catheterization. I just inserted a catheter and it went in as if there were virtually no obstruction. Unless it is just expectation and that I can some how control my sphincter which I haven't been able to in over a year, probably two. Getting ready for
I said that I would report back after another catheterization. I just inserted a catheter and it went in as if there were virtually no obstruction. Unless it is just expectation and that I can some how control my sphincter which I haven't been able to in over a year, probably two. Getting ready for
spencoid2
in
Advanced Prostate Cancer
3 years ago
B12 injection appointment
Hi, Following on from my previous post (not sure if I should have started new or just added to last one, if admin want to let me know) Anyway, I went to my appointment and had my jab as I had an ampoule with me but have been told I will no longer be given B12 injections. When I asked why, i was told
Hi, Following on from my previous post (not sure if I should have started new or just added to last one, if admin want to let me know) Anyway, I went to my appointment and had my jab as I had an ampoule with me but have been told I will no longer be given B12 injections. When I asked why, i was told
lfc4eva
in
Pernicious Anaemia Society
3 years ago
No one will believe this
I have had difficult urinating for years. I have posted about catheter horrors and about finally finding one that works, sort of. I believe I have scar tissue at my bladder neck because that is where the cath encounters difficult in insertion. My urologist wanted to do another TURP, no way, it took
I have had difficult urinating for years. I have posted about catheter horrors and about finally finding one that works, sort of. I believe I have scar tissue at my bladder neck because that is where the cath encounters difficult in insertion. My urologist wanted to do another TURP, no way, it took
spencoid2
in
Advanced Prostate Cancer
3 years ago
Hampshire (UK) neurologist anyone?
Hi. New to the forum and hoping someone can help. I am yet to be diagnosed, waiting for intrinsic factor test result (done privately as GP is being incredibly difficult 😢). I'm due to see gp in 2 hrs as I ended up in a and e Sunday morning falling over from fixings, fainting, whole body tremors etc
Hi. New to the forum and hoping someone can help. I am yet to be diagnosed, waiting for intrinsic factor test result (done privately as GP is being incredibly difficult 😢). I'm due to see gp in 2 hrs as I ended up in a and e Sunday morning falling over from fixings, fainting, whole body tremors etc
KrissieJ
in
Pernicious Anaemia Society
3 years ago
B12 levels and symptoms
I am wondering if anyone can help or advise me on levels and symptoms. My B12 was 183 last August and then 247 in May as I supplemented for a while, but I was admitted to hospital with a racing heart beat of 123. I have regular disabling palpitations, fatigue, crumbling nails, blurred vision, balance
I am wondering if anyone can help or advise me on levels and symptoms. My B12 was 183 last August and then 247 in May as I supplemented for a while, but I was admitted to hospital with a racing heart beat of 123. I have regular disabling palpitations, fatigue, crumbling nails, blurred vision, balance
Mrss25
in
Pernicious Anaemia Society
3 years ago
Cause of b12 deficiency? Should I get private bloods?
Looking for advice. Been having b12 symptoms on and off for awhile: nausea, tingling in body burning on hand, tiredness, brain fog. 10 months ago I was told I was slightly deficient and to supplement, repeat bloods in 3 months. Told they came back fine (I have never had the values for any of my tests
Looking for advice. Been having b12 symptoms on and off for awhile: nausea, tingling in body burning on hand, tiredness, brain fog. 10 months ago I was told I was slightly deficient and to supplement, repeat bloods in 3 months. Told they came back fine (I have never had the values for any of my tests
Gemgem123
in
Pernicious Anaemia Society
3 years ago
B12 results help please
I have received my results which I had tested privately. Does this mean that I do not have PA? B12 -139 pmol/L (25.1. -165 pmol/L) Intrinsic factor - negative I have been suffering with many symptoms but these maybe attributed to hypothyroidism or another endocrine disease so I am trying to exclude
I have received my results which I had tested privately. Does this mean that I do not have PA? B12 -139 pmol/L (25.1. -165 pmol/L) Intrinsic factor - negative I have been suffering with many symptoms but these maybe attributed to hypothyroidism or another endocrine disease so I am trying to exclude
Triciatextiles
in
Pernicious Anaemia Society
3 years ago
Lower Right Quadrant Pain
Hi, I have IBS and about a week ago started up with stabbing/twisting pains in my LRQ after mistakenly eating udon (didn't know it was wheat). I get pain around the belly button, right side and then down into the ileocecal area. Nothing helps. Not Tylenol or castor oil packs. It has waxed and waned for
