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Beware of ultrasound treatment for Parkinson’s disease!
I participated in a clinical trial of focused ultrasound treatment for Parkinson’s disease. I was treated at Stanford University hospital. 15 participants were given the treatment, but I was one of the five participants assigned to the placebo group. The assignment was blinded.to participants. In the
I participated in a clinical trial of focused ultrasound treatment for Parkinson’s disease. I was treated at Stanford University hospital. 15 participants were given the treatment, but I was one of the five participants assigned to the placebo group. The assignment was blinded.to participants. In the
Pitchfixer
in
Cure Parkinson's
1 year ago
Annovis Bio Clinical Trials Update . . .
Strong interest being shown in Annovis Bio Parkinsons clinical trials https://stocks.apple.com/A5Vy9P2FBSVmyh_y-Zvz_GQ
Strong interest being shown in Annovis Bio Parkinsons clinical trials https://stocks.apple.com/A5Vy9P2FBSVmyh_y-Zvz_GQ
redhawk1
in
Cure Parkinson's
1 year ago
Clinical trials for AML
Hi. Since I had a abmt in July I have been visiting the hospital 3 times a week. I have become friendly with a couple and the wife who has aml is always needing platelets or something. Her transplant has been put on hold because of her blood levels and sadly their consultant is not being very informative
Hi. Since I had a abmt in July I have been visiting the hospital 3 times a week. I have become friendly with a couple and the wife who has aml is always needing platelets or something. Her transplant has been put on hold because of her blood levels and sadly their consultant is not being very informative
Kraskie1915
in
Leukaemia CARE
1 year ago
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Wondering if i can bear EMDR
I know it's good for ptsd which i have and my therapist suggested it but im not really stable and we both are not sure Been so tired from psychology university and therapy that i slept all day. Again messing up my sleep schedule
I know it's good for ptsd which i have and my therapist suggested it but im not really stable and we both are not sure Been so tired from psychology university and therapy that i slept all day. Again messing up my sleep schedule
Against_the_current
in
Anxiety and Depression Support
1 year ago
Idea for a Clinical Trial : High Dose Thiamine (HDT—B1)
Idea for a Clinical Trial: It is difficult to set up a High Dose Thiamine (HDT—B1) Clinical Trail because dose is variable, unique and the
protocol can take more than six months
(added cost)—So how about a trial where People with Parkinson (PwP) who are successful on a HDT dose, be split into
Idea for a Clinical Trial: It is difficult to set up a High Dose Thiamine (HDT—B1) Clinical Trail because dose is variable, unique and the
protocol can take more than six months
(added cost)—So how about a trial where People with Parkinson (PwP) who are successful on a HDT dose, be split into
Gcf51
in
Cure Parkinson's
1 year ago
lithium
hi I have started in lithium and get my first blood test in 3 days. Should I have been given a pack containing blood record book, leaflet and alert card or so they not do this anymore. Thanks
hi I have started in lithium and get my first blood test in 3 days. Should I have been given a pack containing blood record book, leaflet and alert card or so they not do this anymore. Thanks
onicha
in
NRAS
1 year ago
Mirtazapine 15mg
I was wondering if people could share their views taking Mirtazapine here. I’m 14 nights in taking it and was wondering what experiences of others were like. I was diagnosed with Anxiety, depression and stress. When do you feel the full benefits and what were your experiences. Thanks
I was wondering if people could share their views taking Mirtazapine here. I’m 14 nights in taking it and was wondering what experiences of others were like. I was diagnosed with Anxiety, depression and stress. When do you feel the full benefits and what were your experiences. Thanks
Hope__23
in
Anxiety and Depression Support
1 year ago
BMB in Two Days
I have my bmb scheduled for two days from now. My anxiety is "through the roof". I believe my hematologist originally thought I have ET. I am Calr 1 positive. However, her notes after the last visit state that the results of my bloodwork/tests are "consistent with an MPN, either ET or pre-pmf. Overt
I have my bmb scheduled for two days from now. My anxiety is "through the roof". I believe my hematologist originally thought I have ET. I am Calr 1 positive. However, her notes after the last visit state that the results of my bloodwork/tests are "consistent with an MPN, either ET or pre-pmf. Overt
Mtnlife
in
MPN Voice
1 year ago
😢 postpartum mental health
Evening everyone, I'm so sorry for posting. I desperately need to 'talk'. I have been in tears every night for the past few weeks. I am in tears as we speak. Has anyone had any struggles with postpartum depression? I've struggled massively with it - twice. I have been so poorly at one point several
Evening everyone, I'm so sorry for posting. I desperately need to 'talk'. I have been in tears every night for the past few weeks. I am in tears as we speak. Has anyone had any struggles with postpartum depression? I've struggled massively with it - twice. I have been so poorly at one point several
Positive2022
in
Pregnancy and Parenting Support
1 year ago
Treatment Resistant Major Depressive Disorder: I am proof that there is hope.
