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Chronic kidney disease (CKD)
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PMR and CK
I have GCA but am now off prednisone completely. However, am now having pain: shoulder, knees, thighs. Rheumy watching and sorting out PMR vs. medication induced ( from zetia a non statin cholesterol medication known to cause muscle pain) ( I had to go off statins because of severe muscle pain and elevated.CK
I have GCA but am now off prednisone completely. However, am now having pain: shoulder, knees, thighs. Rheumy watching and sorting out PMR vs. medication induced ( from zetia a non statin cholesterol medication known to cause muscle pain) ( I had to go off statins because of severe muscle pain and elevated.CK
Cobalt2sister
in
PMRGCAuk
10 months ago
advice and similar experiences request ckd stage 5
he is 67, Indian , suffering from diabetes , thyroid , blood pressure and
ckd
stage 5. his gfr and creatinine are around 7. He is currently on medication. he is weak and under weight. Currently following renal diet.
he is 67, Indian , suffering from diabetes , thyroid , blood pressure and
ckd
stage 5. his gfr and creatinine are around 7. He is currently on medication. he is weak and under weight. Currently following renal diet.
VindevT
in
Kidney Disease
2 years ago
Afib and Bradycardia
Thank you all for you help on my last post I've had my medication dropped to 3.75 I'm having the ecg fitted Saturday for 3 to 4 days and seeing cardiologist on the 17th
Thank you all for you help on my last post I've had my medication dropped to 3.75 I'm having the ecg fitted Saturday for 3 to 4 days and seeing cardiologist on the 17th
Corrie12
in
AF Association
1 year ago
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Afib and bradcardia
I was diagnosed with afib just over a month ago but I'm still having a lot of issues I'm having a portable ECG fitted on Saturday then two weeks later I'm seeing the cardiologist team I'm having problems not only with my heart rate going super high, andcontinuously all throughout the day going down
I was diagnosed with afib just over a month ago but I'm still having a lot of issues I'm having a portable ECG fitted on Saturday then two weeks later I'm seeing the cardiologist team I'm having problems not only with my heart rate going super high, andcontinuously all throughout the day going down
Corrie12
in
AF Association
1 year ago
Pudendal nerve pain and cbd
Hi Pudendal nerve pain sufferers. Has anyone ever tried cbd oil to relieve pain? Did it help? Would be great to know if this does work. Thanks xx
Hi Pudendal nerve pain sufferers. Has anyone ever tried cbd oil to relieve pain? Did it help? Would be great to know if this does work. Thanks xx
hoopwhirl2007
in
Pelvic Pain Support Network
1 year ago
Change of medication
Had AF for years well controlled on Flecainide New arrhythmic developed so Must stop Flec & start Digoxin. Has anyone experience of this please. I take Bisoprolol which has been increased to 5mg am & pm. Am apprehensive as have been stable for a long time. Would appreciate help. Thanks ☺️
Had AF for years well controlled on Flecainide New arrhythmic developed so Must stop Flec & start Digoxin. Has anyone experience of this please. I take Bisoprolol which has been increased to 5mg am & pm. Am apprehensive as have been stable for a long time. Would appreciate help. Thanks ☺️
Koladog
in
Atrial Fibrillation Support
1 year ago
New here - matazapine not working
Hi all, new to the forum hoping to get some advice. Been struggling with sleep for the past 5 months literally came out of nowhere, I've not slept right through for months. I saw my g.p who prescribed low dose zopiclone which didn't work. I've also tried cbd oil, nytol, and other over the counter meds
Hi all, new to the forum hoping to get some advice. Been struggling with sleep for the past 5 months literally came out of nowhere, I've not slept right through for months. I saw my g.p who prescribed low dose zopiclone which didn't work. I've also tried cbd oil, nytol, and other over the counter meds
mo222
in
Sleep Matters
1 year ago
Damage to eyes and ckd
Hi everyone
My Dad who is 75 has just entered stage 5
and over the last few months his eyesight has deteriorated rapidly. It started with him struggling with small print followed by seeing all vertical lines as wavy.
Hi everyone
My Dad who is 75 has just entered stage 5
and over the last few months his eyesight has deteriorated rapidly. It started with him struggling with small print followed by seeing all vertical lines as wavy.
NICOLETTE2020
in
Kidney Disease
2 years ago
Bisoprolol alternative to avoid cold extremities
Afternoon all, Despite 2 ablations my AFib episodes returned a year ago. Bisoprolol and flecainide seem to control it well, but I really struggled this winter with cold extremities. Despite plenty of layers, woollen socks, thick long skiing gloves I still have very cold fingers and toes. I tried
Afternoon all, Despite 2 ablations my AFib episodes returned a year ago. Bisoprolol and flecainide seem to control it well, but I really struggled this winter with cold extremities. Despite plenty of layers, woollen socks, thick long skiing gloves I still have very cold fingers and toes. I tried
kitenski
in
AF Association
1 year ago
advice please
H I have been referred to the arthymia clinic 5 month ago, still heard nothing back about an appt. Was also referred 3 years ago, again never heard back for an appt. Would just like some advice My heart was struggling to beat, had chest pains and couldn't walk from one room to another without feeling
H I have been referred to the arthymia clinic 5 month ago, still heard nothing back about an appt. Was also referred 3 years ago, again never heard back for an appt. Would just like some advice My heart was struggling to beat, had chest pains and couldn't walk from one room to another without feeling
Hidden
in
AF Association
1 year ago
Being off eliquis for surgery
how is being off Eliquis for 3 days handled for pacemaker battery change. Is another drug used to prevent stroke possibility? How challenging is it to have the PM battery changed? I have AF & Arterial Flutter. I am mildly symptomatic. I'm on Eliquis 5 mg twice a day. I had an ixchemic stroke October
how is being off Eliquis for 3 days handled for pacemaker battery change. Is another drug used to prevent stroke possibility? How challenging is it to have the PM battery changed? I have AF & Arterial Flutter. I am mildly symptomatic. I'm on Eliquis 5 mg twice a day. I had an ixchemic stroke October
leftythecat
in
AF Association
1 year ago
PMR without steroids?