Hi, I have IBS and about a week ago started up with stabbing/twisting pains in my LRQ after mistakenly eating udon (didn't know it was wheat). I get pain around the belly button, right side and then down into the ileocecal area. Nothing helps. Not Tylenol or castor oil packs. It has waxed and waned for
elmer69
in
IBS Network
3 years ago
Antibody negative PA
Hi. I read the above referred to by an administrator on a previous post and just asking for further info please (post comments were turned off). I've had a test for intrinsic factor that came back negative (yet was told in 2006 that I'd be on injections for life as I can't absorb tablets). Is this the
Hi. I read the above referred to by an administrator on a previous post and just asking for further info please (post comments were turned off). I've had a test for intrinsic factor that came back negative (yet was told in 2006 that I'd be on injections for life as I can't absorb tablets). Is this the
Roses46
in
Pernicious Anaemia Society
3 years ago
Intrinsic factor and GPC antibodies
I have a question about my test results, I was hoping someone here could help explain to me what it might mean because I’m not confident the doctors I’m seeing know anything about this stuff. I had a low b12 level (175), along with high homocysteine and high methylmalonic acid. I was then tested for
I have a question about my test results, I was hoping someone here could help explain to me what it might mean because I’m not confident the doctors I’m seeing know anything about this stuff. I had a low b12 level (175), along with high homocysteine and high methylmalonic acid. I was then tested for
x101210
in
Pernicious Anaemia Society
3 years ago
Can anyone explain?
Intrinsic factor antibody 1.01 u/mL 0 - 1.19 Normal I thought it would say negative or positive, so I’m confused. Thanks
Intrinsic factor antibody 1.01 u/mL 0 - 1.19 Normal I thought it would say negative or positive, so I’m confused. Thanks
Jaiday
in
Pernicious Anaemia Society
3 years ago
vaccination hesitancy
I live in Perth western Australia, and although we had an initial co vid outbreak like most countries our state got on top of it very quickly and we have no cases of covid. Apart from a couple of scares when we went into lockdown for a week when a case escaped quarantine we live life like before this
I live in Perth western Australia, and although we had an initial co vid outbreak like most countries our state got on top of it very quickly and we have no cases of covid. Apart from a couple of scares when we went into lockdown for a week when a case escaped quarantine we live life like before this
paulgf54
in
CLL Support
3 years ago
Hi, is it possible to still have PA even though my parietal cell and intrinsic factor antibody are negative and my b12 is low?
Low b12 and negative parietal cell antibody and intrinsic factor. Can it still be pernicious anaemia
Low b12 and negative parietal cell antibody and intrinsic factor. Can it still be pernicious anaemia
Rocky213
in
Pernicious Anaemia Society
3 years ago
Giving up hope
Morning everyone. This site is like a breath of fresh air. I had a big stomach operation when I was 28. I was told I would have pernicious anaemia because of my intrinsic factor. I had B12 every month and felt fine. About 4 years ago a young doctor told me after my routine annual blood test I didn’t
Morning everyone. This site is like a breath of fresh air. I had a big stomach operation when I was 28. I was told I would have pernicious anaemia because of my intrinsic factor. I had B12 every month and felt fine. About 4 years ago a young doctor told me after my routine annual blood test I didn’t
Hedgehogs15
in
Pernicious Anaemia Society
3 years ago
Is it normal to feel super tired after injection?
Hi guys, I was recently diagnosed with PA following 2 positive intrinsic factor antibody tests. I had my first injection of B12 a couple of days ago and have felt super tired and a bit nauseous since. Now I feel tired anyway most of the time, but its been worse this last couple of days. Is this normal
Hi guys, I was recently diagnosed with PA following 2 positive intrinsic factor antibody tests. I had my first injection of B12 a couple of days ago and have felt super tired and a bit nauseous since. Now I feel tired anyway most of the time, but its been worse this last couple of days. Is this normal
JSD100
in
Pernicious Anaemia Society
3 years ago
Would appreciate any insight on this please. Am a newbie!
Positive for antibodies to Intrinsic Factor, extensive neurological involvement, but high active b12 - can anyone explain the latter? I have been supplementing for years with b12 spray, for years, on advice of functional medicine Dr. Many thanks in advance for your replies.
Positive for antibodies to Intrinsic Factor, extensive neurological involvement, but high active b12 - can anyone explain the latter? I have been supplementing for years with b12 spray, for years, on advice of functional medicine Dr. Many thanks in advance for your replies.
R0llrolls10
in
Pernicious Anaemia Society
3 years ago
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