I have been horrifically plagued by MDD for over a decade. In my journey I have tried literally every therapy and intervention possible including multiple medications, every psychotherapy possible, residential treatment programs, partial hospitalization plans, intensive outreach programs, TMS, ECT, ketamine
I have been horrifically plagued by MDD for over a decade. In my journey I have tried literally every therapy and intervention possible including multiple medications, every psychotherapy possible, residential treatment programs, partial hospitalization plans, intensive outreach programs, TMS, ECT, ketamine
jnelson66
in
Major Depressive Disorder (MDD) Support
1 year ago
symptoms if TEVA doesn’t agree
hello. Can anyone tell me what symptoms they have had when taking TEVA brand Levothyroxine when it hasn’t agreed with you please? I am currently having heart palpitations particularly at night/or an evening. Burning and pain under arms, across chest and breasts. A constant headache (and I don’t ever
hello. Can anyone tell me what symptoms they have had when taking TEVA brand Levothyroxine when it hasn’t agreed with you please? I am currently having heart palpitations particularly at night/or an evening. Burning and pain under arms, across chest and breasts. A constant headache (and I don’t ever
Goinginsane1
in
Thyroid UK
2 years ago
Annovis Bio Buntanetap: Excellent Phase 2 Trial Results, Phase 3 Trial Now Enrolling
Buntanetap Is a small molecule that crosses the blood brain barrier and reduces the production of alpha synuclein. No adverse effects were observed in the recent Phase 2 trial: https://link.springer.com/article/10.14283/jpad.2022.84 "Buntanetap was safe and well-tolerated in both patient populations
Buntanetap Is a small molecule that crosses the blood brain barrier and reduces the production of alpha synuclein. No adverse effects were observed in the recent Phase 2 trial: https://link.springer.com/article/10.14283/jpad.2022.84 "Buntanetap was safe and well-tolerated in both patient populations
park_bear
in
Cure Parkinson's
1 year ago
What are your thoughts on RELYVRIO previously known as AMX0035? Could it benefit PD patients as well?