Hubby (55) was just diagnosed with PMR that we suspect he's had for about two years. He'd like to try and work through it without taking prednisone since every post we read is about people trying to get off of it. Do you think it's possible to manage the pain with other means and methods long enough
Hubby (55) was just diagnosed with PMR that we suspect he's had for about two years. He'd like to try and work through it without taking prednisone since every post we read is about people trying to get off of it. Do you think it's possible to manage the pain with other means and methods long enough
Hidden
in
PMRGCAuk
1 year ago
Dad - CBD
So the last few days my dad has been poorly. His breathing hasn't been very good and he has been making awful noises. He is now struggling to swallow so sits with food in his mouth (he is on a puree diet) and is quite dribbly. When my mum does get him to eat it is usually no more than a couple of teaspoons
So the last few days my dad has been poorly. His breathing hasn't been very good and he has been making awful noises. He is now struggling to swallow so sits with food in his mouth (he is on a puree diet) and is quite dribbly. When my mum does get him to eat it is usually no more than a couple of teaspoons
Stormtrooper4
in
PSP Association
1 year ago
Physio and CBD
hi. My mum (81) has CBD, diagnosed December 2019 but had symptoms for about 3/4 years before. Due to lockdown and other circumstances, she’s just started to see a neuro physio. Her right arm is the ‘alien limb’ and mum hasn’t been able to do anything with it really but the physio wanted her to try and
hi. My mum (81) has CBD, diagnosed December 2019 but had symptoms for about 3/4 years before. Due to lockdown and other circumstances, she’s just started to see a neuro physio. Her right arm is the ‘alien limb’ and mum hasn’t been able to do anything with it really but the physio wanted her to try and
Daffodil41
in
PSP Association
1 year ago
C25K - Target Pace?
After a false start a couple of years ago I have recently completed a c25k program. I was prompted to try it and get fit after a 'minor' heart attack in 2020 when I was 61, but I felt very vulnerable and frankly was scared of trying it. Jump forward a couple of years to 2023 and after a period of
After a false start a couple of years ago I have recently completed a c25k program. I was prompted to try it and get fit after a 'minor' heart attack in 2020 when I was 61, but I felt very vulnerable and frankly was scared of trying it. Jump forward a couple of years to 2023 and after a period of
TimCx
in
Couch to 5K
1 year ago
Monday due to have exercise MRI
I had a heart attach 7.5 years ago. Now having had an episode of severe chest pain and a two night hospital stay - no troponin increase or iffy ecg, I’ve got to have a stress MRY on Monday and I’m absolutely terrified. Has anyone on here had one?
I had a heart attach 7.5 years ago. Now having had an episode of severe chest pain and a two night hospital stay - no troponin increase or iffy ecg, I’ve got to have a stress MRY on Monday and I’m absolutely terrified. Has anyone on here had one?
jo0267
in
Sudden Cardiac Arrest & Heart Attack
1 year ago
Uveitis treatment opinion please
I have been an intermediate uveitis patient ( vasculitis of the eye) for about 18 months now. Have had several steroid implants in the eye and has been on methotexrate injections for 6 months now. But the oedema due to vasculitis is coming back repeatedly. So seems like I have 2 options now in terms
I have been an intermediate uveitis patient ( vasculitis of the eye) for about 18 months now. Have had several steroid implants in the eye and has been on methotexrate injections for 6 months now. But the oedema due to vasculitis is coming back repeatedly. So seems like I have 2 options now in terms
Udupik
in
Vasculitis UK
1 year ago
A Sneak Peek Into The 2023 Ice Cream Challenge for PSP & CBD
In time for Valentine's Day. Milk chocolate heart bowl line filled with white chocolate, whipped cream, milk and white chocolate hearts, two scoops of strawberry ice cream, freshly sliced strawberries, strawberry sauce with chocolate dipped strawberries.
In time for Valentine's Day. Milk chocolate heart bowl line filled with white chocolate, whipped cream, milk and white chocolate hearts, two scoops of strawberry ice cream, freshly sliced strawberries, strawberry sauce with chocolate dipped strawberries.
daddyt
in
PSP Association
1 year ago
Does anyone with CKD have any experience with Circle of Care phone calls? They say they are part of my drs medical group, but they arent.
My husband thinks it's a scam. They said my dr signed me up, my drs ofc say they never heard of them. I told them to quit calling me. They said they are a medicare program and the only way I can get out of it is to quit Medicare. Say what, that sounds like communism.
My husband thinks it's a scam. They said my dr signed me up, my drs ofc say they never heard of them. I told them to quit calling me. They said they are a medicare program and the only way I can get out of it is to quit Medicare. Say what, that sounds like communism.
chicablue
in
Kidney Disease
1 year ago
Supplement Reverses Hallmarks Of Old Age And Promotes Healthier Aging
Good Morning All, I thought this may be of interest to some or many. The supplement "Glynac" (combination of Glycine and N-acetylcysteine) showed after 16 weeks of participants taking doses of 100 mg/kg/d each of glycine and NAC, was associated with a host of benefits for key hallmarks of aging and
Good Morning All, I thought this may be of interest to some or many. The supplement "Glynac" (combination of Glycine and N-acetylcysteine) showed after 16 weeks of participants taking doses of 100 mg/kg/d each of glycine and NAC, was associated with a host of benefits for key hallmarks of aging and
Baron1
in
Cure Parkinson's
1 year ago
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