Experiences with

Chronic kidney disease (CKD)

So after 4.5 years in Nigeria and an APS diagnosis in summer 2020 I’m coming back to the U.K. In many ways I’m looking forward to it and I know my consultants - all 3 of them - will be much more comfortable with me being near better medical care (APS, warfarin and epilepsy are not a good combination

I am really unwell right now an loosing the will to carry on. Know I should seek some medical help but who do I go to for help? Honestly, over the past 18 months I have had to fight to get the help I needed via the NHS. What a battle that was. Last week, had severe palpitations lasting 6 hours which

Hi please can you tell me how much biotin would affect blood test results. I am waiting for a doctors appointment , they have told me it will be between 2 and 4 weeks, but could be sooner. I am currently taking B complex supplement which contains biotin. I know the guideline is don't take for 7 days.

I have an amazing ability to pick relevant podcasts while driving. Just had my blood work done in preparation of starting Pluvicto and not being able to choose wisely while driving I picked this podcast which i have heard before and have even advocated on this forum before. Dr Chetty is so brilliant

CKD patients on dialysis are four times more likely to experience depression than the general public. A new study is hoping to change this by testing treatment options. Learn more. https://www.kidney.org/newsletter/kidney-commute-ce-study-guide-depression-and-dialysis

Thank you everyone for the goodwill and empathy of this community. I’ve had two ablations (cryoablation, and RF). After a year living symptom free, AF episodes have recurred. However, following , two reversions to NSR via Flecainide and Bisoprolol as a ‘pill in the pocket’ intervention, it’s not

Hi all, I was diagnosed with lone AF in 2020. I think most of you are familiar with my story.My episodes (very symptomatic) were about every 4 months lasting up to 36 hours before reverting back to NSR. I have started to have them more frequently so went for an ablation which was scheduled for this week

Good evening everyone, I’m really struggling after my catheter ablation 10 days ago. The palpitations and ectopics I’m experiencing are awful. So different to the palpitations I was having before my ablation. They are very erratic. I have Dilated Cardiomyopathy and AVNRT. I know it’s early days

Hello, Just had my cholesterol results back and they are quite elevated. Just wondering whether anyone else has elevated Cholesterol and just taking Aspirin watch and wait? Fortunately my Triglycerides are good. I tried Atorvastatin in 2018 but had to stop after 6m due to severe muscle aches. No

Hi all. Just had a horrible weekend , fast irregular heart rate, lasted over 1 hour . Of course it had stopped by the time I was monitored, so they didn't really have any record . Spent 2 nights in EAU wired up , lots of ecgs bloods etc. They reassured me it wasn't a heart attack . The flutters continued

l am wondering if ckd is in the cancer family or is it a separate disease?curious.

I could really use some help with shopping & preparing CKD specific meals. However I'm having quite the dilemma right now.

After a cardio version does anyone still stay on bisoprolol . Paul is on 2.5 mg now but his heart rate is averaging mid to late fifties . I’m just wondering if he needs to be on a lower dose or it’s ok as his heart is resting . His walking average on his watch is 75 which is great compared to mid 100s

) per 1.73 square metres 71 mL/min/1.73m2; Urine ACR should be checked on at least an annual basisfor all individuals with CKD.

I find this problem with af quite confusing.. My Heart and coronary arteries fine. Do not have heart failure but am now in af most of the time after two periods of several days in hospital with racing heart they had difficulty in bringing down. Pace maker regulating this now. I have a hemi block

Hello fellow fighters of CKD. I am now stage 3 again (eGFR 57, Creatinine 91) having managed to climb up to stage 4 and stayed there over the last 4 years through changes in diet and exercise.

I take 25 mg of Metropolo twice a day! I get short of breath when I do house work , my heart rate is in the 90's because I am in AFIB all the time! They are trying to control my blood pressure and pulse with this medication ! Does other people have this problem?

I thought the cardio version last episode would have been the end to this. But nope , like clockwork I was due. I have been journaling and keep track of how I feel. I usually see a dip in HR a few days to a week before ba episode. I seem to have them every 6/8 weeks with one exception in last year of

Hi, grateful if people can throw some light please? My bloods (previously posted here) point to hypo BUT I don’t have the slow pulse and if anything it races in the mornings before I get out of bed. Also races when I do very little though think that’s because I’m so exhausted! I have a list of symptoms

I have recently been prescribed oral acetylcysteine as a mucolytic. Does anyone have any experience with this? I am unsure how having a greater volume of mucus to cough up will help me, and the drug information leaflet says it should not be used with bronchial asthma as it can cause bronchospasms