Amylyx Pharmaceuticals Announces FDA Approval of RELYVRIO™ for the Treatment of ALS (September 29, 2022). AMX0035 is a Fixed Combination of Phenylbutyrate (PB) and
Tauroursodeoxycholic Acid (TUDCA)
. Many studies showed TUDCA is beneficial for PD. RELYVRIO (previously known as AMX0035 in the
Amylyx Pharmaceuticals Announces FDA Approval of RELYVRIO™ for the Treatment of ALS (September 29, 2022). AMX0035 is a Fixed Combination of Phenylbutyrate (PB) and
Tauroursodeoxycholic Acid (TUDCA)
. Many studies showed TUDCA is beneficial for PD. RELYVRIO (previously known as AMX0035 in the
Hidden
in
Cure Parkinson's
1 year ago
Looking for cycle buddies 👋🏻 day 7 downregging, cycle 6
Hello, well here we go again… cycle 6 (our second attempt at a sibling for my 2 year old conceived through our 4th attempt). I’ve just finished first week of buserelin injections. As always it’s giving me massive waves of anxiety. This time the anxiety and low mood hit quite a few days later than the
Hello, well here we go again… cycle 6 (our second attempt at a sibling for my 2 year old conceived through our 4th attempt). I’ve just finished first week of buserelin injections. As always it’s giving me massive waves of anxiety. This time the anxiety and low mood hit quite a few days later than the
lmno
in
Fertility Network UK
1 year ago
sensitive post about early loss
Hello all I had been elated that after our third frozen transfer I had a positive pregnancy result and a heart beat at 7 weeks. At an early reassurance scan this wknd no heart beat was found. I should be 11w5days but foetus measured 10weeks and no heartbeat. They’ve booked me an appointment with
Hello all I had been elated that after our third frozen transfer I had a positive pregnancy result and a heart beat at 7 weeks. At an early reassurance scan this wknd no heart beat was found. I should be 11w5days but foetus measured 10weeks and no heartbeat. They’ve booked me an appointment with
ShelleyBalders
in
Fertility Network UK
1 year ago
Re-Admitted to MBU
I was posting earlier this month about how I was getting these deep depressive lows that felt unbearable. I had postnatal psychosis/a manic episode in the summer. My community team felt that an inpatient stay would help me and the doctors find a treatment plan. They have said I need to be in for three
I was posting earlier this month about how I was getting these deep depressive lows that felt unbearable. I had postnatal psychosis/a manic episode in the summer. My community team felt that an inpatient stay would help me and the doctors find a treatment plan. They have said I need to be in for three
MotherOfBears
in
Action on Postpartum Psychosis
1 year ago
Not sure how I will cope.
Hi everyone. I have recently been diagnosed with early on set glaucoma at 38 with currently no visual loss. I am absolutely petrified of what the future holds, I know I'm alright for a few years yet but realistically what is my quality of life going to be like when I'm older.If life gets too bad I'm
Hi everyone. I have recently been diagnosed with early on set glaucoma at 38 with currently no visual loss. I am absolutely petrified of what the future holds, I know I'm alright for a few years yet but realistically what is my quality of life going to be like when I'm older.If life gets too bad I'm
Hello12345q
in
Glaucoma UK
2 years ago
Low mood
Sadness i changed medication from 150mg sertraline to 20mg of citalopram one week ago feel dreadful crying everyday feeling suicidal seeing gp on monday what should i do this has been my worst.
Sadness i changed medication from 150mg sertraline to 20mg of citalopram one week ago feel dreadful crying everyday feeling suicidal seeing gp on monday what should i do this has been my worst.
Bumblebee288
in
Anxiety and Depression Support
1 year ago
Smooth muscle antibody test positive?
Hi there, I have Hashimoto’s and been struggling since June with hyper symptoms, with drops of medication slowly starting to feel better, aside from that my doctor called me today and said he did an Sma test and said it was positive, he said it can happen people with other auto immune illnesses. Apparently
Hi there, I have Hashimoto’s and been struggling since June with hyper symptoms, with drops of medication slowly starting to feel better, aside from that my doctor called me today and said he did an Sma test and said it was positive, he said it can happen people with other auto immune illnesses. Apparently
Dollc86
in
Thyroid UK
2 years ago
Tear duct infection
Has anyone else suffered from recurring infections in the tear duct? If so, do you have any tips for reducing the soreness and discomfort while I am waiting for the antibiotics to do their thing?
Has anyone else suffered from recurring infections in the tear duct? If so, do you have any tips for reducing the soreness and discomfort while I am waiting for the antibiotics to do their thing?
Longwalks3
in
Glaucoma UK
2 years ago
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